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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Are you taking a B Complex supplement? Several of the eight essential B vitamins can help reduce anxiety, Cobalamine B12, Thiamine B1, and Pyridoxine B 6. But all eight are needed for them to function properly. Magnesium and Vitamin D help, too. Anxiety and depression are early symptoms that you may have insufficiency in vitamins and minerals...
  2. knitty kitty
    Check for diabetes and anemia, too.
  3. knitty kitty
    Dermatitis Herpetiformis is a skin condition that occurs with Celiac Disease. DH can take different forms... Have you looked at the pictures in the photo bank in the Dermatitis Herpetiformis section of the forum? https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  4. knitty kitty
    Yes, I understand. Your son should use some pain he has experienced as a reference to describe his pain from stomach cramps. I'm concerned as to why he wants to use that particular comparison. He may get laughed at or bullied. Perhaps this may help.... "How can I describe my pain to my health care provider?" https://www.nichd...
  5. knitty kitty
    @PrismagicMushroom, Yes, Celiac Disease can be precipitated after an infection. During an infection, our bodies can run short on Vitamin B1, Thiamine. High dose Thiamine can help recovery. Vitamin D deficiency can cause symptoms of arthritis. Celiac Disease damages the small intestine where vitamins and minerals are absorbed. Supplementing...
  6. knitty kitty
    @PrismagicMushroom, What prompted you to go to the doctor? Maybe better said, what prompted the doctor to test for Celiac?
  7. knitty kitty
    Yes, I avoid the bakery section, too. Some highly sensitive people can have a reaction to inhaled gluten. We smell "stuff" because little molecules of that "stuff" get airborne and finds its way to our nose, triggering smell receptors. The "stuff" gets stuck in the mucus produced by the mucus membranes in the nose which drains down the back...
  8. knitty kitty
    @PrismagicMushroom, Welcome to the club! Looks like your DGP test is positive and you only need one positive test. Have you been eating gluten prior to the blood tests?
  9. knitty kitty
    @Sarah8527, That's like comparing apples and oranges. I discourage the use of that comparison. It's two different organs that function in two different ways, hence different kinds of pain. Instead use some injury your son is more familiar with. If your son ever got a Charlie horse, stubbed his toe, or sprained his ankle. Or better yet, say...
  10. knitty kitty
    White rice is easily broken down into glucose. Our brains like to run on glucose. Unfortunately, white rice is usually enriched with thiamine mononitrate, which is shelf stable, but not a bioavailable form our bodies can use. Benfotiamine is a form of thiamine that helps promote healing in the small intestine. Hiding in Plain Sight:...
  11. knitty kitty
    Exactly! Not staying on gluten until all testing is completed is a huge problem! Many doctors don't understand that antibodies go away if one goes off gluten. We have many members who have questionable blood tests for the reason they tried a gluten free diet at home, felt better, then went to the doctor and asked for Celiac tests. Their antibodies...
  12. knitty kitty
    @Rogol72, Just a few weeks, if even that. I had improvement in digestive symptoms within the first few days which kept improving. It wasn't long before my bloated (ten months pregnant looking) abdomen began to flatten and I could find my hip bones again. Six to eight weeks maybe. No, I did not take probiotics nor antimicrobials. The microbiome...
  13. knitty kitty
    @Lizi, I encourage you to eliminate dairy, too. The protein in dairy, casein, resembles the gluten molecule (molecular mimicry), so dairy can cause continuing inflammation. Dairy is debilitating for me. I get dizzy, depressed and demented when I consume dairy. Dairy and gluten are sources of exogenous opioids. We have opioid receptors...
  14. knitty kitty
    It's possible. People can be so messy and get crumbs everywhere! If the towel is dry, I would think giving it a good shake outside would get most crumbs off. If the towel is damp or wet, more crumbs might stick to it, so I would throw that towel in the laundry and give it a good wash. You're doing so well. You are impeccable about cross contamination...
  15. knitty kitty
    @Stacey grint, Iron deficiency is a common symptom of Celiac Disease, especially in the early stages. I'm so glad doctors are recognising the connection now. Here's a science-y article about it... Anemia in Celiac Disease: Prevalence, Associated Clinical and Laboratory Features, and Persistence after Gluten-Free Diet https://www...
  16. knitty kitty
    My favorite AIP diet book is "The Paleo Approach" by Dr. Sarah Ballantyne. https://www.thepaleomom.com/autoimmune-protocol-clinical-trials-and-studies/ Dr. Ballantyne is Celiac herself, and developed the AIP diet for herself and her Celiac kids. The AIP diet has been scientifically proven to promote intestinal healing. Hope this helps!
  17. knitty kitty
    @Maxipoo, I'm a curious kitty. What are your strange medical symptoms? Why did you go to a neurologist? I had subclinical vitamin and mineral deficiencies for years. An illness like Covid (any physical or emotional stressor) can push the body into a serious deficiency as the body's vitamin stores run out. Unfortunately, my doctors did not...
  18. knitty kitty
    @Lizi, Yes, a diet that eliminates all grains, pseudo grains, legumes, seeds and nuts is the Autoimmune Protocol Diet. Our gastrointestinal symptoms get a chance to rest, recuperate, and repair itself if we eliminate those foods for several months. The AIP diet has really helped me. A benefit has been that my SIBO is gone. SIBO is the overgrowth...
  19. knitty kitty
    @Dianasolvei, You could go ahead and get an endoscopy now WITHOUT a gluten challenge. Have lots of samples taken. This way you would get a baseline with which to compare future endoscopies to check for healing and if other problems arise. Some people who have really severe reactions and nutritional deficiencies may have flattened or absent villi...
  20. knitty kitty
    @Russ H, Thiamine, Vitamin B 1, chelates heavy metals like arsenic, lead, and cadmium, which the body can then easily excrete. Chelation makes the heavy metals nonreactive, harmless. Thiamine also protects DNA from mutation when exposed to radiation. I remember hearing about Thiamine tablets being distributed in Ukraine when the nuclear...
  21. knitty kitty
    @HannahLaF, The doctor saw your daughter's improvement after the virus and gluten free. Yes, some severe norovirus infections in young children can cause damage to the intestines. A gluten challenge for six weeks is necessary in order to test for antigliadin antibodies again. If your daughter's antibodies are high again, it's likely Celiac and...
  22. knitty kitty
    Oh, no, @MBjim. You might not have been eating enough gluten. On the forum, we've been saying at least two slices of bread a day. "You will need to eat a three to 10 grams of gluten per day, and two grams is roughly equivalent to a slice of bread." https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ Different types...
  23. knitty kitty
    Welcome to the forum, @MBjim! The damage done to the small intestine can vary. Are you familiar with Marsh scores? Marsh scores describe the severity of damage in the small intestine. Not eating sufficient gluten daily for at least two weeks prior to an endoscopy can affect how badly damaged and inflamed the small intestine becomes. ...
  24. knitty kitty
    @ac5858, After being on the gluten free diet for such a long time, it is more likely you have developed nutritional deficiencies. These are all symptoms of Thiamine deficiency. I know from experience, thiamine deficiency will cause Depression, extreme fatigue, headaches and brain fog, and canker sores and acne. Nutritional deficiencies...
  25. knitty kitty
    Nutritional deficiencies can play a part in pelvic pain...Since Celiac Disease can lead to nutritional deficiencies even on a gluten free diet, trial supplementation may be helpful. "Nutritional deficiencies and metabolic disorders are not uncommon among women with MFPP but may be overlooked by medical practitioners as an underlying contributor to CPP...
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