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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome, @JBeth! I like the book The Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself. She also has cookbooks for the AIP diet, too.
  2. knitty kitty
    Yes, facial paresthesia, Bell's Palsy, I have it. It's Thiamine related. Thiamine deficiency can cause nerve damage and paresthesia. It also can be related to herpetic viruses in facial nerves if you've ever had a cold sore or chicken pox. It flares up if thiamine deficient. Thiamine has antiviral properties that keeps mine in check. I don't think...
  3. knitty kitty
    I'm sure there are more complete genetic tests available if you were interested in finding out exactly your Celiac genes. And people who can decipher the results better! Do pursue more thorough testing for Celiac Disease with a proper gluten challenge. Let us know what you find out!
  4. knitty kitty
    @Raquel2021, Yes, I'm a normal healthy weight now 😸 and I don't have a gallbladder either. Tell me what happens when you take vitamins. You say you can't tolerate them. Do you throw up? Pass out? Have anaphylaxis? Turn purple? Climb the walls? Do you keep a food/mood/poo'd journal? What ingredients are in your usual Vitamin D ...
  5. knitty kitty
    You can have lots of different combinations as discussed in those articles. But you only need one of those alleles (not two together) to be susceptible to CeD.
  6. knitty kitty
    You would have two copies of DQB1*2 instead of having one of each of DQB1*2 and DQA1*5.
  7. knitty kitty
    Welcome, @Hotpotrae, Yes, I have DH and get single DH blisters here and there. I get them on the soles of my feet and the palms of my hands and on other spots. DH is pressure sensitive, so the blisters can appear after under elastic bands on bras and undies. Perhaps the ones on your collar bones are from a garment or jewelry that rests there...
  8. knitty kitty
    Welcome, Yvonne! Losing lots of weight unintentionally is symptomatic of nutritional deficiencies. Were these corrected? Are you currently taking a B Complex? Vitamin D? Weight loss can be due to Thiamine deficiency. I lost a lot of weight quickly. I also had bloating and abdominal pain. I was scared to eat as well. I followed the Autoimmune...
  9. knitty kitty
    Yes, you are right about cutting out dairy! Some Celiacs have lactose intolerance. They cannot produce the enzyme lactase which digests lactose (milk sugar). The enzyme lactase is produced in the tips of the villi in the small intestine. These villi get damaged in Celiac Disease by the antibodies against gluten. Adopting a gluten free and dairy...
  10. knitty kitty
    Hello, Maggie! I enjoyed Jennifer's book, too. That we're basically starving to death because we cannot absorb sufficient vitamins and minerals is absolutely right. B12 does make us feel more energetic, but B12 needs the other B vitamins to work properly. B12 works closely with Folate B 9. Taking B12 by itself can cause a deficiency in Folate...
  11. knitty kitty
    Hello, Celiac Disease damages the villi in the small intestine so that nutrients (vitamins and minerals) are not absorbed in sufficient amounts. Thiamine is the vitamin that we run out of first because our bodies use so much of it, especially if we are physically and emotionally stressed. Thiamine can only be stored for a few weeks at most, but...
  12. knitty kitty
    Welcome to the forum, @BunnyMummy! Having genes that code for Celiac Disease does not mean that you have active Celiac Disease, however, since you have autoimmune thyroid disease and IBS symptoms (which overlap with Celiac symptoms) proper testing for active Celiac Disease should be done. Some people invalidate their antibody tests by not eating...
  13. knitty kitty
    Welcome to the forum, @Kareg! How was your daughter diagnosed? By blood tests? By endoscopy? Often people go gluten free before all testing is done which negates the test results. What were your daughter's symptoms that led to her diagnosis? If she continues eating gluten, symptoms can become worse.
  14. knitty kitty
    @Vicrob, I'm doing a happy dance! Love hearing about your improvements with Thiamine! You can always increase your Thiamine dose gradually. As long as you're seeing improvement, increasing thiamine doses is safe and helps resolve symptoms. Small doses throughout the day helps, especially if physically active. Yes, Thiamine does...
  15. knitty kitty
    @Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
  16. knitty kitty
    Interesting Reading about vitamins needed for bone health Nutritional Aspects of Bone Health and Fracture Healing https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5804294/ And... There is a significantly inverse relationship between dietary riboflavin intake and prevalence of osteoporosis in women but not in men: Results from the TCLSIH...
  17. knitty kitty
    @Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
  18. knitty kitty
    I'm familiar with Dry Eye Disease and Sjogren's Syndrome. I've found correcting nutritional deficiencies and changing to a Paleo diet has improved symptoms. Changing ones diet changes the kinds of bacteria that live in the intestines. A Paleo diet allows for beneficial bacteria to become more dominant. The bad carbohydrate-loving bacteria that promote...
  19. knitty kitty
    @Msteele, Whether your daughter is fighting Covid or another bug, vitamins like Thiamine B 1, Vitamin C and Vitamin D helps us fight infections. Vitamin D helps regulate the immune system when the level is greater than 32 ng/mL (80 nmol/L). Thiamine in the form called Benfotiamine has been shown to improve gastrointestinal symptoms. Patients...
  20. knitty kitty
    Happy to help! Do look into the Autoimmune Protocol Diet (AIP diet) and choose low histamine foods. During immune reactions and autoimmune reactions, our body makes and releases histamine. Histamine causes inflammation which helps fight off antigens like gluten or pollen. Histamine is also found in foods. High histamine foods include...
  21. knitty kitty
    @emma1semrad, Thought of another article that might be interesting to you. It's about female athletes and Thiamine improving their performance. The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/
  22. knitty kitty
    Hives can also be a symptom of low B12 Cobalamine. The prevalence of gastrointestinal symptoms and cobalamin deficiency in patients with chronic urticaria https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9960171/
  23. knitty kitty
    Could the itching be due to Histamine Intolerance? Histamine Intolerance—A Kind of Pseudoallergic Reaction https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8945898/ Evidence for histamine release in chronic inducible urticaria – A systematic review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9365951/ A Histamine-Free Diet Is Helpful for...
  24. knitty kitty
    People with Celiac Disease have a higher rate of Eosinophilic Esophagitis than those in the general population. Eosinophilic esophagitis associated with celiac disease in children http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/ Changing the diet by cutting out sugar can help improve Eosinophilic Esophagitis...
  25. knitty kitty
    @Newhike, Thyroid problems are common in Celiac Disease. There's a genetic overlap. Nutritional insufficiency (vitamin and mineral deficiencies) found in Celiac Disease can contribute to other autoimmune diseases. Celiac Disease causes poor absorption of essential vitamins and minerals. Correction of nutritional insufficiency is very important in...
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