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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Was the H. Pylori test negative? Have you been tested for intestinal parasites? Do you have constipation? Is this with every bowel movement? What have you been eating? Are you eating gluten?
  2. knitty kitty
    Welcome to the forum! Do you have anemia or Diabetes? Thiamine and magnesium deficiencies can cause constipation. Are you keeping a food mood poo'd journal? Do you know which food is causing the peach pit problem? Have you been checked for H. Pylori infection?
  3. knitty kitty
    Welcome to the forum, @Lina0206! Have you been checked for nutritional deficiencies? Many newly diagnosed have low levels of Vitamin D which helps regulate the immune system and being low can cause dizziness, as can being low in some of the B Complex vitamins, like Cobalamine B12 and Thiamine B1. Have you talked to your doctor or nutritionist...
  4. knitty kitty
    @Gilly M, Have you tried taking a whole capsule of B Complex for several days before starting the additional thiamine? We can use personal messaging through the forum.
  5. knitty kitty
    @Jenn D, I wouldn't worry about it because his numbers are coming down. Liver function changes following the introduction of a gluten-free diet in patients with celiac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977883/ Supplementing with vitamins and minerals to ensure sufficient nutrients can help. The Effect of a High...
  6. knitty kitty
    Hey, lady, Some people, because of their genetics, stop producing LactAse, the enzyme that digests the sugar (LactOse) in dairy, when they become adults. Some people with Celiac Disease have digestive problems after consuming milk and dairy products because the villi in the small intestine have been damaged by the autoimmune response to gluten...
  7. knitty kitty
    @Kara Anne, Yes, I gained weight. Celiac Disease affects the ability to absorb sufficient nutrients due to damage in the small intestine. Nutritional deficiencies are common in celiac disease and need to be corrected as quickly as possible. Supplementing with essential vitamins and minerals boosts our body's ability to absorb these nutrients...
  8. knitty kitty
    @mrsdelore, Your antibody tests may be giving inconclusive results because you are not eating sufficient gluten consistently to get your antibody production up to a level that is measurable in the bloodstream. Diabetes, anemia and Thiamine deficiency can affect antibody production, causing false negatives, too. In an earlier post, you had two positive...
  9. knitty kitty
    Welcome to the forum, @misslemon! You can get a genetic test for any of the genes known to cause Celiac Disease which would not require eating gluten. Having the genes and improvement on a gluten free diet can be a diagnosis of Celiac Disease. You also stated you get a rash when you ate breadsticks. That rash could be Dermatitis Herpetiformis...
  10. knitty kitty
    Welcome to the forum, @Ecann74! @trents is right. You don't have to check every box to Bingo for Celiac Disease. The high IgA, IgG and positive genes are sufficient for a Celiac diagnosis. In fact, this study found that negative Endomysial antibodies might be related to long lasting untreated coeliac disease. Endomysial antibody‐negative c...
  11. knitty kitty
    @Jjk1992, Welcome to the forum! Having a slightly positive test result warrants more investigation. Like @trents said, a slightly positive result can be a reflection of decreased gluten consumption prior to the test. It's like being told you're a little pregnant. Was your Total IgA taken? If you have low Total IgA, your tTg IgA can...
  12. knitty kitty
    Hello, @Gilly M, I'm so sorry you are having such a difficult time. My doctors told me my symptoms were extreme anxiety, but high dose Thiamine actually relieved the anxiety. In my book, anxiety is the body's way of saying something is wrong. We're Thiamine Contingent. If we don't get sufficient Thiamine, our mitochondria and cells cannot function...
  13. knitty kitty
    You're very welcome, @Daisy23. Have you had a genetic test for Celiac Disease done? Since Celiac and dermatitis herpetiformis are genetic, you may want to consider having your daughter (children) checked, too. Keep us posted on your progress!
  14. knitty kitty
    @Daisy23, Yes! Sounds very familiar! Sounds like Dermatitis Herpetiformis, a skin manifestation of Celiac Disease. A biopsy next to, but not on top of, a blister should be taken. With special staining, Celiac Disease antigluten antibodies can be seen. A biopsy positive for Dermatitis Herpetiformis is a diagnosis of Celiac Disease. Unfortunately...
  15. knitty kitty
    @Rhapsody, Welcome to the forum! Geographic tongue has been linked to deficiencies in Pyridoxine Vitamin B6, Folate B9, and Cobalamine B12, as well as deficiencies in zinc, iron, and Vitamin D. Both types of Diabetes have been linked to low Thiamine Vitamin B1 levels. Celiac Disease causes malabsorption of essential nutrients like the...
  16. knitty kitty
    Do you include dairy products in your diet? Do you include gluten free breads and processed products?
  17. knitty kitty
    @Daisy23, welcome to the forum! Yes, white bread is fine for the gluten challenge. A slice of bread can have between 2.5 to 5 grams of gluten. You may want to share the following information with your doctors and ask for testing sooner. According to recent research, updates to the gluten challenge are being implemented. Recommended...
  18. knitty kitty
    @James47, Yes! Yeah you! 😸 Celiac can be a bumpy journey and we all need to encourage each other along. @Wheatwacked can tell you this story about Celiac, alcohol and thiamine. Perhaps he will join us. I'm a big fan of taking high dose Thiamine because of the benefits. Here's some interesting articles... Thiamine an...
  19. knitty kitty
    You need a B Complex because Thiamine interacts with every other B vitamin to ensure proper functioning within cells. Thiamine needs magnesium to make life sustaining enzymes. Calcium balances with magnesium. Do consider adding Vitamin D which regulates the immune system, lowering inflammation. Good job!
  20. knitty kitty
    I'm a microbiologist who understands how vitamins work intracellularly. Which three supplements are you now taking?
  21. knitty kitty
    Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Vitamin and Mineral Deficiencies Are Highly Prevalent in Newly Diagnosed Celiac Disease Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/
  22. knitty kitty
    Seriously, I've experienced migraines and those strange dreams. The only things that made them better was supplementing with these B vitamins, especially Thiamine, and magnesium. No amount of meditation or relaxation techniques worked until I fixed the underlying subclinical vitamin deficiencies that occur in Celiac Disease. If we don't absorb sufficient...
  23. knitty kitty
    @Leann horne, Flax contain Lectins. Flax are seeds from flax plants. Tapioca is made from cassava, also high in Lectins. Cassava and tapioca also contain thiaminase, an enzyme that destroys Thiamine Vitamin B1 making it unusable to the body. Are you boosting your intestines' ability to absorb essential nutrients? Supplementing the essential...
  24. knitty kitty
    Hi, @Gilly M, When I started supplementing after being deficient, there were definitely some strangeness going on as my body started working properly with an increased amount of vitamins available. No, not a paradoxical reaction. Simply the body starting to work properly. How long after taking the thiamine and b complex did symptoms start? Which...
  25. knitty kitty
    Hello, @NoGlutensToday, I believe those new ingredients are gluten free. I can't use petroleum based products like that lotion and petroleum jelly. My skin feels like it has a coating on it and can't breathe. And my pores clog up. This makes my dermatitis herpetiformis more aggravated. I use Tallow Balm by Vintage Traditions. (Not an...
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