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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    David and Jo, Those symptoms you described are also symptoms of early thiamine deficiency. The trouble breathing, cough, rapid heart rate, fatigue and digestive problems are all early thiamine deficiency symptoms. We can become low in thiamine within two weeks if we eat a high carbohydrate diet, are very physically active especially outdoors...
  2. knitty kitty
    Smitty, Stay hydrated. Allow your body time to rest and recuperate. Avoid NSAIDs. They can cause more irritation. Try a hot water bottle or a heating pad for discomfort. Some of us like bone broth or "cooked to a mush and easy to digest" stews. Crock pots and instant pots are great for this. Avoid processed foods. Avoid...
  3. knitty kitty
    ktb, Do keep in mind that starting supplementing now will skew future tests for vitamin deficiencies. Getting a baseline before beginning the supplements might be the better way to go, but considering the covid pandemic, going for proper testing may be undesirable. At least a call to your daughter's doctor may be warranted. Taking supplements before...
  4. knitty kitty
    Are you keeping a food/mood/poo'd journal? What does it say you ate twenty-four to forty-eight hours ago? Is your transit time longer? Are you constipated? Which supplements did you take about then? Was it a large amount or a size consistent with your supplement amount? Something light colored.....Gluten free tortilla? Beans? Marshmallows...
  5. knitty kitty
    ktb, Sorry your daughter isn't feeling well. You're such a great Mom to seek answers! Welcome to the forum. All the symptoms your daughter is having are early signs of thiamine deficiency. Be sure her doctor does the erythrocyte transketolase test to see if she's deficient. Checking the levels of the other eight B vitamins would be a good idea...
  6. knitty kitty
    Are you taking magnesium? Sometimes magnesium supplements can make your stool a lighter color.
  7. knitty kitty
    Sounds like what I experienced with Histamine Intolerance and Mast Cell Activation Syndrome. You can have Histamine Intolerance and MCAS without being Celiac. I found this article about Red Meat causing high histamine levels... https://mastcell360.com/are-you-raising-your-histamine-levels-with-these-meat-handling-mistakes/ Bone Broth...
  8. knitty kitty
    Sounds like what I experienced with Histamine Intolerance and Mast Cell Activation Syndrome. The body normally releases histamine as part of its defense mechanism to destroy harmful things we've ingested, like gluten if we have Celiac Disease, and dairy in lactose intolerance, or if allergic to casein, shellfish, or other foods. Ingestion of foods...
  9. knitty kitty
    Here's how to make candy that will glow in the dark under black light.... https://www.instructables.com/id/Kryptonite-Candy/ Riboflavin (vitamin B2) is the ingredient that fluoresces under black light!
  10. knitty kitty
    Your body won't be able to absorb 100% of the vitamin supplements you take at any one time. The unabsorbed vitamins are excreted in urine, but that doesn't mean you don't still need it. Your body is absorbing part of it. Continue to take the vitamins. Are you taking your vitamins with meals or on an empty stomach? Vitamins are better absorbed if...
  11. knitty kitty
    I'm doubtful that you've developed vitamin D toxicity. It takes months and months of much higher doses of vitamin D (100,000 IU per day) to develop toxicity. Your skin has an automatic turn off mechanism so you can't overdose on Vitamin D by being out in the sun. Are you taking vitamin D2 or vitamin D3? Vitamin D 3 is the naturally occurring form...
  12. knitty kitty
    Chris, I was wondering if you have any skin rashes or skin problems like keratosis pilaris, rosacea, eczema, psoriasis, or dermatitis herpetiformis (DH). Sometimes celiac disease manifests in the skin. People with DH don't always have definitive blood test results. My blood tests were inconclusive, so I had a DNA test. I've got two Celiac genes...
  13. knitty kitty
    I tried Solaray B Complex a while back, but couldn't tolerate them because of the RICE BRAN, RICE GERM and RICE POLISHINGS. The bran and germ is where lectins lurk and can trigger immune responses. (Some Celiacs react to rice because of this.) I can't tolerate brown rice (unpolished rice), although I can tolerate Basmati rice (white/polished...
