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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @NikkiRose96! While only having one allele for Celiac may put you in a lower risk group for developing celiac disease, it also may put you at higher risk for ulcerative colitis. Not diagnosing. HLA-DQA1*05 Associates with Extensive Ulcerative Colitis at Diagnosis: An Observational Study in Children https...
  2. knitty kitty
    Welcome to the forum, @Lrgthrcl. Get your daughter checked for nutritional deficiencies. Many of the symptoms you related are related to vitamin and mineral deficiencies due to malabsorption caused by Celiac Disease. Talk to the doctors about testing for deficiencies before starting vitamin supplements on your own. Get testing done for more...
  3. knitty kitty
    Updated Guidelines on doing a gluten challenge can be found here.
  4. knitty kitty
    @emilyyy, Yes, eating gluten sporadically and not eating gluten for a week can impact your biopsy results. You owe it to yourself to do the gluten challenge appropriately. Go all in so you will get unequivocal results. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten...
  5. knitty kitty
    There's a higher risk for Celiac people to develop chronic urticaria. First generation antihistamines like hydroxyzine are helpful in reducing histamine levels. Does urticaria risk increase in patients with celiac disease? A large population-based cohort study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3896876/ Histamine release...
  6. knitty kitty
    @emilyyy, Have you thought about getting a DNA test? Celiac Disease is genetic. You must have at least one of the genes for celiac disease to develop. You don't have to be consuming gluten for a DNA test. What is being done for your low iron? Low iron is common in newly diagnosed Celiacs. In the early stages of celiac disease, intestinal...
  7. knitty kitty
    @B1rdL0ver, Keep in mind that gluten free processed facsimile foods are not required to be enriched or fortified with vitamins and minerals. Gluten based foods are required to be enriched with vitamins and minerals lost during processing. So when you go gluten free, you have to buy your own vitamins. Do you eat any vegetables? Veggies are an...
  8. knitty kitty
    @B1rdL0ver, welcome to the forum! Minocycline is a tetracycline antibiotic that can interact with Thiamine Vitamin B1 in your body resulting in Thiamine deficiency. Some acne can be caused by deficiencies in any of the eight essential B vitamins. Diets high in carbohydrates can induce a thiamine deficiency. Thiamine deficiency symptoms...
  9. knitty kitty
    @ceslater, Ask your doctor for an Erythrocyte Transketolase test to check for Thiamine deficiency. Although, you can have normal blood levels and still have a clinical thiamine deficiency. Palpitations, irregular heartbeat, and migraines are associated with Thiamine deficiency. Weight loss (without trying) is another symptom. Dry eyes are associated...
  10. knitty kitty
    @ALLAN HUGHES, Are you taking any nutritional supplements? Several of the B vitamins are needed to make red blood cells. Celiac and aging can affect our ability to absorb nutrients from food. Supplementing with a B Complex may help. Riboflavin B 2 has been shown to promote erythropoiesis. Niacin B 3, Thiamine B1, Vitamin D, and Pyridoxine...
  11. knitty kitty
    Welcome to the forum, @GJC! No, Celiac doesn't go away. With us, every time we eat gluten, our immune system revs up, increasing inflammation and causing collateral damage. Every time we eat gluten, antigluten antibodies attack the gluten, but also the cells of our bodies. In the stomach, the parietal cells produce the Intrinsic Factor which...
  12. knitty kitty
    @Liquid lunch, Remember to stay away from cruciferous vegetables, for a while, too!!! 😺
  13. knitty kitty
    Welcome to the forum, @LouisaM! Taking Thiamine supplements helps with menstrual pain and irregularities. Other vitamins like Riboflavin B2, Pyridoxine B6 and Niacin B3, and Vitamin D work with Thiamine and helped improve symptoms. Even on a gluten free diet, Celiac people can develop nutritional deficiencies. Discuss nutritional supplementation...
  14. knitty kitty
    Have you tried soaking them in distilled water? Apparently distilled water can pull more lectins out of seeds and beans. https://pubmed.ncbi.nlm.nih.gov/29580532/
  15. knitty kitty
    Came across this article.... Mild metabolic hyperoxaluria and its response to pyridoxine https://pubmed.ncbi.nlm.nih.gov/3811039/
  16. knitty kitty
    Welcome to the forum, @ceslater! Have you had your thyroid and parathyroid glands checked? Apparently there's a link between Celiac disease and hyperparathyroidism and mandibular tori. Magnesium is important for keeping calcium in the bone in place and not depositing elsewhere. Vitamins and minerals important to bone maintenance include...
  17. knitty kitty
    @DMulder47, Many of the symptoms you describe are attributable to vitamin deficiencies. Most people with Celiac Disease develop them because of the malabsorption and inflammation caused by celiac disease. My heart palpitations and high heart rate were caused by a deficiency in Thiamine B1. I had all the tests, too, and the doctors couldn't find...
  18. knitty kitty
    @ArchieK, If you're eating a lot of processed carbohydrates, you may have Small Intestinal Bacterial Overgrowth (SIBO). These bacteria produce lots of gas after helping themselves to your carbohydrates. They can spread from the large intestine (where they are supposed to be) into the small intestine where they can cause gastrointestinal symptoms...
  19. knitty kitty
    @Ginger38, I was diagnosed with Generalized Anxiety Disorder and Complex PTSD. SSRIs did not improve my health. SSRIs made my gastrointestinal symptoms much much worse, worsening my brain health as well. What did work for me was to focus on calming my digestive system and providing essential vitamins and minerals so my body could function properly...
  20. knitty kitty
    Welcome to the forum, @Gini1! You can take a DNA test to see if you have any of the known genes for Celiac Disease. Anemia, diabetes, and thiamine deficiency can cause false negatives on serum tests. Seronegative Celiac Disease does exist, where people with Celiac Disease don't show anti gluten antibodies in their blood. Other blood tests...
  21. knitty kitty
    @Rebecca Clayton, You can click on the links and open and save the studies on your device or print them out.
  22. knitty kitty
    @Rebecca Clayton, I know that doctors frequently overlook nutritional deficiencies as a cause of health problems. It's important to get high doses of Thiamine and the other B vitamins. I've found some research showing several other B vitamins as well as Thiamine help with clotting. High dose Thiamine was used in Covid patients to stop lung...
  23. knitty kitty
    Have you been checked for nutritional deficiencies? Are you currently supplementing with vitamins and minerals? Some cancers and other illnesses occur because of nutritional deficiencies. High dose Thiamine has been shown to be beneficial in fighting cancer. References: Small and Large Intestine (I): Malabsorption of Nutrients https...
  24. knitty kitty
    Pumpkin seeds are high in Lectins. Lectins are carbohydrate-binding proteins found in plant seeds and beans. Lectins can be inflammatory to already damaged intestines as in Celiac Disease. Interesting Reading... Do dietary lectins cause disease? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/
  25. knitty kitty
    @augustmoon, No worries, we talk about poop a lot here. Are you currently eating gluten? Or have you gone gluten free? Do you eat a lot of carbohydrates? Were you eating lots of gluten prior to your Celiac test? What symptoms made you get a Celiac test?
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