knitty kitty

cristiana · August 22

Hey, @Baz,

My yawning and anxiety were due to Thiamine deficiency.

I was yawning all the time and having more frequent anxiety which escalated to panic attacks. The Thiamine deficiency progressed to Gastrointestinal Beriberi, which has the same symptoms as you mentioned, gas bloating and diarrhea.

Alcohol consumption can cause Thiamine deficiency by itself, but add to that poor absorption caused by Celiac Disease, and you're behind the eight ball.

We need more Thiamine if we eat a high carbohydrate diet or drink alcohol.

We need more Thiamine when we're ill, emotionally stressed, or physically active outside in hot weather. Heat and light destroy Thiamine, so working and exercising outside in a heat wave can precipitate Thiamine deficiency.

We can experience Thiamine deficiency symptoms within three days.

Thiamine is very important to the vagus nerve and the lower brain that controls the autonomic nervous system (things you don't have to consciously think about doing, like breathing and digesting food). Thiamine also influences the fight or flight response. If there's an insufficiency of Thiamine, the fight or flight response can have difficulty turning off. So irritability and anxiety escalate.

Thiamine deficiency can affect balance, swallowing and the voice. (Ever notice how some people who drink alcohol have hoarse, raspy voices? Low thiamine.)

Some medications can negatively affect Thiamine levels, so watch out for anti-anxiety meds and antidepressants, some diuretics and antidiabetic meds.

Thiamine and the other seven B vitamins and Vitamin C and D work together, so take a B Complex, magnesium, and Thiamine in the form of Benfotiamine or Thiamine Hydrochloride. Remember, gluten free facsimile foods are not required to be enriched with vitamins like their gluten containing counterparts. Taking supplements helps boost your absorption so you can heal and feel better sooner.

Interesting Reading:

Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6930825/

Inhibition of α-glucosidase by vitamin D3 and the effect of vitamins B1 and B2

https://pubmed.ncbi.nlm.nih.gov/26744303/

August 22

Welcome to the forum, @ShelleyWeiser,

No, serum B12 levels cannot be used as an indicator of absorption.

Your Marsh scores are a better indicator of poor absorption. Have you had an endoscopy to check for healing in the intestines recently? Your high Anti-Gluten antibodies could be a reaction to Casein, the protein in dairy that causes the same reaction as gluten does. You could be getting glutened from your diet (if you eat outside your home) or medications.

Have you been checked for nutritional deficiencies? Poor absorption leads to vitamin and mineral deficiencies. In Celiac Disease, it's very common to have nutritional deficiencies, even on a gluten free diet.

B12 can be stored in the liver. B12 is released in Non Alcoholic Fatty Liver Disease. NAFLD is common in Celiac Disease. Thiamine Vitamin B 1 is needed for the liver to function properly and store B12. Fatty deposits in the liver occur if there's a Thiamine deficiency.

B12 needs Pyridoxine Vitamin B 6, Folate Vitamin B 9, and Riboflavin Vitamin B 2 in order to function and make blood cells. If there's a Pyridoxine deficiency, B12 cannot be used, so the liver releases more B12.

There's eight essential B vitamins. They all are interdependent on each other to function. In Celiac Disease, it's common to be low in all the B vitamins because they cannot be stored for more than a few weeks (excepting B12 Cobalamine and Pyridoxine B 6). The B vitamins are water soluble and easily lost in diarrhea, emesis, and constipation. Some medications can affect absorption of the B vitamins. Some medications can cause deficiencies in certain B vitamins like Thiamine B 1.

High Calcium levels can occur if there's a deficiency in magnesium. Has your magnesium level been checked? Magnesium keeps calcium in the bones. Low magnesium can cause high serum calcium levels.

Have you been checked for vitamin and mineral deficiencies?

P. S. For your research...

https://www.researchgate.net/publication/378102935_The_clinical_significance_of_calciummagnesium_ratio_in_primary_hyperparathyroidism_unveiling_a_clinical_association

And...

Falsely Elevated Serum Vitamin B12Levels Were Associated with the Severity and Prognosis of Chronic Viral Liver Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5355842/

And...

