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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Gastrointestinal Beriberi does occur. It's not rare. Doctors have been under diagnosing it. High Calorie Malnutrition does occur. A person can eat plenty of calories, but not sufficient vitamins needed to process them into energy. You asked for advice from people familiar with Celiac Disease. We are familiar with Celiac Disease and testing...
  2. knitty kitty
    @frankenstein, I agree with your dietician. Iron deficiency anemia can affect your antibody production. Was your iron levels still low at the time of the second test? You said you were limiting the amount of gluten due to the low Fodmap diet, so not eating enough gluten prior to the tests can give false negatives. Has your Vitamin D level...
  3. knitty kitty
    @newtonfree, No offense taken. I want our readers to know oral Thiamine is rarely associated with major complications. It's interesting to note that while Niacin may raise blood sugar levels and may figure in developing diabetes, Thiamine is known to improve fasting blood sugar levels and may prevent diabetes. Most diabetics are deficient in...
  4. knitty kitty
    Thiamine intake is related to migraines. High dose Thiamine has been shown to lower the occurrence of migraines. I used to get chronic migraines with light sensitivity, nausea, and vomiting. Since taking high dose Thiamine, I rarely get them anymore. References: Dietary intake of thiamine and riboflavin in relation to severe headache or...
  5. knitty kitty
    Please provide references for these statements. https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/#h19 https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/
  6. knitty kitty
    Nsaids cause villi blunting and damage to the intestine, but it does not affect the antibodies from what I can find. However.... PPI's can cause serionegative results for Celiac Disease. PPI's can cause false negatives. People who take PPI's are more prone to develop Celiac Disease later. References... The Impact of Acid Suppression Medications...
  7. knitty kitty
    Blood tests for vitamin levels are not accurate. They reflect how much of a vitamin has been consumed in the previous twenty-four hours. Vitamin supplements should be discontinued six to eight weeks prior to blood tests, otherwise the unabsorbed supplements in the bloodstream be measured. Blood tests of vitamins do not reflect how well the vitamins...
  8. knitty kitty
    But there is evidence that Nsaids by themselves cause intestinal damage. "NSAID use has been shown to cause duodenal histopathology nearly identical to what is found in early celiac disease." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5587842/ Many of our members are not diagnosed with Celiac Disease until later ages. Many may have been...
  9. knitty kitty
    @newtonfree, When I read this article, I understood that the scientists sifted through Celiacs that had been on a gluten free diet, separating the ones that had healed intestines from the ones that didn't. The scientists then looked at what the Celiacs that hadn't healed had in common. The use of Nsaids, PPIs, and SSRIs was what the unhealed Celiacs...
  10. knitty kitty
    @Emma R., It IS a vitamin deficiency! It's Thiamine B 1 deficiency. Thiamine deficiency occurs more often in the summer because sunlight (ultraviolet light) is stressful to the body. More thiamine is required when we're under physical or emotional stress. Symptoms of Thiamine deficiency include nausea, and digestive upsets, and fatigue. ...
  11. knitty kitty
    @newtonfree, But what about this article? Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/28220520/ "Villus atrophy was associated with use of proton-pump inhibitors (PPI'S), non-steroidal anti-inflammatory drugs (NSAIDs), and selective serotonin reuptake...
  12. knitty kitty
    @Nick Cheruka Thiamine insufficiency has been linked to cardiovascular problems... Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10502219/ "In this large cohort study, it was observed that higher vitamin B1 intake was associated with...
  13. knitty kitty
    @Nick Cheruka, Have you researched your heart problem and thiamine?
  14. knitty kitty
    @Kurlykaitlyn, I'm glad to hear you're improving! There's many good learn to knit books, websites, and even YouTube videos. Knitpicks.com is a favorite online store with great customer service. A simple knit dishcloth or washcloth of cotton yarn is a good way to start. And you end up with something useful! My favorite things to knit...
  15. knitty kitty
    The Paleo Approach by Dr. Sarah Ballantyne is the best book on the how-to's of CeD.
  16. knitty kitty
    Have you been checked for nutritional deficiencies? Are you taking any vitamins? Minerals? Our bodies cannot heal until we provide the proper vitamins. Have you tried Benfotiamine? It's a form of Thiamine Vitamin B 1 that promotes intestinal healing. Tryptophan, a form of Niacin B 3, is also beneficial in healing the intestines...
  17. knitty kitty
    @camercla, Welcome to the forum! Have you been checked for nutritional deficiencies? These can occur on gluten free diets and due to the damage done to our small intestines (where our nutrients are absorbed) by elevated antibodies. Vitamin D helps regulate the immune system when blood levels are above 80 nmol/L. Vitamin D deficiency is linked...
  18. knitty kitty
    This article refutes the article in the post left by @Russ H. Can we ignore the utility of deamidated gliadin peptide in the diagnosis of celiac disease in children? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6697416/ And another article about the value of the DGP IgG test... Diagnostic accuracy of anti-DGP (IgG) for celiac disease ...
  19. knitty kitty
    Hey, @Kurlykaitlyn! How are you doing? Did the diarrhea resolve? I find dates are great sources of water soluble fiber that is great for bulking up stools in a gentle way. How are you preparing for your husband's trip? Having hobbies and projects to work on helps me get through trying times. I highly recommend knitting and embroidery. Keeping...
  20. knitty kitty
    @EmptyJars99, I think you would be wise to revisit what @Wheatwacked said about Oral Allergy Syndrome. Allergy to birch pollen can trigger oral allergy reactions to plants with similar pollen like potatoes, celery, walnuts and pecans. Oral Allergy Syndrome symptoms include hives and other skin reactions after eating a provocative food. See Table One...
  21. knitty kitty
    Yes, I avoid foods with the "may contain" warning on it. Getting glutened causes anxiety in me, too. Part of the autoimmune response is the release of histamine. High levels of histamine in the brain causes anxiety. I find taking Vitamin C, B 12 Cobalamine, and B6 Pyridoxine helps reduce histamine levels. Our bodies need Thiamine and the...
  22. knitty kitty
    "anti-tissue transglutaminase antibody test" can be tTg IgA or tTg IgG. @Rachy265 said... "a note from the lab to say IgA TTg results to follow". So the results she did receive must be the tTg IgG.
  23. knitty kitty
    Tissue transglutaminase is an enzyme used in the body by cells for growth and repair and is found on cell surfaces as well as inside cells. Anti-tissue transglutaminase antibodies (immunoglobulins like IgA and IgG) attack the tissue transglutaminase enzymes on cell surfaces. Segments of gluten and casein can resemble segments of tissue transglutaminase...
  24. knitty kitty
    If Total serum IgA is deficient (as sometimes is with anemia), the tTg IgA test may register a false negative. However, there is another test, the tTg IgG that is used. IgG and IgA are different types of Immunoglobulins. Both types are present in Celiac Disease. Perhaps you have the results of the tTg IgG test, with the tTg IgA test...
  25. knitty kitty
    @Tanja Kocaleva, I'm so sorry you are going through this. I believe you may have a deficiency in Thiamine Vitamin B 1. I've had Thiamine deficiency after pregnancy and breast feeding. Your symptoms sound very familiar. Thiamine is a vitamin, an essential amino acid that we cannot make in our bodies, and so must get from our diets...
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