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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Katie0711, Welcome to the forum! You could post your son's symptoms in this thread and let us know which post you found with similar symptoms. Someone currently active may be able to help. Best wishes.
  2. knitty kitty
    @AshyCo, I'm curious. What other foods are you reacting to?
  3. knitty kitty
    @Gingle, I even react to Sodium Lauryl Sulfate in toothpaste. It's also in shampoos and soaps and body washes.... Get your doctor to put a notation in your medical records that you react to Sulfa drugs. It can be life threatening, as all allergic reactions may be. Best wishes!
  4. knitty kitty
    @Jacki Espo, So sorry to hear about that. High dose Thiamine has been shown to have anti-tumor effects, while low dose Thiamine may promote tumor growth. High dose Thiamine is safe and nontoxic. Selenium is beneficial for thyroid health. Keep us posted on your progress! References: Selenium and thyroid diseases https...
  5. knitty kitty
    @Femke, and @AshyCo Do you have anemia? Anemia, Diabetes, and Thiamine Deficiency each will cause false negatives on Celiac blood tests. Have you thought about getting a DNA test done? One doesn't have to be consuming gluten for a DNA test which looks for the most common genes for Celiac Disease. A positive DNA test and positive response...
  6. knitty kitty
    I like tallow balm made by Vintage Traditions. Tallow Balm is natural, gluten free, and has been used for centuries. Vintage Traditions has lots of scented and unscented balms. Tallow Balm keeps my skin soft and moisturized.
  7. knitty kitty
    @Gingle, @plumbago has given good advice about checking for hidden gluten in medications. I have reactions to Sulfa drugs, a Hypersensitivity Type Four reaction, which causes gastrointestinal upset, rashes, and hives and metabolic dysfunction. People with Celiac Disease can develop this "allergic" reaction to Sulfa drugs like calcium channel...
  8. knitty kitty
    Here's some information about certain spices triggering symptoms in Celiac from a PubMed study.
  9. knitty kitty
    Hello, @OhCrumbs, I've got both dermatitis herpetiformis and thyroid problems. I found a drop of Lugol's solution applied to the skin every so often takes care of my iodine requirements. Just one drop is sufficient. Be careful! See article below. I also found High Dose Thiamine very beneficial in my thyroid problems. The thyroid uses lots of...
  10. knitty kitty
    I take Thiamine, Pyridoxine, and Cobalamine for pain relief. I have back pain due to broken vertebrae and this combination of vitamins relieves the pain without side effects of pharmaceuticals. Thiamine, Pyridoxine and Cobalamin are vitamins that are water soluble and safe. References: Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine...
  11. knitty kitty
    @heyitsme, Anemia, diabetes and Thiamine deficiency will cause poor production of tTg IgA antibodies. Have you had a Total IgA test done? DGP IgG antibodies are still produced with these conditions. Some of us are seronegative.
  12. knitty kitty
    Welcome to the forum! I've suffered with severe Ataxia and Neuropathy. Some people with Celiac produce antibodies that attack the nervous system. These are tTg 6 IgA antibodies. The usual blood test for Celiac measures tTg 2 IgA antibodies. Even if you don't have overt digestive symptoms, Celiac can cause malabsorption of nutrients. ...
  13. knitty kitty
    @PhilHandy, Vitiligo has a connection with Celiac Disease. Vitiligo and Autoantibodies of Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3604853/ Anemia can affect not only red blood cell production, but also antibody production, resulting in false negatives. The DGP IgG test should also be run, in addition...
  14. knitty kitty
    @Aya77, You can read excerpts of my journey in my blog.
  15. knitty kitty
    @K M Wade, Are you still consuming dairy? Dairy is High in Iodine which will cause dermatitis herpetiformis flares. Dairy is also connected to eczema.
  16. knitty kitty
    Welcome to the forum, @Carlyallyn, Is that the test results for TTg IgA, which is usually the first seriological test for Celiac? A result this high above the"norm" is usually indicative of Celiac Disease and intestinal damage. Does the gastroenterologist want you to be consuming gluten prior to endoscopy and biopsies? Usually biopsies...
  17. knitty kitty
    Celiac Disease is genetic. Certain HLA genes are associated with the potential of developing Celiac Disease. If one doesn't have any of the known Celiac genes, then Celiac Disease can be ruled out. The most common Celiac genes are HLA DQ 2 and 8. There are others but they occur less frequently, DQ 7, 4, and 9. Celiac Disease genes can be latent...
  18. knitty kitty
    High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7988776/ Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Thiamine and benfotiamine: Focus on their therapeutic potential https...
  19. knitty kitty
    Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
  20. knitty kitty
    @normagain, There's a difference between Small Intestinal Bacterial Overgrowth (SIBO) and Candidiasis (Yeast Infection). It's possible to have one or the other or both. Celiac Disease causes damage to the small intestine. The SIBO occurs because the bacteria take advantage of this damage to move in and multiply. Same with Candida. SIBO is...
  21. knitty kitty
    @Richard1973, welcome to the forum! @cristiana is on the right track, stay hydrated. Also have your potassium level checked. Low potassium causes dry skin and dehydration. We need Thiamine B1 to keep our potassium level correct. Without sufficient thiamine, we lose potassium and our skin loses moisture. Ask your doctor about supplementing...
  22. knitty kitty
    I'd like to hear more about the supplements recommended!
  23. knitty kitty
    Good for your doctor to be wondering about it! She's on the right track. Anemia, diabetes and thiamine deficiency can cause seronegative results. Unfortunately, if you go gluten free, your intestines will start healing and damage due to Celiac might not be apparent. But, on the other hand, PPI's cause intestinal damage, too, so they might...
  24. knitty kitty
    Acid reflux is not an overproduction of stomach acid, it's underproduction of stomach acid. We need Niacin B 3 and Thiamine B1 to make and secrete stomach acid and digestive enzymes. Deficiencies in several of the eight B vitamins can present with gastrointestinal symptoms. Thiamine deficiency can cause Gastrointestinal Beriberi. Niacin and...
  25. knitty kitty
    Yes, I understand. I get outbreaks on my legs if I wear leggings. I switched to flannel, nice and soft. Do ask your doctor about supplementing with B vitamins. Niacin B3 helps the dermatitis herpetiformis spots heal. Have you asked about a genetic test? You have to have specific genes for Celiac Disease to develop.
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