The Many Faces of Cobalamin (Vitamin B12) Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6543499/

And...

Insufficiency of B vitamins with its possible clinical implication

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7417807/

And...

Association between serum vitamin B6 concentration and risk of osteoporosis in the middle-aged and older people in China: a cross-sectional study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6615830/

August 22

@ShaynaL530,

If you're not eating sufficient gluten, before the antibody tests, they can be negative. You need to be eating 4 - 6 slices of bread per day for at least two weeks prior.

3 grams of gluten a day is enough to cause symptoms but not enough to cause the antibody level to get high enough to show up in the bloodstream. You have to be eating 10 grams of gluten per day to get the antibody levels up.

People with anemia, diabetes or Thiamine deficiency can be seronegative.

Yes, get your daughter tested. Celiac Disease is genetic.

Scott Adams · August 14

@GardeningForHealth,

Have you tried cutting out of your diet all processed gluten free facsimile foods to see if your symptoms improve?

I found following a low histamine Paleo diet (the Autoimmune Protocol Diet) extremely helpful in lowering histamine levels, lowering inflammation, and calming mast cells. Supplementing with essential vitamins and minerals to boost absorption is beneficial as well. The Gluten Free diet can be low in essential nutrients.

Hope this helps!

KimMS · August 12

6 hours ago, KimMS said:

several neurological symptoms were due to the fact that I lost part of my cerebellum (showed up on MRI).

Deficiency in Thiamine Vitamin B1 will show up on MRIs as white spots on the brain in certain areas including the cerebellum. It's called Nonalcoholic Wernicke's Encephalopathy.

Thiamine is on of eight essential B vitamins. To recover from deficient thiamine, high doses are required quickly so that the brain damage will not be permanent. Yes, non alcoholic Wernicke's Encephalopathy can happen in Celiac Disease and is frequently overlooked and under recognized by medical professionals. Get checked for nutritional deficiencies. Vitamins and minerals are needed to calm the immune system, repair damaged tissues and function properly.

Because celiac disease causes malabsorption of all nutrients, supplementing with essential vitamins and minerals is important. You'll need more than a one a day multivitamin.

Magnetic resonance imaging in the assessment of brain involvement in alcoholic and nonalcoholic Wernicke’s encephalopathy

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5334504/

August 11

6 hours ago, GardeningForHealth said:

I would like to see this topic "increasing food intolerances over time in Celiacs" studied scientifically, as it seems to be so common, yet I've never seen any studies on pubmed about it.

It has to do with Mast Cell Activation Syndrome.

Mast cells become activated when the immune or autoimmune response is triggered, as in Celiac Disease or a cold. If stimulated for long enough, frequently enough, mast cells develop "itchy trigger fingers" and release infection fighting histamine at the least provocation. High levels of histamine cause health problems.

Removing irritating foods by following a low histamine Paleo diet, like the Autoimmune Protocol Diet, helps get the Mast cells to calm down and quit being so sensitive. A few weeks on the AIP diet improves symptoms by reducing inflammation and allowing for intestinal healing. The intestine needs time to regrow damaged villi.

Yes, certain spices can cause mast cells to release histamine. These include peppers like chili peppers used in chili and curry. Mint can do the same, as can coffee.

Mast cells are associated with the onset and progression of celiac disease

https://pubmed.ncbi.nlm.nih.gov/27619824/

And...

Mast Cells in Gastrointestinal Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3033552/

August 8

Cashews can cause diarrhea...

https://www.livestrong.com/article/494134-effect-of-cashews-on-digestion/

August 8

@KierstenL,

Your symptoms sound similar to mine when I started gluten free.

Celiac Disease causes malabsorption. You're not absorbing sufficient nutrients, vitamins and minerals.

Vitamin B1, thiamin, runs out first because it cannot be stored for longer than three weeks, and we need so much of it, especially when we're sick, emotionally stressed, and physically active, especially in hot weather.

Thiamine deficiency can cause gastrointestinal symptoms, brain fog, anxiety, depression, and panic attacks, and also contribute to POTS.

