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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @soellis, What are the other contenders? Are you consuming any dairy products?
  2. knitty kitty
    @Peace lily, Insufficient Thiamine B1 can cause unintended weight loss. The thyroid gland uses lots of Thiamine. A B Complex, Benfotiamine, and Vitamin D supplements should help. Malabsorption of essential vitamins and minerals occurs with intestinal damage. Supplementing with vitamins and minerals boosts your ability to absorb these.
  3. knitty kitty
    @Blue Roan, How are you doing? I checked on the ingredients of those Aussie Bites. Organic Rolled Oats, Organic Oat Flour, Organic Unsalted Butter, Organic Expeller Pressed Canola Oil, Organic Dried Apricots, Organic Sugar, Organic Cane and Invert Sugar, Organic Raisins, Organic Flax Seeds, Organic Honey, Organic Shredded Coconut, Organic Quinoa...
  4. knitty kitty
    @RILEYW and @marjoryrw1 Consider having genetic tests done to see if you have any genes for Celiac Disease. You do not have to be eating gluten for a genetic test for Celiac Disease. Genes don't change. If you have a gene for Celiac disease, and improve on a gluten free diet, this can be a diagnosis of Celiac Disease.
  5. knitty kitty
    Welcome to the forum, @BunnyBrown! Many people with Celiac Disease become deficient in vitamins and minerals even if following a strict gluten free diet for years. Thiamine deficiency disorders can present with dysphagia, difficulty swallowing. I had developed nutritional deficiencies and experienced dysphagia. High doses of Thiamine are administered...
  6. knitty kitty
    https://pubmed.ncbi.nlm.nih.gov/29555204/ Seems just the cows milk protein can stimulate tTg IgA antibody production even on a gluten free diet. Removal of cows milk protein stops the production of tTg IgA antibodies.
  7. knitty kitty
    @Momkaren, There's the fecal test for gluten immunogenic peptides (GIP). Biomarkers to Monitor Gluten-Free Diet Compliance in Celiac Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5295090/ A multivitamin is not sufficient in people with poor absorption. More of the water soluble B vitamins are needed, especially if there's been...
  8. knitty kitty
    @Momkaren, Welcome to the forum! Antibody tests shouldn't be used to test for compliance to a gluten free diet. Reliability of antitransglutaminase antibodies as predictors of gluten-free diet compliance in adult celiac disease "Conclusions: In adult celiac disease patients on a GFD, IgA-tTG-ab are poor predictors of dietary transgressions...
  9. knitty kitty
    @Lrgthrcl, We call it a food/mood/poo'd journal. Keeping track of mood swings helped me track high histamine reactions to certain foods. Good plan! Great advocating for your daughter! Looking forward to hearing from you! Best wishes
  10. knitty kitty
    POTS and elevated liver enzymes are symptoms of Thiamine Deficiency Disorders. Thiamine deficiency disorders: a clinical perspective "Thiamine deficiency also causes depletion of ATP in the liver, which may result in elevated liver enzymes..." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ And... https://www.hormonesmatter...
  11. knitty kitty
    Welcome to the forum, @NikkiRose96! While only having one allele for Celiac may put you in a lower risk group for developing celiac disease, it also may put you at higher risk for ulcerative colitis. Not diagnosing. HLA-DQA1*05 Associates with Extensive Ulcerative Colitis at Diagnosis: An Observational Study in Children https...
  12. knitty kitty
    Welcome to the forum, @Lrgthrcl. Get your daughter checked for nutritional deficiencies. Many of the symptoms you related are related to vitamin and mineral deficiencies due to malabsorption caused by Celiac Disease. Talk to the doctors about testing for deficiencies before starting vitamin supplements on your own. Get testing done for more...
  13. knitty kitty
    Updated Guidelines on doing a gluten challenge can be found here.
  14. knitty kitty
    @emilyyy, Yes, eating gluten sporadically and not eating gluten for a week can impact your biopsy results. You owe it to yourself to do the gluten challenge appropriately. Go all in so you will get unequivocal results. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten...
  15. knitty kitty
    There's a higher risk for Celiac people to develop chronic urticaria. First generation antihistamines like hydroxyzine are helpful in reducing histamine levels. Does urticaria risk increase in patients with celiac disease? A large population-based cohort study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3896876/ Histamine release...
  16. knitty kitty
    @emilyyy, Have you thought about getting a DNA test? Celiac Disease is genetic. You must have at least one of the genes for celiac disease to develop. You don't have to be consuming gluten for a DNA test. What is being done for your low iron? Low iron is common in newly diagnosed Celiacs. In the early stages of celiac disease, intestinal...
  17. knitty kitty
    @B1rdL0ver, Keep in mind that gluten free processed facsimile foods are not required to be enriched or fortified with vitamins and minerals. Gluten based foods are required to be enriched with vitamins and minerals lost during processing. So when you go gluten free, you have to buy your own vitamins. Do you eat any vegetables? Veggies are an...
  18. knitty kitty
    @B1rdL0ver, welcome to the forum! Minocycline is a tetracycline antibiotic that can interact with Thiamine Vitamin B1 in your body resulting in Thiamine deficiency. Some acne can be caused by deficiencies in any of the eight essential B vitamins. Diets high in carbohydrates can induce a thiamine deficiency. Thiamine deficiency symptoms...
  19. knitty kitty
    @ceslater, Ask your doctor for an Erythrocyte Transketolase test to check for Thiamine deficiency. Although, you can have normal blood levels and still have a clinical thiamine deficiency. Palpitations, irregular heartbeat, and migraines are associated with Thiamine deficiency. Weight loss (without trying) is another symptom. Dry eyes are associated...
  20. knitty kitty
    @ALLAN HUGHES, Are you taking any nutritional supplements? Several of the B vitamins are needed to make red blood cells. Celiac and aging can affect our ability to absorb nutrients from food. Supplementing with a B Complex may help. Riboflavin B 2 has been shown to promote erythropoiesis. Niacin B 3, Thiamine B1, Vitamin D, and Pyridoxine...
  21. knitty kitty
    Welcome to the forum, @GJC! No, Celiac doesn't go away. With us, every time we eat gluten, our immune system revs up, increasing inflammation and causing collateral damage. Every time we eat gluten, antigluten antibodies attack the gluten, but also the cells of our bodies. In the stomach, the parietal cells produce the Intrinsic Factor which...
  22. knitty kitty
    @Liquid lunch, Remember to stay away from cruciferous vegetables, for a while, too!!! 😺
  23. knitty kitty
    Welcome to the forum, @LouisaM! Taking Thiamine supplements helps with menstrual pain and irregularities. Other vitamins like Riboflavin B2, Pyridoxine B6 and Niacin B3, and Vitamin D work with Thiamine and helped improve symptoms. Even on a gluten free diet, Celiac people can develop nutritional deficiencies. Discuss nutritional supplementation...
  24. knitty kitty
    Have you tried soaking them in distilled water? Apparently distilled water can pull more lectins out of seeds and beans. https://pubmed.ncbi.nlm.nih.gov/29580532/
  25. knitty kitty
    Came across this article.... Mild metabolic hyperoxaluria and its response to pyridoxine https://pubmed.ncbi.nlm.nih.gov/3811039/
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