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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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A couple of articles for you... Epileptic manifestations and vitamin B1 deficiency https://pubmed.ncbi.nlm.nih.gov/2044623 "Sixteen of 50 consecutive neurological patients with a diagnosis of thiamine deficiency showed epileptic or epileptiform manifestations. A survey of the literature revealed only few reports on a possible relationship...
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Reacting to almond butter anyone else
knitty kitty replied to Raquel2021's topic in Coping with Celiac Disease
Do you eat other veggies besides those in your green smoothie? Some vegetables must be cooked in order for the nutrients to be available for absorption in the digestive tract. Neurological symptoms can be caused by B12 deficiency, but also we need Thiamine B1, Riboflavin B2, Niacin B3, Pyridoxine B6, and Folate B9 to help Cobalamine B12 and... -
@CareyOsborne Hi, I'm sorry you're having such problems. In Celiac Disease, malabsorption affects all the essential vitamins and minerals across the board. I had severe vitamin deficiencies in several vitamins, but the one vitamin deficiency that caused severe ataxia was Thiamine. Anxiety, panic attacks, slurred speech, deep dark depression...
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@Moogle39, Take the test for deficiency before you start supplementing, otherwise a blood test will just reflect the vitamin supplement. You might want to add more Vitamin C foods to your diet, too. Keep us posted on the results! Best wishes!
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@heyitsmissa, Did you ever get an endoscopy with several biopsy samples taken from the small intestine? Have you been eating gluten all this time???!!!??? Why didn't they diagnose Celiac based on your previous tests? Are you taking any medications? I'm thinking vitamin deficiencies. Vitamin D deficiency Vitamin D...
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Hi, @Moogle39, Do you have diabetes or pre-diabetes? Have you been getting enough Vitamin C? What sorts of food are you eating?
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Reacting to almond butter anyone else
knitty kitty replied to Raquel2021's topic in Coping with Celiac Disease
@Raquel2021, Sorry to hear you're still having some problems. I suggest you try the Autoimmune Protocol Diet, designed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet has been scientifically studied and shows the diet helps reduce inflammation and helps in healing the digestive tract. The AIP diet doesn't include... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Looks awful. It only has Vitamins A and C. All the rest of the list are amino acids. Not vitamins. Amino acids are like building blocks. You need vitamins to stick them together to make proteins that build muscles. -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just wanted to add that you only need one gene for Celiac Disease to potentially develop. You can inherit one Celiac gene from your mom and develop Celiac Disease. -
Enough protein?
knitty kitty replied to shadycharacter's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@shadycharacter, I make sure I'm getting enough protein by eating lots of meat, like @Scott Adams. I follow the AIP diet, though I do throw in Basmati or wild rice every so often. I focus on nutritionally dense meats...like liver, duck, and salmon. These contain Omega Three fats that help the brain function and are needed to repair the intestinal... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Yes, rice can be a problem. Have you tried eating a grain free diet? Rice and other grains have "lectins" (fiber) that is hard to digest and can irritate the digestive tract. Removing grains, rice, and pseudo grains like quinoa gives the digestive tract a break, allowing time and environment for healing. Not eating dairy products... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Yes, green could be blueberries. The sandy texture could mean very slow transit time, diarrhea, high oxalates in the diet, or bleeding from high up in the digestive tract. Bloody stools usually indicate bleeding in the lower part of the digestive tract. Exhaustion may be caused by anemia from iron deficiency and vitamin deficiencies... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The description of your bowel movements concerns me. The green color may be bile from the gallbladder. The sand like texture and the black color may indicate blood being passed which is worrisome. You're not absorbing Thiamine and the B vitamins from your food. In Celiac Disease, the small intestine gets damaged where the B vitamins are usually absorbed... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Welcome to the forum! Thiamine Vitamin B 1 is necessary to turn carbohydrates into energy. Obesity is connected to insufficient Thiamine. Thiamine is found in meats. Liver is a good source of thiamine. The body stores excess carbohydrates as fat. If you increase your thiamine intake through food or supplements, your body... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, If you change your diet, the bacteria in the intestines change according to what one eats. Some bacteria feed on soluble fiber and make butyrate. The AIP diet includes veggies with soluble fiber and some fermented foods with soluble fiber. Adding these to the diet will help feed the butyrate producing bacteria in the gut. Seems... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, Gee, Rebecca, Molkosan' label says it doesn't contain lactose. Lactose is the sugar in dairy products that causes problems. Lactose intolerance in Celiac Disease is fairly common. The tips of the intestinal villi produce an enzyme, lactase, that breaks down the sugar in dairy, lactose.In Celiac Disease, the villi are damaged... -
Headache
knitty kitty replied to Raptorsgal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not getting enough thiamine causes headaches. Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey https://pubmed.ncbi.nlm.nih.gov/36047917/ "We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females." And... B vitamins... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
https://www.celiac.com/search/?&q=Melanoma&type=cms_records2&search_and_or=and Was it one of those? -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Thiamine deficiency disorder describes many of your symptoms. -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, Have you been checked for vitamin and mineral deficiencies? Sometimes subclinical vitamin deficiencies cause healing to take much longer. Talk to your doctor and nutritionist about supplementing with the eight essential B vitamins, Vitamin D, and minerals like iron and magnesium. Your nutritionist can help you to plan a nutrient... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Elevated uric acid and gout are sometimes caused by Thiamine deficiency. -
Still waiting...
knitty kitty replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@AnneMcM, You're almost to June! Hang in there! I had pain on my right side up under my ribs. Turned out it was my gallbladder. Mention it to your doctor and the doctor doing the endoscopy. They can check the gallbladder while you're under. A poorly functioning gallbladder is not unusual in Celiac Disease. The gallbladder doesn't work... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
I think this might be the article ... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Pineapple juice.... Have you looked into Fructose Malabsorption Syndrome?