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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    So glad you are trying Thiamine and B Complex! Remember when we go gluten free, we lose a source of vitamins. Vitamins are added to bread and gluteny stuff to replace the vitamins destroyed in processing and manufacturing. Vitamins added to bread and gluteny stuff are cheap and shelf-stable (not in forms our bodies can easily utilize). So, it's...
  2. knitty kitty
    Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine. And Vitamin D 3 which will help down regulate inflammation. And magnesium glycinate to make enzymes with Thiamine. Nightshades promote leaky gut syndrome which can lead to inflammation in joints.
  3. knitty kitty
    @B.J., Thiamine Hydrochloride and Benfotiamine is available over the counter and online. Doctors can also give thiamine hydrochloride in an IV. Since you may have electrolyte imbalance due to the water pill, you may want your doctor to give an IV under medical supervision. Magnesium and potassium help Thiamine work properly. Thiamine is...
  4. knitty kitty
    Get the appointment. Eat gluten four or five days prior to bring out the rash. Or... Foods high in iodine (eggs, dairy, crustaceans) can stimulate DH flares, too. Or... Get a genetic test to look for Celiac genes. Genes don't change, and you don't have to consume gluten beforehand.
  5. knitty kitty
    @B.J., Welcome to the forum! Celiac Disease can cause vitamin and mineral deficiencies because Celiac Disease results in malabsorption of nutrients. Unfortunately, many doctors are not well versed in vitamin and mineral deficiencies. They're trained to prescribe pharmaceuticals. Thiamine Vitamin B 1 helps with edema in the extremities...
  6. knitty kitty
    @B.J., Thiamine deficiency can cause edema of the extremities. It happened to me. Thiamine Deficiency in a Nondrinker and Secondary Pulmonary Edema after Thiamine Replenishment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7028406/
  7. knitty kitty
    @Raquel2021, Well, not anymore. Thiamine is needed for the thyroid to function properly, too. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/ And... https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/
  8. knitty kitty
    @MisSkky, Welcome to the forum! Yes, your body is definitely not getting the essential nutrients it needs! My Dermatitis Herpetiformis rash and other skin problems resolved with Niacin Vitamin B3. My Gerd and poor digestion improved with Niacin, too. I lost sixty pounds in a month, and had nausea, vomiting, gastrointestinal distress, explosive...
  9. knitty kitty
    @Emmy208, Yes, it is very possible for you to have developed Celiac Disease recently. An infection often precipitates CeD. Did you get the genetic test done? Genes don't change and you don't have to eat gluten for the test. Did you talk to your doctor about supplementing with Benfotiamine, a form of thiamine shown to promote healing...
  10. knitty kitty
    Be aware blood levels do not accurately reflect the level of vitamins being stored and utilized inside cells and tissues. The vitamins inside cells can be depleted while blood levels show "normal" levels. These are confiscated to keep the brain and heart supplied, while other organs do without. Blood levels can reflect how much of the vitamin you've...
  11. knitty kitty
    Cardiac arrhythmia can be a symptom of Thiamine deficiency. IBS symptoms overlap with Gastrointestinal Beriberi in Thiamine deficiency. Benfotiamine, a form of Thiamine, has been studied and shown to promote healing in the gastrointestinal tract. Thiamine is one of eight water soluble B Complex vitamins. We need all eight to live and heal...
  12. knitty kitty
    @cluelesslycontaminated, Sounds like DH to me. Symptoms often can occur days after gluten (or iodine) exposure as antibodies build up in the skin. Have you compared your photos with those in the DH photo bank? Niacin (the flushing form) can help with skin issues like DH. B12 and Vitamin C help clear histamine. Have...
  13. knitty kitty
    @Phyllis Stempinski, Welcome to the forum! Yes, do follow up with your internist and nutritionist. Checking for nutritional deficiencies is part of proper follow up care for Celiac people. It's unusual to be deficient in just one vitamin. Usually Celiacs have poor absorption of the eight essential B vitamins and minerals like magnesium and...
