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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Celiac16, When the effects wear off, have you tried taking MORE thiamine? Have you tried Allithiamine (Tetrahydrofurfuryl Disulfide TTFD) or Thiamax? Are you taking a magnesium supplement, too?
  2. knitty kitty
    @Celiac16, Fat soluble vitamins are Vitamins A, D, E, and K. There's little risk of toxicity unless one takes supplementing to excessive levels for a long period of time. https://ods.od.nih.gov/factsheets/VitaminA-HealthProfessional/#h17 https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/#h36 https://ods.od.nih.gov/factsheets...
  3. knitty kitty
    @lasthope2024, I'm thankful I can help. An Erythrocyte Transketolase test is a better test for Thiamine deficiency than a blood test. The Erythrocyte Transketolase test needs to be taken before starting vitamin supplementation. Otherwise, the vitamins you take will invalidate the results. I take Ecological Formulas Allithiamine (Tetrahydrofurfuryl...
  4. knitty kitty
    Yes, the antibodies cause damage to the intestines, and the brain, and every other organ and tissues in the body. Anti-transglutaminase antibodies (anti tTg IgA on blood tests) are antibodies that attack transglutaminase, a building component in the cell membranes of every cell in the body. The gluten may pass, but the antibodies are what can...
  5. knitty kitty
    Welcome to the forum, @lasthope2024, Blood tests are not reliable measures of vitamin deficiencies. Antibiotics are known to cause Thiamine Vitamin B1 deficiency. Gastrointestinal Beriberi is caused by Thiamine deficiency. "At age 14 I started having constant, chronic abdominal pain and acid reflux (also constipation and reduced...
  6. knitty kitty
    No, you can't add it up that way. Gluten stimulates anti gluten antibodies to be made. Those antibodies are what become cumulative. Ten grams a day for several weeks, gets those antibodies produced in the small intestine to a level where those antibodies get into the bloodstream in a high enough level that they are measurable in the bloodstream....
  7. knitty kitty
    @selectivefocus, Some people with Celiac can develop sensitivity to dairy, not just lactose intolerance, but a reaction to Casein, a protein in dairy that resembles gluten. Cradle cap is frequently a manifestation of eczema brought on by this reaction to Casein. In a reaction, repeated exposure to Casein may be tolerated to a point, but then the body...
  8. knitty kitty
    Yes, gluten free processed foods are not required by law to be enriched or fortified with essential vitamins lots during processing like gluten based processed foods are. Plus gluten free processed foods are made with lots of added sugars, and saturated unhealthy fats which require higher doses of Thiamine to turn into energy for our bodies. Hiding...
  9. knitty kitty
    @brian1, welcome to the forum Sorry to hear you're not feeling better. Improving one's vitamin levels are so important. I use Thiamine, Pyridoxine B6, and Cobalamine B12 for pain relief in addition to a B Complex supplement. This combination really works for my pain. Keep us posted on your progress! Here's some articles you might...
  10. knitty kitty
    The AIP diet is meant to reduce inflammation and allow healing. If you go back to eating inflammatory foods, the intestines are going to get inflamed again. Lactose intolerance and a reaction to Casein, a protein in dairy that resembles the protein gluten, can cause continuing inflammation. Are you eating a nutrient dense diet? Do you eat gluten...
  11. knitty kitty
    Thiamine Mononitrate is not well absorbed and not utilized well by the body. Thiamine Hydrochloride and Benfotiamine are forms the body can utilized much easier. Benfotiamine has been shown to promote intestinal healing. Thiamine needs magnesium to make some essential enzymes. A magnesium citrate or magnesium glycinate supplement should be taken...
  12. knitty kitty
    Yes, much of the damage done in Celiac Disease is microscopic. A pathologist trained in Celiac Disease pathology should be able to recognize it.
  13. knitty kitty
    Welcome to the forum, @GardeningForHealth! I would call what you describe as "Malnutrition Progression" because the gluten free diet can be inadequate in vitamins and minerals. Additional food sensitivities can be a result of high histamine levels and inadequate vitamins needed to clear histamine. Following a low histamine AIP diet will help...
  14. knitty kitty
    More research articles on Malnutrition in Celiac Disease Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/ Nutritional Status and Metabolism in Celiac Disease: Narrative Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10419423/ ...
  15. knitty kitty
    On average, a slice of bread contains about 2 grams of gluten. Three grams of gluten is enough to make you feel unwell, but TEN grams of gluten gets the anti gluten antibodies into the bloodstream at a high enough level where they can be measured for blood tests for Celiac Disease and to produce noticeable damage in the small intestine. Different breeds...
  16. knitty kitty
    Not that I know of, unfortunately.
  17. knitty kitty
    According to this recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured...
  18. knitty kitty
  19. knitty kitty
    Remember that twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function? You can be on that borderline between minimum sufficiency and deficiency for a long time, years. Try a combination of injections and Allithiamine. See how it works for you. I don't see anything problematic there. Hiding in Plain...
  20. knitty kitty
    Welcome to the forum, @OctiSD! You may want to consider having an endoscopy with biopsies now without a gluten challenge. That way you could get a baseline of what damage done due to Celiac is still left and needs healing. It can also rule out any other digestive problems that can cause similar symptoms. Checking anti gluten antibodies in the blood...
  21. knitty kitty
    This has a list of ingredients... No gluten, corn starch. https://dailymed.nlm.nih.gov/dailymed/lookup.cfm?setid=c54cf95f-6465-4203-b98b-a54ba5a26843#drug-information
  22. knitty kitty
    @heyitsme, No, the Erythrocyte Transketolase test is not widely available. One of the labs that offered it closed due to Covid. The World Health Organization recommends taking high dose Thiamine and looking for symptom improvement. Different types of Thiamine have different doses. Thiamine Hydrochloride is not well absorbed, so higher...
  23. knitty kitty
    @heyitsme, An Erythrocyte Transketolase test is a better method of testing for Thiamine deficiency. Thiamine deficiency correction needs Thiamine supplementation for longer than a few days. Thiamine in the form of Tetrahydrofurfuryl Disulfide (TTFD) (aka Allithiamine) can get into the brain easily and improves brain function better than...
  24. knitty kitty
    @goatmanvevo, You may want to keep a food-mood-poo'd diary. Tracking irritating foods is much easier with a diary and helpful to doctors and nutritionists. Sometimes while healing we can react to other foods. Eggs, soy, and other grains like corn may be difficult to digest and may provoke gastrointestinal symptoms. Lactose intolerance or a...
  25. knitty kitty
    Welcome to the forum, @heyitsme! Your experiences and symptoms sound similar to mine when I had Thiamine deficiency and other nutritional deficiencies. You can read more of my story in my blog. Elevated liver enzymes are a symptom of Thiamine deficiency. Dizziness, especially after changing position could be Postural Orthostatic Tachycardia...
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