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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...
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A gastroenterologist doing an endoscopy. Biopsies would be taken to be examined microscopically. Do your anti-rejection medications cause digestive problems?
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Shingles - Could It Be Related to Gluten/ Celiac
knitty kitty replied to Ginger38's topic in Related Issues & Disorders
@Ginger38, Are you taking a B Complex vitamin? Vitamin D? Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine. -
There's simple dietary changes that can be done to improve Barrett's esophagus. There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help. A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps...
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Aaaackkk!!! Stop with the Omeprazole! It's not good, especially if taken for a long period of time!!! Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes. Omeprazole is a proton pump inhibitor that has been shown...
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Positive biopsy
knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/ -
Fruits & Veggies
knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the... -
Positive biopsy
knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body... -
Help understand results
knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies... -
I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B...
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Insomnia help
knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR... -
Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https...
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Insomnia help
knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@hjayne19, welcome to the forum. Sorry to hear you're having a bumpy start in your journey. Let's see if we can smooth the way a bit for you. To correct anemia, more than just iron and B12 supplements are needed. Other B vitamins including Folate B 9, Riboflavin B2, Pyridoxine B 6 and Thiamine B 1 are needed. Wheat flour (and other products... -
Which supplement says take 3 four times a day? Take the B Complex, one Benfotiamine, one Thiamax and one Neuromag at breakfast. You can take more Thiamax and Benfotiamine at lunch with another Neuromag. P.S. If you're referring to the NeuroMag, one serving consists of three capsules. You can take three capsules all together or you...
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@Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
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Oh, my dear! Get off that Fairlife chocolate protein shake! That's got milk in it! Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance. Damaged villi are incapable of producing lactAse, the enzyme...
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The Benfotiamine and thiamax need magnesium to make life sustaining enzymes. Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible. Yes, take the magnesium at breakfast, too. I take my Benfotiamine and TTFD Thiamax and B Complex at the beginning of breakfast. I take the magnesium after I finish...
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Welcome to the forum, @Charlie1946, How long have you been diagnosed with Celiac disease? Do you take any nutritional supplements? Vitamins? Herbal medicine? Do you eat processed gluten free facsimile foods? Is your diet high in carbohydrates? Many vitamin deficiencies can contribute to poor oral health. Vitamin C, Cobalamine B...
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Burning Sensation in the small intestine
knitty kitty replied to pilber309's topic in Related Issues & Disorders
Yes, @trents is right, ascorbic acid can be irritating. Do you take it with food? Do you take other supplements or vitamins? Do you eat processed meats? Is your diet high in carbohydrates? -
Burning Sensation in the small intestine
knitty kitty replied to pilber309's topic in Related Issues & Disorders
Do you get any Vitamin C? -
Burning Sensation in the small intestine
knitty kitty replied to pilber309's topic in Related Issues & Disorders
Thanks, @trents, lactose intolerance is different than a reaction to casein. Consuming casein could be causing that continuing antibody reaction causing localized inflammation. Still worth trying a diet without it. Since you mentioned your father passing, you may want to add Benfotiamine. Benfotiamine is a form of thiamine Vitamin B 1 that has been... -
Burning Sensation in the small intestine
knitty kitty replied to pilber309's topic in Related Issues & Disorders
Hello, @pilber309, welcome to the forum! Are you currently consuming dairy? You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it? Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. -
You may want to skip the oatmeal. I believe you're trialing a gluten free diet while waiting for an appointment with your doctor in the new year and doing a gluten challenge then. Some people with Celiac disease react to the protein in oats called avenin the same as to gluten. Cross contamination between oats and gluten containing grains is possible. ...