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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    I'm saying many people diagnosed as NCGS may in fact have Celiac, but just don't have intestinal damage at Marsh III (the stage of intestinal damage required to be diagnosed as Celiac Disease). A person doesn't develop Marsh III overnight! This is why genetic testing is important in people without blatantly obvious villi damage and equivocal...
  2. knitty kitty
    https://www.healthline.com/nutrition/high-gluten-flour And... Whole-flours from hard and soft wheat genotypes: study of the ability of prediction test to estimate whole flour end-use https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7925757/
  3. knitty kitty
    Some people don't consume sufficient amounts of gluten before an antibody test and get inconclusive results (that 5%). A genetic test will show if you have Celiac genes. You won't make anti-gliadin antibodies if you don't have the genes. The biopsy shows the damage done to the small intestine. This damage can take years to show up as Marsh...
  4. knitty kitty
    Have you ever had a DNA test for Celiac Disease genes? If you've got the genes, and you're sick around gluten, you probably have active Celiac Disease. Your genes don't change. You don't have to be eating gluten to test for Celiac genes. This latest behavior of your wife has got all my red flags waving. She is really scary. My prayers...
  5. knitty kitty
    No. It's the amount of gluten available to form that matrix that determines how much a wheat product rises. Yeast is used with glutinous flour to make gases that get trapped in the gluten matrix which form those big bubbles in bread. Leavening like baking soda can be used to make quick breads, cookies, and crackers, because not as much gas is produced...
  6. knitty kitty
    @Beverage, Folic acid is the synthetic form of Folate Vitamin B9. Our bodies don't utilize Folic acid well. Folic acid is "shelf stable" (allowing for a food product to stay on the grocery shelf longer). Folate, like the other B vitamins, are denatured (broken down easily and made ineffective) by heat and light and time. Folic acid...
  7. knitty kitty
    @JDG, Different kinds of wheat contain different amounts of gluten. Wheat flour used to make breads (yeast breads, chewy pizza crust) has more gluten in them than other types of wheat flour. Gluten in bread flour forms a matrix that captures escaping gas as the dough rises and bakes. Those big bubbles in the texture in breads are formed...
  8. knitty kitty
    @Morenaroo, Gastrointestinal beriberi is caused by a deficiency in Thiamine Vitamin B1. The symptoms I had are similar to what you describe. Here's more information... Gastrointestinal beriberi: a forme fruste of Wernicke's encephalopathy? https://pubmed.ncbi.nlm.nih.gov/29982183/ And... Gastrointestinal Beriberi and Wernicke...
  9. knitty kitty
    @Ann Eka, I sweated profusely when I was deficient in Thiamine Vitamin B 1. Thiamine helps regulate the part of the brain that is in control of the autonomic nervous system (things you don't have to think about like blood pressure regulation, digestion, body temperature regulation, etc.). One can have a subclinical insufficiency which in times...
  10. knitty kitty
    @Kurlykaitlyn, You may want to ask your doctor for a referral to a nutritionist. Besides the brown rice, I don't see any good sources of B vitamins. You should consider the Autoimmune Protocol Diet (Dr. Sarah Ballantyne, a Celiac herself, developed it) or the Mediterranean diet, or the Paleolithic diet. I followed the Autoimmune...
  11. knitty kitty
    Gluten free, yes, but what are you currently consuming?
  12. knitty kitty
    @Kurlykaitlyn, What are you eating? Are you taking any medications? Are you taking any vitamins?
  13. knitty kitty
    I had Ataxia like you describe. Yes, gluten will cause some ataxia, but my ataxia only improved after I supplemented with a B Complex and high doses of Thiamine Vitamin B 1. Thiamine and the other Essential B vitamins are water soluble and nontoxic. Our bodies cannot make these vitamins, so we must get them from our diet every day. This can be difficult...
  14. knitty kitty
    @carolyng008, Welcome to the forum! Having trouble digesting meat usually points to having low stomach acid which is a sign of Niacin Vitamin B3 deficiency. Niacin is one of Eight Essential B Vitamins. These eight B vitamins depend on each other to work properly, so we need all eight. These are Essential because our bodies cannot make them...
  15. knitty kitty
    Vitamin D 2 is synthetic Vitamin D. It is not easily assimilated and utilized by the body. Vitamin D 3 is much better absorbed and used. It's important to correct vitamin and mineral deficiencies as soon as possible so no lasting damage will occur. Your pregnancy may have also depleted your other vitamin and mineral stores as well. Fatigue, diarrhea...
  16. knitty kitty
    @Alnlv, welcome to the forum! I have Celiac and DH (dermatitis herpetiformis) and I get urticaria sometimes. Urticaria can occur when you have a deficiency in Cobalamine Vitamin B12. Cobalamine Vitamin B12 deficiency is frequently found in Celiac Disease. Cobalamine Vitamin B12 can help remove histamine and reduce inflammation when you have...
  17. knitty kitty
    @Erika B, You could ask your doctor for a genetic test to see if you have any genes for Celiac Disease. You don't have to be eating gluten for a genetic test. Having the genes for Celiac Disease means one has the potential to develop active Celiac Disease. Some doctors will make a diagnosis of active Celiac Disease if one has genes for Celiac...
  18. knitty kitty
    @Rogol72, I'm so glad clove tea worked for you, too! So happy you're feeling better!
  19. knitty kitty
    @Wendy.DLH, One more study for you... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8112188/ Do be aware that blood levels of several vitamins and minerals are not accurate. One can have deficiency symptoms before the deficiency is reflected in blood levels. Discuss with your doctor the benefits of supplementing with the eight essential...
  20. knitty kitty
    @Kurlykaitlyn, I have found taking a magnesium supplement after meals helps. The main ingredient in Tums is magnesium citrate. You can find a gluten free/allergen free magnesium citrate or magnesium glycinate supplement without all the questionable ingredients that Tums has. You may want to avoid using a PPI, especially if one is also taking...
  21. knitty kitty
    @Erika B, Low red (and white) blood cell counts are indicative of anemia. Anemia can cause false negatives on antibody tests, as can diabetes. Have you been checked for diabetes? I have Type Two Diabetes. If my blood glucose level gets too high (or too low), I can get body tremors. The continual nausea, vomiting, headaches and diarrhea...
  22. knitty kitty
    @Rogol72, I would suggest Cloves in tea. With honey, if you like, and some cinnamon. It really works surprisingly well. I like Twinings Chai Tea bags or I add a couple of whole cloves and a cinnamon stick to plain tea. You can also use clove oil (make sure it's food grade, not essential oil). Cloves have antibacterial and antiviral properties...
  23. knitty kitty
    @Wendy.DLH, Welcome to the forum! Do get checked for vitamin and mineral deficiencies. Thiamine Vitamin B One can become depleted very quickly. Correcting Thiamine insufficiency is important in many illnesses. Thiamine deficiency is found in migraines, fibromyalgia, chronic fatigue syndrome, POTS, Celiac, Diabetes, Sjogren's Syndrome...
  24. knitty kitty
    @confusedandsick I couldn't finish a gluten challenge. I had genetic testing done. The Hippocratic oath says "first, do no harm..." Maybe one day a better way of testing will be found. Let's hope it's soon. Some doctors will diagnose Celiac Disease with a genetic test and health improvements on a gluten free diet. Best wishes!
  25. knitty kitty
    @Gilly M, hi! Hope you're doing well. Great to hear about your nonstop weekend! Apologies for my delay. There were some weather related connection problems. Your Vitamin D looks great. I take Thiamine at the beginning of meals and Magnesium at the end of meals. That way, I get some of both throughout the day because they make energy...
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