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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Gluten-free Hydroxychloroquine
knitty kitty replied to movietime's topic in Board/Forum Technical Help
I take Allithiamine, Benfotiamine, and Thiamine Hydrochloride. Ecological Formulas, Life Extension, and Thiamax are some brand names although there are others. Benefits from Thiamine Hydrochloride can be seen at 500-2000 mg. Allithiamine and Benfotiamine are fat soluble (they get into cells easily) and benefits can be seen at lower doses of... -
Hello! Good to hear from you again. I'm glad you got some results back. The pathology report about the biopsies should tell more. While things may look okay with the naked eye, the damage from Celiac can be microscopic. If laid out flat, the intestines cover an area the size of a tennis court. Areas of damage may be patchy or further down out...
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Gluten-free Hydroxychloroquine
knitty kitty replied to movietime's topic in Board/Forum Technical Help
I haven't heard of that, but I'm familiar with thiamine's beneficial effects on mycotoxin production. Have you read this article? Effects of thiamine on growth, aflatoxin production, and aflr gene expression in A.parasiticus https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5490319/ Quoting the conclusion in part... "Based on the obtained... -
Gluten-free Hydroxychloroquine
knitty kitty replied to movietime's topic in Board/Forum Technical Help
@movietime Hydroxychloroquine is one of many pharmaceuticals that shuts down thiamine transporters on cell surfaces, thus causing a functional thiamine deficiency despite normal blood levels of thiamine. Thiamine, Vitamin C and steroids have been used to help Covid patients. This study finds that thiamine and pyridoxine can bind to the... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus Keep us posted on your results! 😸 -
Yes, they'll be fine. How are you doing?
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Celiac or Hashimoto?
knitty kitty replied to Glutton3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Glutton3, These articles are very informative... Nutritional inadequacies of the gluten-free diet in both recently-diagnosed and long-term patients with coeliac disease https://pubmed.ncbi.nlm.nih.gov/23198728/ And... Gluten-Free Diet: Gaps and Needs for a Healthier Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6357014/ ... -
Does your DH change? How do you cope with DH?
knitty kitty replied to Arietti's topic in Dermatitis Herpetiformis
@Arietti, I still miss "a proper cuppa" but my immune system recognizes dairy as gluten. The milk protein casein is similarly shaped the same as gluten, so anti-gluten antigens attack. I have oat milk ice cream and gluten free waffle cones by JOY for my "goodies". Another favorite is dates with dark chocolate. Check out @Maddie6332's... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Eating a clove of garlic a day is good for other reasons, but there's not enough Allithiamine in one or several cloves to work like the Allithiamine and Benfotiamine supplements. -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, Only fresh pineapple has Betaine Hydrochloride. But Betaine Hydrochloride capsules are available over the counter. Betaine Hydrochloride is a digestive enzyme that is helpful for those with low stomach acid. Gerd is a symptom of low stomach acid. -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@Liquid lunch, It's a blessing to me that you and your family are going to try Thiamine! I'm glad you found a link to the Allithiamine. Do be aware that Allithiamine is made from garlic, a member of the Allium family of plants. Sometimes there's an essence of garlic if one takes a very high dose. It's not bothersome to me. It fades away as... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
Breads are a source of vitamins that may have helped your brain function. But the inflammation and long term damage it causes in Celiacs isn't worth it. That's why taking essential vitamins and minerals when you go gluten free is important, especially while healing. Even people who have been on the gluten free diet for a long time can develop... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, In a way, yes. Thiamine and other vitamins are needed to make digestive enzymes, enzymes that break down complex carbohydrates into simple sugars like glucose. The heavier the carbohydrate load, the more Thiamine is required. Glucose can go through the intestinal wall and get into the blood stream. In the brain, glucose stimulates... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, I'm glad you found it! Yes, any thiamine will help heal. Benfotiamine has been studied and shown to heal the intestinal tract. Benfotiamine can enter cells easily without going through the Thiamine transporters (doorways). Thiamine Hydrochloride has to go through the transporters to get into the cells. If there's a high... -
BEST Gluten free food😋
knitty kitty replied to Maddie6332's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi, @Maddie6332! These are my favorite cookies right now...they have oats, so beware if you are sensitive to oats. https://partakefoods.com/products/birthday-cake-cookies P.S. Unfortunately, I haven't had time to try your recipe for Chocolate Chip Pumpkin Muffins yet. But I have all the ingredients waiting! I'm looking forward to making... -
Celiac or Hashimoto?
knitty kitty replied to Glutton3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Glutton3, I like this article, written by a doctor with Hashimoto's, explaining how Thiamine (Vitamin B 1) can manifest as Hashimoto's. Thiamine is the vitamin that we can run out of quickly because we don't eat enough, can't absorb enough, or use up quickly like when we're stressed emotionally or physically. https://thyroidpharmacist.com... -
Feeling Overwhelmed
knitty kitty replied to Jackland79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Jackland79, I don't want to contradict your doctor's orders. I think clarification from the specialist doing the endoscopy is needed. If your doctor has let the specialist know it was recommended that you immediately start the gluten free diet, the specialist should take into account the amount of healing done in the gluten free time period. Your... -
Overwhelmed
knitty kitty replied to Xsmama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Xsmama, I understand how frustrating the diagnosis process is. Your doctors are correct in telling you to continue the gluten containing diet until the endoscopy. Healing in the small intestine can take place rapidly once gluten is removed. While some damage is visible without a microscope, the doctors need to take samples of the small intestine... -
Feeling Overwhelmed
knitty kitty replied to Jackland79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Jackland79, Welcome to the forum! Sorry you're feeling so poorly. Yes, a Celiac diagnosis can be disorienting. One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself. She developed the Autoimmune Protocol Diet which has been scientifically shown to promote healing in the gastrointestinal tract. Here... -
@Sally Walker, That's good to know! I have Hypersensitivity type four to sulfa drugs and iodide. @MADMOM is correct about nightshades being inflammatory. Vitamin B12 and Vitamin C help calm inflammation and clear histamine. Lots of histamine is produced during flare ups as part of the autoimmune response. Niacin will help, too...
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Does your DH change? How do you cope with DH?
knitty kitty replied to Arietti's topic in Dermatitis Herpetiformis
@Arietti, Yeah! You figured out how to post! 😺 My DH gets really puffy and blister-y looking if I've had both dairy and gluten. If I just get glutened, it's smaller, drier bumps. Are you keeping a food journal? It can help pinpoint problematic foods. Be sure to note any symptoms afterwards (including changes in bowel movements as we... -
Feels like I can’t eat anything
knitty kitty replied to SargeMaximus's topic in Related Issues & Disorders
@SargeMaximus, Here's the link.... https://www.vitamart.ca/now-b-1-100mg @trents it does look like prices are higher if one doesn't have "prime". -
thoughts on juicing?
knitty kitty replied to LaLeoLoca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@LaLeoLoca, Not my intention at all. I've seen your posts on other threads mentioning many different illnesses. It breaks my heart to see people suffer. I know what it feels like. I've been there. I became a Microbiologist to find answers. I came to the forum to share what I've learned so others don't have to suffer like I did. God... -
Does your DH change? How do you cope with DH?
knitty kitty replied to Arietti's topic in Dermatitis Herpetiformis
@Arietti, Yes, I have DH and sometimes it's not symmetrical. Yes, sometimes my outbreaks are different. I've had DH blisters happen on my left leg. I sleep on my left side (for good digestion) and have woken up with a stripe of blisters down one leg. It might have been a seam down the leg in my pajamas.... DH is pressure sensitive. It...