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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@Ericaagl, Thiamax. https://www.objectivenutrients.com/products/thiamax/
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Yes, cut the berries, too. They can be high in fructose. Fructose malabsorption is a thing. Bad bacteria in the intestines ferment the fructose with a by product of gas and bloating. Sweet potatoes are high in fiber. I'm confused and concerned about the dietary information you've given. Liver is full of vitamins, healthy fats and minerals...
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@Ericaagl, Gastroparesis IS a symptom of thiamine deficiency. You shouldn't stop taking vitamins. You should take vitamins that your body needs to heal. Sweet potatoes are considered a vegetable. But your dietician said not to eat vegetables? Not being able to digest meats is symptomatic of low stomach acid which occurs in thiamine...
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I looked at the Piping Rock vitamin website. The ingredients label lists rice powder as one of the "filler" ingredients. You may be reacting to the rice powder. I cannot take vitamins with rice powder. I react to rice. Perhaps you are reacting to the rice powder.
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I would not add eggs just yet. Eggs are high histamine and one of the most common food allergens. Eat low histamine foods. Like root vegetables. Beets and sweet potatoes have thiaminase which destroys thiamine. So does Casava and tapioca. Don't eat those.
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@Ericaagl, Root vegetables...parsnips, turnips, carrots, rutabaga. Coarsely chopped, toss with olive oil, salt and pepper, roast in oven, easy and delicious. Root vegetables with greens (turnip, collards or kale) and a Chuck roast in the crock pot. Try grass fed beef. Some people react to the protein in chicken meat because it resembles gluten...
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@Ericaagl, I think you should stop eating sweet potatoes. Sweet potatoes contain proteins that destroy Thiamine Vitamin B 1. Here is a study done about a dog fed sweet potatoes which developed thiamine deficiency. Thiamine deficiency in a dog associated with exclusive consumption of boiled sweet potato (Ipomoea batatas): Serial changes...
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@Bill K I take Benfotiamine, a fat soluble form of Thiamine Vitamin B 1. I'm Type Two Diabetic, too. Most (up to 90%) diabetics are thiamine deficient. In Diabetes, more thiamine is lost through the kidneys and urine than non-diabetics. The pancreas uses a great deal of thiamine to make insulin. Thiamine helps make digestive enzymes. Thiamine...
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Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, What did you have to eat before the phlegm? -
PAXLOVID
knitty kitty replied to kels35's topic in Gluten-Free Foods, Products, Shopping & Medications
@LisaGayle, Are you going to be our allergen- free medication lobbyist? I can't take sulfa drugs. Maybe you're reacting to the drug itself. -
Symptoms in 20 months child
knitty kitty replied to Papafma's topic in Parents, Friends and Loved Ones of Celiacs
That's great! 😺 -
Wheat straw is used in the manufacturing of some plastic bottles. Wheat straw itself doesn't contain gluten.
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Leg pains that come and go all night
knitty kitty replied to Attanett's topic in Related Issues & Disorders
@cristiana, Yes, definitely. Communicating the sensations and using proper terminology can be a problem for little kids. And even adults. I used to get diabetic neuropathy if my blood glucose levels were too high. It was so bad it kept me awake. There's vitamin deficiency neuropathy, too. https://pubmed.ncbi.nlm.nih.gov/11301568/ -
Still seeking diagnosis
knitty kitty replied to April42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@April42, If your total IgA was low, you would have a false negative on Celiac blood tests. Diabetes and anemia can cause false negatives on Celiac blood tests. I'm Celiac, diabetic, anemic and I have DH. I could not finish a gluten challenge, so I opted for genetic testing through my doctor. I have two genes for Celiac. Have you... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
I make lots of phlegm when I have dairy.... I also bloat like a balloon in Macy's parade.... Yogurt and goat's cheese? Mucosal reactivity to cow's milk protein in coeliac disease "A mucosal inflammatory response similar to that elicited by gluten was produced by Cow Milk protein in about 50% of the patients with coeliac disease. Casein... -
PPI's are not meant for long term use. Have you tried taking a magnesium supplement after meals? Many Over the counter antacids contain magnesium. Not producing enough stomach acid is called Achlorhydria. https://www.ncbi.nlm.nih.gov/books/NBK507793/
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Symptoms in 20 months child
knitty kitty replied to Papafma's topic in Parents, Friends and Loved Ones of Celiacs
@Papafma, What a relief to know! Big sigh of relief! Although, antibiotics work better with Thiamine! Are you giving your son a vitamin supplement since changing from formula? Rice milk formula? Plain rice milk isn't enriched with vitamins. The eight essential B vitamins are water soluble and easily become depleted with diarrhea. ... -
Symptoms in 20 months child
knitty kitty replied to Papafma's topic in Parents, Friends and Loved Ones of Celiacs
@Papafma, Glad to know you'll get the genetic test soon. Thiamine Vitamin B 1 is not routinely tested for. Blood tests for thiamine are not reliable. An Erythrocyte transketolase test would be a better test. It tests how well thiamine is being utilized by the body. Extended diarrhea is a symptom of Gastrointestinal Beriberi, caused by... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, Yeah, the food choices on the menu may say gluten free, but the food is cooked in the same kitchen, on the same grill as gluten foods. Gluteny pancakes may have been cooked on the same grill as your hash browns. Your English muffin may have been toasted in the same toaster as gluteny toast. Unfortunately, it happens. The digestive... -
Symptoms in 20 months child
knitty kitty replied to Papafma's topic in Parents, Friends and Loved Ones of Celiacs
@Papafma, There are two tests DGP IgA and DPG IgG. Have you considered genetic testing? Curious, is your son's voice hoarse? -
Leg pains that come and go all night
knitty kitty replied to Attanett's topic in Related Issues & Disorders
@cristiana, Restless leg syndrome doesn't really involve cramping. It has been linked to B12, iron and thiamine deficiencies. Cramping is a symptom of thiamine and magnesium deficiencies. Thiamine and magnesium need each other to function properly. -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, You have admitted to eating hamburgers and eating out in restaurants. When one stops eating gluten, then eats gluten again, the body's reaction can be a more intense autoimmune reaction than previously. Every time one eats gluten, the antibodies attack, and symptoms flare. I understand about craving carbs. With SIBO, the bacteria... -
@MissTeaMuse, @bookless is correct about Total IgA needing to be checked when testing tTg. Anemia and Diabetes can cause false negatives. A gluten "sensitivity" is like being "a little bit pregnant". A positive is a positive. How high the numbers are on the test doesn't correlate to the severity of damage in the small intestine. Low numbers...
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Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, If you're still having digestive problems, you may want to reconsider the AIP diet. The beans and nuts are high in lectins that can be hard on the digestive system. There are some proteins in some foods that resemble gluten proteins. Casein in dairy, avenging in oats, rice protein, yeast and chicken meat. Are you keeping...