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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Have you heard of Mast Cell Activation Syndrome? The Patient Celiac wrote about it in her blog and explains it well. https://www.ncbi.nlm.nih.gov/pubmed/27619824 Vitamin D helps tame mast cells. Get your vitamin D level up! Levels between 70 and 100 nmols are much better for you. https://www.ncbi.nlm.nih.gov/pubmed/29971262 Try a...
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Breast Cancer Treatment with Celiace Disease
knitty kitty replied to laralee's topic in Coping with Celiac Disease
https://www.ncbi.nlm.nih.gov/pubmed/17283738 "Since the 1970s, 280 peer-reviewed in vitro and in vivo studies, including 50 human studies involving 8,521 patients, 5,081 of whom were given nutrients, have consistently shown that non-prescription antioxidants and other nutrients do not interfere with therapeutic modalities for cancer. Furthermore, they... -
difficulty swallowing Help
knitty kitty replied to Britgirlunusa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Perhaps it is Eosinophilic esophagitis? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3798906/ Eosinophilic esophagitis occurs with Celiac Disease sometimes. They don't know exactly why the two occur together... There have been other posters with both these diseases. Hope this helps!- 6 replies
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- gaining weight
- healing
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Zinc deficiency seems to play a part in Giardia infection. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4488794/#!po=28.6885 Seems zinc is needed for a proper immune response. Giardia causes malabsorption of vitamins (A and D, B12, folate) and minerals (zinc and iron). Supplementing with zinc may help your body's immune response to fight this...
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Breast Cancer Treatment with Celiace Disease
knitty kitty replied to laralee's topic in Coping with Celiac Disease
Just thought I'd add a couple more science articles about how a ketogenic diet may be helpful with cancer. I follow the AutoImmune Protocol diet, a Paleo ketogenic diet which has helped me tremendously. No dairy, no nightshades (potatoes, tomatoes, peppers, eggplant), no grains. And I also eat low histamine foods (nothing fermented or pickled). Histamine... -
Breast Cancer Treatment with Celiace Disease
knitty kitty replied to laralee's topic in Coping with Celiac Disease
https://www.ncbi.nlm.nih.gov/pubmed/29290565 "Serum Vitamin D Levels Affect Pathologic Complete Response in Patients Undergoing Neoadjuvant Systemic Therapy for Operable Breast Cancer." This article (and many more like it) says that your vitamin D levels are very important when fighting any sort of cancer. These studies found that low vitamin D... -
Pork and brown rice
knitty kitty replied to Emily45's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Those absorbent pads found under cuts of meat containing sulfites, too. -
Neurological symptoms post gluten free diet
knitty kitty replied to Hummingbird's topic in Related Issues & Disorders
I know this one!!! You're describing what I went through! The numbness and buzzing and not being able to tell temperatures and gabapentin making it worse! It's malnutrition from malabsorption caused by Celiac Disease. Have you been checked for vitamin and mineral deficiencies? I urge you to get checked. Malnutrition is so overlooked by doctors... -
Pork and brown rice
knitty kitty replied to Emily45's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A few science-y articles to help explain..... About Lectins.....plants make lectins to protect themselves from being eaten by predators and are a source of inflammation...... Brown rice has lectins in the hull. White rice has that hull removed. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/ Then there's Sulfite Sensitivity that some... -
Eating gluten with celiac?
knitty kitty replied to capecupcake's topic in Coping with Celiac Disease
All the health issues you listed are related to Vitamin D deficiency!!!!! Vitamin D deficiency is also responsible for that feeling of hopelessness, depression. Have you been checked for vitamin and mineral deficiencies? How are you correcting your anemia? Celiac Disease causes malabsorption which results in malnutrition. Celiacs have a problem... -
Foods high in iodine can make DH rash flare. Avoid shellfish, idolized salt and dairy products. Dapsone contains sulfur. Some Celiacs develop a sensitivity to Sulfites and other forms of sulfur. Here's an article that explains it. http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/ I have a hypersensitivity to sulfur...
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Did Anyone Exhibit Ocd While Glutened?
knitty kitty replied to speedy2056's topic in Coping with Celiac Disease
"Obsessive Compulsive Disorder as Early Manifestation of B12 Deficiency" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3271502/#!po=25.0000 Please read this article! Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. One of the most common deficiencies in Celiac Disease is B12 deficiency. Many... -
Did your doctor check your vitamin B12 (cobalamin) level? Vegetarians often have low vitamin B12 which can negatively effect iron absorption. Folate, zinc, and copper levels should be checked, too. There's more to correcting anemia than just taking iron supplements.
