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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Do you remember the number? Mine was severely low, like single digits. I took Vitamin D3. (The doctor had prescribed Vitamin D 2, a synthetic form that the body cannot utilize well.) I took lots of Vitamin D3. I ate them like M&M's actually because my body craved them so. Really weird, yes, but it brought my Vitamin D level up quickly...
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Dr found my kidneys are having problems
knitty kitty replied to ButWhatCanIEat's topic in Related Issues & Disorders
The dose recommended as a laxative is over the RDA because it doesn't get absorbed and stays in the digestive tract producing loose stools. You want a form of magnesium that is better absorbed and useful to the body. If you can't absorb sufficient magnesium, the body pulls magnesium out of the bones contributing to osteoporosis. https://ods... -
Dr found my kidneys are having problems
knitty kitty replied to ButWhatCanIEat's topic in Related Issues & Disorders
Magnesium Glycinate is much more easily absorbed. Magnesium hydroxide is not absorbed much. It stays in the intestines and draws water into the intestines and you get diarrhea. Magnesium hydroxide is in Milk of Magnesia, used for constipation relief. -
Dr found my kidneys are having problems
knitty kitty replied to ButWhatCanIEat's topic in Related Issues & Disorders
Try taking Benfotiamine. Thiamine and magnesium work together. NSAIDS cause continuing damage to the lining of the small intestine. Benfotiamine has been shown to help heal the digestive tract. You may have developed vitamin and mineral deficiencies on a gluten free vegetarian diet. Thiamine, Pyridoxine B6 and Cobalamine B12 will... -
Dr found my kidneys are having problems
knitty kitty replied to ButWhatCanIEat's topic in Related Issues & Disorders
Magnesium would be a better choice to help with the need for an antacid. Not only is magnesium needed to work with Thiamine, magnesium has been shown to help with kidney failure. Low serum magnesium is associated with faster decline in kidney function: the Dallas Heart Study experience https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6660364/ ... -
Extreme constipation
knitty kitty replied to Timothy Felt's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Confused52, You might try Thiamine Vitamin B 1 because it helps alleviate pain and improves arthritis. Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5102562/ And... Mechanisms of action of vitamin... -
Dr found my kidneys are having problems
knitty kitty replied to ButWhatCanIEat's topic in Related Issues & Disorders
Sorry to hear about your health complications. For pain relief, I take high dose Thiamine Vitamin B 1, Pyridoxine Vitamin B 6, and Cobalamine Vitamin B12. I can't take NSAIDs either. Here are articles from the National Institute of Health.... Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov... -
Extreme constipation
knitty kitty replied to Timothy Felt's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Low magnesium can cause constipation. https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/ -
My bloods coming back negative
knitty kitty replied to Kitkatco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Kitkatco, We're you checked for diabetes? Uncontrolled diabetes can cause all the symptoms you related (diarrhea, joint pain, peripheral neuropathy, itchy skin rashes, ADHD, and anxiety). If you've been eating a high carbohydrate diet (more than 55% carbohydrates make up your diet), you could be on your way to diabetes. Diabetics lose much... -
The unsolved bloating mystery!
knitty kitty replied to Elisec4's topic in Related Issues & Disorders
@Elisec4, Welcome to the forum! Did your doctor bother to check your magnesium level? Low magnesium levels can cause constipation. Low magnesium levels can cause bloating. Low magnesium levels can cause bone loss. Low magnesium levels affect the parathyroid which in turn regulates insulin production in the pancreas resulting... -
@tygerlily, Hello! Glad to hear you're trying a gluten free diet! I found the Autoimmune Protocol Diet to be very helpful in healing and calming those GI symptoms. Look for the book The Paleo Approach by Dr. Sarah Ballantyne (Celiac herself) and her cookbooks. The AIP diet cuts out dairy and processed gluten free facsimile foods, and...
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@PME, Yes, definitely, most conventional medical doctors don't have a clue about nutritional factors in diseases. Like most of our readers, I had become very ill with undiagnosed Celiac Disease and was searching for answers. I was blessed with the opportunity to attend university. Being a very curious kitty, I explored studies in a wide variety...
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@Rogol72 is right. Not only do people eating fast food develop nutritional deficiencies, emotional stress can drain our own reserves of vitamins and minerals. A good B Complex and some extra thiamine as benfotiamine can help us deal with stress better. https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex...
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Yes, I add in those same things occasionally. It really helps control my type two diabetes. I had Metabolic Syndrome before I started the AIP diet and my body composition has changed, too. It's great, but the AIP diet can be low in some nutrients. Consider supplementing with a good B Complex, Vitamin D (calms the immune system) and Benfotiamine (a form...
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Celiac is genetic, so opting for genetic tests all around may be beneficial. Especially for your daughter. I know how she feels from my own experience of being put in that position. You're being a good dad. Kudos! I would not be surprised if Michelle had Celiac herself and is in staunch denial. (Celiac can cause vitamin deficiencies. Some...
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Don't feel bad about venting your frustration! What you're asking is understandable and justifiable. Never mind about couples counseling. Get some counseling for yourself. You need a safe person to vent to, one that can give you tools to cope with this. Take the kids, too. This is stressful and damaging to them, too. Not a good example for one...
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@Stulos, I understand completely! My whole family has been that way. I had a genetic test done to prove it. They still say they don't have it (but have big bloated bellies). You should get genetic testing done to see if you carry any genes for Celiac. Your symptoms certainly sound like Celiac. Mast Cell Activation Syndrome goes along with...
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Gluten free perfume?
knitty kitty replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
Perfumes can be a blend different individual fragrance components together... read the description in the advertising of what goes into a fragrance. Some of those "nutty undertones" may be from wheat. I like Vintage Tradition Tallow Balm. It's all natural, clearly labeled, smells wonderful and lasts longer than perfume. @Scott Adams, I wish... -
Here's links to the kind of Benfotiamine I take... 250mg https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine Or...100 mg https://www.lifeextension.com/vitamins-supplements/item00920/benfotiamine-with-thiamine Vitamin D 3 in cold pressed olive oil... you want your Vitamin D in the 80 nMols/L or better range...
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Can you have DH with negative blood tests?
knitty kitty replied to Gusmom's topic in Dermatitis Herpetiformis
@Gusmom, Doctors seem to forget there are eight essential B vitamins and B12 is just one of those. B12 needs Folate B9, and Pyridoxine B6 to function properly. Pyridoxine B6 needs Riboflavin B2 which needs Thiamine B1 and Niacin B3. They are all interconnected. There is a higher rate of Celiac Disease in people with Diabetes. Since Diabetes... -
Gluten free perfume?
knitty kitty replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
I Googled "wheat in perfume" and got lists of perfumes that contain wheat. -
@Kurlykaitlyn, I'm very concerned. You said "i woke last night after only an hour sleep and felt very weak and like I might faint on my way to the bathroom, plus chills. But no fever 😕 so idk." Feeling weak and syncope (fainting) can occur in Thiamine deficiency because the body has trouble regulating blood pressure. Chills can occur be...