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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Your blood test for Thiamine was done in October. Thiamine blood levels can fluctuate depending on dietary thiamine. Blood level can reflect how much I was absorbed from ones diet in the previous twenty-four to forty-eight hours. The body requires more Thiamine when we're physically ill, emotionally stressed, and if physically active outdoors...
  2. knitty kitty
    Covid M95 masks would protect you from inhaled gluten, (as long as it covers your nose), but your eyes will still be exposed to airborne gluten. Taking a B Complex, magnesium and copper, along with iron supplements, can improve your anemia. Thyroid problems can be improved with Thiamine supplementation. Thiamine Vitamin B1 is important in thyroid...
  3. knitty kitty
    @Pxidis, LactOse is the milk sugar in cow's milk. LactAse is the digestive enzyme needed to break down LactOse. LactAse is produced in the tips of the villi in the small intestine. The villi absorb vitamins and minerals from the small intestine, kinda like an anemone filtering seawater in the ocean. In celiac disease, the immune system attacks...
  4. knitty kitty
    @Jujuconnor, That's a test for Thiamine in whole blood. Whole blood tests for Thiamine are not an accurate measurement of the amount of Thiamine inside cells where thiamine is actually used. An Erythrocyte Transketolase test gives a more accurate measurement. Thiamine is pulled out of cells in organs in order to supply the brain and heart...
  5. knitty kitty
    @Jujuconnor, Changes in the ability to speak and spell are symptoms Wernicke's Encephalopathy of Thiamine Deficiency! ADHD is connected with high calorie malnutrition which is Thiamine Deficiency! Here are studies showing doctors don't recognize and treat Thiamine Deficiency in the critically ill. Please seek medical attention! Thiamine...
  6. knitty kitty
    @Jujuconnor, Thiamine deficiency can manifest as Gastrointestinal Beriberi, with symptoms very similar to yours. I'm attaching some studies that describe Gastrointestinal Beriberi so you can compare symptoms. Since your health is fragile right now, I suggest you find a doctor to address your nutritional deficiencies. Doctors can administer...
  7. knitty kitty
    Here's some more information on Thiamine. The form of Thiamine that's especially beneficial for the digestive system is called Benfotiamine. I take it regularly. Thiamine and benfotiamine: Focus on their therapeutic potential https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
  8. knitty kitty
    @dhooden, Deficiencies in the eight essential B vitamins occur in Celiac Disease. You may have become low (subclinical deficiencies) prior to diagnosis. The gluten free facsimile foods aren't required to be enriched with vitamins and minerals like gluten containing processed products. Supplementing with B vitamins and minerals like magnesium and...
  9. knitty kitty
    @SJBowman, Undiagnosed Celiac Disease causes malabsorption of vitamins and minerals. Nutritional deficiencies caused by undiagnosed Celiac Disease need to be corrected promptly. Deficiencies in the eight essential B vitamins, Vitamin C and minerals like zinc and magnesium can cause vomiting. Thiamine deficiency can cause cyclic vomiting...
  10. knitty kitty
    @ItchDrivingMeCrazy, Rashes and neuropathy caused by deficiencies in the B vitamins would begin to appear after several weeks after a depletion caused by fighting Covid. The eight B vitamins cannot be stored for long. Deficiency symptoms can appear in as little as two to four weeks. Deficiencies in the B vitamins will also cause peripheral neuropathy...
  11. knitty kitty
    With the runs and backed up both for a year, there's bound to be nutritional deficiencies. Have you been drinking any nutritional shakes? What have you been eating?
  12. knitty kitty
    Have you been checked for vitamin deficiencies? Especially Thiamine deficiency? An Erythrocyte Transketolase test is more accurate than a blood test. Deficiency in Thiamine or Niacin or Cobalamine B12 can cause diarrhea.
  13. knitty kitty
    Fresh fruit. Fresh veggies. Meat. Liver! I had to reduce my diet to foods that were not causing problems. Grass fed beef patties, liver, green beans, carrots, and dates are what I ate until my tummy said it could handle more. Seemed like forever, but I had to do what was best for my stomach and body. My brain missed all the different flavors of...
  14. knitty kitty
    Iron supplementation can cause constipation. That may explain why her stools have firmed up. The DGP IgG and IgA tests should still be done since she is young and may not be producing enough tTg IgA due to anemia. TTg IgA stays mostly in the small intestine during the early stages of celiac disease. One must have the genes for Celiac Disease...
  15. knitty kitty
    @susiegoldcoast , You are probably suffering from nutritional deficiencies. Celiac Disease causes inflammation and damage to the small intestine. This causes poor absorption of essential nutrients. We need to boost our absorption of vitamins and minerals by taking supplements. There are eight essential B vitamins, four fat soluble vitamins and many...
  16. knitty kitty
    @florida2001, The probiotics have thrown another variable into the mix. You haven't explained when the probiotics were started and why. Was the probiotic started before the test that showed high WBC? Is the high WBC result because of the probiotics? Was the probiotic started after the high WBC test result? Then why was the WBC...
  17. knitty kitty
    Anemia and Thiamine insufficiency can cause poor antibody production. Ask for an Erythrocyte Transketolase test to check thiamine level. Which nutrients is she deficient in? Are those deficiencies being corrected?
  18. knitty kitty
    Packaged coconut is bleached white with Sulfites! Otherwise, the coconut turns brown like an Apple or potato. Sensitivity to Sulfites can occur in celiac disease. I have Sulfite Hypersensitivity. I take the trace mineral Molybdenum to help process out the sulfites. But I still avoid coconut. Considerations for the diagnosis and management of...
  19. knitty kitty
    Welcome to the forum, @florida2001, Have you changed her diet? Did you start the probiotics before or after the blood test was drawn? I suggest you stop the probiotics since her white blood cell count is high. Have you requested a Full Celiac panel of blood tests? These should include DGP IgA and IgG because children's immune systems are immature...
  20. knitty kitty
    Welcome to the forum, @susiegoldcoast. I must suggest quite emphatically that you cease the Hydrogen Peroxide "therapy". Taking Hydrogen Peroxide internally is very damaging to the mucosal integrity and tissues of your digestive tract. I am attaching scientific studies done with pictures that show the damage. Hydrogen peroxide fuels...
  21. knitty kitty
    😉@Bennyboy1998, welcome to the forum, In the early stages of celiac disease, the level of antibodies may not be high enough to show up in the bloodstream. Gastritis can cause a Vitamin B12 deficiency which can result in anemia which can result in low antibody production. Intestinal damage may be sparse and microscopic and out of reach of the en...
  22. knitty kitty
    Getting a genetic test for Celiac Disease genes may be another way to appease people with doubts. Having genes for Celiac Disease and improvement on a gluten free diet is an acceptable diagnosis method. You don't have to consume gluten in order to test for Celiac Disease genes.
  23. knitty kitty
    Herpes Zoster and COVID-19 Vaccination: A Narrative Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10658959/ Varicella zoster virus reactivation following COVID-19 vaccination: a report of 3 cases https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903443/ Herpesviruses reactivation following COVID-19 vaccination: a systematic review and...
  24. knitty kitty
    Varicella zoster virus reactivation following COVID-19 vaccination: a report of 3 cases https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903443/
  25. knitty kitty
    @Hiawatha, Yes, I think you've made good decisions to try the steroids short term with check up in March, supplement with vitamins and minerals, and adjust your diet. Steroids can be useful to rein in wildly galloping immune systems. Supplementation and diet changes help provide a less inflammatory condition and promote healing. Steroids...
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