Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,336

  • Joined

  • Last visited

  • Days Won

    165

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Patricia Hubbard, I do hope your doctors will at least try the IV thiamine, if for no other reason than to rule it out. Refeeding Syndrome is a concern since you are so emaciated. In Refeeding Syndrome, electrolytes and minerals may become unbalanced. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440847/ Thiamine is safe and nontoxic...
  2. knitty kitty
    Welcome to the forum, @Gary Hamilton! I've had problems with swollen lymph nodes in my neck. My lymph nodes have shrunk and don't hurt since I started supplementing with high dose Thiamine. This explains.... http://www.hormonesmatter.com/recurrent-fever-swollen-glands-febrile-lymphadenopathy-thiamine/ Shortness of breath (sailors'...
  3. knitty kitty
    Welcome to the forum, @Marissa221! Keeping a food/mood/poo'd journal can help you pinpoint problematic foods. You also need to look at how much carbohydrates you are eating. Eating too many carbohydrates can feed bacteria in the gastrointestinal tract causing them to grow out of the large intestine where they belong and into the small intestine...
  4. knitty kitty
    @Patricia Hubbard, Welcome to the forum. I'm sorry you're feeling so poorly. Symptoms you mentioned that caught my attention include nausea, fatigue, unintentional weight loss, loss of appetite. These are all symptoms I experienced when I had thiamine deficiency prior to my Celiac diagnosis. Doctors don't usually think of thiamine deficiency...
  5. knitty kitty
    @grossi, Welcome to the forum! Thiamine deficiency can cause those symptoms. Thiamine is Vitamin B 1. Vitamin D and Vitamin B12 are the only vitamins frequently tested for. Vitamins like Thiamine are used inside cells and organs. Blood tests can't measure vitamins inside cells. Blood tests can reflect how much of a vitamin you've eaten...
  6. knitty kitty
    @DissyLissyBissy, I know EDS and Celiac are genetic. If you have EDS, you have a higher risk of Celiac Disease. https://pubmed.ncbi.nlm.nih.gov/27321543/ However, before going whole hog on the ADHD diagnosis, correct your vitamin deficiencies! Deficiencies in B Complex vitamins can give symptoms of ADHD. There are eight essential...
  7. knitty kitty
    @cristiana, I had no idea you experience this, too! I've used special polarized computer filters, polarized lenses, blue light filtering glasses. Vision fades or those sparkly lights happen when I do needlework, as well, if I'm hyperfocused on threading a needle or knitting a complicated lace pattern. My ophthalmologist said it was overstimulation...
  8. knitty kitty
    @Janmac, Thiamine is a vitamin that helps if you have migraines. People with Celiac Disease have problems absorbing enough vitamins from their food. The gluten free diet can be low in vitamins and minerals. If you take vitamin supplements, you can ensure you're getting all the vitamins your body needs to get and stay healthy. Supplementing...
  9. knitty kitty
    Hello. I've suffered from migraines with aura since childhood, too. My migraines have pretty much stopped since supplementing with high dose Thiamine. I still get ophthalmic migraines triggered by computer screens, digital tv screens, phone screens. My optic nerve shuts down and I lose my vision. So, forgive me for being brief. High dose Thiamine...
  10. knitty kitty
    I experienced immediate improvement with high dose Thiamine. Thiamine is one of the eight essential B vitamins. They all work together, so taking a B Complex is beneficial. We cannot make these B vitamins in our bodies, so we need to get them in foods or supplements. Taking supplements ensures our bodies have plenty available for absorption while our...
  11. knitty kitty
    @YoloGx, Yes, I had histamine intolerance, too, when doing the Autoimmune Protocol Diet, so I skipped the high histamine bone broth and fermented foods. I skipped the kefir, too, due to casein allergy. How does the AIP diet without the high histamine foods differ from the Cave man diet? The AIP diet cuts out sugar and all grains. Vitamins...
  12. knitty kitty
    @YoloGx, Welcome to the forum! I followed the Autoimmune Protocol Diet and found more health improvements than when I followed the Low fodmap diet. https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet Dr. Sarah Ballantyne, herself a Celiac, developed the diet for herself and her Celiac family. scientific studies have...
