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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Tash1, I agree with @plumbago. Ask the gastroenterologist to do the blood tests for Celiac Disease. I found writing out my symptoms and questions on paper very helpful. I also write down my request for certain blood tests or procedures. I ask the nurse to put a copy in my file and hand another copy to the doctor. That way I don't forget to...
  2. knitty kitty
    Good question, @Sobiha! It takes about eighteen months to two years for the autoimmune response to gluten to quiet down. Of course, healing depends on how much damage was present at diagnosis and with the start of a gluten free diet. It also depends on nutritional status. Eating a nutritionally dense diet is important in order to get those...
  3. knitty kitty
    No, @Wheatwacked, sunshine doesn't help DH, it makes it worse! Japanese don't have the same DH pathology and genes as other Celiacs with DH... Dermatitis herpetiformis in Japan: an update https://pubmed.ncbi.nlm.nih.gov/11834848/ Dapsone was originally used to treat leprosy. Niacin Vitamin B3 in the form that causes flushing called...
  4. knitty kitty
    @TheSootyShow, You may not have eaten sufficient gluten for long enough to provoke measurable antibody production. Six weeks may not be long enough to produce enough TTg antibodies to get into the bloodstream. In such cases, continuing the gluten challenge and testing again at eight and twelve weeks is an accepted protocol. Request the...
  5. knitty kitty
    @HeidiParthena, Is your son taking any nutritional supplements? The gluten free diet can be low in the essential B vitamins. I lost my sense of smell for years prior to diagnosis because I was low in Thiamine Vitamin B 1. I took Benfotiamine (a form of Thiamine) and B Complex. My sense of smell returned when my Thiamine deficiency was corrected...
  6. knitty kitty
    @Sarah Rose, Have you thought about getting a genetic test to look for the Celiac genes? You don't have to consume gluten for a DNA test. Some doctors will make a Celiac disease diagnosis if one has any Celiac genes and shows improvement on a gluten free diet. That's how I was diagnosed. I got too ill to finish a gluten challenge...
  7. knitty kitty
    Welcome to the forum, @Kirbyqueen! Dairy and eggs are high in iodine. So are crustaceans and cod fish.
  8. knitty kitty
    Take smaller doses of calcium throughout the day with meals. Also supplement with magnesium. Low magnesium allows calcium to leach out. Take twice as much calcium as magnesium. Vitamin D and Vitamin K are important for bone health. Trace minerals like boron, zinc, iron, copper, manganese and selenium are important, too. The Impact of Trace...
  9. knitty kitty
    My migraines went away after I corrected my Thiamine deficiency. I used to have headaches frequently. The more severe my Thiamine deficiency, the worse my headaches would be. There's a connection between migraines and Wernicke's Encephalopathy. You don't want to go there! Seriously ask your doctor about supplementing Thiamine or getting an IV of...
  10. knitty kitty
    Welcome to the forum, @EmilyRachael! An endoscopy is done to check the damage done to the small intestine by the autoimmune response in Celiac Disease. Much of the damage in early stages may be microscopic, so biopsies are taken for examination. This initial endoscopy also gives a baseline with which to compare future endoscopies to check on healing...
  11. knitty kitty
    This article covers more drugs which result in nutrient deficiencies. Evidence of Drug–Nutrient Interactions with Chronic Use of Commonly Prescribed Medications: An Update https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5874849/
  12. knitty kitty
    I take Magnesium Glycinate because it is very easy on the digestive system. I had diarrhea taking magnesium oxide (pulls fluid into digestive tract) and magnesium citrate wasn't much better.
  13. knitty kitty
    Vitamin D is a start. Doctors are not given much education about nutrients. Nutritional deficiencies are looked on as a thing of the past or as occurring in third world countries. The malnutrition aspect in Celiac Disease is often overlooked. It's heartbreaking. Gluten containing products are required by law to be enriched with vitamins...
  14. knitty kitty
    @Jujuconnor, I had a bumpy journey to Celiac diagnosis myself. I'm thankful I can help others. The "fingers" are the villi in the small intestine that absorb nutrients. The crypts are those "pockets," signifying severe damage over time. Because your absorption is so poor, you may benefit from intravenous vitamin supplementation. Vitamin...
  15. knitty kitty
    Welcome to the forum, @Jujuconnor! Wow, you have been through the wringer! Glad you're here! Yes, it's not unusual for Celiac Disease to show up after a physical illness or injury, or after emotional stress. During those intensely stressful times, the body can run low on vitamins and minerals needed to keep us healthy. Poor nutritional status...
  16. knitty kitty
    Welcome to the forum, @Juliehemann! I felt much better after I cut out dairy. Have you tried cutting out dairy? Some people have trouble digesting lactose, the sugar in dairy. This is due to the damage to the villi in your small intestine from CeD. With time, the villi grow back and can produce the enzyme (lactase) that digests lactose. ...
  17. knitty kitty
    I was prescribed a low dose aspirin, but after supplementing with Thiamine and the other B vitamins, my health improved. Whether one is newly diagnosed or living with CeD for years, correcting nutritional deficiencies is terribly important. Malabsorption of nutrients goes hand in hand with CeD. Subclinical deficiencies can affect ones health. Subclinical...
  18. knitty kitty
    @mzfixit, Welcome to the forum! You had stated that "I responded to them saying that under their gluten section they failed to mention 3 different kinds of grains that contain gluten." What were the three different grains they didn't mention? Just curious. With my Histamine Intolerance and Mast Cell Activation Syndrome, I found...
  19. knitty kitty
    When nonheme foods (plants) are eaten with meat, more iron is absorbed from the nonheme foods than when the nonheme foods are eaten with egg albumin. Egg albumin interferes with iron absorption. Sorry, should be with, not from. Nonheme iron absorption with freeze dried beef was 180% more than the amount of nonheme iron absorbed with egg albumin...
  20. knitty kitty
    Nonheme iron absorption from freeze-dried beef was 180% more than the amount of nonheme iron absorbed from egg albumin. Nonheme iron absorption with chicken muscle was 100% more than the amount of nonheme iron absorbed from egg albumin.
  21. knitty kitty
    @Eldene, Some Celiacs are lactose intolerant because they cannot produce an enzyme needed to digest the sugar in dairy, lactose. This enzyme is normally made in the tips of the villi lining the small intestine. The autoimmune response in Celiac Disease damages villi in such a way that the enzyme cannot be made. Undigested sugars in dairy feed the...
  22. knitty kitty
    Yes, immunosuppressive drugs can skew blood tests, as can conditions like diabetes and anemia.
  23. knitty kitty
    @GUY1, Have you taken immunosuppressive drugs? Steroids? PPI's?
  24. knitty kitty
    I've found some interesting studies that might help you.... High Frequency of Haplotype HLA-DQ7 in Celiac Disease Patients from South Italy: Retrospective Evaluation of 5,535 Subjects at Risk of Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4580462/ And... Immunoglobulin G (IgG) Anti-Tissue Transglutaminase Antibodies Used...
  25. knitty kitty
    @Raquel2021, Cinnamon contains chemicals that cause the release of histamine. High histamine levels are part of the immune response. After a while gluten free, your body will calm down and not be so sensitive to histamine in foods. I followed a low histamine version of the Autoimmune Protocol Diet (AIP diet). Dr. Sarah Ballantyne, a Celiac...
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