knitty kitty
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Celiac.com Forum Moderator
There is no wealth like knowledge.
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Wends reacted to a post in a topic:
Inconclusive results
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Potential celiac need advice
knitty kitty replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you tried a genetic test to look for Celiac genes? No gluten challenge required. -
Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet? A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies. Are you Celiac as well? Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine...
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Inconclusive results
knitty kitty replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't skimp on the gluten daily while undergoing the gluten challenge! -
Celiac or not??
knitty kitty replied to Jades Journey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Jades Journey, Were you eating a sufficient amount of gluten every day in the weeks prior to testing? Ten grams of gluten per day for a minimum of two weeks is required to get the antibody levels high enough to leave the intestines (where they are made) and get into the blood stream (where they can be measured). -
Look at the ingredients. Thiamine Mononitrate is in that ingredients list.
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Peripheral neuropathy (nerve pain iincluding numbness, tingling, buzzing in the feet or hands) can be caused by deficiencies in several vitamins, not just B 12 Cobalamine. Thiamine B 1, Pyridoxine B 6, and Riboflavin B 2, zinc, magnesium and calcium are also needed to work with B12. With Celiac Disease, the absorption of all the micronutrients are...
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Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured. The blood circulation system is...
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knitty kitty reacted to a post in a topic:
Draft gluten-free ciders… can they be trusted ?
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Xravith reacted to a post in a topic:
Taking Probiotics but Still Getting Sick After Gluten – Advice?
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Medication
knitty kitty replied to Julie 911's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12. The combination of these three vitamins has analgesic effects. I have back pain and this really works. The B vitamins are water soluble and easily excreted. Hope this helps! Keep us posted on your results! -
Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins...
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Beverage reacted to a post in a topic:
How long does it take to gain weight?
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Beverage reacted to a post in a topic:
How long does it take to gain weight?
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knitty kitty reacted to a post in a topic:
Unusual bright yellow but odourless discharge
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Mari reacted to a post in a topic:
Major Glutening
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petitojou reacted to a post in a topic:
How long does it take to gain weight?
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petitojou reacted to a post in a topic:
How long does it take to gain weight?
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knitty kitty reacted to a post in a topic:
Diagnosed celiac for 1-2 months ago and everything makes me bloated.
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Beverage reacted to a post in a topic:
Major Glutening
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knitty kitty reacted to a post in a topic:
How long does it take to gain weight?
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Yes, I, too, have osteoporosis from years of malabsorption, too. Thiamine and magnesium are what keep the calcium in place in the bones. If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer. We need more than just calcium and Vitamin D for strong bones. Riboflavin B 2, Folate B 9 and Pyridoxine...
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Celiac50 reacted to a post in a topic:
Unusual bright yellow but odourless discharge
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Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates...
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knitty kitty reacted to a post in a topic:
How long does it take to gain weight?
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Welcome to the forum, @petitojou! I lost a lot of weight, too. I found that I was low in the B vitamins and other essential nutrients. Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate. Doctors are not familiar with vitamin deficiency symptoms any more. Low thiamine can cause fatigue, muscle weakness, nausea...
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Aveeno products
knitty kitty replied to NicoleSR's topic in Gluten-Free Foods, Products, Shopping & Medications
I used Aveeno products for years and had to stop using it because my skin problems got worse. I do have Dermatitis Herpetiformis. Not all people with Celiac react to oats. I use tallow balm. People have been using it for thousands of years. Tallow balm is better absorbed that plant fats. There's also tallow balm soap. My favorite brand... -
Having a RAVENOUS appetite (or conversely no appetite at all - anorexia) and unintended weight loss are symptoms of early thiamine deficiency. People who are physically active, athletes, physical laborers, those who exercise outside regularly have a higher metabolic need for thiamine. Exercising outside regularly can cause more thiamine loss because...
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@Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K. Vitamin A toxicity does not cause Celiac disease. Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation. Fish contains...