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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Marmee, I'm so sorry you're going through this. If someone who has Celiac Disease has been off gluten for long periods of time, an autoimmune reaction to gluten may take months of gluten consumption to be triggered again. The immune cells that "remember" gluten only live for about two years. Of course you're not going to have blatant damage...
  2. knitty kitty
    @Emmy208, Welcome to the forum! Can you post your blood test results here? A Total IgA test needs to be done whenever a tTg-IgA test is run. If the Total IgA is low, a false negative results. Anemia (as in iron deficiency anemia or B12 deficiency anemia) can cause false negatives. Not only will red blood cell counts be low, but white blood...
  3. knitty kitty
    "Our findings support that vitamin B may have an influence on carcinogenesis of the esophagus. Vitamin B1, B3, B6, and B9 showed a decreased risk of EC, vitamin B12 showed an increased risk of EC. (It is clear that scientists must apply the very best science in characterizing the safety of vitamin supplements.)" Dietary vitamin B intake and the risk...
  4. knitty kitty
    @MominWA, Was your son's phosphate level checked? Hypophosphatemia (too little phosphate) can result in high B6 levels. Hypophosphatemia can occur in Vitamin D deficiency. https://my.clevelandclinic.org/health/diseases/24040-hypophosphatemia
  5. knitty kitty
    Another question...may just be my old tablet, but... My font keeps changing. Sometimes it's big enough, but when I post, the font changes to tiny, tiny print. I've got big lettering set for my vision problems, but after posting, I can't get the font big again unless I sign out and sign back in. Curious...
  6. knitty kitty
    @Wheatwacked is correct. Correcting quickly Vitamin D deficiency by taking high doses is safe and beneficial. I ate Vitamin D 3 supplements like m&m's when my level was as low. I felt much better faster. It really made improvement faster.
  7. knitty kitty
    @DeeDee95, How are you doing? Covid and other illnesses can cause one to use up lots of their vitamin stores to fight the infection. This means we can become depleted in B vitamins quickly. Deficiencies in several B vitamins can show up as diarrhea. B12 Cobalamine, Thiamine B1, and Niacin B3 or Tryptophan. Since you've been gluten free...
  8. knitty kitty
    It could mean there's not enough of the other B vitamins to function with B12 and Folate. The B vitamins are all interdependent on each other to do their various jobs.
  9. knitty kitty
    Welcome to the forum, @WhitneyS I get contaminated if I get near the bakery aisle at the grocery store. Air-borne particles of gluten can enter the digestive tract through the nose. What did the brewery smell like?
  10. knitty kitty
    I agree with @trents. Do not take the PPI. It can cause more inflammation. Reflux or Gerd is symptomatic of low stomach acid, hypochlorhydria. Deficiency in Niacin Vitamin B3 can cause low stomach acid. My Gerd resolved after supplementing with Niacin. There are eight B vitamins which all work together. A B Complex usually contains...
  11. knitty kitty
    @Marmee, I am so sorry you're going through this. Lots of us have been misdiagnosed, misdirected, and mistreated by doctors ignorant of Celiac Disease. My heart goes out to you. You're almost done with the gluten challenge, so stay strong. You can make it through. You will have a baseline endoscopy with which to compare future endoscopies...
  12. knitty kitty
    @Marmee, A positive is a positive. Like being a little bit pregnant. 😸 Welcome to the club. You can double check with a genetic test. Most Celiacs have HLA DQ 2 or 8, though there are more rare Celiac genes out there. You don't have to be eating gluten to get a genetic test. Some people can't complete a gluten challenge if...
  13. knitty kitty
    @lindalee, You may have nutritional deficiencies that are causing hypothyroidism. Thiamine Vitamin B 1 is used by the thyroid. Hypothyroidism can occur in Thiamine deficiency. Supplementing with Thiamine could help get your thyroid working better. A good B Complex would help correct nutritional deficiencies that develop in CeD.
