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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Rachel SA! It's more likely Celiac Disease if you know you have that one celiac disease gene. People with Non Celiac Gluten Sensitivity do not have Celiac genes. Chronic inflammation can be a sign of early celiac disease. Not consuming sufficient gluten ahead of testing can give ambiguous results on blood tests and...
  2. knitty kitty
    @SuzanneL, Be sure to eat a sufficient amount of gluten between now and your endoscopy. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune...
  3. knitty kitty
    @lydialoo, I like Life Extension Benfotiamine. What was the brand and form of Thiamine you took that didn't work? Did you take a B Complex with it? Did you take Magnesium? Thiamine needs magnesium to function properly. Sometimes doses higher than 500 mg daily is required, depending on the form of Thiamine. Keep in mind that all eight essential...
  4. knitty kitty
    @SuzanneL, It's common for Celiac people to be misdiagnosed with IBS (like me), postponing a correct diagnosis for years. Yes, do get further testing, an endoscopy, and a DNA test for Celiac genes. Also ask for an Erythrocyte Transketolase test to check for Thiamine deficiency. Thiamine deficiency symptoms include persistent nausea, and abdominal...
  5. knitty kitty
    @Sunflowers06, Ask for an Erythrocyte Transketolase test for Thiamine deficiency. Migraines have been linked to Thiamine deficiency. Thiamine deficiency symptoms include diarrhea and abdominal pain (Gastrointestinal Beriberi). Celiac Disease causes poor absorption of essential vitamins, like Thiamine and the other B vitamins. The Gluten free...
  6. knitty kitty
    @Blue Roan, Get your zinc level checked, too. Copper can accumulate if there's a deficiency in zinc. Copper and zinc balance each other. Great that your tTg IgA levels are reducing! Good job!
  7. knitty kitty
    @LeahMc, Ask for a DNA test to see if you have any of the known genes for Celiac Disease. Those symptoms, the pathology report, and the blood tests say positive to me, too. Keep us posted on your progress!
  8. knitty kitty
    Welcome to the forum, @Braver101, You may need to have your thyroid medication dose adjusted. Excessive sweating can occur in hyperthyroidism. Excessive sweating consumes lots of Thiamine Vitamin B1. Thiamine turns carbohydrates and fats into energy for the body. Thiamine depletion can happen quickly, within three days to two weeks. Celiac...
  9. knitty kitty
    @Ahawk, Welcome to the forum! I agree with @trents. Clean the waffle maker as best you can and enjoy your waffles and waffle maker!
  10. knitty kitty
    @Nedast, I like to keep my Vitamin D levels between 75 - 100 nmol/L year round. At this level, Vitamin D can work and do other things than keeping bones healthy, like build cartilage. What are your "normal" ranges? I disagree about not needing to supplement. It takes longer than a month or two of supplementing to correct deficiencies. Considering...
  11. knitty kitty
    @Nedast, I've experienced TMJ on and off throughout my life. I've found that keeping my Vitamin D level up helps, as well as increasing Omega Threes are important in decreasing inflammation. Several of the B Complex vitamins help to relieve the associated pain. Supplementing these vitamins and nutrients are important in Celiac Disease because...
  12. knitty kitty
    Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle. Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and...
  13. knitty kitty
    Hello, @Hannah24 Have you had a DNA test done? Celiac Disease is genetic. You must have at least one gene to develop celiac disease. You don't have to be consuming gluten for a genetic test. Anemia, diabetes and thiamine deficiency can cause false negatives. Some lucky people are seronegative, but still have celiac disease. Peripheral...
  14. knitty kitty
    Welcome to the forum, @Linedancegal, No, you still have Celiac Disease. You just have been on a gluten free diet successfully for so long that your body's immune system isn't reacting strongly YET. It can take many exposures consistently to get your immune system back to making the quantity of antibodies necessary for those typical symptoms. ...
  15. knitty kitty
    @soellis, Ask for an Erythrocyte Transketolase test to test for Thiamine deficiency. It's more accurate than a blood test for Thiamine. The bloodstream is a transportation method. Vitamins absorbed from foods or supplements go into the bloodstream and can circulate for at least a couple of days before being absorbed by cells in organs and tissues...
  16. knitty kitty
    @soellis, Have you been boosting your absorption of essential nutrients by supplementing with vitamins and minerals? The anemia and B12 deficiency needs to be addressed. Adrenal insufficiency is linked to Thiamine deficiency. Which supplements are you taking? A Gluten free diet can be nutritionally insufficient. Nutritional Imbalances...
  17. knitty kitty
    @ttfndude, Sorry for your loss. Some chemotherapy drugs can cause Thiamine deficiency. Thiamine and the other B vitamins are essential to life and some are needed to fight cancer. High dose Thiamine has been shown to help fight cancer. High Rate of Thiamine Deficiency among Inpatients with Cancer Referred for Psychiatric Consultation: Results...
  18. knitty kitty
    @soellis, How long have you been on the gluten free contamination diet? I found the Autoimmune Protocol Diet worked best for me. It allows time for healing before adding foods back in. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6892563/ What was your tTg? What are your immediate symptoms? Did you eat the apple peel?
  19. knitty kitty
    @Kaylee G, Have you asked for a DNA test to look for Celiac Disease genes? If you don't have any of the genes for Celiac, you may have something else like colitis or crohns. Your two weeks gluten free before the endoscopy/biopsy and a low gluten diet in general would have affected your test results. Anti-gluten antibodies (tTg IgA...
  20. knitty kitty
    @soellis, What are the other contenders? Are you consuming any dairy products?
  21. knitty kitty
    @Peace lily, Insufficient Thiamine B1 can cause unintended weight loss. The thyroid gland uses lots of Thiamine. A B Complex, Benfotiamine, and Vitamin D supplements should help. Malabsorption of essential vitamins and minerals occurs with intestinal damage. Supplementing with vitamins and minerals boosts your ability to absorb these.
  22. knitty kitty
    @Blue Roan, How are you doing? I checked on the ingredients of those Aussie Bites. Organic Rolled Oats, Organic Oat Flour, Organic Unsalted Butter, Organic Expeller Pressed Canola Oil, Organic Dried Apricots, Organic Sugar, Organic Cane and Invert Sugar, Organic Raisins, Organic Flax Seeds, Organic Honey, Organic Shredded Coconut, Organic Quinoa...
  23. knitty kitty
    @RILEYW and @marjoryrw1 Consider having genetic tests done to see if you have any genes for Celiac Disease. You do not have to be eating gluten for a genetic test for Celiac Disease. Genes don't change. If you have a gene for Celiac disease, and improve on a gluten free diet, this can be a diagnosis of Celiac Disease.
  24. knitty kitty
    Welcome to the forum, @BunnyBrown! Many people with Celiac Disease become deficient in vitamins and minerals even if following a strict gluten free diet for years. Thiamine deficiency disorders can present with dysphagia, difficulty swallowing. I had developed nutritional deficiencies and experienced dysphagia. High doses of Thiamine are administered...
  25. knitty kitty
    https://pubmed.ncbi.nlm.nih.gov/29555204/ Seems just the cows milk protein can stimulate tTg IgA antibody production even on a gluten free diet. Removal of cows milk protein stops the production of tTg IgA antibodies.
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