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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @PlanetJanet, Sorry to hear about your back pain. I have three crushed vertebrae myself. I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain. This combination really works without the side effects of prescription and over-the-counter pain meds. I hope you will give them...
  2. knitty kitty
    Yes, though histamine itself may not taste salty, histamine is present in mucus and tears which contain sodium chloride because salt is a great antimicrobial.
  3. knitty kitty
    @Matt13, Your symptoms sound similar to the ones I had. I had developed nutritional deficiencies, in particular, thiamine deficiency. Gastrointestinal BeriBeri has all those symptoms and the fatigue was horrible. Quick field test from WHO: can you rise unaided from a squat? If you have a serious thiamine deficiency, you cannot stand back...
  4. knitty kitty
    Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot.
  5. knitty kitty
    I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and...
  6. knitty kitty
    Welcome to the forum, @Newhere19, I agree with @Beverage about getting a DNA test for Celiac genetic markers and trying the gluten free diet. An endoscopy would be able to check for visible damage and allow biopsies to be taken to examine for microscopic damage. Some people have camera endoscopy. Would this be a possibility? Sending...
  7. knitty kitty
    Hi, @Matt13, About half of people with Celiac Disease react to Casein, the protein in dairy, in the same way as to the protein Gluten. They have similar segments of polypeptides which trigger the autoimmune response of Celiac Disease. Damage to the Villa lining the intestines can be patchy or beyond the reach of the endoscopy equipment. Hope...
  8. knitty kitty
    Nutritional deficiencies caused by undiagnosed, untreated Celiac Disease can cause symptoms like you describe. Malabsorption of nutrients is caused by damage to the intestinal lining which makes absorbing essential nutrients difficult. We need to absorb sufficient vitamins and minerals from our diet everyday to make sure our body functions properly. Different...
  9. knitty kitty
    @Travel Celiac, Doing a happy dance with you!!! You're doing very well!!! Kudos for being a rescuer! Hip Hip Hooray! Yes, strenuous exercise can raise your IgA, as can viral infections like the common cold or Covid. https://pmc.ncbi.nlm.nih.gov/articles/PMC9574171/ Do discuss with your doctor the nutritional deficiencies that frequently...
  10. knitty kitty
    @Kipman, Ask for a genetic test to determine if you have any of the known genes for Celiac Disease. Anemia, Thiamine deficiency and diabetes can each cause false negatives and low IgA. You may want to investigate these further with your doctor. Celiac Disease can occur with Ehlers-Danlos Syndrome, another genetic autoimmune disease. Ehlers...
  11. knitty kitty
    Welcome to the forum, @Travel Celiac! You have to be consuming gluten for your body to trigger the autoimmune response and produce anti-gluten antibodies. If you're not consuming gluten, the autoimmune response is not triggered and you won't produce anti-gluten antibodies. Celiac Disease is genetic. Your genes don't change. You will always have...
  12. knitty kitty
    @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches. Really works well without hurting the digestive tract. Riboflavin B2 also helps with migraines. Most newly diagnosed people have vitamin and mineral deficiencies. Check with your doctor and nutritionist. If you follow the updated...
  13. knitty kitty
    Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results. When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests. Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and...
  14. knitty kitty
    Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies. Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy. You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.
  15. knitty kitty
    Hashimoto's is a type four hypersensitivity. Read what this doctor did about hers... https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos/ She adopted a Paleo diet. Once you get your inflammation down, and your nutrients up, your body's immune system can calm down and quit reacting to every little thing.
  16. knitty kitty
    @GardeningForHealth, On my journey, I found following the Autoimmune Paleo Diet most helpful in reducing reactions to various foods. It's very restrictive, but it really helps improve gut health. It's worth the effort for a few weeks or months. Tea from any grocery store; Tea, organic; Tea, grown in USA, never-sprayed, loose leaf Tea contains...
  17. knitty kitty
    Gluten can cause inflammation in the digestive tract and that includes the mouth. Also, nutritional deficiencies can cause oral inflammation. Cobalamine B12 deficiency and Niacin B3 deficiency can result in swollen irritated tongues and mouth sores. Salt would definitely cause further irritation.... Like pouring salt in a wound....
  18. knitty kitty
    @Barcino, Yes, do try cutting out dairy. About half of people with Celiac Disease react to the protein in dairy, Casein, the same as to gluten because of similar protein segments. Others have Lactose intolerance because their damaged intestinal lining, the villi, are damaged and can't produce the enzyme lactase which breaks down the sugar in dairy...
  19. knitty kitty
    Many probiotics start with growing the bacteria on a dairy substrate leaving traces of dairy in the probiotics. Many Celiacs react to dairy in the same way as they react to gluten because certain protein chains in dairy resemble gluten protein chains. @Wheatwacked ferments his own pickles. Perhaps he can chime in.
  20. knitty kitty
    The AIP diet does have a vegetarian version. Dr. Sarah Ballantyne developed the AIP diet for herself and her children, all Celiacs. The AIP diet has been shown in scientific studies to promote intestinal healing. You might visit her website. https://www.thepaleomom.com/
  21. knitty kitty
    @BoiseNic Have you tried the Autoimmune Protocol Diet? This Paleo diet cuts out most everything except meat, veggies and some fruits. By cutting out all the carbohydrates, especially processed ones, the carbohydrate loving bacteria and fungi like Candida get starved out and die off. After that, taking probiotics to help repopulate the gut is beneficial...
  22. knitty kitty
    @Juliana82, Is the bleeding occurring when you throw up? Or with bowel movements? Constipation? Is it bright red or black and tarry? Anal fissures? Crohn's or Colitis? Alcohol consumption? Diabetes, Thiamine deficiency and anemia can cause false negatives. Most diabetics are deficient in Thiamine. Thiamine deficiency can also occur due...
  23. knitty kitty
    @Vozzyv, Certain nutritional deficiencies can cause tinnitus, ringing in the ears. Vitamins A and D, Thiamine B1, Riboflavin B2, Pyridoxine B6, Folate B9, Cobalamine B12, magnesium, zinc and Vitamin C can cause tinnitus individually if deficient. The malabsorption of Celiac Disease affects all the nutrients our bodies need. Many of these nutrients...
  24. knitty kitty
    @Milarynn, Welcome to the forum! Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies. Be sure to have your Vitamin D level checked. Vitamin D helps prevent bone loss, including loss from the jaw and teeth. Magnesium and calcium are both important to bone health as well. Magnesium helps keep the...
  25. knitty kitty
    @CeliacPsycho246, You might try cutting out dairy. Some of us react to Casein, the protein in dairy, the same as to gluten.
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