knitty kitty
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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Thanks for answering all my questions! Your symptoms sound very similar to mine when I had Gastrointestinal Beriberi, a deficiency in thiamine Vitamin B1 localized in the digestive system. The pain was unbearable. Every thing evacuated at the same time through the nearest exit like a fire drill! It wss horrible. I'll attach some case reports of...
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@GFreeIowaMom, welcome back! Sorry to hear you're feeling so poorly! Would you mind sharing your test results along with reference ranges? Was a Total IgA done in addition to tTg IgA? Have you been checked for anemia? Have you had a genetic test done? You don't have to eat gluten for a genetic test. A positive gene test doesn't diagnose...
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References about Thiamine: Thiamine (Vitamin B1)—An Essential Health Regulator https://pmc.ncbi.nlm.nih.gov/articles/PMC12251314/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/P...
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Have you thought about cutting dairy out of your diet? The protein Casein in dairy causes the same inflammatory response as Celiac Disease does. About half of people with Celiac react to Casein. I can't have dairy at all. Perhaps you could try eliminating dairy and see if there's any health improvements. P.S. all the B vitamins work together, so...
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I've been researching Celiac disease and Thiamine deficiency for a long time. Recently I found information that shows a relationship between the lack of Thiamine and Celiac Disease pathogenesis. What do you think? Thiamine is used in the mitochondria to produce energy (ATP) in the body for cells use as they go about their various functions. Various...
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@Sarawiththeceliac, Are you taking a B Complex vitamin? These are eight important vitamins, mostly found in meat and beans, but they can be low with Celiac disease because of poor absorption. Thiamine Hydrochloride Vitamin B 1 is extremely important because it lowers inflammation. You may begin to feel better if you add Thiamine Hydrochloride and...
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@Mimiof2, Yes, NSAIDS can cause villous atrophy and ulcers. NSAIDS can cause damage to the villi without changing tTg IgA level. NSAIDS can also cause dysphagia (difficulty swallowing) as a result of irritation in the esophagus. NSAIDS, PPIs, and SSRIs will cause villous damage. Instead of using NSAIDS for pain relief, try a combination of...
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Sorry if I Readers' Digest condensed and oversimplified the explanation again. Thiamine deficiency causes hypoxia. Hypoxia-Inducible Factor 1α binds to thiamine transporter SLC19A3 and activates it to increase thiamine uptake. HIF-1α signaling also triggers the release of inflammatory cytokines and inflammatory cells proliferation. HIF-1a affects g...
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Idahoan contains gluten?
knitty kitty replied to KristinH's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi, @KristinH, Those potatoes use Sodium Bisulfite as a preservative (often used in potatoes to prevent them from turning brown). I react to Sulfites (Hypersensitivity Type Four Reaction, not an allergic or anaphylactic reaction). I react to many, many drugs that contain sulfites like antibiotics. Gastrointestinal symptoms and brain fog occur... -
Thiamine Deficiency, Hypoxia, and Autoimmune Disease
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
Thiamine deficiency causes hypoxia. Hypoxia-Inducible Factor 1α binds to thiamine transporter SLC19A3 and activates it to increase thiamine uptake. HIF-1α signaling also triggers the release of inflammatory cytokines and inflammatory cells proliferation. HIF-1a affects genes in the nucleus, entering through micro-pores. Hypoxia and high levels of HIF-1... -
Even if you don't have Celiac Disease, you can still get SIBO. Glad to hear you're taking the vitamins and magnesium! Are you getting sufficient Omega Three oils like flaxseed, olive oil, or Sunflower seed oil? I didn't like coconut oil because it upset my digestive tract. How is your Vitamin D level?
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@Heavenly Flower and @lehum, How are you doing? My favorite book is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself. This book explains the AutoImmune Protocol Diet (AIP diet) which is the diet I follow. Yes, it is very strict, just meat, veggies and some fruit. But it really works. You cut back to just meat and veggies...
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@Anne G, I came across an article that I thought would be of interest. Malabsorption of vitamins can be a big issue with Celiac disease. The Gluten Free diet can be low in vitamins, too. Supplementing with a B Complex is a good idea. B vitamins and Vitamin C are water soluble and easily excreted if not needed. Has you doctor checked for nutritional...
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Google say: "Remission is the reduction, abatement, or disappearance of the signs and symptoms of a disease, particularly cancer or chronic illnesses." So, you have the right idea...
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Mother cells that produce antibodies live for about two years. If you can go those two years without getting the same mother cells triggered, the body may return to remission. But nutritional deficiencies must be corrected as well.
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@xxnonamexx, Have you considered whether you may have Small Intestinal Bacterial Overgrowth? Thiamine B 1 is needed to turn sugar into energy. Without sufficient Thiamine the dietary sugars and sugar alcohols are fermented by bacteria from the colon that crawl into the small intestines, causing gas and bloating. Interesting to note that...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Thiamine Mononitrate isn't absorbed nor utilized well. I'm sure you'll get better results with the thiamine hydrochloride! Let me know how it goes! -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Are you taking the 500 mg all at once? Higher doses all at once are needed. Try taking 500 mg in the morning and then add 500 mg in the afternoon. Some people don't get the best effects at first until they get their dosage up to 1500 to 2000 mg a day (in two or three doses). I had been taking 100 mg several times a day, and it didn't... -
@Ben Cohen, Have you tried pasta? I would definitely stay away from the alcohol as it's going to do additional damage not caused by the gluten in it. Be encouraged.
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Can you tell us about your experiments? Are you consuming dairy, too?
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Human Leukocyte Antigen genes are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes code for immune cells. Some immune...
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Thiamine and Autoimmune Diseases Human Leukocyte Antigens are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes...
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Can you get your blood tests done before you stop the gluten challenge? If you're having such difficulty with the gluten challenge, I wonder how high the antibody level is now.
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Test interpretations
knitty kitty replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Failure to gain weight on a high calorie diet points to nutritional deficiencies in B vitamins, especially Thiamine B 1. A person can eat a diet high in calories, but not consume sufficient amounts of the eight B vitamins necessary to turn those calories into fuel for the body and for healthy weight gain. Do get checked for nutritional deficiencies... -
Unexplained abdominal pain can be caused by insufficient Thiamine in the gastrointestinal tract, called Gastrointestinal Beriberi. I used to get that, especially after a high carbohydrate meal. Doctors miss it easily. Once I started Thiamine/Benfotiamine supplements, symptoms improved quickly. Tell your brother to ask for an Erythrocyte Transketolace...
