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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1 deficiency. Hyperemesis is a symptom of thiamine deficiency. Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet. A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and...
  2. knitty kitty
    Some Celiacs react to the dairy protein Casein the same as they would to gluten. This could explain your ongoing inflammation. Allergies can raise your histamine levels as can processed gluten free products. To clear histamine, certain vitamins can help, B12, Pyridoxine B6, Vitamin C, and Thiamine B1. Optimal Vitamin D levels are between 8...
  3. knitty kitty
    @Jmartes71, What a stressful journey! I'm so glad you found your way here. Have you been checked for nutritional deficiencies? Doctors don't recognize vitamin deficiency symptoms. Which supplements are you taking? Just herbal ones or vitamins?
  4. knitty kitty
    Do you consume dairy? Have you recently had an infection or cold? Do you have digestive symptoms? Do you eat processed gluten free foods? What is your Vitamin D level?
  5. knitty kitty
    @lizzie42, How are your daughter's bowel movements? Does she have gas, diarrhea or constipation? Does her squeezing feeling move around in her abdomen or is it consistently in one spot? Is she dehydrated? How much fruit does she eat? Fruit juices? I'd recommend cutting out the cheese for a while, till you get it sorted.
  6. knitty kitty
    If you're more comfortable starting slow, that's fine, but do increase your dose to 500 mg per day as quickly as possible. The World Health Organization recommends 500 mg thiamine HCl per day when deficiency is suspected. Dr. Lonsdale had researched high dose thiamine for decades, and he has used higher doses, 1 to 3 grams in some cases. Like I explained...
  7. knitty kitty
    Absolutely no danger of overdosing on the stuff. Thiamine is nontoxic, and safe. I had gotten to 1000 mg of Thiamine HCl a day at one point. Do continue taking the multivitamin with the other B vitamins. You may want to add a magnesium supplement because magnesium and thiamine make enzymes together. I like Magnesium l-Threonate (Neuro-Mag by life...
  8. knitty kitty
    Kudos for trying thiamine! On the ingredients label it should say if it's thiamine hydrochloride (thiamine HCl) or thiamine mononitrate or something else. Thiamine mononitrate is shelf stable and not easily utilized in the body. Yes, go ahead and try a whole 100 mg tablet. Take with a meal. Don't take close to bedtime. Tomorrow take...
  9. knitty kitty
    @cristiana, Yes, I found high carbohydrate meals would trigger mine as well. I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine. Heart palpitations are a symptom of thiamine insufficiency. Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy. The more...
  10. knitty kitty
    I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine. The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain. Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins. It should tell you what form of thiamine is in...
  11. knitty kitty
    @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream. This still is not reflective of current stored vitamin levels inside organs. The genetic MTHFR mutation does occur frequently with Celiac Disease. Taking the methylated ...
  12. knitty kitty
    @SB04, Have you been checked for B12 deficiency? A deficiency in Vitamin B12 will cause hives and also raise the tTg 3 IgG level, even in people without Celiac Disease. You can have B12 deficiency without having Celiac Disease. All eight B vitamins work together. Do not supplement just a single B vitamin. Best wishes.
  13. knitty kitty
    @Yaya, Vitamin supplements should be stopped eight to twelve weeks before testing blood levels. If vitamin supplements are not stopped, the tests will reflect the vitamins in circulation in the blood stream from the supplements, and blood levels may appear within "normal" limits. Blood tests do not reflect the amount of vitamins stored inside cells...
  14. knitty kitty
    I know I'm late to the party, but I thought these articles are very interesting. Doctors don't recognize vitamin deficiency symptoms. Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation. Association of vitamin B1 with cardiovascular diseases...
  15. knitty kitty
    @ohmichael, Have you tried contacting your state's Employment Services? There should be job opportunities and training programs especially for previous service members and veterans. Look into trade schools. Some offer training programs which provide scholarships and housing, and possible employment after completion. Some scholarships are funded...
  16. knitty kitty
    @badastronaut, I'm so glad you got your folate and zinc up! I'm a big fan of Benfotiamine. It's a form of thiamine that promotes intestinal healing. I take 250 mg Benfotiamine with the first two meals of the day along with a B 50 Complex. The B vitamins all work together so taking a B Complex with Benfotiamine is great. I also take a form of...
  17. knitty kitty
    @nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing. I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet removes everything from the diet that can be irritating or hard to digest...
  18. knitty kitty
    @nanny marley, Have you been taking any vitamins or mineral supplements besides Vitamin D? What are you eating? Do you eat processed gluten free foods? You said your symptoms included fatigue, body hair loss, low vitamin d, Restless Leg Syndrome, Raynaud's Syndrome, contact dermatitis, rhinitis, body aches, TMJ, heart palpitations, sleep...
  19. knitty kitty
    @nanny marley, Are you having an endoscopy at the same appointment as your colonoscopy? You said you have been going through testing for Celiac. An endoscopy with several biopsies from the small intestine (after the stomach at the beginning of the digestive tract) is the gold standard for diagnosing Celiac Disease. Celiac cannot be diagnosed by examining...
  20. knitty kitty
    A combination of Thiamine B 1, Pyridoxine B 6, and Cobalamine B12 relieve pain. Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan is the brand I get for a convenient, all-in-one pill. However separate vitamin supplements of each if the three vitamins works just the same. This works for pain from all sorts of reasons...
  21. knitty kitty
    I've found some articles that might be of interest to you. The malabsorption of Celiac Disease does lower your vitamin levels, essential nutrients our bodies cannot make. Vitamin B1 is especially important to our heart health. Current Evidence and Future Perspectives of the Best Supplements for Cardioprotection: Have We Reached the Final Chapter...
  22. knitty kitty
    No, I haven't tried Gliadin X, although @Scott Adams might be able to discuss his experiences. I think it's a bad idea to take GliadinX during your gluten challenge. You won't mount a strong enough autoimmune response.
  23. knitty kitty
    Yes, it is possible to have Celiac Disease without lymphocytosis.
  24. knitty kitty
    @jamiet06, Have you thought about getting a genetic test done? You have to have genes for Celiac Disease to develop. If you don't have any of the commonly known Celiac genes, you can look for another diagnosis. Genes don't change. You don't have to do a gluten challenge to test for genetic markers of Celiac Disease.
  25. knitty kitty
    Yes, @Ginger38, there are other genes for Celiac besides the two most common HLA DQ 2 and HLA DQ 8. There are DQ 7 and DQ 9 to name a couple. There are others. I understand how frustrating the diagnosis journey can be. I had a difficult time getting diagnosed, too. But you're through that now! Focus on your recovery and healing. Try the...
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