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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. @Juliana82, Is the bleeding occurring when you throw up? Or with bowel movements? Constipation? Is it bright red or black and tarry? Anal fissures? Crohn's or Colitis? Alcohol consumption? Diabetes, Thiamine deficiency and anemia can cause false negatives. Most diabetics are deficient in Thiamine. Thiamine deficiency can also occur due...
  2. @Vozzyv, Certain nutritional deficiencies can cause tinnitus, ringing in the ears. Vitamins A and D, Thiamine B1, Riboflavin B2, Pyridoxine B6, Folate B9, Cobalamine B12, magnesium, zinc and Vitamin C can cause tinnitus individually if deficient. The malabsorption of Celiac Disease affects all the nutrients our bodies need. Many of these nutrients...
  3. @Milarynn, Welcome to the forum! Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies. Be sure to have your Vitamin D level checked. Vitamin D helps prevent bone loss, including loss from the jaw and teeth. Magnesium and calcium are both important to bone health as well. Magnesium helps keep the...
  4. @CeliacPsycho246, You might try cutting out dairy. Some of us react to Casein, the protein in dairy, the same as to gluten.
  5. "Doses higher than the RDA are sometimes used to treat medical problems such as vitamin D deficiency, but these are given only under the care of a doctor for a specified time frame. Blood levels should be monitored while someone is taking high doses of vitamin D." Quoted from the Healthline article @Yaya linked above...
  6. https://jamanetwork.com/journals/jama/fullarticle/2748796 If read carefully, this study @Yaya refers to was done on healthy people. "Meaning Among healthy adults, supplementation with higher doses of vitamin D did not result in improved bone health; further research would be needed to determine whether it is harmful." "...311 community-dwelling...
  7. Oh, @Yaya! Five years??? How awful for you to suffer so long! My Vitamin D came up in a matter of months. High dose Vitamin D has been used in the past to correct rickets and is a safe method to correct Vitamin D deficiency. I took 1000 IU several times a day, every day for several weeks. I ate them like m&m's when I was severely deficient...
  8. @CeliacPsycho246, My OCD symptoms resolved after I took supplements of the active form of Pyridoxine B6 called P5P and L-Theanine, an amino acid. Pyridoxine B6 is absorbed from foods or supplements and then must be changed to its active form. P5P is the active form. Inflammation and malabsorption can impede this process. Taking the active form...
  9. Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium. B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy...
  10. @glucel, I agree with @trents. You can still do the AIP diet while taking aspirin. I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin. Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part...
  11. Hi, @Dawn R., I get gluten ataxia. It's very disconcerting. Are you still experiencing gluten ataxia symptoms eating a gluten free diet?
  12. @Jordan Carlson, Sorry to hear you're having a bumpy journey right now. I've been there. I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet). It gave my digestive system time to heal. After I felt better, I could add things back...
  13. @GardeningForHealth, How are things going for you? I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
  14. @Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows...
  15. Using a pressure cooker will break down Lectins. Long cooking times as in using a crock pot will also reduce Lectin content. However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system. I do hope you give the AIP diet a try. I understand that changing ones diet takes a lot of mental readjustment...
  16. Hello, @jadeceoliacuk, Has your son been tested for nutritional deficiencies? Celiac Disease causes malabsorption of essential nutrients which can result in nutritional deficiencies. Supplementing with essential vitamins and minerals is beneficial. I would find a nutritionist more knowledgeable about Celiac and ASD, before taking herbal supplements...
  17. I had ADHD symptoms but taking Thiamine (Benfotiamine and Allithiamine TTFD), magnesium and potassium really helped with symptoms. A diet high in carbohydrates can precipitate Thiamine deficiency symptoms that resemble ADHD. Extra thiamine is needed to convert carbohydrates to energy. Dr. Derrick Lonsdale has an explanation... https:/...
  18. @ABP, "her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4" In young children, the DGP IgG tests may be the only positive blood test because the immune system is not mature and doesn't produce tTg IgA until older. Iron deficiency and thiamine deficiency can cause poor tTg IgA production. "her genetic test for celiac was positive." Must have...
  19. @GardeningForHealth, About that study... The scientists were testing how well different gluten detection tests were at detecting gluten in different kinds of food products. The scientists knew the meat had gluten in it already. They "spiked" the samples. "...we selected a set of 32 samples (Table 2) to represent a wide range of grains...
  20. Hello, @StrongerThanCeliac, Not insane. Misdirected, maybe. The digestive enzymes in saliva and the bacteria in the mouth probably digest all the gluten before then. More likely, it takes that long for your histamine level to come down. Histamine is released by mast cells as part of the reaction to gluten. Vitamin C, B12, and Thiamine...
  21. @Auldtwa, I have Celiac, type two diabetes and have had kidney stones. Celiac Disease causes malabsorption of essential nutrients, including the eight essential B vitamins. We cannot make B vitamins in our bodies and must absorb them from foods and supplementation. Correcting nutritional deficiencies caused by malabsorption due to Celiac Disease is...
  22. Y'all may want to get tested for POTS (Postural Orthostatic Tachycardia Syndrome) which can cause fainting, and Gastrointestinal Beriberi, which manifests with vomiting, abdominal pain, diarrhea, fever, chills, and low blood pressure. POTS and Gastrointestinal Beriberi are Thiamine Deficiency Disorders. Celiac Disease causes malabsorption which results...
  23. There's different reasons why one may be seronegative. Some Seronegative Celiacs may be genetically encoded to be IgA deficient. But, they may still make IgG antibodies, hence both IgA and IgG antibodies are tested for in the full Celiac Panel of blood tests. Instead of IgA and IgG antibodies, some Seronegative Celiacs may make other types of antibodies...
  24. @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests. Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels. Have you been checked for nutritional deficiencies? Iron? Thiamine? Vitamin B12? Vitamin D? Only one Celiac markers is needed to develop the active disease. I agree a...
  25. @HWB, Have you been checked for SIBO? Small Intestinal Bacterial Overgrowth will cause constipation and chemically breath. The best way to get rid of SIBO is to go on a ketogenic/Paleo diet, like the Autoimmune Protocol Diet. It starves out the carbohydrate loving bacteria and allows good bacteria to repopulate the small intestine. The...
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