
ch88
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ch88
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I don't think anyone knows for sure. It is thought that there are lots of different ways gluten can effect the brain. Some of these are nutritional related and other are autoimmune related. The brain is super super complex. Interesting that you say you couldn't remember faces in particular. I could remember faces before I went gluten free. Autism...
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ARCHIVED Reaction to smells and anxiety
ch88 replied to AAtroposP71's topic in Coping with Celiac Disease
I can handle gluten and smell gluten and it doesn't give anxiety. I used to be much more worried about what I ate and cross contamination than I am now. I am still careful and read every ingredient list, but it isn't something I worry about or even think much about. The bodies immune system can wind up and wind down. Some people can get away with a single... -
Have you gotten tests for other types of auotimmune disorders , vitamin deficiencies, or done any elimination diet? That might be something to talk to your doctor about. If the intestine is damaged it can cause other food intolerances.
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i can relate to a lot of what you said. When before I went gluten free I was very different. Anger was also large part of that. I didn't think of myself as being an angry person, but i tended to experience multiple emotions and once. This is common with people with alexithymia. I had a poor perception on things. i didn't think that anger was a big part...
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ARCHIVED Biopsy
ch88 replied to ritamichelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is a lot of information on site about living with Celiac disease. A good idea is to take a look at the "coping with" section and the "newbie info 101" thread. There is a lot of good information about cross contamination and proper nutrition. -
ARCHIVED Biopsy
ch88 replied to ritamichelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is a good choice. That way you can have an official diagnosis. I regret not getting a blood test as it would have made explaining things to people around me a lot simpler. It is common for family members and other people not to understand celiac disease and to think that it is a eating disorder or that is is all in the head. That would have made... -
ARCHIVED The daily roller coaster ride
ch88 replied to AAtroposP71's topic in Coping with Celiac Disease
I have tried removing nightshades and I don't think they effect me much. With some experimenting I have figured out how to successfully lower my uric acid blood levels and control my gout. Gout is one form of arthritis that is caused by diet in most cases and can be controlled by limiting alcohol, high purine foods and fructose. -
ARCHIVED Biopsy
ch88 replied to ritamichelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, I didn't get a endoscopy or even a blood test. I got digestive as well as other problems though on a number of occasions after being gluten free and accidentally eating something with gluten. My symptoms were severe and dramatic so it was obvious to me that I had celaic disease. I would ask the doctor what the endoscopy test is for and if there... -
ARCHIVED Biopsy
ch88 replied to ritamichelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me personally a medium result, in that situation, would be enough to convince me that I had celiac disease. Probably the standard of care is to also get a biopsy. Going gluten free is difficult so some people want to do all the tests they can so they can make the best choice. Generally more testing is thought of as providing better patient care. I think... -
ARCHIVED The daily roller coaster ride
ch88 replied to AAtroposP71's topic in Coping with Celiac Disease
I have been eating dark chocolate bars as well as cocoa powder. Both are highly processed (this is an exception to the no processed food rule) which I am sure removes a lot of the nutrients. I might try the nibs as I am sure they are more nutritious and they look really good. I am suspicious of using hemp, for myself, but it is interesting that chocolate... -
You could try removing all grain and dairy and see if that helps. Processed foods can have cross contamination. Lactose intolerance is common with celiac disease. Fruits are high in fructose and it can be difficult for some people to digest fructose if they have digestive problems. Vegetables are healthy and nutritious.
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ARCHIVED The daily roller coaster ride
ch88 replied to AAtroposP71's topic in Coping with Celiac Disease
I don't know for sure but if you have a emotional roller coaster it may be do to food sensitivities. The pattern however may be difficult to figure out. I also removed all grains and milk from my diet. I limit my fruit and fructose consumption (fructose binds with tryptophan in the gut) and don't eat processed food. That might be something you could try... -
From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders...
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ARCHIVED Desperately need help - symptoms baffling everybody
ch88 replied to mikehall117's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gluten can cause the mental symptoms. There is a strong link or cross reaction between gluten/the brain, dairy/the brain, and dairy/gluten. Open Original Shared Link Some other foods like oats, corn and soy may also be cross-reactive with celiac disease.- 7 replies
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Gluten withdrawl is common. Four days is not enough to tell if the diet works. I would wait a few weeks at least. A lot of people with celiac diease also have to give up oats, dairy, corn and a few other foods that also effect them mentally.
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Here is some information that people might find helpful in relationship between brain health and food. Milk intolerance is a common problem with celiac disease. This could be because wheat damages the intestine which makes it harder to digest milk. If a milk sensitivity is merely and intolerance it probably isn't a big deal. If milk is triggering...
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ARCHIVED Please Help My Sister By Sharing Your Story
ch88 replied to revenant's topic in Coping with Celiac Disease
I am now gluten and night shade free. I used to have extreme anxiety and social phobia and was rather psychotic, now I enjoy being around people and am very calm. Gluten was the big change, and I think eliminating night shades has also helped. The amount of change that I experienced was extreme. Keep in mind that it can take a long time of being 10... -
I also asked some people on a diabetes forum. They said that it was most likely my spike in blood sugar in the morning was something called the "dawn phenomena" and that it did not necessarily mean that I am diabetic or pre-diabetic. I was getting reading from 145 to 110 in the morning. My bloods sugar before dinner is always within the 90 to 105 range...
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I have been getting some high blood sugar readings in the morning and some anxiety. People with Celiac are more likely to get T1 diabetes. I am confident that I am not getting cross contaminated, but I might have another food sensitivity besides gluten. Has anyone else had problems with there blood sugar without diabetes? I am wondering if I have problems...
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Another link: Open Original Shared Link
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Thanks for posting. I know it is difficult to talk about these sorts of things even on a webforum. It is good thing for people to be aware though about celiac disease and that it can cause mental problems. Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive...
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ARCHIVED Will My Chronic Insomnia Improve or No?
ch88 replied to zenjess1980's topic in Related Issues & Disorders
You might try going dairy free also...some people say it effects there sleep. I'd stick with the diet as it could take a long time. -
ARCHIVED Will I Hurt My Baby If I Cheat?
ch88 replied to darkhorse's topic in Related Issues & Disorders
Celiac disease is an auto-immune disorder (where the body attacks itself) triggered but eating gluten. If you have any symptoms after eating gluten this could mean you have celiac disease. Many people with celiac disease cant digest milk. Oats and other processed foods are also problematic for a lot of people with celiac disease. I don't know if... -
ARCHIVED Gluten / Dairy Sensitivity Questions
ch88 replied to paytong's topic in Coping with Celiac Disease
- How do you get the carbs you need for energy now that most ways I had in the past I cannot do? I eat lots of brown rice. - How do you know if it's just the withdrawal symptoms from not eating gluten versus other sensitivities? I'd get tested for celiac disease (its a blood test.) and you have to get it before you go gluten free. -...