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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @SargeMaximus, I'm sorry you're having problems with your phone. On WalMart.ca do a search for NOW brand thiamine hydrochloride. You can also do a search for benfotiamine. https://www.vitamart.ca/new-roots-benfotiamine-active-vitamin-b1-150mg And... https://www.vitamart.ca/now-b-1-100mg
  2. knitty kitty
    @Sally Walker, Welcome to the forum! I get DH rash if I'm exposed to iodine in foods like crustaceans and seafood, and nori (seaweed). Even dairy has high levels of iodine. I use Pink Himalayan Salt, because I react to sea salt and iodized salt. Check your vitamins labels to see if they have added iodide components. Some prescription medications...
  3. knitty kitty
    @sandree33, My heart goes out to you. I would get too ill to complete a gluten challenge, so the doctor did a genetic test. I have two genes for Celiac Disease. With a positive DNA test and my reactions on and off gluten, the doctor made a diagnosis of Celiac Disease. You have had a DNA test. See... HLA-DBQ1 allelle 1 0201 - HLA-DBW1...
  4. knitty kitty
    Thiamine Hydrochloride "Now Foods" brand. 100 mg tablets 100 tablets $4.99 at Walmart and $9 at vitamart https://www.vitamart.ca/now-b-1-100mg Benfotiamine $19.99 https://www.vitamart.ca/new-roots-benfotiamine-active-vitamin-b1-150mg I hope you can find Benfotiamine at a store near you.
  5. knitty kitty
    I'm sorry about the price. I'm surprised you could not get the plain Thiamine Hydrochloride at a drugs store or a nutrition/sports health/health food store. I'm glad your doctor is doing more investigation. Keep us posted on the results!
  6. knitty kitty
    Can you shop online? Amazon.ca or Amazon Global?
  7. knitty kitty
    No thiamine hydrochloride is the thiamine salt. Ask your pharmacist if Benfotiamine and Thiamax can be ordered through the pharmacy.
  8. knitty kitty
    @Jenniferxgfx, I apologize if you felt bullied. That's the last thing I would want to do to anyone. I've lived through Thiamine deficiency and POTS. I'm enthusiastic about sharing what I have learned. I just want to leave these articles here for future readers. Thiamine Deficiency Causes Intracellular Potassium Wasting https...
  9. knitty kitty
    Isn't Thiamine Hydrochloride available at a pharmacy?
  10. knitty kitty
    Something I learned at university.
  11. knitty kitty
    @Jenniferxgfx, I took a multivitamin, but I still ended up deficient in Thiamine Vitamin B 1. It wasn't until I started taking high dose Thiamine that my health improved. Every cell uses Thiamine to make energy so our bodies can function properly. When we're under emotional stress, and physical stress (like fighting Covid or another infection...
  12. knitty kitty
    Get the Benfotiamine. Benfotiamine has been shown to promote healing in the intestines. 😺
  13. knitty kitty
    Any one of them or all of them. They are all Thiamine. Because Benfotiamine and Allithiamine can get into cells without going through the Thiamine transporters, you don't need to take as high a dose as Thiamine Hydrochloride. Thiamine Hydrochloride works just fine. It's what I tried first because I didn't know about the other forms. I...
  14. knitty kitty
    @Jenniferxgfx, POTS has been linked to vitamin deficiencies, B12, and especially Thiamine Vitamin B 1. Fighting an infection like Covid can deplete thiamine in the body. Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study https://www.ncbi.nlm.nih.gov/pmc...
  15. knitty kitty
    @SargeMaximus, Here's the kind I bought...looks like the price went up... https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets Thiamine Mononitrate is not bioavailable. Thiamine Mononitrate is put into foods and vitamins because it has a long shelf life. It has a long shelf life because it doesn't react with other...
  16. knitty kitty
    @Seethefacts, If you were taking vitamins at the time you had your vitamin levels checked, your blood tests would not be accurate. Your blood tests would have picked up on the vitamins you were taking. Blood levels for vitamins are not an accurate measurement of the amount of vitamins stored inside cells. Blood levels can reflect how much of that...
  17. knitty kitty
    @SargeMaximus, Salting, smoking or curing can inactivate thiamine. So if you're eating sausages, bacon and hams, you're not getting enough thiamine. Caffeine in soda pop, coffee and black tea will also inactivate thiamine. Sweet potatoes contain thiaminase, an enzyme that breaks thiamine down so it doesn't work. If you've got Small...
  18. knitty kitty
    Hypoallergenic and Physicochemical Properties of the A2 β-Casein Fractionof Goat Milk https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5932946/ Comparative Analysis of the Protein Composition of Goat Milk from French Alpine, Nubian, and Creole Breeds and Holstein Friesian Cow Milk: Implications for Early Infant Nutrition https://www.ncbi....
  19. knitty kitty
    @LaLeoLoca, Do keep us posted on your progress! I'm so glad you're feeling better!
  20. knitty kitty
    @SargeMaximus, Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? Constipation is an early symptom of Thiamine insufficiency. Thiamine is needed to turn carbohydrates into energy. The more carbohydrates you include in your diet, the more Thiamine is needed. https://www.ncbi.nlm...
  21. knitty kitty
    @Rogol72, You're right! All kinds of milk have them! I found this interesting.... Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8345738/
  22. knitty kitty
    @Jnapier, How about doing a genetic test to see if you have any genes for Celiac Disease? It's noninvasive, and you don't have to consume gluten. Having genes for Celiac Disease does not mean that you have active Celiac Disease. Having Celiac genes means that you have the potential to develop Celiac Disease. If you do have Celiac...
  23. knitty kitty
    High dose Thiamine is 500 - 2000mg per day for several months. Thiamine Hydrochloride, Benfotiamine, Allithiamine and Thiamax (TTFD forms) can be used in high dose Thiamine supplementation. There can be a "normal level" in blood work, but that level may reflect how much thiamine recently consumed in meals in the previous twenty-four hours. ...
  24. knitty kitty
    @VeronicaTheCeliac, How are you doing? I hope you're feeling better. How disappointing to realize you've been glutened halfway through! We've all realised a smidge too late.... Things I do to help when I get glutened.... Stay hydrated! Try not to drink sodas, coffee and black teas. These have caffeine and can act as diuretics and may...
  25. knitty kitty
    @Jenniferxgfx, Why are you in such need for electrolytes? You mentioned in another post you are on medication for tachycardia? How long have you been on this medication? How long have you been using these electrolyte products? You mentioned fibromyalgia, too. Any other symptoms?
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