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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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@AMY KACHER, Get checked for vitamin deficiencies! Deficiencies in any of several of the B vitamins and Vitamin D can cause depression. Discuss with your doctor and dietician supplementing with essential vitamins and minerals while you are gluten free. Celiac disease affects the absorption of these essential nutrients because of the inflammation...
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Blood results
knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Heatherisle, Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible! The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression. Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt... -
Welcome to the forum, @MMeade! I found taking Thiamine Vitamin B1 in the form Benfotiamine helpful. I have Celiac, hypothyroidism, and diverticulosis. Inflammation caused by Celiac or allergic reactions cause "leaky gut syndrome" which allows food particles to pass from the intestines into the blood stream where they cause further inflammation in the...
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Thiamine has antifungal properties. The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system. Fluconazole use can cause thiamine deficiency. Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing. Thiamine and the other B vitamins tend to...
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Blood results
knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you had a DNA test to look for Celiac disease genes? If she doesn't have any celiac specific genes, look for another explanation. If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing. All first degree relatives (mother, father, siblings, children) should be genetically tested as well. Sometimes blood... -
Welcome to the forum, @Natalia Revelo! Yes, I've been in a similar situation. You can read about my journey in my blog here. I found most doctors and others do not pay much attention to vitamins. Herbal supplements can be helpful, but they can't help as much as supplementing with vitamins. You're not deficient in herbs, you're deficient in essential...
- 2 replies
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- gut healing
- malabsorbtion
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Alcohol
knitty kitty replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That "gut ache" after drinking may be more than alcohol not agreeing with a gut that's trying to heal. Alcohol prevents absorption of vitamins, and actually breaks thiamine Vitamin B 1 so it cannot function. Thiamine deficiency can cause Gastrointestinal Beriberi, with symptoms of digestive upsets and abdominal pain, nausea, vomiting, anorexia, and... -
Oh, lovely, another knitter! What are your favorite things to knit? I love knitting lace. Lace doileys and shawls. And socks, not necessarily lacy though. Low Vitamin D has an impact on the thyroid. The Role of Vitamin D in Autoimmune Thyroid Diseases: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC9966459/ Impact of...
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Vitamin D acts as a hormone and influences other hormones if the Vitamin D level is at eighty nmol/l or above. I had a lot of hormone problems when my Vitamin D was in single digits prior to diagnosis of celiac disease. Vitamin D is needed to keep bones strong and helps regulate the immune system, lowering inflammation. I used high dose Vitamin...
- 33 replies
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- high gluten
- hormone-related
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Progesterone stimulates the thyroid. The thyroid stimulates the immune system which increases production of IgG antibodies. Progesterone Upregulates Gene Expression in Normal Human Thyroid Follicular Cells https://pmc.ncbi.nlm.nih.gov/articles/PMC4454767/ Celiac Disease and Autoimmune Thyroid Disease: The Two Peas in a Pod https://pmc...
- 33 replies
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- high gluten
- hormone-related
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@Mettedkny, Have you had your thyroid checked lately? People with thyroid problems like Hashimoto's thyroiditis produce tTg IgG antibodies whether exposed to gluten or not. Hashimoto's is another autoimmune disease frequently found with Celiac disease. Do you eat iodized salt or sea salt? P. S. Progesterone stimulates the thyroid. The...
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Actually, it's an opioid hit. Gluten attaches to opioid receptors we have throughout our bodies including our digestive systems. That opioid hit from gluten attaching to opioid receptors is probably why some people don't have gastrointestinal symptoms. Some people feel worse after going gluten free because they are no longer consuming exogenous opioids...
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Welcome, @annamarie6655, I followed the AIP diet, too. It allows the intestines time to heal. I still avoid a lot of processed foods. Once you get used to eating whole foods, they taste better than processed foods. I couldn't eat pepperoni without becoming ill. Pepperoni is a processed meat that uses "meat glue" to hold its shape. "Meat glue...
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Welcome to the tribe! Do discuss the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) with your dietician. The AIP diet helps while the intestines are healing, lowering potential to develop other food sensitivities. Be sure to discuss supplementing with vitamins and minerals. Damaged intestines don't absorb essential nutrients well. Supplementing...
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Allegra is an antihistamine. Histamine is released by the body as part of the autoimmune and immune responses, so an antihistamine would be helpful. Following the low histamine version of the AIP diet is helpful as well because there's also histamine in foods. Sometimes our body has trouble getting rid of the histamine it makes and the histamine from our...
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Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
@Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide). They are available over the counter. Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well. -
Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
@Zuma888, I'm so happy you're feeling better! Thanks for letting us know of your improvement! -
Refractory celiac disease
knitty kitty replied to Grahamsnaturalworld's topic in Related Issues & Disorders
@Grahamsnaturalworld, It's never too late. Have you been checked for Small Intestinal Bacterial Overgrowth? SIBO can cause ongoing symptoms. Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms. The AIP diet can help with these by starving out SIBO bacteria and calming the immune system... -
Refractory celiac disease
knitty kitty replied to Grahamsnaturalworld's topic in Related Issues & Disorders
Welcome to the forum, @Grahamsnaturalworld What exactly do you include in your diet? Do you keep a food journal to track symptoms? Have you tried an elimination diet like the Autoimmune Protocol Diet? It's very strict, but I found it excellent for reducing inflammation, calming the immune system, and promoting healing in the gastrointestinal tract... -
@junell, Can you get a DNA test to look for genes for Celiac Disease? Have you had your thyroid checked? Have you been checked for nutritional deficiencies? Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies. Talk to your doctor and dietician...
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Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
Please be sure to try Benfotiamine or Thiamine Hydrochloride. The form Thiamine Mononitrate is not absorbed nor utilized well. Benfotiamine is much more bioavailable. Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you. All the B vitamins work together. Thiamine needs the other B vitamins... -
Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease. Those HLA genes code for other autoimmune diseases along with Celiac. Hashimoto's and Celiac overlap. People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must. It may be safe to assume you've got Celiac Disease as well. People with Hashimoto... -
@Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand. Their BioActive Complete B Complex has active forms of the B vitamins. Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption. Life Extension also makes Benfotiamine (100 mg). Take one at...
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mystery gluten?
knitty kitty replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too. I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's. So antibodies aren't necessarily due to gluten ingestion. https://pubmed.ncbi.nlm.nih.gov/31149170/ Take a B Complex supplement and Benfotiamine... -
@Rejoicephd, Would you consider adding a B Complex to your supplements? I was taking a multivitamin and still became deficient. There's a question as to how well multivitamins dissolve in the digestive system. I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery...