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knitty kitty

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Everything posted by knitty kitty

  1. @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly. A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly. It's very rare to have only one or two low vitamins in Celiac Disease. B vitamins are water soluble, so any excess is easily excreted...
  2. I'm so glad your daughter got her B12 level checked at last!
  3. I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
  4. Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability...
  5. Being low in Thiamine B1 can cause fingers and toes to be cold all the time. Thiamine deficiency affects body temperature regulation and sleep/wake cycles. Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
  6. I found some information that may be helpful to you. https://www.nccih.nih.gov/health/echinacea#:~:text=However%2C some people have allergic,for short periods of time. And... Role of Echinacea in the management and prevention of acute respiratory tract infections in children: A systematic review of the evidence https://pubmed.ncbi.nlm...
  7. Welcome to the forum, @dsfraley, I recognize those symptoms as being related to Thiamine B1 deficiency, Gastrointestinal Beriberi. I've had Gastrointestinal Beriberi and my doctors sent me to a psychiatrist. It's not in ones head. Thiamine deficiency covers all the symptoms you've mentioned. With such a high Marsh score, correction of nutritional...
  8. Welcome to the forum, @MoniqueCham, What a challenging journey you've had! Like you, I studied nutrition, but I earned a degree in Microbiology because I wanted to understand what essential vitamins and minerals were doing inside our bodies. I've come across some information that may be of interest to you. I'll post links below. On my journey...
  9. Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like...
  10. Happy to answer, @cristiana, Too much of either Vitamin A or Vitamin E can have detrimental health effects, so doctors can be over cautious about their use. However, both are important to health. They act as antioxidants and help reduce inflammation. Both Vitamins A and E have been shown to improve insomnia and body rhythm. Yes, I'm familiar...
  11. It's much easier to correct low Vitamin D if you take high doses. It's safe and health improvement is much faster. This is how I corrected my severely low Vitamin D level. I had no ill effects correcting my deficiency this way. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi...
  12. @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO). Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet. Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas. I changed my diet to the Autoimmune...
  13. @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2. "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing...
  14. I agree, @Flash1970, I've found a grain free diet more beneficial, too. I like the Autoimmune Protocol diet, a paleo diet, which removes potential problematic foods while healing after diagnosis, then can be expanded and easily maintained long term.
  15. @cristiana, It's the same here, doctors check just Vitamin D and B12 routinely. The blood tests for other B vitamins are so inaccurate, or expensive and time consuming, doctors tend to gloss over their importance. B vitamins are water soluble and easily excreted in urine. Some people need to be careful with Pyridoxine B6 because they can store...
  16. @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten. Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8. Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification. Maize...
  17. @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies. Thiamine B1 stores can be depleted within a few weeks. Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi. It is under diagnosed by doctors! Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi...
  18. Thiamine and other B vitamins are available without a prescription, but it's always best to discuss supplementing with your doctor and dietician. I take Thiamine Hydrochloride, Benfotiamine, and Thiamine TTFD. (Avoid Thiamine Mononitrate because it's not well absorbed or used by brain f bodies.) Benfotiamine especially helps heal the gastrointestinal...
  19. Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi. The symptoms are the same as a glutening! Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih...
  20. Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape. This "meat glue" is produced by bacteria and called microbial transglutaminase. It's the same structually as tissue transglutaminase that our bodies produce in response to gluten. Microbial transglutaminase provokes the same autoimmune...
  21. How clean is her gluten free diet? Is dairy included? Does she eat out? SIBO? Thiamine deficiency presenting as Gastrointestinal Beriberi?
  22. There's more essential vitamins than B12 and Vitamin D! Thiamine is B1. Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia. The brain uses more thiamine when stressed emotionally or physically. Interesting Reading: Subclinical Thiamine deficiency...
  23. @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies? A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers. What sort of food does she eat on the GFD? Many gluten free processed foods?
  24. Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease. Just having one copy is sufficient to develop Celiac. Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line...
  25. I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health. The skin, digestive system and eyes are all derived from basically the same sort of cells. Niacin is extremely important to keeping these tissues healthy. Niacin has be shown to prevent cataracts and improve eye...
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