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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    The bacteria and fungi in our digestive tract can change depending on what we eat. By excluding gluten from his diet, your son has changed his microbiome and his body odor has changed. Undigested carbohydrates like gluten are digested by bacteria in our digestive tract. Some bacteria and yeasts produce gases as a byproduct of this breakdown...
  2. knitty kitty
    In Celiac Disease, our bodies have trouble absorbing sufficient nutrients, vitamins and minerals that help our bodies heal. Discuss with your doctor or nutritionist the benefits of supplementing with the eight essential B vitamins and Vitamins D and C. Our digestive system needs Niacin B 3 to help heal the intestines. Tryptophan, (up to 1000...
  3. knitty kitty
    I had neuropathy from my toes to thighs, and in my hands and arms. I even managed to scald my hands by hot water while washing dishes. My hands were so affected I couldn't tell the temperature of the water. I couldn't knit or embroider because I couldn't feel the needles. I took a combination of Thiamine, Pyridoxine, and Cobalamine (Vitamins B ...
  4. knitty kitty
    It's worrisome you all still continue to have health problems for so long after a Celiac diagnosis! Celiac causes vitamin and mineral deficiencies because of the damage done to the small intestine's lining. Our body cannot make these nutrients, so we must get them through our diet, and supplementing, if we cannot absorb well. Restoring sufficient vitamins...
  5. knitty kitty
    Do keep in mind that the autoimmune response to gluten can be more severe after having been gluten free for a period of time. Call the GI doctor's office and find out when the endoscopy will be and ask for their gluten challenge protocol. If you ask for and receive the results of your recent abnormal blood tests, you can share them here.
  6. knitty kitty
    @NovemberNewbie2023, Welcome to the forum. Sorry to hear about what you are going through. It would be wise to complete testing for Celiac Disease if you want to have a healthy baby. Antibodies for Celiac Disease are very specific to Celiac. The Celiac antibodies only appear with exposure to gluten and disappear when no longer exposed to...
  7. knitty kitty
    @KGB1819, The tiny fluid filled blisters on cheeks and chin sounds like the blisters in DH. Iodine can cause a DH breakout. No gluten required. Dairy products, shellfish and crustaceans are all high in Iodine. And iodized salt. Iodine makes the antibodies more active and causes DH flares. Biopsies of DH should be taken next to...
  8. knitty kitty
    Welcome to the forum, @emma1semrad! Have you been checked for nutritional deficiencies? What sort of foods are you eating currently? Celiac Disease causes malabsorption of vitamins and minerals that our bodies need in order to heal and stay healthy. If we can't absorb sufficient nutrients from our diets, we get sick. Your symptoms, chest...
  9. knitty kitty
    I believe clicking on the three bars in the top right corner brings a drop down menu, choose Account, then Manage Followed Content. Best wishes
  10. knitty kitty
    Adjust your email settings so you won't receive further notifications.
  11. knitty kitty
    @selectivefocus and @Raquel2021, Thyroid problems have a connection with Thiamine insufficiency. Malabsorption due to Celiac and the increased demands during pregnant can precipitate thiamine insufficiency. Thiamine insufficiency can cause the thyroid to swing from hypo to hyper. Thiamine supplementation has been shown to improve symptoms. ...
  12. knitty kitty
    Yes, you should report your symptoms to your doctor. Your antibiotic is a sulfa drug. Some Celiacs like me develop a Hypersensitivity reaction to sulfa drugs. GI upsets, agitation, difficulty breathing, and anaphylaxis are symptoms to look out for. Antibiotics also break thiamine down which can lead to an insufficiency of Thiamine. Antibiotics...
  13. knitty kitty
    Doctors were doing their best. Doctors not familiar with infantile thiamine deficiency can make a misdiagnosis. Thiamine deficiency can coexist with other diseases. Many of us have been misdiagnosed. However, the treatment worked and there's a wonderful person sharing their story. Celiac Disease genes get turned on by a stressor. A physical illness...
  14. knitty kitty
    Please don't be offended. We're just very curious. You have to admit your history is very unusual. It was brilliant of your doctor to put you on powdered skim milk. The protein in dairy, casein, is broken down by the drying process, so it wouldn't necessarily provoke an autoimmune reaction. Skim milk has lots of Thiamine Vitamin B 1. Thiamine...
  15. knitty kitty
    Have you been checked for nutritional deficiencies? Are you taking any vitamin supplements? Malabsorption due to Celiac Disease is commonly unaddressed. We are frequently low in the eight essential B vitamins which we must get from foods or supplementation because our bodies cannot make them. Supplementing with the B Complex vitamins and additional...
  16. knitty kitty
    Do you have any problems with dairy products?
  17. knitty kitty
    I looked at the ingredients. It contains Inositol as a source of Niacin B 3. Inositol is not absorbed well by our bodies (only about 30%). Once absorbed, our bodies have to break it apart in order to use the niacin it contains. Our bodies can make Inositol from Niacin. Niacin causes flushing, a harmless reaction which will fade with continued usage...
  18. knitty kitty
    Some people are undiagnosed and have few symptoms until they are in their fifties or later. A Celiac Diagnosis can take several years as doctors frequently make the misdiagnosis of IBS. Celiac Disease can also affect other organs of the body, like the thyroid, pancreas, and gallbladder. Do you have any other concurrent autoimmune diseases?
  19. knitty kitty
    Are you having symptoms of Celiac Disease now or anytime since your endoscopy?
  20. knitty kitty
    A colonoscopy looks at the colon, at the bottom end of your digestive tract. There's no villi in your colon. An endoscopy looks at the top of your digestive tract, including the esophagus, the stomach and part of the small intestine. The villi grow in the small intestine. It's these villi that are eroded away in Celiac Disease. Celiac people have...
  21. knitty kitty
    @Raquel2021, Can you post the ingredient label from the vitamins you are taking? Are Life Extension brand available there?
  22. knitty kitty
    There are eight B vitamins. They all work together. Our bodies cannot make them so it is essential we get them from our diet. Taking just one of the B vitamins can throw the others off. For example, if you take just B12, you can be using up all your Folate B 9. Without Folate, Pyridoxine can't work. Without Pyridoxine and Folate, Riboflavin...
  23. knitty kitty
    @Aaron2018, Are you taking any nutritional supplements? Have you been checked for nutritional deficiencies? Deficiencies in many of the eight essential B vitamins can cause neuropathy which can feel like an itchy place. Thiamine, Niacin, Pyridoxine and Cobalamine can all contribute to neuropathy. I have had vitamin deficiencies that resulted...
  24. knitty kitty
    Have you tried Magnesium Threonate? It's a form of magnesium that gets into the brain easily and is very relaxing. Perhaps our UK ambassador @cristiana can help.
  25. knitty kitty
    Hi, how are you doing? Were you had a genetic test to look for the known Celiac genes? There are some Celiac people who are seronegative in blood tests. I'm one. Diabetes, anemia and Thiamine deficiency can cause false negatives on tTg IgA tests. I have two Celiac genes, but only one is needed for potential Celiac to develop. Nightshades contain...
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