knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Mandeep, Trents is correct that Type One diabetes is an autoimmune disease in which the immune system erroneously attacks itself and can cause damage to the cells of the pancreas so that not enough insulin can be produced to keep a person alive. The person in the previous post whose father had diabetes had incorrectly identified his diabetes as...
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Further information..... Your body uses vitamins and minerals inside the tissues of your muscles and organs. Your body will rob the tissues of their vitamin supply in order to put it in the blood stream and send it to the brain to keep your brain working. Blood tests are not a good measurement of the vitamin status within the tissues. The limits...
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Intestinal Growling?
knitty kitty replied to klcarne30's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
klcarne30, Those rumbly tummy noises are called borborygmi. I had them, too. They're very embarrassing, I agree. Have you been checked for Small Intestinal Bacterial Overgrowth? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099351/ The Autoimmune Paleo Protocol diet helps starves out the bacteria which have grown up into your... -
Moey, You could have a genetic test done to check for the genes related to Celiac Disease. Imho, it's ridiculous to harm yourself with gluten for a diagnosis. Check into the Autoimmune Paleo diet which promotes intestinal healing. It's basically meat and fresh veggies. No dairy, no nightshades (tomatoes, potatoes, eggplants, and peppers...
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Vitamin Deficiency Testing
knitty kitty commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
Posterboy, Lol, I had low T, too, and I'm a girl! And the angular chelitis, chapped lips, and a waxy, flaky rash around my mouth, nose, chin area! The doctor wanted to do an implant for the testosterone levels, but I didn't get it. He couldn't explain why the testosterone was low in the first place, so I knew it would be just a bandaid without... -
Every one of those symptoms listed in that article can be traced to vitamin and mineral deficiencies. Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies.
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EricP, Before I was diagnosed with Celiac Disease, I experienced severe vitamin and mineral deficiencies. I had symptoms like yours. Several doctors asked if I drank alcohol. When I replied emphatically no, my doctors would frequently shrug their shoulders and walk away. So I went home and started researching why they would ask me this repeatedly...
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I found this site linked below, written by a pathologist for doctors doing vitamin deficiency testing. https://arupconsult.com/content/vitamins-deficiency-and-toxicity Points of interest include: Patient should not be taking supplements at time of testing. Ideally, supplements should be discontinued three to six weeks before testing for...
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AriannaH, Keep us posted on your progress! Best wishes, Knitty Kitty
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I hope this article gives you some insight and help with your daughter's liver problems. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4849418/ I found the information on Vitamin A and Niacin very informative.
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AriannaH, Doctors seem to check only Vitamin B12 and Vitamin D. Other vitamin deficiencies might be a factor. Which other vitamin and mineral deficiencies were checked? The gluten free noodles and cup for cup flour replacement is of note to me. Gluten free products are not required to be enriched with vitamins lost in processing like gluten...
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AriannaH, It would be helpful if you let us know which symptoms are returning, what your diet includes, and whether you've been checked for vitamin and mineral deficiencies. Even on a gluten free diet, malnutrition may be a problem. Knitty Kitty
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Claire Grace, I'm happy you have found this information useful! Do discuss with your doctor changes in your vitamins. He may want to test for deficiencies before you start supplementing in order to get a baseline. There is a period after beginning thiamine supplementation where you might feel worse before you feel better. This is called...
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Cyanide destroys thiamine based enzymes that are necessary for the production of ATP (energy) in the human body. "Cyanide's main effect is that it inhibits oxidative phosphorylation, a process where oxygen is utilized for the production of essential cellular energy sources in the form of ATP. It does so by binding to the enzyme cytochrome C oxidase...
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Checking for nutritional deficiencies is part of proper follow up care for Celiacs. I found great information here... https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/ Dr. Lonsdale and Dr. Marrs' book "Thiamine Deficiency Disease, Dysautonomia and High Calorie Malnutrition" has been very helpful. I struggled with...
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SIBO and SIFO can cause thiamine deficiency! Candida produces thiaminase, an enzyme that destroys thiamine (Vitamin B1). Antibiotics can also cause low thiamine. Plentiful thiamine usually keeps those microorganisms in check. Thiamine and niacin are needed for intestinal healing. SIBO and SIFO can prevent proper absorption of vitamins and minerals...
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Claire Grace, You poor thing! Thiamine is neglected by the medical profession because doctors are trained to prescribe pharmaceuticals while attending medical training institutions which are funded by pharmaceutical companies. One doctor refused to check me for vitamin deficiencies because, and I quote, "I can't make money prescribing vitamins...
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Celiac cure
knitty kitty replied to yashkanthale's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thiamine is a known chelator of arsenic and other heavy metals like lead. Thiamine in the form of TTFD is used... https://europepmc.org/article/med/12195231 https://www.hormonesmatter.com/chelation-therapy-medicine/ -
Thanks for letting us know! Keep us posted on your further results!
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Pat Jackson, Welcome to the forum! You sound a lot like me, with lifelong digestive problems. I've had my gallbladder removed, too. And I also have osteoporosis before menopause. And I was on a diuretic for edema in my legs. I also have experienced problems with my voice. I had a persistent tickle in the back of my throat, but coughing...
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Mell2, Have you been checked for vitamin and mineral deficiencies? I experienced many vitamin and mineral deficiencies before being properly diagnosed as a Celiac. Damage to the small intestine causes malabsorption problems which result in nutritional deficiencies. The eczema-like facial rash around the nose and mouth (and even perianal blisters...
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Claire Grace, This is an old thread. Please see my post above. Yes, purple cabbage could have triggered this episode. Purple cabbage contains thiaminase, a chemical that deactivates thiamine. The Vagus nerve needs thiamine to relay messages between the body and the brain. Your Vagus nerve injury may predispose you to an increased metabolic...
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Nausea and Vomiting Are Key Symptoms of Gluten Exposure in Celiac Patients
knitty kitty commented on Jefferson Adams's article in Latest Research
Try lipothiamine (tetrahydrofurfuryl disulfide (TTFD)). It crosses the blood brain barrier while benfotiamine does not. I was amazed at the difference. I've tried allithiamine (high dose made me smell like garlic), benfotiamine, lipothiamine and thiamine HCl (supplement with niacin, riboflavin, Omega 3s and Vitamin C and the rash goes away). Lipothiamine... -
Aaron, I had nutritional deficiencies before I started the AIP diet. My various doctors had totally missed diagnosing Celiac Disease, pellagra, anemia, and thiamine deficiency. Eventually I did find a doctor who ordered a genetic test for Celiac Disease which showed I have two genes for Celiac Disease. However the nutritional deficiencies aspect...
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Ate gluten and didn't get sick?
knitty kitty replied to Josh Corney's topic in Coping with Celiac Disease
No! Wheat (rye and barley) in any form is still damaging! As you said... "I felt some slight joint pain that night but that was it." Your immune system DID recognize the wheat and was just beginning to get revved up. Your immune system down regulates when your body is not being constantly assaulted by gluten, but it still remembers, and...
