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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    @Vicrob, Have you been tested for a thiamine deficiency? I have two genes for Celiac Disease. I developed vitamin and mineral deficiencies because Celiac Disease damages the small intestine so that these nutrients cannot be absorbed. I have had thiamine deficiency. I had ataxia from Thiamine deficiency. I also get gluten ataxia if exposed...
  2. knitty kitty
    Yes, @HayleighNoWhey, I've had difficulty swallowing. Food got stuck at different spots. I had Gerd and was prescribed omeprazole and famotidine. They didn't work. If anything they made me feel worse. I was deficient in Thiamine and Niacin and other vitamins and minerals that I was not able to absorb because of Celiac Disease. Our bodies...
  3. knitty kitty
    One more.... Efficacy of the Autoimmune Protocol Diet as Part of a Multi-disciplinary, Supported Lifestyle Intervention for Hashimoto’s Thyroiditis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6592837/
  4. knitty kitty
    Some mental health/brain health problems arise due to malabsorption of nutrients. Deficiencies in some of the eight essential B vitamins can cause altered mental status. Pyridoxine B 6 and B12 deficiencies are linked to Obsessive Compulsive Disorder. Thiamine B 1 deficiency causes anxiety and panic attacks, difficulty with reasoning, altered...
  5. knitty kitty
    Much of the damage to the small intestine is microscopic. Yes, being off gluten three weeks can cause inconclusive biopsy results. Very brave of you to endure the gluten challenge to get a "gold standard" biopsy diagnosis! Yes, the use of Tums and Pepto as self medication is common in Celiac Disease. I get eczema around my eyes when exposed...
  6. knitty kitty
    You might have been caught at the earliest stages of CeD. Some of us old fogeys went undiagnosed for years or decades with accruing health problems. When we're younger, our bodies can heal faster. But as time goes on, symptoms pile up, too. Don't question your diagnosis. Be thankful doctors are more aware of CeD than in the past.
  7. knitty kitty
    Gliadin X is a supplement of digestive enzymes that helps breakdown gluten if accidentally exposed. Some find activated charcoal helpful. I find a hot water bottle helps with stomach cramps. How is your son doing today?
  8. knitty kitty
    Do keep in mind that some Celiac people react to the protein in dairy as though it were gluten because segments the casein molecules resemble segments of gluten molecules. This is called molecular mimicry. Interesting Reading: Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC...
  9. knitty kitty
    The bacteria and fungi in our digestive tract can change depending on what we eat. By excluding gluten from his diet, your son has changed his microbiome and his body odor has changed. Undigested carbohydrates like gluten are digested by bacteria in our digestive tract. Some bacteria and yeasts produce gases as a byproduct of this breakdown...
  10. knitty kitty
    In Celiac Disease, our bodies have trouble absorbing sufficient nutrients, vitamins and minerals that help our bodies heal. Discuss with your doctor or nutritionist the benefits of supplementing with the eight essential B vitamins and Vitamins D and C. Our digestive system needs Niacin B 3 to help heal the intestines. Tryptophan, (up to 1000...
  11. knitty kitty
    I had neuropathy from my toes to thighs, and in my hands and arms. I even managed to scald my hands by hot water while washing dishes. My hands were so affected I couldn't tell the temperature of the water. I couldn't knit or embroider because I couldn't feel the needles. I took a combination of Thiamine, Pyridoxine, and Cobalamine (Vitamins B ...
  12. knitty kitty
    It's worrisome you all still continue to have health problems for so long after a Celiac diagnosis! Celiac causes vitamin and mineral deficiencies because of the damage done to the small intestine's lining. Our body cannot make these nutrients, so we must get them through our diet, and supplementing, if we cannot absorb well. Restoring sufficient vitamins...
  13. knitty kitty
    Do keep in mind that the autoimmune response to gluten can be more severe after having been gluten free for a period of time. Call the GI doctor's office and find out when the endoscopy will be and ask for their gluten challenge protocol. If you ask for and receive the results of your recent abnormal blood tests, you can share them here.
  14. knitty kitty
    @NovemberNewbie2023, Welcome to the forum. Sorry to hear about what you are going through. It would be wise to complete testing for Celiac Disease if you want to have a healthy baby. Antibodies for Celiac Disease are very specific to Celiac. The Celiac antibodies only appear with exposure to gluten and disappear when no longer exposed to...
  15. knitty kitty
    @KGB1819, The tiny fluid filled blisters on cheeks and chin sounds like the blisters in DH. Iodine can cause a DH breakout. No gluten required. Dairy products, shellfish and crustaceans are all high in Iodine. And iodized salt. Iodine makes the antibodies more active and causes DH flares. Biopsies of DH should be taken next to...
  16. knitty kitty
    Welcome to the forum, @emma1semrad! Have you been checked for nutritional deficiencies? What sort of foods are you eating currently? Celiac Disease causes malabsorption of vitamins and minerals that our bodies need in order to heal and stay healthy. If we can't absorb sufficient nutrients from our diets, we get sick. Your symptoms, chest...
  17. knitty kitty
    I believe clicking on the three bars in the top right corner brings a drop down menu, choose Account, then Manage Followed Content. Best wishes
  18. knitty kitty
    Adjust your email settings so you won't receive further notifications.
  19. knitty kitty
    @selectivefocus and @Raquel2021, Thyroid problems have a connection with Thiamine insufficiency. Malabsorption due to Celiac and the increased demands during pregnant can precipitate thiamine insufficiency. Thiamine insufficiency can cause the thyroid to swing from hypo to hyper. Thiamine supplementation has been shown to improve symptoms. ...
  20. knitty kitty
    Yes, you should report your symptoms to your doctor. Your antibiotic is a sulfa drug. Some Celiacs like me develop a Hypersensitivity reaction to sulfa drugs. GI upsets, agitation, difficulty breathing, and anaphylaxis are symptoms to look out for. Antibiotics also break thiamine down which can lead to an insufficiency of Thiamine. Antibiotics...
  21. knitty kitty
    Doctors were doing their best. Doctors not familiar with infantile thiamine deficiency can make a misdiagnosis. Thiamine deficiency can coexist with other diseases. Many of us have been misdiagnosed. However, the treatment worked and there's a wonderful person sharing their story. Celiac Disease genes get turned on by a stressor. A physical illness...
  22. knitty kitty
    Please don't be offended. We're just very curious. You have to admit your history is very unusual. It was brilliant of your doctor to put you on powdered skim milk. The protein in dairy, casein, is broken down by the drying process, so it wouldn't necessarily provoke an autoimmune reaction. Skim milk has lots of Thiamine Vitamin B 1. Thiamine...
  23. knitty kitty
    Have you been checked for nutritional deficiencies? Are you taking any vitamin supplements? Malabsorption due to Celiac Disease is commonly unaddressed. We are frequently low in the eight essential B vitamins which we must get from foods or supplementation because our bodies cannot make them. Supplementing with the B Complex vitamins and additional...
  24. knitty kitty
    Do you have any problems with dairy products?
  25. knitty kitty
    I looked at the ingredients. It contains Inositol as a source of Niacin B 3. Inositol is not absorbed well by our bodies (only about 30%). Once absorbed, our bodies have to break it apart in order to use the niacin it contains. Our bodies can make Inositol from Niacin. Niacin causes flushing, a harmless reaction which will fade with continued usage...
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