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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    @Bonnie Oxford, This article might be of interest. It explains the importance of vitamins in PCOS. Nutritional deficiencies are common in newly diagnosed Celiacs. A Properly Balanced Reduction Diet and/or Supplementation Solve the Problem with the Deficiency of These Vitamins Soluble in Water in Patients with PCOS https://www.ncbi.nlm.nih...
  2. knitty kitty
    @extreme963, Welcome to the forum! Yes, I've had mental health issues including depression, anxiety, and others. Mine were connected to vitamin and mineral deficiencies that commonly occur in CeD. Anxiety and depression are frequently the first subtle symptoms of vitamin and mineral deficiencies. Vitamin D deficiency is linked to depression...
  3. knitty kitty
    @love2craft, Welcome to the Celiac Club! One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who designed the diet to help herself and her Celiac children. Her diet has been scientifically studied and shown to promote healing in the gastrointestinal tract. The research and works of Dr. Derrick...
  4. knitty kitty
    @Raquel2021, My story and my research is in my blog, linked below. I was misdiagnosed. For a very long time. My doctors were clueless. I depended on what I learned at university. I don't want anyone else to go through what I went through, so now I'm here. Knowledge is power. If you have any questions, I'm very happy to answer...
  5. knitty kitty
    @Snoopy23456, Hello! If it was plain ground beef, there's a slim chance it was contaminated with gluten. What could be happening is that the beef was high in histamine. Steers raised and fattened in crowded feed lots produce more histamine in their bodies because they are under stress. High histamine from dietary intake can exacerbate...
  6. knitty kitty
    @Raquel2021, Thiamine deficiency goes along with Hashimoto's. I stopped losing my hair and felt much better after I supplemented with high dose Thiamine. Here's some interesting articles... https://www.palomahealth.com/learn/benefits-thiamine-hypothyroidism And... https://thyroidpharmacist.com/articles/thiamine-and-thyroid...
  7. knitty kitty
    Could you please post the reference ranges of these tests? Tests from different labs use different reference ranges, so we don't know if your daughter's ranges are high or low. Thanks!
  8. knitty kitty
    Yes, @RMJ, I have the same article stuck to mine as well. Thought it was just me and my old tablet. Sigh of relief!
  9. knitty kitty
    Good point, @Beverage! Lots of us here have that MTHFR mutation and methylated forms of vitamins do work better for us! Thanks!
  10. knitty kitty
    @Acacia Voynar, Oh, Candida and SIBO! I know how miserable that is! For mine, I followed the Autoimmune Protocol Diet (AIP diet) and supplemented with B Complex vitamins and extra (high dose) Thiamine and Riboflavin. The AIP diet is basically meat, vegetables and some fruits. No nightshades (tomatoes, potatoes, peppers and eggplant). No dairy...
  11. knitty kitty
    I like Oolong tea. It's very soothing on the tummy. One can take some extra magnesium, too. Take more B vitamins. They are water soluble and become depleted quickly in diarrhea and vomiting. Thiamine can help relieve the nausea. I think we've all had those moments when we're scrambling and re-reading the package label! You're in good company...
  12. knitty kitty
    The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune cells die off (if not triggered by gluten) in about two years. If exposed to gluten after that, the immune system has to gear up antibody production again. This can take a while. Remember that a gluten challenge is trying...
  13. knitty kitty
    @Acacia Voynar, hello! Nutritional deficiencies are common in Celiac Disease. Correcting nutritional deficiencies is part of proper follow up care. Multiple food intolerance can be caused by histamine intolerance. Too much histamine builds up in the body and has trouble breaking it down due to certain vitamin shortages. B12 Cobalamine and Vitamin...
  14. knitty kitty
    Yes, the one without xantham gum! And some B Complex vitamins! because gluten free products are not required to be enriched with vitamins and minerals like gluten containing products are.
  15. knitty kitty
    @Olfy75, Anemia can cause false negatives on Celiac blood tests. Anemia affects red blood cell production and also white blood cell production. Antibodies (like anti-gluten antibodies) are in the white blood cell classification. And Amitriptyline. Amitriptyline suppresses the immune system. AMITRIPTYLINE USAGE EXACERBATES THE IMMUNE...
  16. knitty kitty
    @Tmiles17, welcome to the forum! Celiac Disease is a disease that causes malabsorption which in turn leads to malnutrition. Our small intestine (where essential vitamins and minerals are absorbed) gets damaged. Since these nutrients are necessary to heal, supplementing with vitamins and minerals can help us heal faster and stay healthy. Anxiety...
  17. knitty kitty
    @Susan F., welcome to the forum! You've done such a good job avoiding gluten, your immune system has calmed down. If you continue to eat gluten, your immune system will rev up again and make your intestinal symptoms worse. The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune...
  18. knitty kitty
    @MominWA, welcome to the forum! Speaking from personal experience, your son's symptoms sound like Gastrointestinal Beriberi. Gastrointestinal Beriberi is caused by a deficiency in Thiamine Vitamin B 1. Abdominal pain, vomiting, gastroparesis, constipation (or diarrhea), fatigue, and dizziness are symptoms. Thiamine deficiency is often precipitated...
  19. knitty kitty
    Welcome to the forum, @JosephJW! You've done such a good job avoiding gluten, your immune system has calmed down. If you continue to eat gluten, your immune system will rev up again and make your intestinal symptoms worse. The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune...
  20. knitty kitty
    @Barcino, Anemia and Diabetes (both types) can cause false negatives on blood tests for CeD. Yes, endoscopies would be a good idea to check for Celiac damage and to get a baseline if symptoms arise in future. There's lots of Celiac symptoms that people can dismiss or attribute to other things. We do have members who weren't diagnosed until seventy...
  21. knitty kitty
    @TinyMiracles, welcome to the forum! Yes, I've experienced trouble swallowing, stuttering, hoarse voice and hearing loss, all symptoms of early Thiamine deficiency. My doctors didn't recognize these symptoms as thiamine deficiency symptoms. High dose Thiamine was the answer. I took high doses (1200 mg) of over the counter Thiamine Hydrochloride...
  22. knitty kitty
    Yes. All-purpose baking flour is right in the middle, gluten-content wise.
  23. knitty kitty
    @trents, you posted earlier... "I don't see any real evidence from your links that leads me to believe gluten content is a deciding factor in what kind of flour that commercial entities use to make various kinds of baked goods. The first article suggests they might consider this but we don't actually know how much of a factor it really is in the commercial...
  24. knitty kitty
    @Stulos, Vitamin D, Vitamin C, B Complex, magnesium and extra Thiamine (Benfotiamine and Thiamine Hydrochloride) will help immensely. Mast cells degranulate (release histamine) easily when there is a deficiency of Thiamine. Taking high dose Thiamine helped me with MCAS. I took Benfotiamine and Thiamine Hydrochloride. I took 1000 mg or more...
  25. knitty kitty
    Several Celiac organizations say 10 grams of gluten should be eaten before testing. If one slice of bread is equivalent to 2 grams, five slices of bread should be consumed to get ten grams. https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ "You will need to eat a three to 10 grams of gluten per day, and two grams is roughly...
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