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Sleep Trouble Post-diagnosis
knitty kitty replied to kyhr's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been plagued with insomnia before. I found supplementing with certain vitamins and minerals helped. Celiac Disease causes malabsorption which results in nutritional deficiencies. Vitamin D, and niacin (B3) helped me. Here's an article that explains more. https://eunatural.com/7-important-vitamins-insomnia/ -
I hope you are feeling better. I experienced diarrhea for a long time. It resulted in nutritional deficiencies. My doctors overlooked simple vitamin deficiencies in favor of writing numerous, expensive prescriptions that never improved the symptoms. Deficiencies in certain vitamins, like Vitamin D, B12, thiamine and niacin, will actually cause diarrhea...
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My long Gluten story -just saying
knitty kitty replied to Laoshi's topic in Dermatitis Herpetiformis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/ Here's an article about glyphosates that explains it well.- 3 replies
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Anaphylaxis due to celiac disease?
knitty kitty replied to Tash18's topic in Food Intolerance & Leaky Gut
Here's a helpful site, but it's not grain free... https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ Yes, Tash, I did keep a food journal. I had lists of low histamine foods that I would use to make menus and shopping lists. I ate meat (grass fed beef, lamb) and fresh veggies. (Chicken and fish bother me still.) I did... -
Get your vitamin B12 checked asap! Vitamin B12 (cobalamine) deficiency can cause mental symptoms exactly like you're describing. I've been deficient in B12 and have experienced and understand dissociation. Some people can be deficient in B12 and not have any mental or emotional problems. A lucky few have the mental changes long before anemia shows...
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Anaphylaxis due to celiac disease?
knitty kitty replied to Tash18's topic in Food Intolerance & Leaky Gut
Hi, Tash. Sorry you're not feeling well. I empathize with being scared to eat anything. I remember what that's like. You're not the only one going through this. Posterboy is on the right track with Mast Cell Activation Syndrome and this link is very helpful. Lots of good reading. http://www.thepatientceliac.com/2014/01/04/mast-cell-activation... -
You may want to continue eating gluten and have an endoscopy done to check for flattened villi in the intestines which is one sign of Celiac Disease, and to rule out other inflammatory bowel diseases. Even though the blood tests came back negative, your other symptoms (Barrett's esophagus, vitiligo, hypothyroidism) often occur with celiac disease. Not everyone...
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Sorry to hear you're not feeling well. Celiac Disease causes malabsorption which results in vitamin and mineral deficiencies. Celiacs are often low in zinc. Zinc competes with copper in the body. You might want to get your zinc level checked, too. Here's studies on IUD's and how they effect zinc and copper levels. https://www.ncbi.nlm.nih.gov...
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Reoccurring Bruising
knitty kitty replied to amyschicks's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Perhaps the bruising is caused by Vitamin C deficiency, aka scurvy. Here's an article that references a man with malabsorption problems due to alcoholism. Celiacs can get scurvy, too. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2517958/ When I was low in vitamin C, I'd get two round bruises, one on each thigh, that didn't match door knobs or... -
Parallel rash on chest + belly button?
knitty kitty replied to moleface's topic in Dermatitis Herpetiformis
Have you been checked for Lyme Disease? Having a reaction of hives after eating meat is connected to Lyme Disease. See this article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3614139/ Here's another article about skin problems associated with Celiac Disease. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3369470/#!po=51.5000 Hope this... -
Unusual symptoms, any help appreciated
knitty kitty replied to rgarton's topic in Coping with Celiac Disease
Sympathy and explanations...... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/ This article explains how certain vitamin deficiencies can cause tremors, shaking, tics, etc. Celiac Disease causes malabsorption which results in malnutrition. I had vitamin deficiencies. I had episodes like what you've described with the shaking... -
Symptoms of vitamin B12 deficiency include dizziness, anemia, chest tightness, tingling, and depression. You may want to have your doctor check to see if you have any nutritional deficiencies. Celiac Disease causes malabsorption which results in malnutrition. Products containing wheat are required to have vitamins and minerals added back to replace...