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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Aaron, The AIP diet was very simple for me to follow. I gave up putting together complicated recipes because I was having difficulty remembering, planning and thinking, too. I simply ate to live. I bought ground meat and made a patty. I could get four to six patties out of a pound of ground meat, depending on the size of the patty and the size...
  2. knitty kitty
    Josh, What was in the sauce that did cause you to get ill? Was it a cream sauce or a sauce that contained yogurt or sour cream? Dairy can cause problems if you're lactose intolerant or have a casein allergy. Lactose intolerance and casein allergy can happen outside of a Celiac reaction. Did it contain eggs? Egg intolerance or allergy can...
  3. knitty kitty
    I'll say it again..... Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. It's rare to have a deficiency in just one vitamin or mineral in Celiac Disease. "Niacin for treatment of nonalcoholic fatty liver disease (NAFLD)" https://www.lipidjournal.com/article/S1933-2874(19)30290-9...
  4. knitty kitty
    Azur, Glad to hear from you. No, I doubt you've sustained any permanent damage. You've been eating, so you've probably gotten some thiamine in your diet. And the human body has a great ability to recover and heal. There's a progression of symptoms with thiamine deficiency, from subtle symptoms to the more severe Wernicke-Korsakoff syndrome...
  5. knitty kitty
    Hold off on the Thiamine supplements because if you start them now, supplements will skew a future test if they have get more blood to do the erythrocyte transketolase test. When you have a thiamine deficiency, the thiamine transporters on cell membranes turn off. Thiamine transporters are sort of like a doorman that only lets thiamine into a building...
  6. knitty kitty
    NeverLikedRollercoasters, If I can help someone else after the muck I had to wade through because my doctors didn't recognize an obvious deficiency disease, I will be ecstatic. Keep us posted!
  7. knitty kitty
    Did they give you iodide IV contrast dye with your MRI? We're you sick afterwards?
  8. knitty kitty
    Get the erythrocyte transketolase test! I had the unrelenting nausea. And the Gastroparesis (where things don't move along your intestinal tract like they should). Thiamine is needed by the lower brain where stuff is controlled like digestion, stomach acid secretion (overproduction of digestive enzymes causing ulcers or overproduction), peristalsis...
  9. knitty kitty
    Hurray! Let us know the results!
  10. knitty kitty
    NeverLikedRollercoasters, Ask your doctor for a erythrocyte transketolase test for thiamine deficiency. Not doctors here, can't diagnose, but you seem to have symptoms of gastrointestinal beriberi described in this article... https://link.springer.com/article/10.1007/s11606-015-3326-2 Peptic ulcers can cause malabsorption of necessary vitamins...
  11. knitty kitty
    Gastroparesis can be caused by thiamine deficiency. Many Celiacs suffer from vitamin and mineral deficiencies even on a gluten free diet. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3499101/ https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/ Get tested for thiamine deficiency using erythrocyte transketolase test...
  12. knitty kitty
    Keep in mind, Celiac Disease is genetic. All first degree family members should be tested for Celiac as well. Your sister may prefer your gluten free foods because she may be having subtle symptoms as well. Discuss this possibility with her.
  13. knitty kitty
    Ria.Rose, The vagus nerve is affected by thiamine deficiency. I have had POTS and also thiamine deficiency. When the Thiamine deficiency was corrected with high dose thiamine, the POTS went away. See Dr. Derrick Lonsdale and Dr. Chandler Marrs' book called "Thiamine Deficiency Disease, Dyautonomia, and High Calorie Malnutrition". Read...
  14. knitty kitty
    Can be a symptom of thiamine deficiency. Thiamine is needed to process carbohydrates into energy. Muscle weakness is a symptom of thiamine deficiency.
  15. knitty kitty
    I took regular B-Complex vitamins and didn't feel much different. I kept researching and found that when you have a deficiency of thiamine, the thiamine transporters that help thiamine get into the cells turn off and don't function. In order to get the Thiamine transporters to turn back on, you have to flood the body with thiamine so thiamine can "force...
  16. knitty kitty
    Elevated liver enzymes and thiamine deficiency My doctor accused me of lying about drinking, but I do not drink alcohol. I have never been able to tolerate it. It turned out to be Thiamine Deficiency! Alcohol consumption can cause thiamine deficiency because alcohol inhibits thiamine absorption in the intestines. Abnormal liver enzymes occurs...
  17. knitty kitty
    Sharon, The same thing happened to me. My doctor accused me of lying about drinking, but I do not drink alcohol. I have never been able to tolerate it. It turned out to be Thiamine Deficiency! Alcohol consumption can cause thiamine deficiency because alcohol inhibits thiamine absorption in the intestines. Abnormal liver enzymes occurs in...
  18. knitty kitty
    Azure, I did the same thing. I took regular B-Complex vitamins and didn't feel much different. I kept researching and found that when you have a deficiency of thiamine, the thiamine transporters that help thiamine get into the cells turn off and don't function. In order to get the Thiamine transporters to turn back on, you have to flood the body with...
  19. knitty kitty
    Wheatwacked, Suzisqueue, and others, PLEASE get checked for low thiamine (erythrocyte transketolase test)!!! http://www.hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ Celiac Disease causes the Thiamine transporters to malfunction. Thiamine transporters allow thiamine into the body's cells to make energy so they can function...
  20. knitty kitty
    Dima Salahi, Yes, I do feel your agony. I understand. Please get checked for vitamin and mineral deficiencies as part of proper follow up care for Celiacs. Due to damage to our intestines, we may not be absorbing enough vitamins, minerals and other nutrients, like healthy fats. Our bodies' way of correcting deficiencies is to crave the foods containing...
  21. knitty kitty
    Azure, As an athlete, you have a higher metabolic need for thiamine, riboflavin, niacin, and pyridoxine. These are all members of the group of B vitamins. They are all water soluble, can not be stored in the body for long and need to be replenished every day. You use up more thiamine, pyridoxine, and riboflavin when you exercise and when you...
  22. knitty kitty
    Wheatwacked, You may have difficulty with your potassium levels because you are low in Thiamine. See this article.... https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/ Dates are a better source of potassium than bananas. Charles, Do try to alter your diet like GFinDC suggested. Potatoes...
  23. knitty kitty
    Kimble, You only need one gene to be Celiac. It's like being a little bit pregnant. The egg white, onion, garlic, oregano, and cruciferous vegetables (cauliflower, kale, cabbage, broccoli, etc.) are all high in sulfur. Celiacs often become sensitive to foods (and medications) with high sulfur contents. And that horrible gas is a result of...
  24. knitty kitty
    Depends on your transit time. Gluten causes me to have gastroparesis (where your intestinal muscles don't squeeze the food through as they normally do). So whatever is ahead of the gluten slows down or stops moving. And there's bloating. And about two to four days later, that food comes out, with diarrhea behind it from the gluten containing food, or...
  25. knitty kitty
    How about MRE's (Meals Ready to Eat) like the military uses to feed troops on maneuvers? Foil pouches of long shelf life foods. And there's freeze dried things. Astronaut ice cream is pretty cool. (Pun intended 😸) Emergency food buckets are sold on Amazon. And jerky, beef, turkey, bison, etc. You'd rattle if you swallowed 200 ca...
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