Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,311

  • Joined

  • Last visited

  • Days Won

    162

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum! You could ask your doctor for a genetic test to see if you have any of the common genes for Celiac Disease. Having the genes simply means you have the potential to develop Celiac Disease. Not all Celiac genes have been identified though. Yes, Celiac does happen in people of color. Also get your rash biopsied by a dermatologist...
  2. knitty kitty
    @Ruby89 How are you doing? How much Thiamine are you taking? You can increase the amount of Thiamine you take. I took about 1000 mg of Thiamine throughout the day. I took smaller doses 300-500 mg every three to four hours. Magnesium helps Thiamine work properly, so adding a magnesium glycinate or citrate supplement will help as well. Hope...
  3. knitty kitty
    @Liam R, Malabsorption in Celiac Disease causes malnutrition because we can't absorb nutrients in the small intestine. Proton pump inhibitors can make this worse because PPI's lower stomach acid. H. Pylori infection can cause low stomach acid and messes with parietal cells in the stomach. Parietal cells secrete the intrinsic factor needed to absorb...
  4. knitty kitty
    @Painful5, Yes, knowledge is valuable. I'm here to share what I have learned the hard way so that others will have an easier journey. I've struggled with the same things I write about. My university degree in microbiology was earned in pursuit of answers. I'm thankful @Scott Adams has provided a place we can share our experiences. Do discuss...
  5. knitty kitty
    Do talk to your doctors about nutritional deficiencies that can cause all sorts of skin manifestations. Make notes of when your rash gets worse...after eating certain foods?....after being out in sunshine? Cutaneous signs of nutritional disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8721081/ And... Infectious dermatoses...
  6. knitty kitty
    @Painful5, I apologize that one of those articles upset you. It wasn't a well done study because no one was checked for nutritional deficiencies during the study. Taking multivitamins doesn't correct existing nutritional insufficiency or deficiency immediately. The study looked at vitamin usage ONLY in the six weeks before and after conception. ...
  7. knitty kitty
    Welcome to the forum, @Mswena! Your reaction sounds more like Histamine Intolerance than a glutening. Yes, Histamine Intolerance produces gastrointestinal symptoms like bloating! Menthol is derived from plants in the mint family, or produced synthetically. Menthol stimulates histamine release. Our bodies make histamine. Histamine is a...
  8. knitty kitty
    @Painful5, Whether they are from food or supplements consumed, vitamins can pass directly into the bloodstream from the digestive tract. Blood tests for vitamins can be inaccurate. These tests do not give much information about how well the vitamins are being utilized inside cells of organs and tissues. Cells can have depleted vitamin stores inside...
  9. knitty kitty
    @Painful5, Were you taking vitamins at the time the blood tests were done? Were you checked for vitamins other than B12, folate and iron?
  10. knitty kitty
    @Painful5, Welcome to the forum! We can have an immaculately gluten free diet for years, but until we address and correct the nutritional deficiencies inherit in Celiac Disease, our CeD is not "fully controlled". Gluten free diets can be notoriously lacking in essential vitamins and minerals necessary for a successful pregnancy. Additionally...
  11. knitty kitty
    @currydmc, Call and ask for an Erythrocyte Transketolase test to be done on the sample you've given. This tests how well Thiamine is being utilized. Thiamine is not one of those vitamins routinely checked. Blood tests aren't really accurate measurements of vitamins inside cells where they are used. Blood tests can reflect vitamin supplements...
  12. knitty kitty
    How are things going? What did your nutritionist say? I'm concerned about your drinking and malabsorption of CeD might be causing a subclinical deficiency in Thiamine Vitamin B 1. Early symptoms of insufficient Thiamine include depression, anxiety, irritability and brain fog. Getting easily agitated and stressed with others are more symptoms...
  13. knitty kitty
    Do be aware that the Specific Carbohydrate Diet can be low in Thiamine Vitamin B 1. Nutritional Adequacy of the Specific Carbohydrate Diet in Pediatric Inflammatory Bowel Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5653423/ "Seventy-one percent of participants' daily intakes were below the RDA for vitamins B1 and sixty-seven percent...
