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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Headaches / Migraines and Hypoglycaemia
knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,... -
Headaches / Migraines and Hypoglycaemia
knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
Some people have difficulty processing tyrosine. Cut out the nuts and cheese and see if there's any difference. Everyone is different. This study shows that tyrosine can affect our brain with detrimental effects as we age. Neuro-Cognitive Effects of Acute Tyrosine Administration on Reactive and Proactive Response Inhibition in Healthy Older Adults ... -
Headaches / Migraines and Hypoglycaemia
knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
@Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented... -
High DGP-A with normal IGA
knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms... -
High DGP-A with normal IGA
knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to... -
High DGP-A with normal IGA
knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were... -
@Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
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Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies. B12 Cobalamine needs the seven other B vitamins to work properly. You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency. You can have "normal" B12, but have deficiencies in other B vitamins...
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High DGP-A with normal IGA
knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals. Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain. Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high... -
Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist. His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits. Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive...
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@sleuth, Has your son been checked for nutritional deficiencies? All of those symptoms can be caused by malnutrition. I had severe malnutrition that went unrecognized by my doctors. Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1,...
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New Celiac Mama in My 30s
knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
@tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body. See my blog. Click on my name to go to my page... -
@Riley., Welcome to the forum, but don't do it! Don't continue to eat gluten! The health problems that will come if you continue to eat gluten are not worth it. Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually. There's many of us oldsters on the forum who wish they'd been diagnosed...
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New Celiac Mama in My 30s
knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
@tiffanygosci, Hello. I apologize for your thread being hijacked. I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain. My cycle returned early after I had my... -
Does anyone here also have Afib
knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
Fascinating. -
Does anyone here also have Afib
knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
@DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation." I don't think black seed oil is... -
Healthy Omega Three fats. Olive oil or flaxseed oil, oily fish, fatty cuts of meat. Our bodies run much better on burning fats as fuel. Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body. Unfortunately, thiamine mononitrate is used to enrich rice. Thiamine mononitrate is relatively unusable...
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Help I’m cross contaminating myself,
knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables... -
Help I’m cross contaminating myself,
knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation... -
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is...
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Help I’m cross contaminating myself,
knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B1... -
@Xravith, How are you doing? Two cookies are not enough. For testing, you need to be eating a minimum of ten grams of gluten for two weeks minimum before testing for Celiac antibodies. Ten grams of gluten is roughly five or six slices of gluten containing bread per day for two weeks minimum. Breads that contain lots of gluten typically...
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Ibuprofen
knitty kitty replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse...
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If a Celiac person is successful in following a gluten-free diet, they can go into remission. They may not have a reaction to gluten without a precipitating event like an injury or infection or even emotional or mental stress. Following a strict gluten-free diet at home, then indulging in gluten containing products abroad without a reaction...