There's eight B vitamins. They should be taken together, but extra thiamin is required to correct a thiamin deficiency. Benfotiamine (a form of Thiamine that promotes intestinal healing), a B Complex, Vitamin D and magnesium are very beneficial.

Have you talked to your doctor or nutritionist about supplementing with vitamins and minerals while healing?

Further Reading:

https://www.livestrong.com/article/294643-stomach-pain-after-eating-almonds/

July 31

@suzy q,

Welcome to the forum!

I have had pain from crushed vertebrae, but I found that a combination of Thiamine (in the form called Benfotiamine, Vitamin B 1), Pyridoxine (Vitamin B 6), and Cobalamine (Vitamin B12) have analgesic effects.

Doctors are not given much nutritional education, so they miss the importance of correcting malnutrition resulting from Celiac Disease. Correcting nutritional deficiencies is extremely important.

A Nutritionist familiar with celiac disease should be able to help you with a nutrient dense diet.

There are eight essential B vitamins that all work together interconnectedly, four fat soluble vitamins, and a dozen trace minerals that our bodies need. Omega Three fats are very important as well. Without these, our bodies cannot function well, resulting in pain and fatigue.

Focus on a diet which includes fresh vegetables and fruits and meat. Exclude processed gluten free facsimile foods which are devoid of nutrients. Gluten free processed facsimile foods are NOT enriched with vitamins like gluten containing counterparts.

I like the smiley to crying faces on the pain scale, too. My pain was so severe I broke three molars gritting my teeth in pain. They don't have a picture for that one. I couldn't take morphine type pain killers because of the resulting constipation which caused as much, if not more, pain. So, I tried Thiamine, Cobalamine, and Pyridoxine. It really works.

So glad you have a strong faith. My journey has helped me separate the wheat from the chaff.

Hope this helps!

References:

Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review

https://pubmed.ncbi.nlm.nih.gov/35156556/

Scott Adams · July 22

@Jimmy2014,

I looked up the ingredients in the iron formulation your son is taking. It contains carrageenan, derived from seaweed.

I have had a problem with carrageenan in iron supplements and processed gluten free foods to enhance texture. Due to the high iodine content, carrageenan causes Dermatitis Herpetiformis outbreaks. Dermatitis Herpetiformis is the skin manifestation of Celiac Disease.

Dermatitis Herpetiformis can resemble acne. Dermatitis Herpetiformis is diagnosed with a biopsy near but not on a lesion. Or, more simply, see if the outbreak clears without that particular iron supplement.

Hope this helps!

Keep us posted on your progress!

July 11

The Autoimmune reaction to gluten includes the release of histamine by mast cells. High histamine level symptoms include brain fog, anxiety and depression.

Panax ginseng lowers histamine by preventing mast cells from releasing histamine.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3659609/

Histamine can be found in foods, too. You might find a low histamine Paleo diet would be helpful in lowering histamine levels.

(The body increases Histamine levels before sex, and decrease rapidly afterwards in men.)

https://pubmed.ncbi.nlm.nih.gov/21950740/

P.S. Low Vitamin D can cause low libido, too.

Have you talked to your doctor about supplementing with vitamins while on a gluten free diet? Malabsorption of nutrients is common in celiac disease.

July 11

Yes, unfortunately, the dairy protein casein can cause damage to the villi lining the intestines just like gluten.

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

July 10

@Murilo P,

All the vitamins and minerals have been important to recovery.

Vitamin D is an important immune system regulator and can help lower inflammation. Vitamin D improves depression. Mine was severely deficient. Vitamins A, E, and K are the other fat soluble vitamins. (Vitamin E is mostly made from wheat, so be careful there.) People with celiac disease frequently have trouble absorbing fats and are frequently low in the fat soluble vitamins as well as Omega Three fats. The brain needs these healthy fats.

https://www.nichd.nih.gov/newsroom/news/022124-omega-3-supplements-schizotypal-personality

Niacin really made a big difference in brain function, too. Niacin deficiency symptoms are called the Four D's: diarrhea, dermatitis, dementia and death. I had dementia as well as ataxia. Tryptophan, made from Niacin, helps heal the digestive tract and is needed to make feel good neurotransmitter dopamine. Only a small amount of Niacin is converted to tryptophan, so increasing tryptophan foods (NOT Dairy) or taking a tryptophan supplement is very helpful. Tryptophan has been more helpful to me than SAM-e. To lower histamine, look into Betaine Hydrochloride supplements.

