knitty kitty
-
Posts
3,778 -
Joined
-
Last visited
-
Days Won
180
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by knitty kitty
-
Diagnosed Marsh stage 3C in January 2026
knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
Yes, that's the one I was referring to! Good for you, being proactive! -
Diagnosed Marsh stage 3C in January 2026
knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
@Known1, I understand you have had your B12, Folate B 9, and Vitamin D level checked. However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently. Results can take a long time to get back, delaying proper treatment and risking permanent... -
Lubriderm-gluten-free?
knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
@Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation. I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread. Thanks -
@Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient...
-
Lubriderm-gluten-free?
knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Good morning, @Known1, When new to Celiac disease, It's extremely easy to blame all reactions on gluten contamination in products. Be aware that Celiac disease causes a state of hyper vigilance of our immune system. Our over stimulated immune system can react to chemicals in products and foods that normally are tolerable. Bananas contain... -
@catnapt, You would do well to get a DNA test done. You could be seronegative Celiac.
-
Discuss them with your doctor and dietician.
-
Yes, that's the same dismissive medical professional attitude I encountered. Too bad.
-
@catnapt, I suspect you may have developed a subclinical thiamine deficiency while on your SSRI and the handful of medications you mentioned years ago. Subclinical thiamine deficiency can linger for years. In thiamine deficiency, an influx of simple carbohydrates, as is found in gluten containing products, will prompt a sudden decrease in thiamine...
-
@catnapt, You can still have a DNA test to look for Celiac genes. If you don't have any genes that are known to be related to Celiac then they need to look for a different reason you're sick. You can have the genes for Celiac without the genes being activated. There needs to be a stressor that turns them on for active Celiac Disease. I...
-
Hello, @Jmartes71, Elevated ketones are found in Thiamine B 1 deficiency. Are you eating a low carbohydrate diet? I had horrible skin problems. I had Dermatitis Herpetiformis which is found with Celiac Disease. I also had Niacin B 3 deficiency which causes Pellagra. Pellagra means "toad skin" in Latin. Have you been checked for nutritional...
-
@catnapt, You're right. Adding beans to your diet is a very healthy way to eat. Legumes have about half the amount of phyates as is found in wheat germ. The lectins in legumes are inactivated by soaking and cooking. Phytates in wheat germ are heat resistant, whilst lectins in wheat germ are more heat resistant than lectins in legumes. You said...
-
My health declined when I was taking an SSRI. I learned that certain drugs can cause Thiamine deficiency. SSRI's are one of those drugs. Depression is a symptom of Thiamine deficiency. It's also a symptom of Vitamin D deficiency. I was eating the Standard American Diet at the time, which is a diet that causes High Calorie Malnutrition. Consuming...
-
Diagnosed Marsh stage 3C in January 2026
knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
Hi, @Known1, Did they check for anemia? Anemia can make you feel frozen on a summer's day. Anemia in men is often overlooked. Iron can be low with Celiac. How was your B12 level? I loved touring I-90 and I-80. Beautiful country. -
Hi, @Known1, welcome to the tribe! I highly recommend bumping up your dose of Vitamin D. I took small doses throughout the day to give my body more opportunity to absorb it. I ate those like m&ms. I was taking above 10,000 IU a day. My Vitamin D level was in the single digits though. Correcting deficiencies as quickly as possible is really beneficial...
-
@catnapt, Thank you. I'm very thankful I can make a constructive contribution. I found my tribe here. But I think you're full of beans! Not figuratively, but literally. Beans, legumes, brown rice and oats are high in phosphorus. A diet high in phosphorus causes Secondary Hyperparathyroidism. There's a balance between phosphorus and...
-
Yes, I do have Celiac disease. I had symptoms since infancy, but they were explained away as character flaws. I was told my stomach aches were faked to avoid going to school and other responsibilities, or to spoil family fun, and that my Dermatitis Herpetiformis was caused by being dirty and not bathing properly. I wasn't diagnosed with Celiac until...
-
Yes, I do have Celiac disease. I had symptoms since infancy, but they were explained away as character flaws. I was told my stomach aches were faked to avoid going to school and other responsibilities, or to spoil family fun, and that my Dermatitis Herpetiformis was caused by being dirty and not bathing properly. I wasn't diagnosed with Celiac until...
-
@catnapt, I apologize. Obviously I've confused you with someone else. I have vision problems due to undiagnosed Celiac complications. Being legally blind, y'all look the same from here. You still have not said which new medication you started taking. Parathyroid disorders can affect antibody production. Bone Loss Correlated with Parathyroid...
-
@catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
-
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
-
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
-
Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference. Thiamine HCl uses special thiamine transporters to get inside cells. I take it myself. Tryptophan will help heal the intestines. Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner. I take mine with magnesium before bedtime...
-
@catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
-
Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
