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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, I've experienced this! I squatted down to get something off the bottom shelf in the grocery store and could not get back up! The Squat test is used as a diagnostic test for Thiamine deficiency. If you cannot rise unaided to standing position from a squat, you probably have thiamine deficiency. Malabsorption of essential nutrients...
  2. knitty kitty
    Hello, again. I found this supplement at Amazon that works astoundingly well for pain. The three B vitamins in it, Thiamine B1, Pyridoxine B6, and Cobalamine B12, when taken together relieve pain as well as Nsaids. Not only do I get joint pain (especially in my fingers and can't knit 😿), I get back pain from crushed vertebrae (osteopenia), and th...
  3. knitty kitty
    I didn't want anyone to think rinsing quinoa would get rid of lectins. Terribly sorry, read your post too fast. Rinsing rice isn't recommended because rinsing rice will dissolve the added vitamins (they look like grains of rice).
  4. knitty kitty
    Welcome to the forum, @Jean Shifrin Yes, I get achy swelling joints if exposed to gluten. The antigluten antibodies can attack the connective tissue in joints. Here's an interesting article... Isolated polyarthritis revealing celiac disease: A case report https://pubmed.ncbi.nlm.nih.gov/37434897/ And another... Celiac Disease...
  5. knitty kitty
    Lectins are broken down by cooking. Using a pressure cooker is recommended for breaking down lectins in beans. Cooking all alternative grains and rice thoroughly should help.
  6. knitty kitty
    @SoBannaz, You said your skin looks like you've been burned. Is it just red or do you have plaques and scales? Blisters? Does it get worse in the sun?
  7. knitty kitty
    @Nogluten4thisgirl, It's been my experience these symptoms are related to vitamin deficiencies caused by poor absorption due to intestinal damage and inflammation caused by Celiac Disease. They are inextricably linked. How long have you been taking B12 and Vitamin D supplements? What changes have you seen in your levels? There's eight B vitamins...
  8. knitty kitty
    Welcome to the forum, @Nogluten4thisgirl! Those symptoms are related to nutritional deficiencies. Because the intestines get damaged in Celiac Disease, they cannot absorb sufficient vitamins and minerals. NCGS doesn't damage the intestines, but it may be a precursor to celiac disease and damage hasn't started yet. There's eight essential...
  9. knitty kitty
    Welcome to the tribe, @Aussie Celiac! How are you progressing? Are your iron levels getting better?
  10. knitty kitty
    Impressive! I wish I had a green thumb! I followed a Paleo diet, the Autoimmune Protocol diet. It cuts out all grains and processed foods made with grains for a few weeks. I felt great improvement during that time. I didn't eat grains again for a few months because I kept feeling better. Gluten is a lectin, a carbohydrate storage molecule...
  11. knitty kitty
    Would you tell us what you do eat? I had a problem with high histamine foods when I first started eating gluten free. Perhaps we can help point out problematic foods. Do you keep a food journal?
  12. knitty kitty
    The use of Microbial Transglutaminase as a food additive, used in baked goods, dairy products, and processed foods since 1989, has increased rapidly. Microbial transglutaminase has been found to be an agent that triggers Celiac Disease. High fructose corn syrup was introduced in the 1970's as a cheaper alternative to sugar. High fructose corn...
  13. knitty kitty
    Yes, a nutritionist should be able to order tests for nutritional deficiencies. Test for magnesium, Vitamin D, and iron. Blood tests for the B vitamins are not accurate. The best way to test for deficiencies is to take B Complex and Benfotiamine and look for improvement. I like Life Extension, and Nature's Way. Yes, available on Amazon. Stay...
  14. knitty kitty
    Magnesium deficiency can cause constipation. Thiamine deficiency can cause constipation. Thiamine and Magnesium work together to make essential life sustaining enzymes. To resolve my ongoing symptoms, I chose to follow the Autoimmune Protocol Diet (AIP diet), which is a very strict Paleo diet. No processed foods, no dairy, no grains, no nuts...
  15. knitty kitty
    A multivitamin is not going to correct nutritional deficiencies. The eight essential B vitamins are water soluble and easily lost with digestive problems. Add a B Complex and Benfotiamine with your multivitamin. The B vitamins cannot be made in our bodies. We must get them from foods or supplements every day. The more carbohydrates...
  16. knitty kitty
    @TabithaJ, Did your Vitamin D deficiency coincidence with your period of infertility? Celiac Disease causes malabsorption of essential nutrients. It's rare to have a deficiency in just one vitamin. Do get checked for nutritional deficiencies. Do talk to your doctor about supplementing with vitamins and minerals while healing. Have...
  17. knitty kitty
    @kopiq, Gastritis, B12 deficiency, and anemia are all conditions that can occur in Celiac Disease. Loss of appetite, abdominal pain, and hair loss are symptoms of Thiamine deficiency. Gluten free carbohydrates do not contain sufficient amounts of essential vitamins and minerals. Malabsorption of vitamins and minerals is a hallmark of...
  18. knitty kitty
    @kopiq, Welcome to the forum! Be proactive. Call the GI Specialist and ask if you need to be eating gluten for the endoscopy. Ask if you can get on a cancellation list to be seen sooner. If you stop eating gluten before the endoscopy, healing will take place, not giving an accurate picture of what damage is being done in reaction to gluten. ...
  19. knitty kitty
    Welcome to the forum, @alj67, IMO and SIBO are common in Celiac Disease. Cutting out carbohydrates and following a Paleo diet, like the Autoimmune Protocol Diet, can rid the digestive tract of these bacteria. Ask for a DNA test to look for the most common genes for Celiac Disease.
  20. knitty kitty
    I like the flushing form of Niacin, nicotinic acid. I use Nature's Way brand. I always check for fillers, like rice flour and cellulose, and avoid brands that use those. I understand about studying the labels! I've been through that situation frustration. You'll learn quickly. Do take a B Complex along with the additional Niacin. And...
  21. knitty kitty
    @TabithaJ, Welcome to the forum! Since you're doing so well on a gluten free diet, I wouldn't recommend undergoing a gluten challenge and endoscopy. You would be wrecking all the progress you've made. I agree with your doctor about skipping the endoscopy. Celiac damage can be patchy or out of reach, so the damage may be missed. Your healing...
  22. knitty kitty
    Welcome to the forum @SammieCook, Sad to hear you're feeling so poorly. Let's get you feeling better quickly! To settle stomachs, cloves. Put a couple of whole cloves in hot tea and steep for a few minutes. Add sweetener (sugar, honey, etc.) if desired. You can even steep just the cloves if desired. You can chew up the cloves and swallow...
  23. knitty kitty
    Yes! That's great that you've switched to a form of Folate the body can utilize better! Here's an article that explains the difference between folic acid and methyl folate: Active Folate Versus Folic Acid: The Role of 5-MTHF (Methylfolate) in Human Health https://pmc.ncbi.nlm.nih.gov/articles/PMC9380836/
  24. knitty kitty
    Welcome to the forum, @MO1984, I have dermatitis herpetiformis, too. I've learned that glutamate can make dermatitis herpetiformis worse. Some foods like mushrooms can contain high levels of glutamate. Coffee and caffeine cause increased production of glutamate. Glutamate is a helpful excitatory neurotransmitter that our bodies can make. It...
  25. knitty kitty
    What is considered "Normal" Vitamin D can range from 30 to 100 ng/ml. Celiac people are better off with levels between 73 and 100 ng/ml. Is yours in that range? What form of Thiamine was in your B vitamins? If it was thiamine mononitrate, which is not well absorbed nor biologically active, you would do well to take another form, like Benfotiamine...
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