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knitty kitty

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knitty kitty last won the day on January 30

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About Me

Celiac.com Forum Moderator

There is no wealth like knowledge.

No poverty like ignorance.  

 

  1. Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin...
  2. @Kate Murray, I sympathise wholeheartedly. I was as sensitive as you describe your daughter to be. I found the Autoimmune Protocol Diet most helpful. The Autoimmune Protocol diet (AIP diet) was designed by a doctor, Dr. Sarah Ballentyne, a Celiac herself. The Low Histamine AIP diet really helped improve my gut health. Foods that are difficult...
  3. @Kate Murray, What did the doctors prescribe for your daughter's elevated tryptase? Antihistamines? Steroids? Is your daughter following a low histamine diet like the Autoimmune Protocol diet (Dr. Sarah Ballantyne)? Does she still eat processed foods? Dairy?
  4. @Kate Murray, Has your daughter been checked for nutritional deficiencies? Low Vitamin D and low Thiamine can contribute to MCAS. Vitamin D levels should be between 70 and100 ng/mL . Is she following a low histamine diet? https://pmc.ncbi.nlm.nih.gov/articles/PMC10672129/ P.S. Can you share with us the "hidden gluten" sources...
  5. Mayonnaise is high in Histamine. Histamine Intolerance (HIT) frequently occurs in Celiac Disease. Histamine release is part of the immune response in Celiac Disease or any infection. Histamine Intolerance has symptoms similar to being glutened. Histamine Intolerance occurs when our bodies become overwhelmed by histamine. Our body makes histamine...
  6. Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin...
  7. Hi, @Sicilygirl, I had lost a great amount of weight, felt depressed, and had no appetite early on. I found that taking Thiamine in the form Benfotiamine extremely helpful. Doctors routinely check B12 and Vitamin D, but they fail to test for deficiencies in other B vitamins like Thiamine, because blood tests for other vitamins are not accurate...
  8. Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery. The gallbladder uses lots of thiamine vitamin b1 to function. The gallbladder cannot secrete bile if it doesn't have sufficient thiamine. Thiamine provides our muscles and glands energy to move and secrete needed enzymes...
  9. Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? ...
  10. @SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential...
  11. @LoSmith, I understand, being on the spectrum myself. Please look into the work of Dr. Derrick Lonsdale and Dr. Chandler Marrs. https://hormonesmatter.com/add-adhd-common-problems-modern-childhood/ Thiamine helps immensely.
  12. @Matt13 I understand where you're coming from. Seemed I was reacting to all sorts of foods there for a while, but a low histamine Paleo diet really helps. We make histamine in our bodies as a useful neurotransmitter (causing alertness), and also as a response in the immune system. Histamine is made and released by Mast Cells. Mast Cells can...
  13. Welcome, @Morgan Tiernan, The best thing to clear my dermatitis herpetiformis is to take Niacin, Vitamin B 3, the form called nicotine acid, the kind that causes flushing of the skin. Flushing Niacin clears my skin quickly. Yes, the flushing might seem really strange, but it opens the tiny capillaries in the surface of the skin which helps remove...
  14. It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another. If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on. They're just not ready to learn that lesson...
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