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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies. Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine. Vitamins are needed to break down histamine released from immune cells like mast...
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Newly Diagnosed
knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred... -
@Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
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Lymphocytic Colitis with Celiac
knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming... -
Finding gluten free ingredients
knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do. Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins... -
Gluten free thyroid medications
knitty kitty replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications
Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's. From... -
Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same villi that absorb nutrients from our food. Damaged villa can't absorb nutrients, vitamins and minerals well. If we don't get sufficient nutrients, our body can't function properly. We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening...
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Still unsure.....
knitty kitty replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thiamine interacts with all the other B vitamins. Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of. The body can control which vitamins to absorb or not. You're absorbing more and it's being transported through the blood. ... -
Still unsure.....
knitty kitty replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you taking a B 6 supplement or a supplement containing B 6 like a B Complex? Do you have pins and needles in your toes? Don't worry about the thiamine being high. The blood is a transport system that carries thiamine to the cells so they can store it. It's fine. -
Frustrated
knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies... -
@Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn...
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Frustrated
knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @Jmartes71, Wow! 31 years! That's great! You can get a DNA test to show genes specifically for Celiac. Your genes don't change whether you eat gluten or not. Have you been checked for nutritional deficiencies? The gluten free diet can be low in essential nutrients. You may have become a bit deficient after such... -
Lysine is helpful for "cold sores" (oral herpes).
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@Wheatwacked, Are you aware of the interaction of potassium iodide and losartan ? https://www.drugs.com/drug-interactions/iodine-potassium-iodide-with-losartan-1368-0-1489-0.html#:~:text=Talk to your doctor before,to safely use both medications.
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@bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone. Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult. Nutritional deficiencies result. Diseases...
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Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers. I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6. Together these vitamins have an analgesic effect. I think it works better than OTC pain relievers. I also like "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets...
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It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels. The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies. Thiamine Vitamin B1 helps the thyroid function. I like Benfotiamine and TTFD Thiamax.
- 33 replies
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- high gluten
- hormone-related
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Gluten particles can fit in the opioid receptors in our bodies. This can be part of the explanation of why some people say they don't have any digestive issues. Their intestines are on opioids. These particles can also travel to the brain through the bloodstream, sedating you.
- 30 comments
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- diagnosis
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Confused About Results
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Ginger38, Diabetes and Celiac often go hand in hand. Having more than one autoimmune disease is common with Celiac. I'd err on the side of caution and go gluten free. I did not want to go on insulin, either. I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne). My diet... -
@Ginger38, I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum! My doctors were just as frustrating! I had nutritional deficiencies. I know your doctors refuse to test for this. So did mine, saying "I can't make money prescribing vitamins." Some members say a naturopathic doctor is more open...
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Ocd making gluten fears unmanageable. Need advice
knitty kitty replied to Dora77's topic in Coping with Celiac Disease
@Dora77, You shouldn't worry about getting glutened through your skin. You would have to touch a gluten infested doorknob and then put your hand in your mouth. I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles. These methods cause particles of gluten to become airborne which would then enter...- 9 replies
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- asymtomatic
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Ocd making gluten fears unmanageable. Need advice
knitty kitty replied to Dora77's topic in Coping with Celiac Disease
Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease. My doctors didn't recognize nutritional deficiencies either. I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having. Poor absorption of essential nutrients is...- 9 replies
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- asymtomatic
- celiac
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I'm fine as long as I stay away from gluten. My Celiac went undiagnosed for too long and I accumulated health problems. If I can help others on their journey, everything has been worthwhile.
- 30 comments
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I take the essential vitamins and minerals all the time to ensure that I'm absorbing sufficient amounts because the gluten free diet can be lacking in some nutrients. I take the magnesium, tryptophan and passion flower when I can't sleep. I crushed three vertebrae (Osteopenia), so sometimes it's difficult to get comfortable. I avoid gluten...
- 30 comments
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- celiac disease
- diagnosis
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