Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,316

  • Joined

  • Last visited

  • Days Won

    163

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Gusmom, Doctors seem to forget there are eight essential B vitamins and B12 is just one of those. B12 needs Folate B9, and Pyridoxine B6 to function properly. Pyridoxine B6 needs Riboflavin B2 which needs Thiamine B1 and Niacin B3. They are all interconnected. There is a higher rate of Celiac Disease in people with Diabetes. Since Diabetes...
  2. knitty kitty
    I Googled "wheat in perfume" and got lists of perfumes that contain wheat.
  3. knitty kitty
    @Kurlykaitlyn, I'm very concerned. You said "i woke last night after only an hour sleep and felt very weak and like I might faint on my way to the bathroom, plus chills. But no fever 😕 so idk." Feeling weak and syncope (fainting) can occur in Thiamine deficiency because the body has trouble regulating blood pressure. Chills can occur be...
  4. knitty kitty
    We recommend a good B Complex, Vitamin D, and magnesium glycinate. Also, extra Thiamine Vitamin B 1(in the form Benfotiamine) is beneficial in healing the intestinal damage.
  5. knitty kitty
    @Gutaid, We're you checked for vitamin and mineral deficiencies? Certain vitamin deficiencies can cause peripheral neuropathy. Nerve conduction tests reflect the damage done to the nerves, but not the cause. Nerve damage caused by vitamin deficiencies can be reversed or improved. Deficiencies in any of these Niacin Vitamin B 3, Thiamine...
  6. knitty kitty
    @Gusmom, Diabetes and anemia can cause false negatives on antibody tests for Celiac Disease. Also several vitamin deficiencies can cause nerve damage that feels like itching and skin problems. Deficiencies in any of these: Vitamin C, Cobalamine Vitamin B 12, Niacin Vitamin B3, and Thiamine Vitamin B 1. Do your spots get worse when exposed...
  7. knitty kitty
    @Scott Adams, Yes, fairly recently, by Jefferson, I believe. I'll look through my bookmarks again. Thanks for trying!
  8. knitty kitty
    @Ambreen kelly, I have DH. I've found foods high in iodine will trigger my DH even though I'm gluten free. High iodine foods include iodized table salt, sea salt, seafood, especially crustaceans, and dairy products. Niacin Vitamin B3 will help DH heal faster. Hope you feel better soon!
  9. knitty kitty
    This article will help your research on nutritional deficiencies...
  10. knitty kitty
    @Kurlykaitlyn, Sounds like you are suffering from malnutrition. You may want to seek medical care soon. Medical professionals can give you a "banana bag" intravenously full of vitamins. The banana yellow color is from Riboflavin Vitamin B 2. You may be suffering from gastrointestinal beriberi, a deficiency in Vitamin B1. Thiamine works as...
  11. knitty kitty
    There's an article (about how high antibody levels reflect how severely damaged the small intestine is) around here some place. Maybe @Scott Adams can help me find it. So, your doctors were wise to not put you through additional stress in your degree of illness. They may want you to do an endoscopy in future to check on your healing progress. But...
  12. knitty kitty
    Here's a study done that shows thiamine is necessary for the regulation of cholesterol in the body. Organic cation transporter 1 (OCT1) modulates multiple cardiometabolic traits through effects on hepatic thiamine content https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.2002907 And another... http://www.jcpsp...
  13. knitty kitty
    I took high dose Thiamine. The World Health Organization says that a thiamine deficiency can be diagnosed if improvement is seen after the person has taken 500-2000 mg of Thiamine Hydrochloride for several days. Thiamine should be continued for several months afterwards. The last article I linked in my previous post has some information. Intravenous...
  14. knitty kitty
    Yes, it would be very odd indeed.
  15. knitty kitty
    @Aussienae, Yes, I think you did the right thing to go gluten free immediately after the blood tests because they definitely are positive for Celiac Disease. You can always get a genetic test if you are still wobbling. The presence of Celiac genes does not mean you have Celiac Disease. It means you have the potential to develop Celiac Disease...
  16. knitty kitty
    @PME, Yes, as @trents said, seek medical attention soon! I took the same medications and had similar results. These medications cause certain vitamin and mineral deficiencies. As a consequence, I had my gallbladder removed and suffered from a severe Thiamine deficiency. Malabsorption due to Celiac Disease also contributed. My doctors did not...
  17. knitty kitty
    @Gilly M, Good morning! Proud of you for trying a dairy free weekend. Yes, butter is out, too. I get lots of information to post from the National Institute of Health. It's free, so everyone can read and research for themselves. https://ods.od.nih.gov/factsheets/VitaminB6-HealthProfessional/ and... https://ods.od.nih...
  18. knitty kitty
    @Gilly M, How much magnesium are you taking daily? What kind of magnesium are you taking? What formulation? You said in an earlier post you have osteopenia, and in the post above, you're still dumping oxalates. Although you've mentioned taking a magnesium supplement, I'm thinking you may want to try increasing your magnesium. Magnesium...
  19. knitty kitty
    @Gilly M, Try taking 500 mg of thiamine hydrochloride. Take 300 mg and three hours later take 200 - 300 mgs more. Take 500 mg thiamine hydrochloride for three to five days. If you see improvements, continue taking it in this manner. You can add Benfotiamine in addition to the thiamine hydrochloride. If you take the 500 mg thiamine consistently...
  20. knitty kitty
    @Km592, Welcome to the forum! @trents has given you great information! As a veteran celiac survivor with dermatitis herpetiformis myself, sometimes we have more damage on our skin than apparent in our guts. I find avoiding iodine (as in iodized table salt,sea salt, dairy and shellfish) very helpful in reducing DH outbreaks. DH...
  21. knitty kitty
    @Gilly M, If you are able, add benfotiamine in as soon as you can. Your body is trying to deal with the oxalates - glyoxal - but is running out of thiamine dependent enzymes towards the end of the process, resulting in increasing problems with oxalates. Since you say you can't tolerate the thiamine hydrochloride form in the higher dose needed...
  22. knitty kitty
    Welcome to the forum! Those oval deposits could be eggs of intestinal parasites. Or it could be something else. Here's an interesting article.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3530996/
  23. knitty kitty
    Double check this for me.... "Usually, oxalate combines with calcium in the gut and exits the body through stools." https://www.mayoclinic.org/diseases-conditions/hyperoxaluria/symptoms-causes/syc-20352254 High oxalate diet increases oxalates in blood and urine.... Diet-induced oxalate nephropathy from excessive nut and seed...
  24. knitty kitty
    Muscle spasms, twitches, POTS (postural orthostatic tachycardia syndrome), tachycardia, deafness, Gastroparesis, problems with oxalates, and white spots on the brain are all indicative of Thiamine Deficiency. Read for yourselves, please. Marginally Insufficient Thiamine Intake and Oxalates https://www.hormonesmatter.com/marginally-insufficient...
  25. knitty kitty
    @Tall Holly, Since Celiac Disease damages the small intestine more severely over time, I'm of the opinion that many people who are diagnosed with NCGS just haven't sustained the major damage (Marsh Three) of Celiac Disease, yet. I thought these articles might be of interest to you. Carrier frequency of HLA-DQB1*02 allele in patients affected...
×
×
  • Create New...