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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide...
  2. knitty kitty
    @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products. We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life. Sudden weight gain (or weight...
  3. knitty kitty
    Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines. Be sure to read the comments below the article. Have you been checked for nutritional deficiencies? Low iron can affect antibody production, causing false negatives on antibody testing. Do you currently struggle with low iron? ...
  4. knitty kitty
    Wow, @plumbago, Curiouser, and curioser... Have you been fasting? Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract I must say it, try taking some Thiamine. Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or...
  5. knitty kitty
    @plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency...
  6. knitty kitty
    @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip. The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all. Nothing budged. I tried Milk of Magnesia...
  7. knitty kitty
    @Manaan2, I'm so happy to hear you're going to try thiamine and magnesium! Do let us know the results! You may want to add a B 50 Complex with two meals of the day to help boost absorption. Thiamine interacts with each of the other B vitamins which are all water soluble. When supplementing magnesium, make sure to get sufficient calcium...
  8. knitty kitty
    @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements. When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome. Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts...
  9. knitty kitty
    Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea. Usually a gluten challenge is done before endoscopy with biopsies taken, however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have...
  10. knitty kitty
    Yes, some people with Celiac do react to quinoa. I know i do. Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla...
  11. knitty kitty
    While not all Celiac react to Zein, the protein in corn, some Celiac do react to maize similarly as they react to gluten. And I'm one of them. Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
  12. knitty kitty
    Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin...
  13. knitty kitty
    @Kate Murray, I sympathise wholeheartedly. I was as sensitive as you describe your daughter to be. I found the Autoimmune Protocol Diet most helpful. The Autoimmune Protocol diet (AIP diet) was designed by a doctor, Dr. Sarah Ballentyne, a Celiac herself. The Low Histamine AIP diet really helped improve my gut health. Foods that are difficult...
  14. knitty kitty
    @Kate Murray, What did the doctors prescribe for your daughter's elevated tryptase? Antihistamines? Steroids? Is your daughter following a low histamine diet like the Autoimmune Protocol diet (Dr. Sarah Ballantyne)? Does she still eat processed foods? Dairy?
  15. knitty kitty
    @Kate Murray, Has your daughter been checked for nutritional deficiencies? Low Vitamin D and low Thiamine can contribute to MCAS. Vitamin D levels should be between 70 and100 ng/mL . Is she following a low histamine diet? https://pmc.ncbi.nlm.nih.gov/articles/PMC10672129/ P.S. Can you share with us the "hidden gluten" sources...
  16. knitty kitty
    Mayonnaise is high in Histamine. Histamine Intolerance (HIT) frequently occurs in Celiac Disease. Histamine release is part of the immune response in Celiac Disease or any infection. Histamine Intolerance has symptoms similar to being glutened. Histamine Intolerance occurs when our bodies become overwhelmed by histamine. Our body makes histamine...
  17. knitty kitty
    Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin...
  18. knitty kitty
    Hi, @Sicilygirl, I had lost a great amount of weight, felt depressed, and had no appetite early on. I found that taking Thiamine in the form Benfotiamine extremely helpful. Doctors routinely check B12 and Vitamin D, but they fail to test for deficiencies in other B vitamins like Thiamine, because blood tests for other vitamins are not accurate...
  19. knitty kitty
    Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery. The gallbladder uses lots of thiamine vitamin b1 to function. The gallbladder cannot secrete bile if it doesn't have sufficient thiamine. Thiamine provides our muscles and glands energy to move and secrete needed enzymes...
  20. knitty kitty
    Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? ...
  21. knitty kitty
    @SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential...
  22. knitty kitty
    @LoSmith, I understand, being on the spectrum myself. Please look into the work of Dr. Derrick Lonsdale and Dr. Chandler Marrs. https://hormonesmatter.com/add-adhd-common-problems-modern-childhood/ Thiamine helps immensely.
  23. knitty kitty
    @Matt13 I understand where you're coming from. Seemed I was reacting to all sorts of foods there for a while, but a low histamine Paleo diet really helps. We make histamine in our bodies as a useful neurotransmitter (causing alertness), and also as a response in the immune system. Histamine is made and released by Mast Cells. Mast Cells can...
  24. knitty kitty
  25. knitty kitty
    Welcome, @Morgan Tiernan, The best thing to clear my dermatitis herpetiformis is to take Niacin, Vitamin B 3, the form called nicotine acid, the kind that causes flushing of the skin. Flushing Niacin clears my skin quickly. Yes, the flushing might seem really strange, but it opens the tiny capillaries in the surface of the skin which helps remove...
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