Walsh isn't looking at Celiac patients. We tend to have lower folate than the general population he is addressing.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4617727/

I would not trade my Allithiamine TTFD for another form. I take Allithiamine and Benfotiamine, every day, doses differ. I haven't tried the other kinds yet. I notice a difference in brain function if don't take the Allithiamine. Elliott Overton markets Thiamax. I tried that, but still prefer the Allithiamine.

I think a B 100 Complex is a great idea. I took additional Allithiamine and Benfotiamine with my B 100 Complex. What kind of B 1 is in the vitamin you are giving her? If it's thiamine mononitrate, it's not going to be utilized well. If Thiamine Hydrochloride, doses of 500 mg or above are used in deficiency correction. Lower doses of Allithiamine TTFD and Benfotiamine are required.

Be encouraged. You're doing an admirable job helping your wife. I appreciate it.

July 9

6 hours ago, Murilo P said:

I read the Nutrient Power book by William Walsh, which links it to "undermethylation", which in its turn is linked to anorexia nervosa in the book.

Undermethylation is due to deficiencies in Thiamine and Cobalamine B12, and Folate B 9.

Dr. Lonsdale and Dr. Marrs' website explains it here.

https://hormonesmatter.com/paradoxical-reactions-ttfd-methylation-connection/

Thiamine can't work properly if there's insufficient Cobalamine B12 and Folate B 9 for the methylation.

The eight essential B vitamins work all together. You won't get the best benefit by taking just Niacin or just B12, because somewhere down the line another B vitamin that you're not taking or are low in is needed.

So a B Complex is good idea. Or take each B vitamin individually. There are liquid forms of B vitamins, if swallowing pills is an issue.

6 hours ago, Murilo P said:

she says that she can't control herself, but I guess she can because.....

Having been there, no, she can't. There can be so many thoughts and "noise" from emotions that stressful situations can provoke, they can become overwhelming and the primal physical side kicks in automatically to protect oneself from such an onslaught or to escape. Don't pressure her to such high anxiety levels.

7 hours ago, Murilo P said:

The next might be the 250mg B1 capsules (a pretty strong dosage).

Try TTFD Tetrahydrofurfuryl Disulfide (Allithiamine) as Dr. Lonsdale and Dr. Marrs site explains. TTFD made a huge difference for me. Elliott Overton has his own site and YouTube channel, EO Nutrition.

Have you read my blog?

July 7

@Nicole Maree,

Here are a few articles to get you started...

The Autoimmune Protocol Diet really made a big difference, I felt much better quickly following this diet...

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet#what-it-is

And....

Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/

And...

Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/

July 7

Thiamine Mononitrate is not utilized very well by the body. Only about twenty percent of that big dose will actually get used.

Thiamine Mononitrate is shelf-stable, meaning it won't breakdown while sitting in a bottle on a shelf. It also means that thiamine mononitrate is difficult for the body to break down and use, too.

A better, more useable form of Thiamine is thiamine hydrochloride or Benfotiamine.

Taking both Benfotiamine and the B Complex will be fine.

July 7

There are eight essential B vitamins. They depend on each other to work properly. Thiamine interacts with each and every B vitamin. Thiamine and Pyridoxine B6 make life sustaining enzymes. Same for Thiamine and Riboflavin.

Since the gluten free diet can be low or deficient in B vitamins, it's better to take some of all of them.

I would like to see the information you mentioned about excess Riboflavin causing flushing of stores.

July 7

@Nicole Maree,

Dairy products can cause a reaction as though you've eaten gluten because casein (a protein in dairy) resembles gluten and the same autoimmune response happens.

