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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Sammy Web, Have you had a genetic test which looks for the most commonly known Celiac genes? Not having the Celiac genes is the only way to definitively exclude Celiac Disease.
  2. knitty kitty
    @herminia, Welcome to the forum! Omeprazole is only supposed to be taken for a few weeks! Omeprazole can cause villus damage to the small intestine by itself. Shame on your doctors for letting you be on it for years! Shame on your doctors for not taking an interest in your worsening symptoms! Omeprazole is a temporary fix, a bandaid, not a...
  3. knitty kitty
    @Sammy Web, PPI's like Omeprazole suppresses your ability to produce antibodies to gluten. So if you had the tests done while you were taking Omeprazole, the tests won't be accurate. Omeprazole will cause villus damage. Not all the damage in Celiac is visible to the naked eye, especially in the early stages. Damage to the intestines can be...
  4. knitty kitty
    Hello, @Deborah123, Which blood tests for Celiac did your son have? TTg IgA tests may throw false negatives in children because of immature immune systems. That's why a complete Celiac panel should be done which includes total IgA, tTg IgA, DGP IgA and DGP IgG and tTg IgG. Insufficient gluten consumption in the weeks prior to testing can result...
  5. knitty kitty
    I agree with @cristianacristiana, @Scott Adams, and @trents. You probably weren't eating sufficient gluten for the test to be accurate. Ten grams of gluten for at least two weeks before testing is needed for accurate blood tests. Three gram of gluten is enough to make you feel unwell. Ten grams of gluten is required for the antibodies to leave...
  6. knitty kitty
    At minute 28 and again at minute 45, the man explains that the carbohydrate storage protein In CORN is ZEIN. Zein has segments of the 33-mer polypeptide, alpha gliadin, found in wheat, barley, and rye, which if presented to DQ HLA genes triggers an autoimmune reaction in those with Celiac Disease. Casein in dairy for the same reason can similarly...
  7. knitty kitty
    You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all. B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins. Don't get vitamins containing Thiamine Mononitrate. This is used because it has a long shelf-life (it won't break down...
  8. knitty kitty
    @glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational...
  9. knitty kitty
    @Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs...
  10. knitty kitty
    I'm so glad you're still taking Benfotiamine! It's interesting to note that elevated liver enzymes and brachycardia are symptoms of thiamine deficiency and you've had these before taking the Benfotiamine. Many cardiac patients have low thiamine. I have also had these, but since taking Benfotiamine I no longer have them. I hope you can find the courage...
  11. knitty kitty
    @Liquid lunch, so glad you're going to continue with the thiamine! Good to keep in mind that tannins in tea and coffee can break thiamine in two, rendering it useless. Caffeine can destroy thiamine, too. Take your thiamine separately from these drinks, by an hour or so. Green tea (not macha, though) only has about thirty percent of caffeine as black...
  12. knitty kitty
    Since lectins occur in almost everything, it's pretty unrealistic to avoid them all. I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers. Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too. Histamine...
  13. knitty kitty
    The AIP diet restricts carbohydrates for the first few weeks. Excluding carbohydrates changes your microbiome. The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs. Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease. SIBO can cause gas, bloating, and diarrhea, symptoms similar...
  14. knitty kitty
    Hello there! Just wondering how things are going for you. Did you try the Benfotiamine? I'm always curious how others fare after taking thiamine. Hope you can post an update. Hope you're doing well!
  15. knitty kitty
    @Liquid lunch, I prefer the AutoImmune Protocol Diet, developed by a Celiac, Dr. Sarah Ballantyne. I would be interested on your point of view about the AIP diet compared to the Lectin Free diet. Here's some research on both.... Dietary Lectin exclusion: The next big food trend? https://pmc.ncbi.nlm.nih.gov/articles/PMC660380...
  16. knitty kitty
    Hey, @James47, I encourage you to avoid alcohol completely. Alcohol affects your ability to absorb essential vitamins and minerals just like Celiac does. The body can crave alcohol because alcohol breaks down into glucose and the brain likes glucose for fuel. Carbohydrates breakdown into glucose, too, but more thiamine is needed to...
  17. knitty kitty
    Lectins are carbohydrate storage proteins. Different plants have different lectins. Gluten is a lectin, but not all lectins are gluten. Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it. During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes. In...
  18. knitty kitty
    Lectins are carbohydrate storage proteins. Different plants have different lectins. Gluten is a lectin, but not all lectins are gluten. Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it. During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes. In...
  19. knitty kitty
    Hope you're feeling better. I use a combination of Thiamine, Cobalamine, and Pyridoxine (Vitamins B 1, B12, and B6) for pain relief. Together these vitamins together have pain killing effects (analgesic). They are water soluble, so the body can easily excrete any excess. They are safe to take. Hope this helps. Mechanisms of action...
  20. knitty kitty
    @Itsabit, Ask your doctor for an erythrocyte transkelatose test to measure thiamine. It's a better measure of thiamine deficiency than a serum test.
  21. knitty kitty
    Hello, @Itsabit, Your journey sounds very similar to mine. I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins. Nutritional deficiencies go along with Celiac Disease. Blood tests are not accurate measurements of deficiency states. The body robs stored vitamins from organs to circulate...
  22. knitty kitty
    Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long...
  23. knitty kitty
    Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated...
  24. knitty kitty
    Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas. Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates. Candida is a yeast infection, so the antibacterial wash is not going to help. I had to change my diet to a Paleo diet before it went away...
  25. knitty kitty
    @meghanf, If they are not showing symptoms of Celiac Disease, please, don't expose them to gluten. If your daughters have been gluten free all this time, keeping them gluten free now is the best way to prevent them from developing Celiac Disease in the future. Have a genetic test done to see if they carry any known genes for Celiac Disease...
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