  14. knitty kitty
    @Acacia Voynar, I like Life Extension brand (available on Amazon). Their Benfotiamine (250mg capsule) is a form of thiamine I use. You want to get lower doses of B vitamins and take with each meal throughout the day. Our bodies can absorb a limited amount at a time, so taking vitamins throughout the day helps us absorb more. Niacin can cause...
  15. knitty kitty
    One should be off of vitamin and mineral supplements for eight weeks before testing blood levels. Yes, the vitamins you gave your son could be reflected in his blood tests. A 20% increase in dietary thiamine can cause an 80% increase in the brain and symptoms temporarily improve. High doses of Thiamine is needed to repair and replace the mitochondria...
  16. knitty kitty
    It's more likely the Cefalexin antibiotic itself has caused the symptoms as a side effect. Antibiotics also disrupt the intestinal flora (killing off the good bacteria in the gut). Antibiotics also destroy Thiamine Vitamin B 1. Deficiency in Thiamine can cause gastrointestinal symptoms and headaches. Are you taking any vitamin supplements...
  17. knitty kitty
    @Rianabow, Was a total serum IgA test done? This test checks to make sure you're producing sufficient IgA, while the tTg-IgA tests for a specific sort. Some people for various reasons don't produce sufficient total IgA, and hence test negative on the specific tTg-IgA. Anemia and Diabetes can cause false negatives on tests. I had a false negative...
  18. knitty kitty
    I take my B vitamins earlier in the day. The B12, Thiamine and Niacin can make one feel energized. Magnesium is a cofactor with some B vitamins, so you might not be bothered by insomnia if you add a magnesium glycinate or magnesium citrate supplement after a meal. Niacin can cause flushing, a vasodilation of small blood vessels, which is harmless...
  19. knitty kitty
    I like Life Extension brand. Quite a few of my vitamins are from Life Extension (available on Amazon). This is a good B Complex... https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?gclid=EAIaIQobChMIxZ66wPX__gIVZnJMCh0MvA6HEAQYAyABEgK-x_D_BwE And Benfotiamine... https://www.lifeextension.com/search...
  20. knitty kitty
    @Bonnie Oxford, This article might be of interest. It explains the importance of vitamins in PCOS. Nutritional deficiencies are common in newly diagnosed Celiacs. A Properly Balanced Reduction Diet and/or Supplementation Solve the Problem with the Deficiency of These Vitamins Soluble in Water in Patients with PCOS https://www.ncbi.nlm.nih...
  21. knitty kitty
    @extreme963, Welcome to the forum! Yes, I've had mental health issues including depression, anxiety, and others. Mine were connected to vitamin and mineral deficiencies that commonly occur in CeD. Anxiety and depression are frequently the first subtle symptoms of vitamin and mineral deficiencies. Vitamin D deficiency is linked to depression...
  22. knitty kitty
    @love2craft, Welcome to the Celiac Club! One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who designed the diet to help herself and her Celiac children. Her diet has been scientifically studied and shown to promote healing in the gastrointestinal tract. The research and works of Dr. Derrick...
  23. knitty kitty
    @Raquel2021, My story and my research is in my blog, linked below. I was misdiagnosed. For a very long time. My doctors were clueless. I depended on what I learned at university. I don't want anyone else to go through what I went through, so now I'm here. Knowledge is power. If you have any questions, I'm very happy to answer...
  24. knitty kitty
    @Snoopy23456, Hello! If it was plain ground beef, there's a slim chance it was contaminated with gluten. What could be happening is that the beef was high in histamine. Steers raised and fattened in crowded feed lots produce more histamine in their bodies because they are under stress. High histamine from dietary intake can exacerbate...
  25. knitty kitty
    @Raquel2021, Thiamine deficiency goes along with Hashimoto's. I stopped losing my hair and felt much better after I supplemented with high dose Thiamine. Here's some interesting articles... https://www.palomahealth.com/learn/benefits-thiamine-hypothyroidism And... https://thyroidpharmacist.com/articles/thiamine-and-thyroid...
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