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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@Jean Carrithers, Hello! I'm sorry you are having such difficulties. Yes, I have had to deal with anxiety like you're talking about. Doctors frequently forget to treat the vitamin and mineral deficiencies that occur as a result of malabsorption in Celiac Disease. Difficulty absorbing nutrients due to damage to the small intestine from Celiac...
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@KatyV93, Could you possibly have a low level carbon monoxide leak at your home? Carbon monoxide poisoning can cause brain fog, headaches, nausea, digestive problems, skin rashes and paresthesia (pins and needles feeling). Perhaps a traveler's bug was caught prior to your return home. A low level carbon monoxide leak won't be picked up by CO...
- 21 replies
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- advice needed
- bloating
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Anyone get sick delivering/handling food?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
@StrongerThanCeliac, Perhaps wearing a Covid type mask to keep out tiny particles? Up your intake of B Complex vitamins. B vitamins help you deal with stressors. -
Urinary symptoms?
knitty kitty replied to NFecht24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@NFecht24, Urinary incontinence occurs in Thiamine (Vitamin B1) deficiency. Antibiotics are known to cause Thiamine deficiency. Since you have cut down on gluten, you have cut down on a source of Thiamine. Supplementing with Thiamine and the other B vitamins would be beneficial for both you and your son. My urinary incontinence after... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, I'm glad you found a way to make peanuts edible. Boiled peanuts in the shell are a big favorite in the Southeastern part of the U.S. Boiled peanuts in the can are available. I just don't like peanuts. DH is pressure sensitive. I have gotten DH blisters on the palms of my hands from pushing a grocery cart around. I get DH underneath... -
@corkfella, There are more vitamins than B12 and Vitamin D. You would do better to add a B Complex and Vitamin C to your regimen. Vitamin C deficiency can cause swollen and inflamed gums, as well as rashes on the skin and trouble breathing. Here's an article about Vitamin C deficiency. See if your symptoms match these. https://www...
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, You seem to have a wonderful relationship with your wife! I admire you both are making a team effort, so here's some more tips for wife care... Get her Vitamin D level above 80 nmol/L. At that level and above, Vitamin D acts like a hormone. It's a major help. I was so deficient in Vitamin D (single digits) that I had severe menstrual... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, I've found Niacin Vitamin B 3 helps heal Dermatitis Herpetiformis outbreaks. Nicotinic acid, the form of Niacin that causes flushing helps DH the best for me, but if the flushing is too much for you, Niacinamide works, too. I've suffered from Gastroparesis. I have Type Two Diabetes, under control with diet and Benfotiamine. Benfotiamine... -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
Here's a study about Benfotiamine and alcoholism... DOUBLE-BLIND, RANDOMIZED PLACEBO-CONTROLLED CLINICAL TRIAL OF BENFOTIAMINE FOR SEVERE ALCOHOL DEPENDENCE https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3818307/?report=reader -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
I have a lucky iron fish! Yes, keep us apprised of your findings! -
Anyone get sick delivering/handling food?
knitty kitty replied to StrongerThanCeliac's topic in Super Sensitive People
@StrongerThanCeliac, Yes, there are other sensitive Celiacs who react to airborne gluten. Airborne gluten particles can enter through your nose and get washed down the throat and into our digestive system. I get sick shopping in the bakery and bread aisle at the grocery store. I react to crustaceans also, so restaurants that boil shrimp... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
P. S. Thought you would be interested in this article, too... Loss of food nutrients orchestrated by cooking pots: a common trend in developing world https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8249525/ -
@DanMc, POTS is seen in Thiamine Deficiency Disorders. Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS) https://pubmed.ncbi.nlm.nih.gov/28531358/ One can have a deficiency in Thiamine while still showing "normal" blood levels. Blood levels are not an accurate measurement of how well Thiamine is being utilized...
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, Thank YOU so much for keeping an open mind and for validating the Autoimmune Paleo diet! I've a degree in Microbiology, and have taken as many nutrition classes as were available at my university. The connection between what happens on a cellular level within our bodies and essential nutrients from our diet is intricately woven... -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@Scott Adams, The information (the majority of alcoholics are Celiac or have gluten sensitivity) came from a National Institute of Health study. Unfortunately, I cannot remember from which study, as I've read hundreds. I don't mind retracting the statement until I can find the study. However, I've found this study which shows alcohol consumption... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, The Paleo Approach by Dr. Sarah Ballantyne has information about a vegetarian version of the AIP diet. -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@NNowak, Please reconsider your laissez faire course of inaction. As someone who is experiencing osteoporosis, the long term effects start when one is young. The majority of calcium in your bones is laid down in childhood, but especially during adolescence and young adulthood. After that, if one doesn't absorb sufficient calcium from the daily... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@Jacki Espo, I'm glad you found a diet that works for you. I want to clarify this is the AutoImmune Paleo Diet. It is different from an anti-inflammatory diet, although both are beneficial. Remember to provide your body with the eight essential B vitamins. When we cut out bread and such stuff, we cut out the vitamins added by the manufacturers... -
It highlights the impaired judgment of vitamin deficiencies that can occur in Celiac Disease.
- 9 comments
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- capitol riot
- carol kicinski
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
Hi, @newtonfree, I followed the Autoimmune Paleo Protocol diet which excludes all grains, pseudo grains, ancient grains, legumes and pulses. These are full of difficult to digest plant lectins. By removing these irritating lectins, the gastrointestinal tract can heal faster and easier. Those undigested plant lectins can promote Small Intestinal... -
Welcome to the forum, @Elizabeth M Blair, I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract. The Autoimmune Paleo Protocol Diet (AIP diet) is designed to remove inflammatory plant lectins, and other problematic foods thus reducing...
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Ice cream.
knitty kitty replied to Elizabeth M Blair's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum,@Elizabeth M Blair! I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract, by removing irritating plant Lectins and dairy. Dairy can cause the same inflammation as gluten. Mucosal reactivity to cow's milk... -
So glad you are trying Thiamine and B Complex! Remember when we go gluten free, we lose a source of vitamins. Vitamins are added to bread and gluteny stuff to replace the vitamins destroyed in processing and manufacturing. Vitamins added to bread and gluteny stuff are cheap and shelf-stable (not in forms our bodies can easily utilize). So, it's...
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Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine. And Vitamin D 3 which will help down regulate inflammation. And magnesium glycinate to make enzymes with Thiamine. Nightshades promote leaky gut syndrome which can lead to inflammation in joints.