Jump to content

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,828

  • Joined

  • Last visited

  • Days Won

    181

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    @Healthierbody2026, Welcome to the forum. We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease. Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease. This can delay a correct diagnosis for as long as ten years or longer. During...
  2. knitty kitty
    @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
  3. knitty kitty
    Welcome, @anya22, Can you tell us more about your diet? How much gluten containing foods did you eat? What kinds of gluten containing foods did you eat? What has your high calorie diet consisted of? Some gluten containing foods contain less gluten than others. Cakes and cookies may have less gluten than something like deep dish...
  4. knitty kitty
    @Jmartes71, Have you tried a naturopathic or holistic doctor? Some posters in the past have commented theirs were more helpful than mainstream doctors.
  5. knitty kitty
    @HectorConvector, Have you tried taking 500 mg of the Thiamine Mononitrate that you have left? Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand. Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency. No harm in trying it. Neuroplastic...
  6. knitty kitty
    It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues. As more B12 becomes available, the body will adjust how much folate to absorb from the diet. Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver. (Avoid spinach due to high oxalates and risk...
  7. knitty kitty
    Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication...
  8. knitty kitty
    @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
  9. knitty kitty
    @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy. I hope you've been able to acquire thiamine hydrochloride or Benfotiamine. I'm concerned. Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the ...
  10. knitty kitty
    @HectorConvector, Please try adding Niacin to your supplements. Low Niacin has a connection with suicidal ideation. Been here, done that. Niacin made me feel better mentally and physically. Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together. I know this works...
  11. knitty kitty
    Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time. This makes it very hard for the body to absorb and utilize it. Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down. Thiamine Hydrochloride is great. Benfotiamine is wonderful, too. Retaining...
  12. knitty kitty
    @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient". It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light. If not absorbed, excreted. Absorption of riboflavin will improve...
  13. knitty kitty
    Oh, dear, the niacin flush! I've heard repeatedly that the worse the flush, the more your body needs the niacin. If you stick with it, the flushing will not be as bad in a few days. Another way to correct low Niacin level is to take 100 mg of Niacin (nicotinic acid, the flushing kind) every three hours for several days. I've done this myself, and...
  14. knitty kitty
    @HectorConvector, Step off the gas. I'm in the U. S. That was what I remember my doctor telling me thirty years ago. Things may have changed since then. If I've "misremembered," I apologize. I'm human. Things are different on the other side of the pond. Here we go by mg/dl. The smaller incremental changes are more noticeable using mg/dl....
  15. knitty kitty
    @HectorConvector, My blood glucose level would spike after I ate. It wouldn't return to "normal" fasting blood glucose level for longer and longer. Blood glucose level should return to normal an hour after eating. Mine would take two hours, then three hours, then longer. So over night fasting blood tests wouldn't necessarily be very high until they...
  16. knitty kitty
    This sounds very similar to the neuropathic pain I experienced with type two diabetes. Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6. These are vitamins frequently found to be low in people with pre-diabetes and diabetes. Remember that blood tests...
  17. knitty kitty
    Reverse osmosis water pulls electrolyte minerals out of the body. If used for cooking, RO water will even pull even more electrolytes out of the food. If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance. The symptoms of Electrolyte Imbalance are similar to those that occur...
  18. knitty kitty
    @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly. A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly. It's very rare to have only one or two low vitamins in Celiac Disease. B vitamins are water soluble, so any excess is easily excreted...
  19. knitty kitty
    I'm so glad your daughter got her B12 level checked at last!
  20. knitty kitty
    I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
  21. knitty kitty
    Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability...
  22. knitty kitty
    Being low in Thiamine B1 can cause fingers and toes to be cold all the time. Thiamine deficiency affects body temperature regulation and sleep/wake cycles. Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
  23. knitty kitty
    I found some information that may be helpful to you. https://www.nccih.nih.gov/health/echinacea#:~:text=However%2C some people have allergic,for short periods of time. And... Role of Echinacea in the management and prevention of acute respiratory tract infections in children: A systematic review of the evidence https://pubmed.ncbi.nlm...
  24. knitty kitty
    Welcome to the forum, @dsfraley, I recognize those symptoms as being related to Thiamine B1 deficiency, Gastrointestinal Beriberi. I've had Gastrointestinal Beriberi and my doctors sent me to a psychiatrist. It's not in ones head. Thiamine deficiency covers all the symptoms you've mentioned. With such a high Marsh score, correction of nutritional...
  25. knitty kitty
    Welcome to the forum, @MoniqueCham, What a challenging journey you've had! Like you, I studied nutrition, but I earned a degree in Microbiology because I wanted to understand what essential vitamins and minerals were doing inside our bodies. I've come across some information that may be of interest to you. I'll post links below. On my journey...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.