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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hello! Celiac Disease causes malabsorption of nutrients and vitamins. While you're healing, you may not be able to absorb all you need, and supplementing may be necessary. Vitamin D and the B complex vitamins are often low in newly diagnosed people. Here's an interesting article on how low vitamin levels may be contributing to the edema. http:...
  2. knitty kitty
    AristotlesCat, You said you tested positive for antibodies. Were the tests specific for gliadin antibodies? Or just antibodies of inflammation in general? Coffee contains polyphenols. The amount of polyphenols can vary with the roasting time of the coffee beans. Perhaps the coffee you've switched to contains more polyphenols. Polyphenols...
  3. knitty kitty
    GeorgeW, Hi. I'm sorry you're feeling ill and are frustrated finding answers. I understand. I spend a bit of time researching how Celiac Disease and the resulting malnutrition can affect us. I'm not a doctor. I'm a microbiologist. You said you were very careful with your gluten free diet, so I believe you weren't glutenized. However, vitamin...
  4. knitty kitty
    Anil, I'm so glad you are feeling better! The article suggests 600mg of magnesium (too much magnesium will cause diarrhea), 400mg of riboflavin (too much will cause tingling or flushing), and 500mg of omega 3. I took my supplements in divided doses with each meal. I also take a B-Complex vitamin that has 50mg of all the B vitamins and 400mg...
  5. knitty kitty
    Anil, I understand how uncomfortable migraines can be. I've suffered from them for many years, too. I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help. My migraines began to decrease in intensity and frequency after taking these supplements. This article explains...
  6. knitty kitty
    Hello. The cheilitis and the itchy rash after sun exposure, the sensitivity to light, and dents in fingernails, and the tingling cold extremities and palpitations are symptoms of deficiency of B vitamins, especially B 3, niacin, and B12, and iron deficiency and vitamin A and D deficiencies. I experienced something similar when I was looking for answers...
  7. knitty kitty
    Jm34, Has your calcium level been checked lately? http://universityhealthnews.com/daily/nutrition/21-calcium-deficiency-symptoms-that-will-surprise-you/ This article describes things that can affect your calcium intake, such as proton pump inhibitors (which you have taken in the past), vitamin D deficiency (which you have) and magnesium...
  8. knitty kitty
    Oh! I'm so sorry to hear that your condition is so serious. I hope everything goes smoothly for you. We're here to support you through this. Please keep us posted on your progress. Knitting kitty P.S. It might be beneficial to mention your problem with dietary sulfites to your doctors. I believe there's a connection there.
  9. knitty kitty
    Sorry you're having such a rough go. I sympathize with you. Do you have an allergy to Sulfa drugs? A similar thing happened to me. I started getting sick whenever I ate something canned. After some research, I found that the plastic-y lining of the cans have Sulfites in them. Sulfites are used as antimicrobial agents... Clindamycin is a sulfa...
  10. knitty kitty
    Jm34, oh, how frustrating your doctor visit was! Could you have a sulfa drug allergy? Those PPI's often are sulfa drugs. Many Celiacs develop a reaction to drugs containing sulfur. It's got something to do with an inability to metabolize them properly. Perhaps your doctor could recommend a different medication, one without sulfur. It's...
  11. knitty kitty
    JM34, I recommend the book "Niacin: the real story" by Dr. Abram Hoffer. Yes, when you first start taking niacin, you will experience flushing, but the longer you take it, the more the flushing subsides. The flushing is simply the blood vessels in your skin opening. The non-flushing/extended release niacin may cause gastrointestinal upsets that you would...
  12. knitty kitty
    JM34, Are you taking Niacin? You seem to have had diarrhea for quite a while now. You mentioned your acne came back. You say you get irritated easily. These are symptoms of Pellagra....diarrhea, dermatitis, and dementia. https://www.ncbi.nlm.nih.gov/pubmed/2084620 This is an article about irritated esophagus in people with Pellagra...
  13. knitty kitty
    Egs1707, Did you ever get your vitamin D level checked??? I encourage you to do so asap. Depression can be caused by a deficiency of vitamin D. I was vitamin D deficient and the world looked as bleak and dark and foreboding as you see it now. Damaged villa can't absorb fats well, and vitamin D is a fat based vitamin. Your brain needs omega...
  14. knitty kitty
    You poor thing! You have been having a bad time! Bless your heart. I experienced similar weakness and anxiety. I had Pellagra in addition to Celiac Disease. Pellagra is a deficiency of Niacin, a B vitamin. The four D's of Pellagra are diarrhea, dermatitis, dementia and death. The dementia made me depressed and anxious. I could not think properly...
  15. knitty kitty
    I take 250mg with each meal and snacks. I read a book "Niacin, the real story" by Drs. Hoffer, Saul, and Foster, which advocates high doses. I started small and am increasing my dosage. I'm often sceptical of "cure-all," fad diet, latest health craze books, but this one confirms the research I did prior to stumbling across this book. I have experienced...
  16. knitty kitty
    Niacin definitely helped me with the itching!!! It has also helped me regain blood sugar control after years of being type two diabetic. My peripheral neuropathy is going away. My rashes have cleared. It's amazed me to feel the difference. I would be sceptical if I hadn't lived through it myself. You might want to consider going dairy free, too...
  17. knitty kitty
    Hello. I have Celiac Disease and developed Pellagra. Pellagra is a vitamin deficiency disease caused by a deficiency of niacin. Symptoms include rashes on the shins and arms and around the neck, basically where the skin is exposed to the sun. Another symptom is brain fog. If untreated, dementia sets in. The small intestine absorbs niacin,...
  18. knitty kitty
    Bad Casper, I understand how you feel. I posted earlier about anticholinergic drugs and nightshade, but I also react to anything dairy. Gluten and dairy have similarly shaped proteins that clog up receptors in the brain. When I have dairy, I become very emotionally upset. It's like Veruca Salt (from Willy Winka and the Chocolate Factory with Gene Wilder...
  19. knitty kitty
    Nightshades. I thought all the fuss about nightshades was a bunch of hooey, until I ate some green potatoes. I had the worst experience in my life. I thought I was going completely mad. Very scary. Curled up in a ball and waited for it to pass. It took days. When I could think again, although still foggy, I reseached nightshades and found they have...
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