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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, I do have trouble with insomnia sometimes. When I do, I take the amino acid L-Tryptophan, a form of Niacin B 3, that helps make serotonin and melatonin. I take a magnesium glycinate or magnesium threonate, and a Pyridoxine B 6 supplement (low dose). Pyridoxine helps with dreaming, an important part of restorative sleep. https://pubmed.ncbi...
  2. knitty kitty
    @Raquel2021, More than happy to. I like Life Extension brand. B Complex... https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex Benfotiamine 100 mg https://www.lifeextension.com/vitamins-supplements/item00920/benfotiamine-with-thiamine Benfotiamine 250 mg (you may want to start with the...
  3. knitty kitty
    @MominWA, I'm sad to hear about your son having more health problems. I'm worried your son isn't going to get better until the nutritional deficiencies are addressed. Are you still supplementing vitamins and minerals? How much thiamine is he getting? I'm not a doctor, I'm not diagnosing. I've read articles stating SMAS is caused by...
  4. knitty kitty
    @Ruby89, So good to hear from you! I'm so glad the thiamine helped improve your neuropathy! Are you taking a magnesium supplement? Low Magnesium is associated with joint pain and increased levels of anxiety and depression. Thiamine needs Magnesium to make important enzymes. Magnesium threonate is exceptionally beneficial with the anxiety....
  5. knitty kitty
    @ALee, Don't hurt yourself trying to squat! Have you had your Vitamin D level checked? B12? Have you been supplementing with any vitamins since you've been on a gluten free diet? The gluten free diet and low carb diets can be low in vitamins and minerals, especially over a long period of time. Gluten free facsimile foods are not required...
  6. knitty kitty
    There are different blood tests for Thiamine, but they are not accurate. An Erythrocyte Transketolase test checks for activity in a Thiamine containing enzyme. But there's disagreement on how accurate that test is, too. The World Health Organization has a field test for Thiamine insufficiency. Can you rise from a squat unaided? I squatted...
  7. knitty kitty
    These explain well... https://www.webmd.com/a-to-z-guides/magnesium-test And... https://www.webmd.com/a-to-z-guides/do-i-need-a-calcium-blood-test
  8. knitty kitty
    Do be aware that a small percentage of us are seronegative. We don't have antibodies in our blood due to anemia, or diabetes, or we've been sick so long our bodies have just quit cranking out antibodies due to a Thiamine Vitamin B 1 deficiency. (Yes, we need Thiamine and magnesium to make antibodies.) I'm seronegative, but I have two genes like yours...
  9. knitty kitty
    Welcome to the Celiac Club, @ShelbyE720! Deficiencies in certain vitamins can cause skin changes. I had a similar rash in the same places. It went away when I supplemented Riboflavin B2. Deficiencies in vitamins like B12, Vitamin C and Niacin can cause skin changes, too. Here's an article with which to compare yours. Cutaneous signs of...
  10. knitty kitty
    Low magnesium can cause twitching and neuropathy (tingling), too. Magnesium and calcium work together for muscle contraction and relaxation. Maybe all that calcium got your magnesium/calcium balance off causing the symptoms. The eight B vitamins overlap, too. Low Pyridoxine, Folate, B12 and Thiamine can cause peripheral neuropathy, tingling...
  11. knitty kitty
    Welcome to the forum, @MaryJb Here! I've taken the liberty to start you off with your own thread, since this is a rather old post and the original poster may not answer. I have back, hip and joint pain. Supplementing with Vitamin D and making sure I get plenty of Omega Three healthy fats keeps my joints more fluid. How long have you been...
  12. knitty kitty
    Those ARE genes for Celiac. Double check my sources.... Genetic susceptibilty and celiac disease: what role do HLA haplotypes play? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6502200/ "HLA-DQ2 heterodimers are encoded by DQA1*05 and DQB1*02 alleles...." "...DRB1*03:01 allele, which was first associated with celiac disease risk...
  13. knitty kitty
    Thanks, @cristiana! @Raquel2021, You were wondering if the Silk coconut yogurt could have gluten in it because it gives you bad reflux and you don't tolerate it well. From the ingredients, it looks clear. One of the ingredients is calcium citrate, a calcium supplement added by the manufacturer. You would do better to take an over the counter...
  14. knitty kitty
    According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in...
  15. knitty kitty
    Welcome to the forum, @eekunique! According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody...
  16. knitty kitty
    Yes, I do think all of these supplements have helped my overall health and at least has slowed the progression of osteopenia. The Silk coconut yogurt has pea protein powder or rice flour, both of which contain irritating lectins. The AIP diet eliminates peas and legumes and grains including rice, and highly processed things like this. Have...
  17. knitty kitty
    Hi, @Raquel2021, I follow a Paleo diet and stick close to the AIP diet. I do eat sources of dietary calcium such as broccoli, turnip greens, kale, salmon, and oranges. I do take calcium supplements. Unfortunately, that was not always the case. Early in my undiagnosed years, I developed lactose intolerance and casein allergy with very bad neurological...
  18. knitty kitty
    The Autoimmune Protocol Diet (AIP diet) is very helpful in healing the intestines. The AIP diet is a very basic meat, fish, veggies, fruit diet. No dairy, no grains, no legumes, no nightshades, no seeds, no nuts, no processed foods. These foods have components that are very irritating to the digestive system. Three weeks on the AIP diet...
  19. knitty kitty
    Welcome to the forum, @Flaura001! Have you explained your anxiety to the doctor and nurse doing the endoscopy? They may be able to give you a medication to take at home before your appointment to relax you. (In which case, someone should accompany you.) In light of your anxiety, they may be able to reschedule you sooner, or put you on the list to...
  20. knitty kitty
    I found these neat articles. B cells defined by immunoglobulin isotypes https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9985177/ And... Mode of Bioenergetic Metabolism during B Cell Differentiation in the Intestine Determines the Distinct Requirement for Vitamin B1 https://pubmed.ncbi.nlm.nih.gov/26411688/ And... Metabolism...
  21. knitty kitty
    @Teresa Dean, Ask for a genetic test to see if you have any of the known genes for Celiac Disease. Sounds like doing a gluten challenge could set back the progress you've made so far. Get checked for nutritional deficiencies!
  22. knitty kitty
    Welcome to the forum! You could ask your doctor for a genetic test to see if you have any of the common genes for Celiac Disease. Having the genes simply means you have the potential to develop Celiac Disease. Not all Celiac genes have been identified though. Yes, Celiac does happen in people of color. Also get your rash biopsied by a dermatologist...
  23. knitty kitty
    @Ruby89 How are you doing? How much Thiamine are you taking? You can increase the amount of Thiamine you take. I took about 1000 mg of Thiamine throughout the day. I took smaller doses 300-500 mg every three to four hours. Magnesium helps Thiamine work properly, so adding a magnesium glycinate or citrate supplement will help as well. Hope...
  24. knitty kitty
    @Liam R, Malabsorption in Celiac Disease causes malnutrition because we can't absorb nutrients in the small intestine. Proton pump inhibitors can make this worse because PPI's lower stomach acid. H. Pylori infection can cause low stomach acid and messes with parietal cells in the stomach. Parietal cells secrete the intrinsic factor needed to absorb...
  25. knitty kitty
    @Painful5, Yes, knowledge is valuable. I'm here to share what I have learned the hard way so that others will have an easier journey. I've struggled with the same things I write about. My university degree in microbiology was earned in pursuit of answers. I'm thankful @Scott Adams has provided a place we can share our experiences. Do discuss...
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