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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Extreme Sleepiness, Weakness and Shakiness?
knitty kitty replied to Ginger38's topic in Related Issues & Disorders
@Ginger38, Gluten free facsimile foods are not allowed on the Autoimmune Protocol Diet (AIP), if you're going to do the AIP diet. Gluten free facsimile foods are not enriched with vitamins and minerals like their gluten containing counterparts. So you basically had a high carbohydrate meal after skipping a previous meal. Skipping meals... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, Benfotiamine. -
Extreme Sleepiness, Weakness and Shakiness?
knitty kitty replied to Ginger38's topic in Related Issues & Disorders
@Ginger38, Are you keeping a food journal? Is there a food that might have been eaten prior to this reaction? Some people have been known to faint when exposed to gluten. Have you eaten a high carbohydrate load before these episodes? Are these episodes related to POTS? Were you physically active beforehand? What other medical... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, That's Thiamine Hydrochloride. Yes, it will help with your symptoms. You may be thinking of Benfotiamine which has been shown to lower inflammation and help heal the intestines... Anti-Inflammatory Effects of Benfotiamine are Mediated Through the Regulation of Arachidonic Acid Pathway in Macrophages https://www.ncbi.nlm... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Here's a link to the National institutes of Health information.... https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/ Use the search bar for other vitamins and minerals... -
Extreme Sleepiness, Weakness and Shakiness?
knitty kitty replied to Ginger38's topic in Related Issues & Disorders
@Ginger38, Have you checked your blood glucose levels during one of these episodes? -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@Liquid lunch, It can be if you take too much. If your stools do start getting loose, cut back on the magnesium citrate. The label should tell you how many to take daily. You do NOT need high doses of magnesium if taking high dose Thiamine. Milk of Magnesia has been used as a laxative for ages. It's magnesium oxide which the body doesn't really... -
So Tired of the Stomach Issues
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
@Ginger38, When recuperating, I would buy a Chuck roast, cut it into small chunks, and freeze it. I would throw a chunk in my small crock pot with carrots or frozen vegetables like okra and let it cook on low all night. By morning, it's very tender and mushy. (Don't use potatoes or corn.) I would eat small amounts throughout the day.... -
@Katie255, Welcome to the forum! Since Celiac Disease is inherited, you could get genetic tests for your family. The level of antibodies does not correlate with the amount of damage in the intestines. High levels are indicative of a strong immune response early on in the development of Celiac. Antibody levels can become lower as the body...
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Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@Liquid lunch, I take Benfotiamine (or Allithiamine) first thing in the morning. It's better than coffee to get my brain going in the morning. Spread the Thiamine HCL three hours apart afterwards throughout the day. Our bodies can absorb about 300 mg in about three hours. Caffeine, coffee, chocolate and black tea can inactivate thiamine... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Thiamine Hydrochloride (HCL) can be used in large doses from 500 to 2000 mg per day. Be sure to increase the dose slowly. Spread smaller doses throughout the day, about every three hours, take with food. Don't take after 5pm or so if insomnia occurs. Sometimes while increasing the dose of Thiamine, a person can experience flu like symptoms, but these... -
@Marianne82, I would get too sick to complete a gluten challenge, so I asked my doctor for a genetic test. It was a simple blood test. Genetic testing for Celiac Disease does NOT require gluten consumption. Celiac Disease is inherited. You have to have the Celiac genes in order to develop Celiac Disease. The most common Celiac genes...
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Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, Have you tried wild rice "manoomin" raised by Native Americans according to traditional methods? Manoomin is NOT related to Asian rice. Manoomin is native to North America. This has been one of the best things I've found to eat. It's gluten free with NO risk of cross contamination if traditional methods are used. https... -
@Ramncats, Metronidazole is a type of antibiotic that destroys Thiamine Vitamin B 1 in the body. Undiagnosed thiamine deficiency and the toxicity of Metronidazole effect ones health. Replacing thiamine improves health even years after being treated. Learn more here.... https://www.hormonesmatter.com/metronidazole-mitochondrial...
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- decreasing ttg
- giardia
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(and 1 more)
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Have you had your Vitamin D level checked? Supplementing Vitamin D until the level is in the eighties nmol/l is important. Vitamin D can act like a hormone and regulate inflammation at that level. Including healthy fats, Omega Threes, is important to joint health. Extra Virgin Olive oil, coconut oil, avocado oil are healthy fat options. Omega Threes...
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So Tired of the Stomach Issues
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
Removing dairy will help reduce inflammation and digestive issues. Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/ "A mucosal inflammatory response similar to that elicited by gluten was produced by CM protein in about 50% of the patients with coeliac disease. Casein, in particular, seems... -
@Ericaagl, I've been in the situation where seemingly everything caused some sort of reaction. I followed the Autoimmune Protocol Diet. I ate small grass fed ground beef patties and a steamed vegetable like carrots, okra, or green beans. I ate very small portions, every two to three hours if hungry. I did not eat sweet potatoes because...
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@LeighENC, This article discusses Hashimoto's and thiamine ... https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/ This article explains how a high carbohydrate diet can deplete thiamine...removing gluten containing carbs would leave more thiamine available for improvement in health conditions like shortness of breath... https...
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Clueless where to start
knitty kitty replied to Marianne82's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Marianne82, I've been in the situation where seemingly everything caused some sort of reaction. I followed the Autoimmune Protocol Diet. I ate small grass fed ground beef patties and a steamed vegetable like carrots, okra, or green beans. I ate very small portions, every two to three hours if hungry. I did not eat sweet potatoes because... -
@Megawisdumb, What have you been eating? Do you keep a food diary? Do you eat processed gluten free foods? Have you tried the Autoimmune Protocol Diet? Do you eat a lot of high histamine foods? Have you been checked for vitamin and mineral deficiencies?
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So Tired of the Stomach Issues
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
@Ginger38, I follow the Autoimmune Protocol Diet (AIP diet). Meats and veggies mostly. The artificial construct of "breakfast foods" can go out the window. Just focus on choosing healthy foods that are nutrient dense. "Eat to live, don't live to eat." Personally, I like liver and onions for breakfast. 😸 -
@Ericaagl, Do look into the Autoimmune Protocol Diet... Choose low histamine foods from the allowed foods. Bone broth and fermented foods are high histamine foods, so I skipped those. Histamine naturally occurs in food. Our bodies make histamine as part of the inflammation process of Celiac Disease. We want to eat low histamine foods to keep...
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Clueless where to start
knitty kitty replied to Marianne82's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Marianne82, Our bodies can absorb about 300 mg of Thiamine in about three hours, so spread your doses out over the course of the day. I usually take mine at the beginning of meals. Yeah, I took a very high dose of Thiamine Hydrochloride (1500 mg) once and got a tummy ache. Taking thiamine with food helps. Sorry that happened to you. Do... -
Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
Allithiamine and Thiamax can get across the blood brain barrier without help. Do try to get your Thiamine up to 500 mg at a minimum. Amazing things happen with higher doses. I read an article the other day that found the SPIKE of Covid actually binds to the Thiamine Transporters blocking Thiamine from entering cells, and causing a functional...