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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum! There are some brand names that I have taken that are gluten free... Doctor's Best, Now, Nature Made. Just be sure to double check the label. I take my Magnesium Glycinate with Tryptophan (a form of Niacin that helps make serotonin, the feel-good neurotransmitter). Theanine, found in chocolate and Oolong...
  2. knitty kitty
    Welcome, @Natalie14! Because Celiac Disease is passed on genetically, your parents and siblings (first degree relatives) should be tested for Celiac Disease before going gluten free. Celiac Disease has over three hundred various symptoms. They may attribute health problems, if any, to other factors like stress or to another health condition....
  3. knitty kitty
    @xRavenHeartx, What are some of your many other symptoms?
  4. knitty kitty
    @ItchDrivingMeCrazy, Yes, looks like more than one thing going on, DH and Vitamin C deficiency (Scurvy). The nonstop itching could be peripheral neuropathy from deficiencies in the B Complex vitamins, especially B12 Cobalamine. I had lots of vitamin deficiencies and DH going on, but I remember the itching never stopped and the bruising...
  5. knitty kitty
    I was wondering what tests were run.
  6. knitty kitty
    Hi, @alexsb01, How are you doing? Are you feeling better? You want to take Tryptophan. Not Glutamine. Glutamine gets turned into Glutamate, a neurotransmitter that excites not just in the brain, but also in the intestines. Tryptophan gets turned into Serotonin, the neurotransmitter that helps regulate mood (happy, agreeable), and...
  7. knitty kitty
    Hi, @eekunique! Wow! How did you get diagnosed with that?!? Thiamine works with Niacin in the energy production cycle. In CeD, a person is usually low across the board in the eight essential B vitamins. Thiamine insufficiency appears first since our bodies use so much daily, especially when we're sick, emotionally stressed and physically active...
  8. knitty kitty
    @Peggy M, If you've been taking a B100 Complex in the eight to twelve weeks before having your B12 and B 1 tested, your blood tests would be picking up on the vitamins circulating in your bloodstream before being absorbed. These would be inaccurate measurements. You can have a subclinical thiamine insufficiency before it is reflected in the blood...
  9. knitty kitty
    @emoxon, I understand how doctors can blame the patient when they, the doctors, are out of answers. I was told it was all in my head when I had severe nutritional deficiencies with undiagnosed CeD. My blog has more details. Can you get a genetic test to look for the most common Celiac genes? Some people have the genes, but they...
  10. knitty kitty
    @CatCann, Yes, it is like poison. Whatever happened to the Hippocratic oath "first do no harm"? It's frustrating for sure. Studies are being done to find other markers for Celiac. IL-2 has been identified as a potential marker, as it says in this article... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader Has your daughter...
  11. knitty kitty
    Hello @Eldene, Lactase, the enzyme that digests dairy is made in the tips of the villi. When the villi are damaged in CeD, they can no longer produce lactase and the undigested dairy gets digested by intestinal bacteria which can result in bloating and diarrhea. Segments of the dairy protein casein resembles segments of gluten and antibodies can confuse...
  12. knitty kitty
    Here's the updated gluten challenge guidelines... According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to...
  13. knitty kitty
    @AnnaNZ, Here's the updated guidelines for a gluten challenge. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of...
  14. knitty kitty
    Nope. Iodine makes the DH antibodies tTg 3 more active. Blood tests for Celiac Disease tests for tTg 2. TTg 3 is found in DH eruptions. TTg 6 is found in Celiac people with ataxia because it attacks the brain. TTg 6 is also found in Alzheimer's and Parkinson's dementia. Dermatitis herpetiformis resistant to dapsone due to dietary...
  15. knitty kitty
    Welcome to the forum! Gallbladder problems can occur in Celiac Disease. Frequently gallbladder problems can be caused by low Thiamine Vitamin B 1. There are eight essential B vitamins, thiamine is the one that we use the most of and run out of the quickest. They all need each other to work properly together. Constipation (and/or diarrhea) can...
  16. knitty kitty
    Welcome to the forum! Have you had a genetic test to see if you carry any known genes for Celiac Disease? Have you been checked for vitamin and mineral deficiencies?
  17. knitty kitty
    What kind do this? Can you share the ingredient labels?
  18. knitty kitty
    @CatCann, welcome to the forum! The test your daughter had in the past and more recently might not have given accurate results if your daughter was not eating sufficient gluten prior to the antibody test. Here's the updated guidelines for a gluten challenge.... According to recent research, updates to the gluten challenge are being implemented...
  19. knitty kitty
    Hello, @AnnaNZ! In Celiac Disease, part of the autoimmune response is the release of histamine in response to gluten. The Mast Cells that release histamine can become hypersensitive and release histamine in response to the slightest provocation by some foods. High Histamine levels can cause continuing inflammation and digestive problems. By cutting...
  20. knitty kitty
    The GP can't blame you if she doesn't know, and pass on, the proper protocol for gluten challenges before testing. Getting a proper Celiac Disease diagnosis can be delayed by ten years because doctors are not knowledgeable about testing prerequisites. Write a letter on paper to your doctor requesting another test due to the reasons above and...
  21. knitty kitty
    Yes, Peggy, Anemia is common in Celiac Disease. Anemia can be caused by not absorbing sufficient iron, Cobalamine B12, and other essential nutrients. We need iron to make blood cells but we also need Cobalamine B12. An intrinsic factor is needed to absorb B12, but gastritis can affect the production of the intrinsic factor in the stomach. ...
  22. knitty kitty
    We're you consuming sufficient amounts of gluten prior to your blood antibody tests? You may want to continue on gluten at these levels below and be retested in two weeks. Check with your doctor. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to...
  23. knitty kitty
    Yes, it's possible. If you can smell the food in the air, it means airborne particles are being sensed by your nose. The nose empties down the esophagus (throat) and ends up in your digestive system where antibodies recognize it and start the autoimmune reaction. I avoid the bread and bakery aisles at the grocery store. I also avoid perfume aisles...
  24. knitty kitty
    According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in...
  25. knitty kitty
    You should definitely ask your doctor to be retested because you were not told to eat sufficient gluten beforehand. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten...
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