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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Struggling to get a diagnosis
knitty kitty replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@MsssSqueaks, I know of one moderator who used to post that only tested positive on the DPG test. The DPG is frequently positive in children and is acceptable as a confirmation of celiac disease. I may be mistaken, but she had anemia, too. I'm familiar with B12 deficiency occurring after anesthesia. The nitrogen in the anesthesia (nitrous oxide... -
Struggling to get a diagnosis
knitty kitty replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm surprised you didn't know, Scott. "Aspirin-induced gastritis and gastrointestinal bleeding" https://pubmed.ncbi.nlm.nih.gov/6499/ "Acute hemorrhagic gastritis occurs in from 50% to 70% of all patients taking aspirin, is not directly related to dose size, and can be severe enough to cause death in a few cases. No tolerance appears to ever... -
Struggling to get a diagnosis
knitty kitty replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@MsssSqueaks, Pepto-Bismol contains aspirin, aka salicylates, which causes inflammation and damages gastric mucosal cells. You should reconsider its use. Is your doctor aware you are using it? -
Hard to believe hashimoto-diagnosis :(
knitty kitty replied to chocoholic's topic in Related Issues & Disorders
High dose Thiamine improved my NAFLD and sluggish thyroid... "High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition" https://pubmed.ncbi.nlm.nih.gov/33608323/ And... "Thiamine and Hashimoto's thyroiditis: a report of three cases" https://pubmed.ncbi.nlm.nih.gov/24351023/ -
Have you Googled the side effects of Carafate? constipation, diarrhea, nausea, vomiting, upset stomach, stomach pain, indigestion, gas, dry mouth, sleep problems (insomnia), dizziness, drowsiness, spinning sensation, headache, back pain Aren't these symptoms similar to what you have been experiencing...
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Obesity and Hunger
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Ginger38, I was obese and was always hungry. I had Thiamine deficiency and Small Intestinal Bacterial Overgrowth. The bacteria of SIBO can send chemical messages to the brain requesting more carbohydrates that they feed on. (Creepy, right?) Thiamine is needed to turn carbohydrates into energy. It's easy to eat more carbohydrates than... -
@Lyns5201 Lysine is used to treat stomach ulcers. It promotes healing of the stomach lining. Have you been tested for a B12 deficiency? The intrinsic factor needed for B12 absorption is made in the stomach. B12 helps reduce that stomach lining inflammation. You may want to try a sublingual B12 supplement that dissolves in the mouth and...
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Interpreting test results
knitty kitty replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since your husband's symptoms are reflective of Celiac Disease, and some people have low antibodies, an endoscopy would be warranted. -
Yes, I was given a PPI (proton pump inhibitor) but that only made my symptoms worse. PPI's can cause continuing inflammation and damage. Have your doctors prescribed you any medications? Yes, I think Celiac (no "s" on the end) and gastritis are linked. Yes, I have two genes for Celiac. In addition to the tryptophan, I take Allithiamine, a form...
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@Lyns5201, Yes, I've had gastritis. Endoscopy revealed small irritated spots in my stomach. My spots healed. I found that taking 1000 mg of Tryptophan helps me. Tryptophan heals the stomach lining and intestines. Our bodies can turn Tryptophan into other chemicals, serotonin and melatonin that also heal the digestive tract. Tryptophan...
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@deanna1ynne, What great questions to ask! 1. Going gluten free without having the genes for Celiac will not harm a person's health, as long as adequate nutritional needs are met. A person who adopts a gluten free diet before their Celiac genes are activated will not be harmed by a nutritionally adequate gluten free diet. Celiac Disease...
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@MitziTremblay, Welcome to the forum! While the dip may be gluten free, dairy and yeast can cause a reaction because they contain protein structures similar to gluten that the Celiac anti-gluten antibodies attack... Similar to the story of the three blind men and the elephant in which one blind man who was led to the elephant's trunk and said...
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Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Supplementing before testing for deficiencies will skew the results. For example, supplementing with Folate (Vitamin B9) can mask or hide a deficiency in Cobalamine (Vitamin B12). Since dizziness can be a symptom of B12 deficiency, supplementing before testing would hide this. Talk with your doctor before beginning supplementation. Some doctors... -
Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
Yet another experience post... Having a genetic test for the most common genes that cause Celiac Disease would be what I would choose if in your place. Granted, not every gene for Celiac Disease is known and simply having a gene for Celiac Disease does not mean the gene has been turned on. However, improved health on a gluten free diet and having... -
@penguin11, Having a genetic test for the most common genes that cause Celiac Disease would be what I would choose if in your place. Granted, not every gene for Celiac Disease is known and simply having a gene for Celiac Disease does not mean the gene has been turned on. However, improved health on a gluten free diet and having one or more of...
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@penguin11, Most vegetables are not good sources of B vitamins except for leafy green vegetables like kale, turnip greens, collard greens, beet greens and even broccoli. The best food sources of B vitamins are liver, red meat, pork and fish like salmon. Red meat and liver are excellent sources of iron. Remember, you need all eight B vitamins...
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Interpreting test results
knitty kitty replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@deanna1ynne, You may find these articles and research studies interesting on the connection between vitamins and autism. Relationship between Vitamin Deficiencies and Co-Occurring Symptoms in Autism Spectrum Disorder https://pubmed.ncbi.nlm.nih.gov/32443822/ And... Treatment of autism spectrum children with thiamine tetrahydrofurfuryl... -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Estere08, Discuss all supplements with your doctor before starting them! Your doctor should test you for deficiencies before starting supplementing, otherwise the tests won't be accurate. The tests will measure the supplements taken. Blood tests for some B vitamins don't accurately reflect deficiencies because most vitamins are used inside... -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents. One must be very careful and learn where gluten hides and what other foods can cause continuing inflammation (like dairy). I followed the AutoImmune Protocol diet developed by a doctor with Celiac for herself and her family. I found this diet helped me feel better quickly and identify problematic foods more quickly. I found... -
Glow in the Dark Candy
knitty kitty replied to knitty kitty's topic in Gluten-Free Recipes & Cooking Tips
Found some more foods that glow in the dark.... more fun for Halloween! https://sciencenotes.org/food-glows-black-light/ -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! I've suffered from dizziness. I found several things contributed to my dizziness. Dairy... not only am I lactose intolerant, I cannot tolerate casein. Lactose is the sugar in milk products. Lactose intolerance is common in newly diagnosed Celiac patients. The enzyme (lactase) that digests lactose isn't being produced... -
B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac doesn't directly affect the gallbladder, but thiamine (Vitamin B1) can affect the gallbladder. The gallbladder needs thiamine to make bile and secrete it at meal times. Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. My symptoms were digestive problems, gallbladder problems, diarrhea, and... -
teen Enough evidence without a scope?
knitty kitty replied to Slj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Your daughter has symptoms of thiamine deficiency. The sluggish digestive system, tingling in feet (peripheral neuropathy), tender calves and emotional lability are often overlooked symptoms of thiamine deficiency. People who have Hashimoto's thyroiditis and people who have diabetes require more thiamine. Even more so if...- 9 replies
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B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Please, please, everyone, read this article!!! B Vitamins and the Brain: Mechanisms, Dose and Efficacy—A Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4772032/ Many studies have been done on the supplementation of singular vitamins, frequently B12, or combinations of vitamins like B12 with folate(B9) and maybe including pyridoxine(B...