knitty kitty
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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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My health declined when I was taking an SSRI. I learned that certain drugs can cause Thiamine deficiency. SSRI's are one of those drugs. Depression is a symptom of Thiamine deficiency. It's also a symptom of Vitamin D deficiency. I was eating the Standard American Diet at the time, which is a diet that causes High Calorie Malnutrition. Consuming...
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Diagnosed Marsh stage 3C in January 2026
knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
Hi, @Known1, Did they check for anemia? Anemia can make you feel frozen on a summer's day. Anemia in men is often overlooked. Iron can be low with Celiac. How was your B12 level? I loved touring I-90 and I-80. Beautiful country. -
Hi, @Known1, welcome to the tribe! I highly recommend bumping up your dose of Vitamin D. I took small doses throughout the day to give my body more opportunity to absorb it. I ate those like m&ms. I was taking above 10,000 IU a day. My Vitamin D level was in the single digits though. Correcting deficiencies as quickly as possible is really beneficial...
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@catnapt, Thank you. I'm very thankful I can make a constructive contribution. I found my tribe here. But I think you're full of beans! Not figuratively, but literally. Beans, legumes, brown rice and oats are high in phosphorus. A diet high in phosphorus causes Secondary Hyperparathyroidism. There's a balance between phosphorus and...
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Yes, I do have Celiac disease. I had symptoms since infancy, but they were explained away as character flaws. I was told my stomach aches were faked to avoid going to school and other responsibilities, or to spoil family fun, and that my Dermatitis Herpetiformis was caused by being dirty and not bathing properly. I wasn't diagnosed with Celiac until...
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Yes, I do have Celiac disease. I had symptoms since infancy, but they were explained away as character flaws. I was told my stomach aches were faked to avoid going to school and other responsibilities, or to spoil family fun, and that my Dermatitis Herpetiformis was caused by being dirty and not bathing properly. I wasn't diagnosed with Celiac until...
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@catnapt, I apologize. Obviously I've confused you with someone else. I have vision problems due to undiagnosed Celiac complications. Being legally blind, y'all look the same from here. You still have not said which new medication you started taking. Parathyroid disorders can affect antibody production. Bone Loss Correlated with Parathyroid...
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@catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
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@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
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I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
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Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference. Thiamine HCl uses special thiamine transporters to get inside cells. I take it myself. Tryptophan will help heal the intestines. Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner. I take mine with magnesium before bedtime...
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@catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
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Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
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@Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
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Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
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I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
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Hi, @xxnonamexx, These are the micronutrients that I've found to be important for intestinal health. Vitamin D helps regulate the immune system. It lowers inflammation. Vitamin A and the essential amino acid Tryptophan (derived from Niacin B3) are extremely important to repairing and correcting intestinal permeability. Tryptophan influences...
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Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too. I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy). Niacin has been used since the 1950's to improve dermatitis herpetiformis. I try to balance my iodine intake (which will cause flairs...
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Accuracy of testing concerns
knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease. It will not show if you have active Celiac disease. Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies. The... -
Insomnia help
knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, @hjayne19, This is what I was saying in my post on January 15th and suggested the low histamine Autoimmune Protocol Diet which eliminates high histamine foods and histamine releasing foods. -
I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
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@JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
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Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
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Insomnia help
knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our... -
Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened. Those immune cells only replicate when triggered. If those...
