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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    Hi, @KristinH, Those potatoes use Sodium Bisulfite as a preservative (often used in potatoes to prevent them from turning brown). I react to Sulfites (Hypersensitivity Type Four Reaction, not an allergic or anaphylactic reaction). I react to many, many drugs that contain sulfites like antibiotics. Gastrointestinal symptoms and brain fog occur...
  2. knitty kitty
    Thiamine deficiency causes hypoxia. Hypoxia-Inducible Factor 1α binds to thiamine transporter SLC19A3 and activates it to increase thiamine uptake. HIF-1α signaling also triggers the release of inflammatory cytokines and inflammatory cells proliferation. HIF-1a affects genes in the nucleus, entering through micro-pores. Hypoxia and high levels of HIF-1...
  3. knitty kitty
    Even if you don't have Celiac Disease, you can still get SIBO. Glad to hear you're taking the vitamins and magnesium! Are you getting sufficient Omega Three oils like flaxseed, olive oil, or Sunflower seed oil? I didn't like coconut oil because it upset my digestive tract. How is your Vitamin D level?
  4. knitty kitty
    @Heavenly Flower and @lehum, How are you doing? My favorite book is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself. This book explains the AutoImmune Protocol Diet (AIP diet) which is the diet I follow. Yes, it is very strict, just meat, veggies and some fruit. But it really works. You cut back to just meat and veggies...
  5. knitty kitty
    @Anne G, I came across an article that I thought would be of interest. Malabsorption of vitamins can be a big issue with Celiac disease. The Gluten Free diet can be low in vitamins, too. Supplementing with a B Complex is a good idea. B vitamins and Vitamin C are water soluble and easily excreted if not needed. Has you doctor checked for nutritional...
  6. knitty kitty
    Google say: "Remission is the reduction, abatement, or disappearance of the signs and symptoms of a disease, particularly cancer or chronic illnesses." So, you have the right idea...
  7. knitty kitty
    Mother cells that produce antibodies live for about two years. If you can go those two years without getting the same mother cells triggered, the body may return to remission. But nutritional deficiencies must be corrected as well.
  8. knitty kitty
    @xxnonamexx, Have you considered whether you may have Small Intestinal Bacterial Overgrowth? Thiamine B 1 is needed to turn sugar into energy. Without sufficient Thiamine the dietary sugars and sugar alcohols are fermented by bacteria from the colon that crawl into the small intestines, causing gas and bloating. Interesting to note that...
  9. knitty kitty
    Thiamine Mononitrate isn't absorbed nor utilized well. I'm sure you'll get better results with the thiamine hydrochloride! Let me know how it goes!
  10. knitty kitty
    Are you taking the 500 mg all at once? Higher doses all at once are needed. Try taking 500 mg in the morning and then add 500 mg in the afternoon. Some people don't get the best effects at first until they get their dosage up to 1500 to 2000 mg a day (in two or three doses). I had been taking 100 mg several times a day, and it didn't...
  11. knitty kitty
    @Ben Cohen, Have you tried pasta? I would definitely stay away from the alcohol as it's going to do additional damage not caused by the gluten in it. Be encouraged.
  12. knitty kitty
    Can you tell us about your experiments? Are you consuming dairy, too?
  13. knitty kitty
    Human Leukocyte Antigen genes are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes code for immune cells. Some immune...
  14. knitty kitty
    Thiamine and Autoimmune Diseases Human Leukocyte Antigens are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes...
  15. knitty kitty
    Can you get your blood tests done before you stop the gluten challenge? If you're having such difficulty with the gluten challenge, I wonder how high the antibody level is now.
  16. knitty kitty
    Failure to gain weight on a high calorie diet points to nutritional deficiencies in B vitamins, especially Thiamine B 1. A person can eat a diet high in calories, but not consume sufficient amounts of the eight B vitamins necessary to turn those calories into fuel for the body and for healthy weight gain. Do get checked for nutritional deficiencies...
  17. knitty kitty
    Unexplained abdominal pain can be caused by insufficient Thiamine in the gastrointestinal tract, called Gastrointestinal Beriberi. I used to get that, especially after a high carbohydrate meal. Doctors miss it easily. Once I started Thiamine/Benfotiamine supplements, symptoms improved quickly. Tell your brother to ask for an Erythrocyte Transketolace...
  18. knitty kitty
    @suek54, Do get your Vitamin D checked as well. Vitamin D is frequently low in people with autoimmune diseases including Celiac and Dermatitis Herpetiformis, Diabetes, and Addison's. Do get Vitamin E checked as well because it can help if taking Dapsone. Check for deficiencies in B vitamins that can cause peripheral neuropathy beyond just Folate...
  19. knitty kitty
    Maybe we should call it "silent tummy" Celiac. 😺hahaha!
  20. knitty kitty
    These are symptoms of Celiac Disease. They may be outside the gastrointestinal tract (extra-intestinal), but they are symptoms commonly found in Celiac Disease. "Mild villous blunting and intramucosal lymphocytes" are "gold standard" diagnostic findings in Celiac disease. The amount of gluten you eat can affect the severity of gastrointestinal symptoms...
  21. knitty kitty
    @jenniber, Your brother can get a genetic test to look for Celiac genes. You don't need to eat gluten for a genetic test. Diabetes is an autoimmune disease that is associated with Celiac Disease. Thiamine B1 insufficiency is frequently found Diabetes. I have Diabetes and Celiac myself. Supplementing with essential vitamins and minerals...
  22. knitty kitty
    @Tobo, Have you been checked for nutritional deficiencies? Do you currently take a multivitamin or other vitamins or supplements? Amitriptyline is one of the medications I was prescribed. Amitriptyline is one of the drugs that can cause thiamine insufficiency by blocking thiamine uptake and preventing thiamine from entering cells. Fatigue...
  23. knitty kitty
    Welcome to the forum, @Lizie, Do you know the reference range of the tTg IgA test? Every lab has their own reference ranges. The tTg IgA antibodies are made in response to gluten. The fact that you were cutting back on gluten before the test could explain why the numbers were lower than you expected. A negative EMA is not unusual with a reduced...
  24. knitty kitty
    People with diabetes may have genetic variations that cause their thiamine transporters to not absorb thiamine as well. This functional thiamine deficiency can cause inflammation and diabetes. Thiamine is needed to down regulate the inflammatory cytokines. Genetic Variants of the Human Thiamine Transporter (SLC19A3, THTR2)—Potential Relevance i...
  25. knitty kitty
    @Heatherisle, You have good reason to worry. Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency. Thiamine deficiency is frequently found in B12 deficiency. Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease. Thiamine can run out in as little as three days...
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