Do not eat dairy with meat. The digestive enzymes that digest meat also digest Lactase (the digestive enzyme that digests dairy).

Thiamine insufficiency symptoms include fatigue, nausea, confusion, and anxiety.

Take Benfotiamine, Vitamin B1, and a B Complex. Benfotiamine has been shown to promote intestinal healing. The eight B vitamins in a B Complex are generally low in the gluten free diet.

Talk to your doctor about supplementing with vitamins while healing.

Hope this helps!

Murilo P · July 7

I think your wife would do much better if her nutritional deficiencies were addressed. Celiac Disease causes malabsorption of nutrients due to the damage and inflammation done to the digestive tract. The additional demands of pregnancy on the mother can cause nutritional deficiencies that can mimic behavioral disorders like schizophrenia.

Bulimia and anorexia nervosa are both symptoms of Thiamine deficiency. Cravings for micronutrients (B vitamins) can lead people to return to eating gluten products. Gluten products are required to be enriched with vitamins, while gluten free versions are seriously lacking in vitamins and nutritional value.

Thiamine deficiency (Wernicke's Encephalopathy) causes white spots in the brain.

Some people develop antibodies (tTg 6) against gluten that attack the brain causing gluten ataxia.

https://pubmed.ncbi.nlm.nih.gov/28819077/

https://pubmed.ncbi.nlm.nih.gov/38680259/

https://pubmed.ncbi.nlm.nih.gov/30885888/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7432597/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6895422/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11045506/

Riboflavin Vitamin B 2 deficiency causes migraines. High histamine levels can cause sinus blockage and affect behaviour.

Histamine Intolerance—The More We Know the Less We Know. A Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8308327/

Histamine intolerance and anxiety disorders: pilot cross-sectional study of histamine intolerance prevalence in cohort of patients with anxiety disorders

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9563864/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5698467/

The Histaminergic System in Neuropsychiatric Disorders

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8467868/

Nutrition, nutritional deficiencies, and schizophrenia: An association worthy of constant reassessment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8554424/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7982519/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8453603/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441951/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2248201/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6192507/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7442351/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4288963/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10108429/

Association of HLA-DR/DQ polymorphisms with schizophrenia in Tunisian patients (DR1-DQ5 is protective)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6074579/

https://pubmed.ncbi.nlm.nih.gov/32957818/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9825115/

https://www.psychiatrist.com/pcc/wernickes-encephalopathy-diagnosis-adequate-treatment/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

https://pubmed.ncbi.nlm.nih.gov/37153911/

https://pubmed.ncbi.nlm.nih.gov/37458305/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9472043/

https://healmindbody.com/10653-2/

https://ajp.psychiatryonline.org/doi/full/10.1176/appi.ajp.2018.17070836

https://academic.oup.com/schizophreniabulletin/article/42/2/369/2518938

https://academic.oup.com/schizophreniabulletin/article/35/1/213/1927632

Attenuated niacin-induced skin flush response in individuals with clinical high risk for psychosis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9039376/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7975150/

In correcting vitamin deficiencies, more than the Recommended Daily Allowance is needed. A prenatal or one a day multivitamin will not be sufficient to correct deficiencies.

Doctors rarely recognize nutritional deficiencies affecting mental health. Speaking from personal experience.

July 1

There's several B vitamins which if deficient can cause neuropathy. B12 deficiency can cause neuropathy as can deficiencies in Thiamine B1, Niacin B 3, Pyridoxine B6, and Folate B 9.

Yes, excessive Pyridoxine B6 can cause neuropathy if there's an excessive amount from supplementing, but not from dietary sources.

Zinc is also important to the sense of smell. People who lost their sense of smell after having Covid were found to be deficient in Zinc. Zinc is important to the immune system, along with Thiamine.

You can take a B Complex, but if afraid of too much B 6 Pyridoxine included in the complex, you can take the other B vitamins separately.

Usually in Celiac Disease, one becomes deficient in the B vitamins across the board. Because the B vitamins interact with each other, it's better to supplement them all together than just one at a time.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8435108/

https://pubmed.ncbi.nlm.nih.gov/19154566/

Beverage · June 30

@ling27,

Yes, I'm talking about taking a vitamin supplement with all eight essential B vitamins. You can take a B Complex in addition to your B12.

