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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, everyone reacts with their own individual set of reactions. I think a B Complex along with a multivitamin helpful, yes. Do not take vitamin supplements for at least eight weeks before a test for vitamin levels. Otherwise the vitamin supplements will show up in the blood tests as normal or high levels, masking any deficiencies you might actually...
  2. knitty kitty
    Blood tests for vitamin deficiencies are not an accurate measurement of vitamin stores within cells where the vitamins are actually utilized. The brain will order cells in tissues and organs to put their stored vitamins into the blood stream to supply the brain and heart. Deficiency symptoms can appear before there's a change in blood levels. The...
  3. knitty kitty
    There's a Vegetarian version of the Autoimmune Protocol Diet. There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu. Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need. Getting dietary advice is part of proper follow up care for people with Celiac disease. tTg...
  4. knitty kitty
    Ten grams of gluten per day for two weeks or longer is needed to get antibody levels up high enough so that they can be measured in the blood stream and intestinal damage can be seen in the small intestines. HOWEVER, only THREE grams if gluten is needed to produce symptoms...like running to the bathroom. Some people have much worse symptoms after...
  5. knitty kitty
    @Jane07, welcome to the forum! Have you been checked for nutritional deficiencies? Malabsorption of essential nutrients is common in Celiac Disease. Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery. Vitamin D is frequently low. Vitamin D helps regulate the immune system and...
  6. knitty kitty
    Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten. An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines. When you have a cold or infection, antibodies are made that attack the foreign invader. In Celiac Disease, our immune...
  7. knitty kitty
    There are thirteen essential vitamins: eight B vitamins, four fat soluble vitamins, and Vitamin C. They all work together. If you are deficient in one, you are probably low in the other dozen. Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well. Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine...
  8. knitty kitty
    I suggest you eliminate dairy from your son's diet next. Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments. Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I...
  9. knitty kitty
    Welcome to the forum, @jamiet06, Yes, it does point in that direction. Your report says "Correlation with clinical findings and results of serological studies is recommended" is saying you should undergo a gluten challenge and be tested for antibodies associated with Celiac Disease. These antibodies are produced in celiac disease in response...
  10. knitty kitty
    @elizabethhousworth, I found that supplementing with Riboflavin Vitamin B2 has helped my migraines immensely. Effect of Vitamin B2 supplementation on migraine prophylaxis: a systematic review and meta-analysis https://pubmed.ncbi.nlm.nih.gov/33779525/ "Conclusions: A pooled analysis of available randomized controlled clinical trials...
  11. knitty kitty
    Interesting reading on Histamine Intolerance (HIT): Histamine Intolerance: The Current State of the Art https://pmc.ncbi.nlm.nih.gov/articles/PMC7463562/ Histamine Intolerance—The More We Know the Less We Know. A Review https://pmc.ncbi.nlm.nih.gov/articles/PMC8308327/ We need the enzyme DAO (Diamond Oxidase) to break down h...
  12. knitty kitty
    Keep us posted on your progress!
  13. knitty kitty
    I prefer not to use Nature's Bounty because they use Thiamine Mononitrate which is not a useable source of Thiamine. Only thirty percent of Thiamine Mononitrate is absorbed, and it must undergo chemical changes to convert thiamine mononitrate into a form the body can utilize more easily. Look for multivitamins that use Thiamine Hydrochloride, or take...
  14. knitty kitty
    Doctors don't usually test the levels of all the B vitamins. B12 is frequently the only one checked. Ask for an Erythrocyte transketolase test to check Thiamine Vitamin B 1 levels. The eight B vitamins all work together, so they should all be supplemented. Additional thiamine in the form Benfotiamine can be taken.
  15. knitty kitty
    No. The damage done to the lining of the intestines is caused by the autoimmune response of Celiac disease. People who have been off of gluten for an extended period may take longer to mount an autoimmune response. Twelve days of gluten after two years off probably wasn't enough time and not sufficient gluten.
  16. knitty kitty
    @LizzieF, The anemia which can be caused by low iron can impede antibody production. NCGS can be a precursor of Celiac Disease, especially in those who already carry Celiac genes. Celiac is the only disease where you have to self harm to get a diagnosis. Do talk to your doctor about the updated gluten challenge requirements and a...
  17. knitty kitty
    Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies? Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron. Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing. I had episodes...
  18. knitty kitty
    Yes, zinc is very important to immune system and health. @Sanna King, how are you doing? I got really frustrated reading labels! On the Autoimmune Protocol Diet I don't have to. The AIP diet includes meat and veggies and some fruit. No processed foods. No dairy, no nuts, no nightshades (tomatoes, potatoes, peppers and eggplant). The AIP diet...
  19. knitty kitty
    Have you tried adding in additional thiamine in the form called Benfotiamine? Athletes need extra thiamine. We need more thiamine when we're physically ill and also when we're emotionally stressed. A regular B Complex or multivitamin probably doesn't have enough thiamine. Check the label for which type of thiamine is in your vitamins. Thiamine...
  20. knitty kitty
    What were/are you supplementing? What sort of bloodwork? Testing for vitamin and mineral deficiencies?
  21. knitty kitty
    Hello there! @Jordan Carlson , you said "Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger?" I think you may have that backwards. Your...
  22. knitty kitty
    Hello, The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine. We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease. Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals...
  23. knitty kitty
    Have you had a DNA test to look for the most commonly occurring Celiac genes? There's some scientific evidence that Non Celiac Gluten Sensitivity is a precursor to Celiac Disease in genetically predisposed people. Which foods do you react to? How do you react?
  24. knitty kitty
    @Sammy Web, Have you had a genetic test which looks for the most commonly known Celiac genes? Not having the Celiac genes is the only way to definitively exclude Celiac Disease.
  25. knitty kitty
    @herminia, Welcome to the forum! Omeprazole is only supposed to be taken for a few weeks! Omeprazole can cause villus damage to the small intestine by itself. Shame on your doctors for letting you be on it for years! Shame on your doctors for not taking an interest in your worsening symptoms! Omeprazole is a temporary fix, a bandaid, not a...
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