  14. knitty kitty
    @Emmy208, NCGS is not genetic. NCGS doesn't run in families. Celiac Disease is genetic and runs in families. Do get the genetic test! Do get your Vitamin D level checked. Low Vitamin D level can affect your thyroid, as can low B 12 level. You can have Vitamin B 12 deficiency symptoms before your blood levels show an outright deficiency...
  15. knitty kitty
    Welcome, @Oregon Country Girl! Cattle fed grain are usually in a feed lot with lots of other cattle. Crowded conditions can raise stress levels in the animals causing a release of histamine. Same with grain fed chickens, they're probably couped up. Grass fed, pasture, is much better for animals. They are more relaxed, less stress, less histamine...
  16. knitty kitty
    Welcome, @Parish! Muscle cramping can be caused by magnesium deficiency and deficiencies in some B vitamins like thiamine and niacin, and calcium. Nutritional deficiencies can occur in anyone, but especially in malabsorption disorders like Celiac Disease. Getting checked for nutritional deficiencies beyond Vitamins D and B12 is part of proper...
  17. knitty kitty
    Over methylated symptoms sound like other vitamin deficiencies may be incurred when the methylated forms of B12 and methylfolate deplete other B vitamins necessary in different processes. I found this article very interesting. It discusses thiamine tetrahydrofurfuryl disulfide and methylation, and how thiamine supplementation can reveal a methylation...
  18. knitty kitty
    Dr. Derrick Lonsdale, published on NIH, has done much research on mitochondria and thiamine. He and Dr. Chandler Marrs have interesting articles on Dr. Marrs' website. https://www.hormonesmatter.com/mitochondria-need-nutrients/
  19. knitty kitty
    Yes, the MTHFR genetic mutation is common with Celiac Disease. Methylated forms of vitamins are the activated forms of some of the B vitamins. Methylfolate, methyl Cobalamine, P5P form of Pyridoxine. The activated forms of these vitamins are ready for the body to use. Definitely MTHFR mutation can affect mitochondrial health. https:/...
  20. knitty kitty
    Sluggish DNA? Hmmm, sluggish DNA makes me think of mitochondria because they are busy replicating DNA. Mitochondria don't work well when there's a deficiency in Thiamine Vitamin B 1. Without sufficient thiamine, the mitochondria can become dysfunctional. A person can roll along with subclinical vitamin deficiencies. Symptoms can wax and wane...
  21. knitty kitty
    Nutritional deficiencies can develop over years even if gluten free. Genetic testing would allow you to tell if you have any Celiac genes. If not, you would know to look for something else.
  22. knitty kitty
    I'm glad you're off the lansoprazole. Acid reflux (Gerd) is really caused by low stomach acid (hypochlorhydria). So taking a proton pump inhibitor that suppresses stomach acid secretion makes things worse. Plus PPI's can make intestinal damage worse. Low Niacin Vitamin B3 can cause hypochlorhydria. (Niacinamide is the nonflushing form of Niacin...
  23. knitty kitty
    The tTg IgA is usually the go-to test for Celiac Disease. Some members have negative tTg IgA but positive DGP IgG. Some medications have been found to suppress the immune system, affecting the production of tTg IgA. Labs use different scales, so you would need to give the parameters of the test results (what is considered normal, what's high...
  24. knitty kitty
    Could have been that salsa. Could take a few days for things to settle down. Do you have any oolong tea? It's very soothing to irritated intestines. Oolong tea has the amino acid L-Theanine which helps increase serotonin and dopamine, the feel good neurotransmitters. Are you taking a B Complex? B12 is just one of eight essential B vitamins...
  25. knitty kitty
    Curiouser and curiouser... Thanks for answering. How frequently did you take the PPI's? Were you taking them around the time of previous tests?
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