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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Hi, @Moogle39, Do you have diabetes or pre-diabetes? Have you been getting enough Vitamin C? What sorts of food are you eating?
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Reacting to almond butter anyone else
knitty kitty replied to Raquel2021's topic in Coping with Celiac Disease
@Raquel2021, Sorry to hear you're still having some problems. I suggest you try the Autoimmune Protocol Diet, designed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet has been scientifically studied and shows the diet helps reduce inflammation and helps in healing the digestive tract. The AIP diet doesn't include... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Looks awful. It only has Vitamins A and C. All the rest of the list are amino acids. Not vitamins. Amino acids are like building blocks. You need vitamins to stick them together to make proteins that build muscles. -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just wanted to add that you only need one gene for Celiac Disease to potentially develop. You can inherit one Celiac gene from your mom and develop Celiac Disease. -
Enough protein?
knitty kitty replied to shadycharacter's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@shadycharacter, I make sure I'm getting enough protein by eating lots of meat, like @Scott Adams. I follow the AIP diet, though I do throw in Basmati or wild rice every so often. I focus on nutritionally dense meats...like liver, duck, and salmon. These contain Omega Three fats that help the brain function and are needed to repair the intestinal... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Yes, rice can be a problem. Have you tried eating a grain free diet? Rice and other grains have "lectins" (fiber) that is hard to digest and can irritate the digestive tract. Removing grains, rice, and pseudo grains like quinoa gives the digestive tract a break, allowing time and environment for healing. Not eating dairy products... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Yes, green could be blueberries. The sandy texture could mean very slow transit time, diarrhea, high oxalates in the diet, or bleeding from high up in the digestive tract. Bloody stools usually indicate bleeding in the lower part of the digestive tract. Exhaustion may be caused by anemia from iron deficiency and vitamin deficiencies... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The description of your bowel movements concerns me. The green color may be bile from the gallbladder. The sand like texture and the black color may indicate blood being passed which is worrisome. You're not absorbing Thiamine and the B vitamins from your food. In Celiac Disease, the small intestine gets damaged where the B vitamins are usually absorbed... -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emanon, Welcome to the forum! Thiamine Vitamin B 1 is necessary to turn carbohydrates into energy. Obesity is connected to insufficient Thiamine. Thiamine is found in meats. Liver is a good source of thiamine. The body stores excess carbohydrates as fat. If you increase your thiamine intake through food or supplements, your body... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, If you change your diet, the bacteria in the intestines change according to what one eats. Some bacteria feed on soluble fiber and make butyrate. The AIP diet includes veggies with soluble fiber and some fermented foods with soluble fiber. Adding these to the diet will help feed the butyrate producing bacteria in the gut. Seems... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, Gee, Rebecca, Molkosan' label says it doesn't contain lactose. Lactose is the sugar in dairy products that causes problems. Lactose intolerance in Celiac Disease is fairly common. The tips of the intestinal villi produce an enzyme, lactase, that breaks down the sugar in dairy, lactose.In Celiac Disease, the villi are damaged... -
Headache
knitty kitty replied to Raptorsgal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not getting enough thiamine causes headaches. Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey https://pubmed.ncbi.nlm.nih.gov/36047917/ "We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females." And... B vitamins... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
https://www.celiac.com/search/?&q=Melanoma&type=cms_records2&search_and_or=and Was it one of those? -
Exploratory [NDNT]
knitty kitty replied to Emanon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Thiamine deficiency disorder describes many of your symptoms. -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
@Rebecca Clayton, Have you been checked for vitamin and mineral deficiencies? Sometimes subclinical vitamin deficiencies cause healing to take much longer. Talk to your doctor and nutritionist about supplementing with the eight essential B vitamins, Vitamin D, and minerals like iron and magnesium. Your nutritionist can help you to plan a nutrient... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Elevated uric acid and gout are sometimes caused by Thiamine deficiency. -
Still waiting...
knitty kitty replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@AnneMcM, You're almost to June! Hang in there! I had pain on my right side up under my ribs. Turned out it was my gallbladder. Mention it to your doctor and the doctor doing the endoscopy. They can check the gallbladder while you're under. A poorly functioning gallbladder is not unusual in Celiac Disease. The gallbladder doesn't work... -
Cancer and type 1refractory celiac disease
knitty kitty replied to Rebecca Clayton's topic in Related Issues & Disorders
I think this might be the article ... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Pineapple juice.... Have you looked into Fructose Malabsorption Syndrome? -
Give me all the Giardia information.
knitty kitty replied to Chellalee76's topic in Related Issues & Disorders
@Chellalee76, I'm reposting this here. I answered this question on another thread. Having all the related information in one place is good. "There's some evidence that anti-tTg IgA can be produced during infection with infectious agents, but if the infecting agent is treated the antibodies go away. https://pubmed.ncbi.nlm.nih.gov/33895... -
Transient / Temporary Celiac
knitty kitty replied to Bluewonder's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Chellalee76, There's some evidence that anti-tTg IgA can be produced during infection with infectious agents, but if the infecting agent is treated the antibodies go away. https://pubmed.ncbi.nlm.nih.gov/33895735/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2810390/ Giardiasis is known to interfere with the production... -
Voice problems/ tremors
knitty kitty replied to ellen101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I use Life Extension brand of Benfotiamine, 100 mg or 250 mg. They also make a good B Complex. I use Thiamine Hydrochloride by NOW Foods. This is the common form of thiamine. This form doesn't have the same results as quickly as the other forms of Thiamine, but it helps nonetheless. Ecological Formulas' Allithiamine, a form of thiamine called... -
Voice problems/ tremors
knitty kitty replied to ellen101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, @Dandk! I'm so happy that you are trying Thiamine and seeing improvement! Thiamine needs the other B vitamins to make a variety of enzymes, so taking a B Complex along with B12 and Benfotiamine every day is a good practice. I take my B's at the beginning of a meal, and magnesium after a meal. I take a B Complex in the morning with Benfotiamine... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
It's got thiamine mononitrate which is a form that the body cannot use very well. This one has thiamine hydrochloride which is better. https://shop.shoppersdrugmart.ca/vitamin-b-complex-with-vitamin-c/p/BB_057800840190?variantCode=057800840190 What's in the pineapple juice?