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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    "Doses higher than the RDA are sometimes used to treat medical problems such as vitamin D deficiency, but these are given only under the care of a doctor for a specified time frame. Blood levels should be monitored while someone is taking high doses of vitamin D." Quoted from the Healthline article @Yaya linked above...
  2. knitty kitty
    https://jamanetwork.com/journals/jama/fullarticle/2748796 If read carefully, this study @Yaya refers to was done on healthy people. "Meaning Among healthy adults, supplementation with higher doses of vitamin D did not result in improved bone health; further research would be needed to determine whether it is harmful." "...311 community-dwelling...
  3. knitty kitty
    Oh, @Yaya! Five years??? How awful for you to suffer so long! My Vitamin D came up in a matter of months. High dose Vitamin D has been used in the past to correct rickets and is a safe method to correct Vitamin D deficiency. I took 1000 IU several times a day, every day for several weeks. I ate them like m&m's when I was severely deficient...
  4. knitty kitty
    @CeliacPsycho246, My OCD symptoms resolved after I took supplements of the active form of Pyridoxine B6 called P5P and L-Theanine, an amino acid. Pyridoxine B6 is absorbed from foods or supplements and then must be changed to its active form. P5P is the active form. Inflammation and malabsorption can impede this process. Taking the active form...
  5. knitty kitty
    Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium. B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy...
  6. knitty kitty
    @glucel, I agree with @trents. You can still do the AIP diet while taking aspirin. I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin. Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part...
  7. knitty kitty
    Hi, @Dawn R., I get gluten ataxia. It's very disconcerting. Are you still experiencing gluten ataxia symptoms eating a gluten free diet?
  8. knitty kitty
    @Jordan Carlson, Sorry to hear you're having a bumpy journey right now. I've been there. I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet). It gave my digestive system time to heal. After I felt better, I could add things back...
  9. knitty kitty
    @GardeningForHealth, How are things going for you? I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
  10. knitty kitty
    @Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows...
  11. knitty kitty
    Using a pressure cooker will break down Lectins. Long cooking times as in using a crock pot will also reduce Lectin content. However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system. I do hope you give the AIP diet a try. I understand that changing ones diet takes a lot of mental readjustment...
  12. knitty kitty
    Hello, @jadeceoliacuk, Has your son been tested for nutritional deficiencies? Celiac Disease causes malabsorption of essential nutrients which can result in nutritional deficiencies. Supplementing with essential vitamins and minerals is beneficial. I would find a nutritionist more knowledgeable about Celiac and ASD, before taking herbal supplements...
  13. knitty kitty
    I had ADHD symptoms but taking Thiamine (Benfotiamine and Allithiamine TTFD), magnesium and potassium really helped with symptoms. A diet high in carbohydrates can precipitate Thiamine deficiency symptoms that resemble ADHD. Extra thiamine is needed to convert carbohydrates to energy. Dr. Derrick Lonsdale has an explanation... https:/...
  14. knitty kitty
    @ABP, "her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4" In young children, the DGP IgG tests may be the only positive blood test because the immune system is not mature and doesn't produce tTg IgA until older. Iron deficiency and thiamine deficiency can cause poor tTg IgA production. "her genetic test for celiac was positive." Must have...
  15. knitty kitty
    @GardeningForHealth, About that study... The scientists were testing how well different gluten detection tests were at detecting gluten in different kinds of food products. The scientists knew the meat had gluten in it already. They "spiked" the samples. "...we selected a set of 32 samples (Table 2) to represent a wide range of grains...
  16. knitty kitty
    Hello, @StrongerThanCeliac, Not insane. Misdirected, maybe. The digestive enzymes in saliva and the bacteria in the mouth probably digest all the gluten before then. More likely, it takes that long for your histamine level to come down. Histamine is released by mast cells as part of the reaction to gluten. Vitamin C, B12, and Thiamine...
  17. knitty kitty
    @Auldtwa, I have Celiac, type two diabetes and have had kidney stones. Celiac Disease causes malabsorption of essential nutrients, including the eight essential B vitamins. We cannot make B vitamins in our bodies and must absorb them from foods and supplementation. Correcting nutritional deficiencies caused by malabsorption due to Celiac Disease is...
  18. knitty kitty
    Y'all may want to get tested for POTS (Postural Orthostatic Tachycardia Syndrome) which can cause fainting, and Gastrointestinal Beriberi, which manifests with vomiting, abdominal pain, diarrhea, fever, chills, and low blood pressure. POTS and Gastrointestinal Beriberi are Thiamine Deficiency Disorders. Celiac Disease causes malabsorption which results...
  19. knitty kitty
    There's different reasons why one may be seronegative. Some Seronegative Celiacs may be genetically encoded to be IgA deficient. But, they may still make IgG antibodies, hence both IgA and IgG antibodies are tested for in the full Celiac Panel of blood tests. Instead of IgA and IgG antibodies, some Seronegative Celiacs may make other types of antibodies...
  20. knitty kitty
    @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests. Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels. Have you been checked for nutritional deficiencies? Iron? Thiamine? Vitamin B12? Vitamin D? Only one Celiac markers is needed to develop the active disease. I agree a...
  21. knitty kitty
    @HWB, Have you been checked for SIBO? Small Intestinal Bacterial Overgrowth will cause constipation and chemically breath. The best way to get rid of SIBO is to go on a ketogenic/Paleo diet, like the Autoimmune Protocol Diet. It starves out the carbohydrate loving bacteria and allows good bacteria to repopulate the small intestine. The...
  22. knitty kitty
    @Louise Broughton, Some types of interferon drugs can precipitate a Thiamine deficiency, by destroying thiamine and blocking its absorption. Thiamine deficiency symptoms encompass all the symptoms you listed. Gastrointestinal Beriberi caused by Thiamine deficiency has symptoms of vomiting, bloating, abdominal pain and diarrhea. I've experienced this...
  23. knitty kitty
    Hi, @Blue Roan, I have Sjogren's Syndrome that made my salivary glands under my jaw swell. I also have dry eyes from Sjogren's. Yes, Sjogren's is yet another fun autoimmune disease that can occur in Celiac Disease. It starts in the salivary glands. Vitamin D deficiency can also make salivary glands swell. I was very deficient in Vitamin D also...
  24. knitty kitty
    Are you scratching hard enough to leave bruising -- the dark marks? But no rash? And worse with exercise? And no flaking? I had vitamin deficiencies that caused neuropathy - itching, buzzing, tingling sensations, that I would scratch until I left bruising. Many of the B vitamins, if deficient, can cause this itchy feeling without a visible...
  25. knitty kitty
    @pasqualeb, You may want to request being checked for Vitamin D, Vitamin C, and Thiamine deficiencies. We need extra Thiamine when we are active, especially in hot weather, when we're physically sick, and when we're under emotional stress. Vitamin D deficiency is very common in Celiac Disease. Malabsorption of the eight essential B vitamins...
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