B12 needs other B vitamins to function properly. Cobalamine B12 needs Folate B 9, Riboflavin B2 and Pyridoxine B 6. Thiamine B1 is needed as well as the rest.

If you take just B12 and are low in the other B vitamins that are needed to work with B12, B 12 just doesn't work. Blood tests are not an accurate measurement of vitamin storage status inside cells where they are utilized. Routine blood tests usually only test for B12, and maybe Vitamin D, but not for the other dozen vitamins needed as well, not to mention minerals.

Doctors are required to take twenty hours of nutritional education while in medical schools for seven years. Mostly vitamin deficiency diseases are thought to be in the past or in starving countries. So doctors do not recognize vitamin deficiency disease symptoms in the early stages. Celiac Disease causes vitamin deficiencies because the lining of the small intestine is damaged and unable to absorb nutrients. We're starving for nutrients, those vitamins our bodies cannot make, and minerals, too. We may be consuming sufficient calories, but without a sufficient amount of those vitamins, our bodies cannot process the carbohydrates, proteins and fats from our diet and turn them into energy and building blocks for cell repair and for our bodies' health. Instead, our bodies can store those extra calories as fat to burn for energy, or start burning muscle. This is High Calorie Malnutrition. A diet high in carbohydrates requires an additional .5 mg (minimum) of Thiamine B1 to process those carbohydrates. Benfotiamine, a form of Thiamine, has been shown to promote healing in the intestines.

Vitamins are needed to decrease Inflammation and regulate the immune system. Vitamins are needed for cell repair and replacement, so our villi can grow back and absorb nutrients properly for us.

Gluten containing foods are required to be enriched with vitamins and minerals lost during processing. Gluten Free facsimile foods are Not required to be enriched with vitamins and minerals. The Gluten Free diet can be low in the B vitamins. Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing.

Beverage · June 29

One symptom of Thiamine deficiency is edema in the feet, ankles and legs. Thiamine is Vitamin B1. There are eight essential B vitamins that Celiac people have difficulty absorbing sufficient amounts of due to Celiac damage in the small intestine. The B vitamins cannot be stored for long. Thiamine runs out first, in as little as three days.

Has your physician checked for nutritional deficiencies?

When we remove gluten containing foods from our diets, we are also removing the vitamins added by the manufacturers. Buy your own vitamins now. Gluten free processed foods are not required to have vitamins added to them like gluten based products. The Gluten free diet can be low in B vitamins.

I became deficient in B vitamins. My doctors said it was all in my head. They did not recognize vitamin deficiency symptoms. I developed Thiamine deficiency. It was difficult to think and to move about. The fatigue was devastating. I drooled and had difficulty talking. Deficiency in Riboflavin Vitamin B2 caused migraines.

There's eight B vitamins. They need to be taken together because they all work together. I took extra Thiamine (Benfotiamine) as well as a B Complex supplement.

Talk to your doctor and nutritionist about supplementing with essential vitamins and minerals while healing. Celiac Disease causes malabsorption of nutrients. Doctors don't think about vitamin deficiencies in Celiac, but it really happens.

Hope this helps!

June 25

Welcome to the forum, @ling27,

I understand what you're going through. Lots of doctors are not as knowledgeable about Celiac Disease and the need for vitamin supplementation.

I've posted some of my experiences in my blog. Let's compare notes. I'm limited on my computer use due to eye problems, too. You're not alone.

June 22

@CDW,

You're in good company. I have to avoid gluten free processed foods because Sulfites are used as whitening agents. I've a hypersensitivity to Sulfites, which can develop in Celiac Disease. Sulfites make my dermatitis herpetiformis flare up badly.

I've found some studies that you may find interesting and helpful.

Serological marker of dermatitis herpetiformis in hypothyroidism due to Hashimoto's thyroiditis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4673822/

Celiac Disease and Autoimmune Thyroid Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2111403/

The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8840467/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

Hope this helps!