  14. knitty kitty
    Yes, Thiamine deficiency will cause amenorrhea. Vitamin D deficiency will contribute to amenorrhea. High dose Thiamine supplementation has been shown to improve fibromyalgia. High-dose thiamine improves the symptoms of fibromyalgia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3669831/ And... Hiding in Plain Sight: Modern Thiamine...
  15. knitty kitty
    @mzfixit, Yes, I understand how frustrating doctors can be. They are not well trained in recognizing nutritional deficiencies. Thyroid problems occur in subclinical Thiamine deficiency. The gallbladder starts being problematic in subclinical Thiamine deficiency. Thiamine also helps Mast cells not to release their histamine, so your histamine...
  16. knitty kitty
    @Acacia Voynar, Yes, your symptoms sound like they are related to vitamin and mineral deficiencies. Don't be taking multivitamins, nor vitamin and mineral supplements in the eight to twelve weeks prior to having blood tests done to check for nutritional deficiencies. Acacia, your blood tests probably reflect the multivitamin you've been taking...
  17. knitty kitty
    @dixonpete, I've come across a couple of scientific studies that show there's minimal benefit in gluten tolerance in Celiacs with hookworms. One study concluded Celiacs with hookworms occasionally exposed to small amounts of gluten may show less immediate damage than a Celiac without hookworms, but with loss of quality of life. It sounds...
  18. knitty kitty
    Welcome to the forum, @Alkins! Tryptophan is derived from Niacin Vitamin B 3. Our bodies can make tryptophan from Niacin, but supplementing with Tryptophan for better sleep is a good idea. Thiamine Vitamin B 1 helps with energy levels if you are feeling tired. Along with magnesium and the other B vitamins, Thiamine can improve your energy levels...
  19. knitty kitty
    @Treza, Welcome to the forum! Yes, many of us only develop more severe symptoms after years of mild symptoms which often get attributed to other factors and overlooked. Do talk to your doctor and nutritionist about supplementing with vitamins and minerals while you are healing. Subclinical deficiencies can affect your health. Thiamine Vitamin...
  20. knitty kitty
    😿 MTHFR variants. Does your doctor have you on Methylfolate? Microcrystaline cellulose is made from the stalks of different plants around the world. It's doubtful they would contain gluten which is concentrated in the seeds of wheat crops. It's admirable they are trying to find uses for waste products (stalks of food crops). It's more likely yo...
  21. knitty kitty
    @Carianne, welcome to the forum! Has your son been checked for nutritional deficiencies? Most Celiacs have deficiencies in the eight essential B vitamins. Niacinamide Vitamin B 3 has helped my skin clear up from DH. The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review https://www.ncbi.nlm.nih...
  22. knitty kitty
    How are you doing, @Ruby89? Have you been back to the doctor? I found it curious your doctor mentioned Gilbert's syndrome. Have you been checked for nutritional deficiencies beyond B12 and Vitamin D? Folate deficiency can cause peripheral neuropathy and high bilirubin. Part of proper follow up care for Celiac people is testing for...
  23. knitty kitty
    Welcome to the forum, @Heidi Johnston! It's normal for the autoimmune response to calm down after being on a gluten free diet for a while. When gluten is reintroduced, the autoimmune response takes a while to gear up. One exposure to gluten may not provoke a strong autoimmune response, but consistently eating gluten will. Do NOT continue eating...
  24. knitty kitty
    "While clubbing is associated with many pathologies, it may also be observed with malnutrition, chronic alcohol use disorder, and chronic laxative use, often seen in individuals with eating disorders." Nutritional Assessment https://www.ncbi.nlm.nih.gov/books/NBK580496/?report=reader "Review of the literature indicates that between ...
  25. knitty kitty
    Welcome to the forum, @catharine westlake! Yes, hypoxia (not getting enough oxygen) can cause clubbing in the fingers. Hypoxia can occur in subclinical Thiamine deficiency. Thiamine Vitamin B 1 is needed to help carry oxygen around the body. If one is low in Thiamine clubbing can result. My fingers showed clubbing when I experienced Thiamine...
×
×
  • Create New...