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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hi, Kathy! Yes, I've had the prickily-tinglies under my skin where I couldn't stand clothing (especially polyester and synthetic blended materials). I took to wearing my hair pinned up so it wouldn't be itchy on my neck and shoulders. I took to avoiding hot showers. I found my prickily-tinglies were due to deficiencies in several B Complex vitamins...
  2. knitty kitty
    Itchy skin without any rash can be peripheral neuropathy, frequently caused by vitamin deficiencies common in Celiac Disease. How much gluten were you eating? How many weeks did you eat this amount before the blood tests?
  3. knitty kitty
    Hi, @Grace782617274, I've had a similar experience where I was assured by the restaurant manager they could provide a gluten free meal, and promptly served me a salad with croutons. Heavy sigh. Take it as a lesson learned. The majority of people out there are probably clueless about what's in their food, never mind yours. Ask for wheat...
  4. knitty kitty
    Welcome, @Flower Fairy, We recommend a good B Complex, Vitamin D and magnesium glycinate. Eat green vegetables like kale, broccoli, and mustard greens for calcium. Avoid spinach if you're a stone former! You need magnesium, the eight essential B vitamins and Vitamin D to get calcium into your bones and prevent more from coming out.
  5. knitty kitty
    @Deb67, welcome! You're not the only one! I tried Swheat Scoop many, many years ago. It made me terribly sick, too! It was just another clue on my journey to Celiac diagnosis. You're in good company!
  6. knitty kitty
    @Gilly M, Wonderful to hear you're having improvements! The sleep thing can be improved if you get your Vitamin D level up to a minimum of 80 nMol/L. You can take Vitamin D with each meal throughout the day. Taking larger doses will help refill your depleted stores quickly and is not harmful. Vitamin D helps reduce inflammation and calms down...
  7. knitty kitty
    There's a link between anxiety and panic attacks and Thiamine deficiency. I had panic attacks like you describe. My doctors sent me on the same mental health runaround. It's THIAMINE deficiency. Thiamine is needed to control the fight or flight response. In Thiamine deficiency, that response can be activated with little provocation. "For anxiety...
  8. knitty kitty
    Thanks for clearing that up, @Scott Adams!
  9. knitty kitty
    @Emma R., So happy to hear you're doing better! Are you taking a B Complex or are you taking just B12? Big difference. You need all eight B vitamins, not just B12. This is a good one. https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?gclid=EAIaIQobChMIy7e2yK3p_wIVbWpvBB2Mwg0oEAAYASAAEgKx3PD_BwE ...
  10. knitty kitty
    @Emma R., How are you doing? Have your symptoms improved? Have you tried a low histamine diet? Are you supplementing with vitamins and minerals? Hope you're doing better!
  11. knitty kitty
    Yes, loss of appetite is one of the early symptoms of Thiamine deficiency. Thiamine is Vitamin B1. There are eight essential B vitamins. We cannot make them so we must get them from the diet every day. Malabsorption due to the damage done to our small intestine in Celiac Disease can make absorbing sufficient nutrients difficult. Thiamine...
  12. knitty kitty
    @scowt1, Take the appointment with the Celiac Disease specialist. You were not happy with the first doctor. I would not be either. Doctors tend to brush off questions and avoid conversations about things they are not knowledgeable about. Run to the Celiac specialist! Remember, you are hiring the doctor. If they were mechanics...
  13. knitty kitty
    @fergusminto, I found following a low histamine diet and taking certain vitamins that help break down histamine helped me. Here's an explanation of the low histamine diet... https://www.verywellhealth.com/what-is-a-low-histamine-diet-4694529 And... Low-Histamine Diets: Is the Exclusion of Foods Justified by Their Histamine Content...
  14. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
  15. knitty kitty
    Blood levels are not an accurate measurement of vitamins in your body. Most vitamins are used inside cells of organs. The brain likes to keep a certain level in the blood to supply important organs like the brain and heart. So the brain orders the cells to give up their vitamin stores in order to keep the blood homeostasis and supply the brain and heart...
  16. knitty kitty
    @Kurlykaitlyn, So sorry you are still not feeling better. Your symptoms "extremely fatigued, light headed, and nauseous" are typical symptoms of Thiamine deficiency, as are vertigo, sensorineural hearing loss, blurry vision, and bladder control problems. Anorexia and gastrointestinal symptoms often accompany Thiamine deficiency. Thiamine...
  17. knitty kitty
    It's more likely that you are deficient in zinc and the copper has just built up. Zinc and copper balance each other out. Increased serum copper and decreased serum zinc levels in children with iron deficiency anemia https://pubmed.ncbi.nlm.nih.gov/9522044/ And... Decreased Zinc and Increased Copper in Individuals with Anxiety https...
  18. knitty kitty
    One has to be eating gluten for the body to make the anti-gluten antibodies tested for with both of those tests. When one stops eating gluten for months, the body is no longer provoked to make anti-gluten antibodies, so the antibody levels go down. The anti-gluten antibodies in the tTg IgA decreased. It's not surprising the other test, the EMA...
  19. knitty kitty
    Doctors and other health care professionals get kickbacks (money) for promoting those supplements. https://www.standardprocess.com/practitioner-benefits
  20. knitty kitty
    A Genetic test doesn't require consuming gluten. Genetic tests for OP and the kids seem reasonable.
  21. knitty kitty
    Hi, @Courtney09, DH will flare up when exposed to sunlight, but you must have the antibodies produced when exposed to gluten in your system. Granted, anti-gluten antibodies may stay in your system for several weeks after exposure to gluten. However, if you have not been exposed to gluten recently, you may be suffering from a deficiency in Niacin Vitamin...
  22. knitty kitty
    @eKatherine, People are more likely to be reacting to the high levels of cortisol, a stress hormone, in animals raised in crowded conditions. Cattle fed in crowded feedlots contain higher levels of cortisol than cattle allowed to graze in pastures. Dairy cows have higher levels of cortisol in their milk if not allowed to graze. Same with chickens...
  23. knitty kitty
    @trents, We don't know the wife's side of the story. But as posted, Eric OP hasn't painted her in the best light, either, although he seems reluctant to do so. For those of us who have encountered people with symptoms of narcissistic personality disorder or munchausen syndrome, we see red flags. Not so much "piling on his spouse", but responding...
  24. knitty kitty
    @trents, Since we are not allowed to diagnose on this forum, most of us can, and do, offer information from our own personal experiences for comparison. Putting a framework around a problematic situation can help define and direct the potential paths one could take. It is the OP's responsibility to choose the framework best suited to his...
  25. knitty kitty
    You'll feel much better when your Vitamin D level gets up into the 80's where it is supposed to be. At 80's level, Vitamin D can act like a hormone, like it's supposed to. Polynesian people who dress and live in traditional ways have Vitamin D levels between 80 and 120 nMol/L. So that's where we want ours, too. (But no island life. 😿) I be...
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