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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Omega Threes, Vitamins A, D, E, Biotin B7, and Pantothenic Acid B5 are helpful in healing tendons. I'm so glad to hear of your improvement with high dose Thiamine. Are you taking a B Complex and magnesium as well?
  2. knitty kitty
    dermatitis herpetiformis that resembles folliculitis is a thing. I've had blisters as well as the follicular type. Any area is susceptible to an outbreak. Keep in mind that dermatitis herpetiformis is pressure sensitive, so avoid wearing elastic waistbands, belts, and tight fitting clothing.
  3. knitty kitty
    Removing dairy from my diet significantly improved my dermatitis herpetiformis. My skin and itch cleared rapidly afterwards. I suggest you try removing dairy and see if it makes a difference. Taking the flushing kind of Niacin, Nicotinic Acid (not related to nicotine in cigarettes), sounds counterintuitive because of the flushing, but it really helps...
  4. knitty kitty
    Welcome to the forum, @Nicola flaherty, Proton pump inhibitors like omeprazole results in negative blood tests for Celiac Disease. The Impact of Acid Suppression Medications and Non-steroidal Anti-Inflammatory Drugs on Clinical and Histologic Features in Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5511753/ Talk to your...
  5. knitty kitty
    Welcome to the forum, @MMH13, Yes, @trents and @Scott Adams have good advice. Do try to get off the ppi, omeprazole. This study found that people with Celiac taking PPI's like omeprazole are seronegative. The Impact of Acid Suppression Medications and Non-steroidal Anti-Inflammatory Drugs on Clinical and Histologic Features in Celiac...
  6. knitty kitty
    Welcome to the forum, @ItchyHell, Have you tried antihistamines? Niacin Vitamin B 3 helps. I use Vintage Traditions Tallow Balm which is absorbed into the skin and calms my dermatitis herpetiformis down. I'm concerned about your dermatitis herpetiformis being widespread and frequent. Are you getting gluten in your diet? Eliminating...
  7. knitty kitty
    @DebJ14, Dr. Derek Lonsdale and Dr. Chandler Marrs have done research on fluoroquinones and how they induce Thiamine deficiency. High dose Thiamine is used to treat being floxxed. Thiamine also helps UTIs. References: A Fluoroquinolone Reaction After Just One Pill https://www.hormonesmatter.com/fluoroquinolone-reaction-one-pill...
  8. knitty kitty
    Hi, @Katanya, How are you doing? I hope you're feeling better. Did you decide to do a gluten challenge? You could have an endoscopy and biopsy without a gluten challenge. This would give a baseline with which to compare future endoscopies. I believe a positive blood test for anti gluten antibodies is a positive for Celiac Disease. In the early...
  9. knitty kitty
    @lydialoo, Tell me about your high dose Thiamine routine. What kind of Thiamine are you taking? How much (mg) are you taking? When do you take it? Are you taking a B Complex? Are you taking Magnesium?
  10. knitty kitty
    Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
  11. knitty kitty
    @Nacina, I would add a B Complex to all that and extra thiamine B 1 and magnesium glycinate, and high dose Vitamin D to get his level up faster. We need the B vitamins to repair our body and for energy to function. Thiamine B 1 is especially important for athletes. Thiamine works with magnesium. Thiamine and magnesium deficiencies can cause...
  12. knitty kitty
    Welcome to the forum, @Nacina, What supplements is your son taking?
  13. knitty kitty
    @BluegrassCeliac, I'm agreeing. It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together. If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well. If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide...
  14. knitty kitty
    @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm...
  15. knitty kitty
    @Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you...
  16. knitty kitty
    Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.
  17. knitty kitty
    @Ginger38, Have you had a DNA test for Celiac genes? You don't have to eat gluten with a DNA test.
  18. knitty kitty
    @BluegrassCeliac, welcome to the forum, Hydrochlorothiazide HCTZ and other diuretics are known to cause Thiamine deficiency. Anti-anxiety meds, SSRIs, PPIs and sulfa drugs are known to cause Thiamine deficiency. Thiamine and Magnesium work together. A deficiency in magnesium can hinder how thiamine is utilized. Cytokine Storms are ameliorated...
  19. knitty kitty
    @Celiac16, Have you tried taking Niacinamide, the non-flushing form of Niacin Vitamin B 3? Have you tried non-methylated forms of Cobalamine B12 and Folate B 9? Nausea and vertigo can be helped by Thiamine. Vitamin D helps with vertigo, too.
  20. knitty kitty
    @Vicrob, Have your swallowing issues, speech slurring and chronic cramps/nerve pain/muscle fluctuations improved since starting to take Benfotiamine? Those are all symptoms of Thiamine deficiency disorders. How much Benfotiamine do you take a day?
  21. knitty kitty
    @susiegoldcoast, try starting a reply without quoting previous messages.
  22. knitty kitty
    @Celiac16, Thiamine (any form including Benfotiamine) needs magnesium to make life sustaining enzymes. Taking Thiamine without sufficient magnesium means the body cannot use Thiamine properly. I understand how magnesium can make you feel "knocked out" but that goes away with continued supplementation. When I first started supplementing magnesium...
  23. knitty kitty
    @Moodiefoodie, Sorry you are having such problems. Gluten exposure, illness and vaccinations are situations in which there is a higher demand for Thiamine Vitamin B1. We need more Thiamine when we have an immune response, whether it is caused by a cold or an inoculation to promote an immune response as with vaccines, or upon exposure to...
  24. knitty kitty
    How are you doing, @susiegoldcoast?
  25. knitty kitty
    @Vicrob, There's a connection between increased liver enzymes and Thiamine deficiency. Thiamine deficiency is a result of malabsorption due to Celiac Disease and increased demand during illness. Thiamine deficiency can cause Ataxia. Thiamine deficiency can cause lesions on the brain. Thiamine deficiency can cause neuropathy. Thiamine deficiency...
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