  14. knitty kitty
    Thiamine deficiency will cause nightmares! Especially if you have lots of magnesium and not enough thiamine and Vitamin B6. I take thiamine earlier in the day. I take magnesium, B6, and tryptophan an hour or two before bedtime and sleep like a rock. http://www.drpepi.com/health-tips/general/dreams/ https://www.healthline.com/nutrition...
  15. knitty kitty
    B12 can be stored in the liver for two to five years. Most of the eight B vitamins are water soluble and must be replenished every day, but B12 is the exception. Other B vitamins, such as thiamine, can become depleted in as little as nine days. (Ever watch television show "Naked and Afraid"? The people on that show develop vitamin and mineral deficiencies...
  16. knitty kitty
    Hi, Dorothy! I'm so sorry you've been through so much. But you're not alone. Your story sounds similar to mine, gastrointestinal problems as a child that got ignored, laughed at, or simply dismissed as psychosomatic, symptoms changing and worsening health as I got older. I look back now and see how my parents were dealing with illnesses of their...
  17. knitty kitty
    Has anyone looked into the MATH+ protocol for Covid 19? https://covid19criticalcare.com/treatment-protocol/ It uses vitamin C (ascorbic acid), thiamine, melatonin, zinc and Vitamin D in addition to a blood thinner and steroids. Seems to be having an impact on survival rates.
  18. knitty kitty
    I came across this article and I wondered what other peeps think..... https://www.pharmacytimes.com/news/evaluating-the-efficacy-of-adjunctive-therapies-used-to-treat-covid-19-the-role-of-famotidine-melatonin-and-thiamine And then there's this article, too.... https://www.hormonesmatter.com/thiamine-for-covid19/ 😺
  19. knitty kitty
    You might find this website helpful.... USP https://www.usp.org/dietary-supplements-herbal-medicines https://www.quality-supplements.org/verified-products/verified-products-listings And, yes, I've had visual problems related to vitamin deficiencies. Hope this helps.
  20. knitty kitty
    NIH says... https://ods.od.nih.gov/factsheets/VitaminB6-HealthProfessional/ "chronic administration of 1–6 g oral pyridoxine per day for 12–40 months can cause severe and progressive sensory neuropathy characterized by ataxia (loss of control of bodily movements) [10,32-35]. Symptom severity appears to be dose dependent, and the symptoms usually sto...
  21. knitty kitty
    Hannah9, It's vitamin and mineral deficiencies. Google "anorexia bulimia vitamin deficiencies". I had vitamin and mineral deficiencies and I can say from experience that vitamin and mineral deficiencies affect your appetite and eating habits. I struggled with binge eating. You're not alone. Mine resolved with vitamin and mineral supplementation...
  22. knitty kitty
    Have you Googled. "SIBO and vitamin deficiencies" ? Malabsorption occurs in Celiac Disease. You're not absorbing enough vitamins and minerals for the body to keep intestinal bacteria in check. Checking for nutritional deficiencies is part of follow up care for Celiacs. Hope this helps!
  23. knitty kitty
    Wendy, I'm sorry you're feeling so depressed and frustrated about your Celiac diagnosis. My pastor described life events we don't want to go through as "a Call to Nineveh." Surely you remember the story of Jonah. He was called by the Lord to go preach to Nineveh, but Jonah was very opposed to going. Like many here on the forum, the diagnosis...
  24. knitty kitty
    Dolson, I understand and empathize with your feelings about the medical profession' ineptitude in treating autoimmune diseases like diabetes and Celiac Disease. Perhaps these research articles might help you. "Evidence for altered thiamine metabolism in diabetes: Is there a potential to oppose gluco- and lipotoxicity by rational supplementation...
  25. knitty kitty
    I agree with Trents. You can live without carbs. Here's an article on how the body utilizes both carbs, and proteins and fats as sources of energy. https://www.dietdoctor.com/low-carb/does-the-brain-need-carbs The body breaks down carbs into glucose which the brain uses for energy. But the body can also turn fats and proteins into glucose...
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