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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Wheatwacked, You may have difficulty with your potassium levels because you are low in Thiamine. See this article.... https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/ Dates are a better source of potassium than bananas. Charles, Do try to alter your diet like GFinDC suggested. Potatoes...
  2. knitty kitty
    Kimble, You only need one gene to be Celiac. It's like being a little bit pregnant. The egg white, onion, garlic, oregano, and cruciferous vegetables (cauliflower, kale, cabbage, broccoli, etc.) are all high in sulfur. Celiacs often become sensitive to foods (and medications) with high sulfur contents. And that horrible gas is a result of...
  3. knitty kitty
    Depends on your transit time. Gluten causes me to have gastroparesis (where your intestinal muscles don't squeeze the food through as they normally do). So whatever is ahead of the gluten slows down or stops moving. And there's bloating. And about two to four days later, that food comes out, with diarrhea behind it from the gluten containing food, or...
  4. knitty kitty
    How about MRE's (Meals Ready to Eat) like the military uses to feed troops on maneuvers? Foil pouches of long shelf life foods. And there's freeze dried things. Astronaut ice cream is pretty cool. (Pun intended 😸) Emergency food buckets are sold on Amazon. And jerky, beef, turkey, bison, etc. You'd rattle if you swallowed 200 ca...
  5. knitty kitty
    Thought this article might help.... And this one....
  6. knitty kitty
    lanlanonearth, I do agree that "Knowledge is power." Educating yourself about nutrition is essential in Celiac Disease. Since there's so much to learn about nutrition and diet in Celiac, let me recommend a book I found tremendously helpful in tying things together, for adults and children. "The Paleo Approach" by Sarah Ballantyne.... https...
  7. knitty kitty
    Beste28, You may be low in thiamine, vitamin B 1. The anxiety, insomnia, bladder weakness, constipation, Gerd, acne, tinnitus, tingling, twitching, ascending burning feeling, and all the rest can be attributed to deficiencies in thiamine and the other B vitamins and minerals thiamine works with. I had many of the same symptoms. SSRIs and many...
  8. knitty kitty
    JoLuvsFurries, A good rule of thumb is to drink a glass of water every time you visit the loo. Also discuss with your doctor about checking for vitamin and mineral deficiencies as proper follow up care for Celiacs. Magnesium and thiamine deficiencies can cause constipation. Make sure you get plenty of healthy fats, omega-3's, in your diet...
  9. knitty kitty
    lanlanonearth, That's great you're giving him more foods with lots of fiber. Be aware, some Celiacs have trouble with corn and other grains besides the gluten containing ones, wheat, barley and rye, and sometimes oats. Dairy can cause bloating and gas. You might want to keep him off a lot of carbohydrates (like the beans, sugar and juice). ...
  10. knitty kitty
    But Lemons11's symptoms can cover so many things, I don't think the health center would turn him away from at least a telehealth appointment, especially if he's got all his homework done (complete list of symptoms, food diary, etc.) which makes it easier on the health care workers. There are home test kits for Celiac (stool, genetic, etc.) that might...
  11. knitty kitty
    Lemons11, You need to stay on a gluten containing diet for right now. Celiac Disease causes our bodies to make antigens to gluten. These anti-gluten antigens can be measured with a variety of blood tests. If you stop eating gluten, your body will quit making the antigens and the blood tests won't be accurate. Be sure to ask for the full panel of...
  12. knitty kitty
    lanlanonearth, One of the ways the body protects itself after ingesting something irritating or harmful to it, like gluten, is to pack it together and stay away from interacting with it. This often results in constipation and hardened stools. You should make sure your son consumes water with meals. Sipping water with meals helps distribute digestive...
  13. knitty kitty
    Hello, sweeterin, Have you had a DNA test for the Celiac genes? If you've got one or two of the most common genes for Celiac, you may want to assume you have active Celiac Disease and that the damage just hasn't progressed to obvious severe damage. Celiac Disease causes malabsorption which can lead to multiple vitamin deficiencies. Thiamine...
  14. knitty kitty
    Kksandy71, Many newly diagnosed Celiacs suffer from vitamin and mineral deficiencies. Have you been formally diagnosed with Celiac Disease? Testing for vitamin and mineral deficiencies is part of proper follow up care. Magnesium helps relax those cramping muscles. And most of the B vitamins, especially thiamine, niacin, and pyridoxine (B1,...
  15. knitty kitty
    Cyclinglady, Thank you so much for sharing the "blockbuster level information" as Trents called this study! It's really cutting-edge! I'm so glad to see in-depth studies like this being done. I admire you all the more for being open-minded to new information. I must admit my first reaction was something my meemaw used to say "Well, knock me...
  16. knitty kitty
    Thanks, Posterboy, for starting a new thread about thiamine. I have found a video of Dr. Chandler Marrs, the coauthor with Dr. Derrick Lonsdale, of the book "Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition." Dr. Marrs in person explains the importance of thiamine and how thiamine deficiency is involved in disease. ...
  17. knitty kitty
    Plumbago, I apologize for offending you. I will be pleased to continue a discussion on thiamine on the thread Posterboy has so kindly started. Knitty Kitty
  18. knitty kitty
    Persian Celiac and Cycling Lady, I found this article about a very small sample of people that seems relevant. https://pubmed.ncbi.nlm.nih.gov/10840307/ Perhaps further investigation is warranted. Although more time for healing may be what is needed, like Cycling Lady suggested.
  19. knitty kitty
    Basmati rice is supposed to be the variety least likely to cause a reaction. I like wild rice grown in Minnesota (by Native Americans, harvested by hand, so no cross contamination) but it's pricey. Science Fun Fact: Vitamin B1 (Thiamine) is a chelator of arsenic. Thiamine binds to the arsenic permanently and they leave they leave through the...
  20. knitty kitty
    I'm not familiar with PUD. What does that stand for? I found a small drink of water every couple of bites while eating a meal helpful. Leaning to the left after eating is helpful in getting food to go down. It's the anatomy of the body. The stomach and small intestine drain off to the left. A cup of non caffeinated tea (or plain hot...
  21. knitty kitty
    Welcome to the forum. It sounds like you're having a rough time! Celiac Disease damages the villi in your small intestine. The tips of the villi produce an enzyme (lactase) that digests dairy. Ensure has dairy in it. You might want to exclude dairy from your diet for a while. You may find gluten free/dairy free soups and stews easier...
  22. knitty kitty
    Nina, Welcome to the forum! In upper right hand corner on blue banner are several symbols you can click on. Tapping the four lines together causes a drop down menu. Select "forums" and "forums home" to get to a list of topics in different categories. Tapping on the square symbol will take you to posts recently posted.
  23. knitty kitty
    ktb, I wonder if getting an erythrocyte transketolase test now would be possible. It's a special test for thiamine deficiency which is one of the vitamins most rapidly lost. I'm also concerned about the increased dosage of the proton pump inhibitors... And another article... https://pubmed.ncbi.nlm.nih.gov/28220520/ My heart...
  24. knitty kitty
    lanlanonearth, I'm sorry this thread is diverging. We're just concerned and wish the best for your son. Some of us have gone undiagnosed for so many years developing other health problems along the way, so be forgiving if we're over enthusiastic in our desires to nip it in the bud to prevent further complications. If only our mothers had been as perceptive...
  25. knitty kitty
    I have reconsidered after reading this post on the Cockroach Flour article. I have a shellfish allergy. I wouldn't want to risk triggering an allergic reaction like I have with shellfish for "bread".
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