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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Sure, there's more to consider. Nutritional deficiencies can affect genes and how their instructions are carried out. I read a paper on NIH that studied how thiamine deficiency affects genes. They found that thiamine deficiency caused thiamine transporters on cell surfaces to shut down, and other dormant HLA genes switch on, genes for autoimmune...
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@GUY1, DQA1 *05 is one gene. Only one gene is needed to develop Celiac Disease. This gene combined with other Celiac alleles produce more severe Celiac Disease. And, besides, you may want to change to a gluten free diet anyway.... HLA-DQA1*05 Associates with Extensive Ulcerative Colitis at Diagnosis: An Observational Study in Children ...
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mcas Mast Cell Activation Syndrome (MCAS)
knitty kitty replied to Bronwyn W's topic in Related Issues & Disorders
@Bronwyn W, I don't believe a diagnosis is necessary for histamine intolerance. Our bodies can make histamine. Mast cells (a type of immune cell) release histamine in our bodies in reaction to perceived invaders like bacteria, viruses, and gluten. Our food contains histamine. Some foods contain higher levels of histamine than others. ... -
Eating out is like playing Russian Roulette. You and I might know the right questions to ask, but there's no guarantee the kitchen staff will actually be as careful as we need them to be. I've gone to restaurants, been assured by the manager a gluten free meal would be provided, then served a salad with croutons. They don't have a clue...
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Welcome to the forum! Yes, the urge to eat an entire loaf of bread will go away. Our bodies crave that bread because traditionally bread has been a source of B vitamins and some minerals for us. Gluten based breads (made from wheat, rye or barley) are required by law to be enriched with vitamins and minerals. Bread has vitamins added to...
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Lentils are gluten free, however, lentils might be contaminated with gluten if the equipment used to harvest, transport and process them have previously been used for other crops like wheat. Lentils contain Lectins which are hard for our gastrointestinal systems to digest. Undigested Lectins can provide carbohydrates that SIBO bacteria thrive on....
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Dermatitis Herpetiformis outbreaks can be triggered by iodine. High levels of Iodine are found in dairy products and shellfish and iodized table salt. I've cut out dairy, avoid shellfish and switched to Pink Himalayan salt, and my DH flares cleared up. Niacin (flushing form of Vitamin B3) or Niacinamide (nonflushing form of B3) helps tremendously...
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Hi, @LIZARD66! I had painful neuropathy which turned out to be caused by nutritional deficiencies. Unfortunately my doctors were poorly educated about vitamins and minerals, and completely missed the real cause of my neuropathy. The Gluten free diet can be low in some vitamins and minerals. In Celiac Disease, it's common to have nutritional...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree more research needs to be done. I'm curious about the different antibodies being produced and why some people have negatives on tTg IgA, but positive anti gluten IgG. @cluelesslycontaminated posted that the skin symptoms had started in March. Were antihistamines started at that time? The antihistamines (and PPI's) might affect the... -
I've found good posture helps. Keep your ears over your shoulders. Our posture tends to suffer when glutened because we tend to round our back to allow for abdominal bloating. As our tummies bloat, curving our backs allows for more room in the abdomen to expand. Watch your posture when using phone and computer screens. We tend to sit with...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, it's not as simple as that. Antihistamines can tamp down some of the symptoms, but the immune system is still going to be activated. Other cells in the immune system will still get activated by different methods. Antihistamines are like putting a finger in the dike. -
PPI
knitty kitty replied to Elliemae7395's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Eosinophilic esophagus is an inflammation of the esophagus associated with Thiamine deficiency. https://www.researchgate.net/publication/293010337_Is_Eosinophilic_Esophagitis_a_Sugar_Sensitive_Disease And... http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/ Supplementing with Thiamine and... -
NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mast cells are part of the immune response. They release histamine when presented with an antigen like gluten. Mast cells also call in immune cells that make antibodies like tTg IgA when histamine is released. Antihistamines affect the release of histamine from mast cells. If the mast cells release of histamine is affected by antihistamines... -
@MominWA, Protein in urine (proteinuria) can be seen in diabetes. Thiamine Vitamin B 1 is known to improve proteinuria. Metabolic Benefits of Six-month Thiamine Supplementation in Patients With and Without Diabetes Mellitus Type 2 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921172/ And... A Summertime Stupor https://www...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sure, @trents, Effects of antihistamines on innate immune responses to severe bacterial infection in mice https://pubmed.ncbi.nlm.nih.gov/21346365/ Antibodies in celiac disease: implications beyond diagnostics https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4003135/ Regulatory effects of antihistamines on the responses to staphylococcal... -
"...chronic administration of 1–6 g oral pyridoxine per day for 12–40 months can cause severe and progressive sensory neuropathy characterized by ataxia (loss of control of bodily movements). Symptom severity appears to be dose dependent, and the symptoms usually stop if the patient discontinues the pyridoxine supplements as soon as the neurologic symptoms app...
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PPI
knitty kitty replied to Elliemae7395's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Elliemae7395, PPI's have been scientifically studied and shown to promote CeD. GERD is caused by having low gastric juices, hypochlorhydria. PPI's lower the production of gastric juices further and disrupt digestion, leaving undigested food available for fermentation by bacteria in the gastrointestinal tract resulting in bloating, wind,... -
Welcome to the forum, @eagards177! I found it helpful to cut tomatoes and peppers out of my diet for a time while healing. Tomatoes, peppers, potatoes and eggplant are nightshades which contain glycoalkaloids which promotes zonulin production in the small intestine which results in Leaky Gut Syndrome. (Basically you get a porous intestinal lining...
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@Gina C, Welcome to the forum! I had to totally do away with the mindset that breakfast consists of hot cereal, bacon and eggs. I react to Casein in dairy, and to buckwheat. I have sensitivity to eggs sometimes, and cannot eat bacon. I've found it helpful to have a small crock pot of stew cooking overnight. Veggies and meat stew...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@cluelesslycontaminated, The antihistamines you've been taking have probably affected your blood tests for Celiac Disease. The release of histamine from mast cells is part of the immune reaction in Celiac Disease. Antihistamines block this "fire alarm" or call to action of the immune system, resulting in low antibodies. You may want to consider... -
Itchy nose but no allergies
knitty kitty replied to Acacia Voynar's topic in Food Intolerance & Leaky Gut
I thought this article was interesting. It discusses under-methylation and vitamins in cancer. Choline and Betaine, and methylated forms of some B vitamins donate methyl groups. Methyl Donor Micronutrients that Modify DNA Methylation and Cancer Outcome https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6471069/ -
@Marmee, I'm so sorry you're going through this. If someone who has Celiac Disease has been off gluten for long periods of time, an autoimmune reaction to gluten may take months of gluten consumption to be triggered again. The immune cells that "remember" gluten only live for about two years. Of course you're not going to have blatant damage...
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Celiac, NCGS, or allergy?
knitty kitty replied to Emmy208's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emmy208, Welcome to the forum! Can you post your blood test results here? A Total IgA test needs to be done whenever a tTg-IgA test is run. If the Total IgA is low, a false negative results. Anemia (as in iron deficiency anemia or B12 deficiency anemia) can cause false negatives. Not only will red blood cell counts be low, but white blood...