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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    Are you taking the 500 mg all at once? Higher doses all at once are needed. Try taking 500 mg in the morning and then add 500 mg in the afternoon. Some people don't get the best effects at first until they get their dosage up to 1500 to 2000 mg a day (in two or three doses). I had been taking 100 mg several times a day, and it didn't...
  2. knitty kitty
    @Ben Cohen, Have you tried pasta? I would definitely stay away from the alcohol as it's going to do additional damage not caused by the gluten in it. Be encouraged.
  3. knitty kitty
    Can you tell us about your experiments? Are you consuming dairy, too?
  4. knitty kitty
    Human Leukocyte Antigen genes are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes code for immune cells. Some immune...
  5. knitty kitty
    Thiamine and Autoimmune Diseases Human Leukocyte Antigens are coded for in our DNA. They act like street signs on cells so the body knows that they are "Self". Tissue typing in organ transplantation looks for donors with "Self" street signs similar to the recipient's in order to prevent rejection of the transplanted organ. The HLA DQ genes...
  6. knitty kitty
    Can you get your blood tests done before you stop the gluten challenge? If you're having such difficulty with the gluten challenge, I wonder how high the antibody level is now.
  7. knitty kitty
    Failure to gain weight on a high calorie diet points to nutritional deficiencies in B vitamins, especially Thiamine B 1. A person can eat a diet high in calories, but not consume sufficient amounts of the eight B vitamins necessary to turn those calories into fuel for the body and for healthy weight gain. Do get checked for nutritional deficiencies...
  8. knitty kitty
    Unexplained abdominal pain can be caused by insufficient Thiamine in the gastrointestinal tract, called Gastrointestinal Beriberi. I used to get that, especially after a high carbohydrate meal. Doctors miss it easily. Once I started Thiamine/Benfotiamine supplements, symptoms improved quickly. Tell your brother to ask for an Erythrocyte Transketolace...
  9. knitty kitty
    @suek54, Do get your Vitamin D checked as well. Vitamin D is frequently low in people with autoimmune diseases including Celiac and Dermatitis Herpetiformis, Diabetes, and Addison's. Do get Vitamin E checked as well because it can help if taking Dapsone. Check for deficiencies in B vitamins that can cause peripheral neuropathy beyond just Folate...
  10. knitty kitty
    Maybe we should call it "silent tummy" Celiac. 😺hahaha!
  11. knitty kitty
    These are symptoms of Celiac Disease. They may be outside the gastrointestinal tract (extra-intestinal), but they are symptoms commonly found in Celiac Disease. "Mild villous blunting and intramucosal lymphocytes" are "gold standard" diagnostic findings in Celiac disease. The amount of gluten you eat can affect the severity of gastrointestinal symptoms...
  12. knitty kitty
    @jenniber, Your brother can get a genetic test to look for Celiac genes. You don't need to eat gluten for a genetic test. Diabetes is an autoimmune disease that is associated with Celiac Disease. Thiamine B1 insufficiency is frequently found Diabetes. I have Diabetes and Celiac myself. Supplementing with essential vitamins and minerals...
  13. knitty kitty
    @Tobo, Have you been checked for nutritional deficiencies? Do you currently take a multivitamin or other vitamins or supplements? Amitriptyline is one of the medications I was prescribed. Amitriptyline is one of the drugs that can cause thiamine insufficiency by blocking thiamine uptake and preventing thiamine from entering cells. Fatigue...
  14. knitty kitty
    Welcome to the forum, @Lizie, Do you know the reference range of the tTg IgA test? Every lab has their own reference ranges. The tTg IgA antibodies are made in response to gluten. The fact that you were cutting back on gluten before the test could explain why the numbers were lower than you expected. A negative EMA is not unusual with a reduced...
  15. knitty kitty
    People with diabetes may have genetic variations that cause their thiamine transporters to not absorb thiamine as well. This functional thiamine deficiency can cause inflammation and diabetes. Thiamine is needed to down regulate the inflammatory cytokines. Genetic Variants of the Human Thiamine Transporter (SLC19A3, THTR2)—Potential Relevance i...
  16. knitty kitty
    @Heatherisle, You have good reason to worry. Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency. Thiamine deficiency is frequently found in B12 deficiency. Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease. Thiamine can run out in as little as three days...
  17. knitty kitty
    @Healthierbody2026, Welcome to the forum. We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease. Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease. This can delay a correct diagnosis for as long as ten years or longer. During...
  18. knitty kitty
    @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
  19. knitty kitty
    Welcome, @anya22, Can you tell us more about your diet? How much gluten containing foods did you eat? What kinds of gluten containing foods did you eat? What has your high calorie diet consisted of? Some gluten containing foods contain less gluten than others. Cakes and cookies may have less gluten than something like deep dish...
  20. knitty kitty
    @Jmartes71, Have you tried a naturopathic or holistic doctor? Some posters in the past have commented theirs were more helpful than mainstream doctors.
  21. knitty kitty
    @HectorConvector, Have you tried taking 500 mg of the Thiamine Mononitrate that you have left? Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand. Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency. No harm in trying it. Neuroplastic...
  22. knitty kitty
    It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues. As more B12 becomes available, the body will adjust how much folate to absorb from the diet. Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver. (Avoid spinach due to high oxalates and risk...
  23. knitty kitty
    Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication...
  24. knitty kitty
    @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
  25. knitty kitty
    @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy. I hope you've been able to acquire thiamine hydrochloride or Benfotiamine. I'm concerned. Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the ...
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