  13. knitty kitty
    @Megawisdumb, DH is made worse when we've been exposed to iodide, as in iodized salt, sea salt, seafood, kelp, algae, nori, and dairy. Yes, dairy has lots of iodide in it. I switched to Pink Himalayan salt and eliminated dairy, and my DH has gotten much better. I followed the Autoimmune Protocol Diet which has been shown to promote healing...
  14. knitty kitty
    @Beverley Ann Johnson, Yes, I used to have to deal with both. I supplemented with high dose Thiamine, and a B Complex and Vitamin D and magnesium. High Dose Thiamine helped the most. Thiamine is needed to run those automatic processes like digestion, sphincter muscle control, and waste removal. It's also needed to regulate our internal...
  15. knitty kitty
    I'm not familiar with nerve conduction tests. Testing for Thiamine is going to reflect supplementation. I don't know what to tell you. You could try bumping up the thiamine a little, see if that helps.
  16. knitty kitty
    @Evan0529, Yes, some of us on here have reported a vibrating, buzzing sensation. I've had the feeling so bad I had shaky hands, dropping things. I get gluten ataxia really bad, too. There's some people that produce tTg 6 antibodies in addition to tTg 2 antibodies (which is tested for in common Celiac tests) in response to gluten. This tTg...
  17. knitty kitty
    @Maddie6332, Maybe a lower temperature then! Lol! Learning to cook is so much fun! Keep experimenting! We Celiacs need a nationwide chain of gluten free restaurants! I love to hear about your cooking... Keep a journal or blog of successful recipes and disasters.
  18. knitty kitty
    @Gilly M, Thought you would be interested in some articles about Thiamine (Vitamin B1) and athletic performance. I know you said you were taking a B Complex, but high dose Thiamine is needed when there's an insufficiency/deficiency. You have to remember that gluten based products have vitamins added in to replace those lost in processing...
  19. knitty kitty
    Thiamine supplementation will help this "air hunger" . It's known as "sailors' asthma" because sailors used to get thiamine deficiency at sea without fresh meat. Thiamine Hydrochloride supplements will help. So will Allithiamine, so called because it is derived from plants in the Alum family, onions and garlic. Benfotiamine will also help.
  20. knitty kitty
    @Bobs1234, Welcome to the forum! Have you considered asking your doctor for a genetic test for the most common Celiac genes? You don't have to be eating gluten for that because your genes don't change. Having the genes shows you have a propensity to develop Celiac Disease. It's not a confirmation of active Celiac Disease, but could help your...
  21. knitty kitty
    @SadFace, Welcome to the forum! I had difficulty swallowing prior to my diagnosis. I was deficient in Vitamin B1 Thiamine. Thiamine deficiency can get really nasty and doctors don't recognize thiamine deficiency symptoms outside of alcoholism, so I suggest you talk to your doctor soon about supplementing with thiamine, by IV or by over the...
  22. knitty kitty
    @Evan0529, I've been taking 250 mg benfotiamine with 50 mg thiamine hydrochloride in each capsule at three meals. I also take 100 mg Thiamax twice a day. I've been taking this combination for years. https://www.objectivenutrients.com/products/thiamax/ Elliot Overton is a follower of Dr. Lonsdale and markets Thiamax. I feel uncomfortable...
  23. knitty kitty
    Welcome to the forum! Unfortunately, doctors are not as knowledgeable about Celiac Disease as we would like. But your doctor is going to check for nutritional deficiencies, which is a point in her favor. You might request a referral to a nutritionist. Their dismissive attitude can be because they don't have a clue what it's really like to experience...
  24. knitty kitty
    @Rogol72, I read a research paper that studied the Vitamin D levels in Pacific Islanders living traditionally. Their Vitamin D levels were between 80 and 125. So, you're in the right ballpark!
  25. knitty kitty
    @Jillebjill, Welcome to the forum! I have Celiac Disease and Type Two Diabetes. I follow the Autoimmune Protocol Diet. Here's a good summary... https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet Yes, my glucose levels do go up if I eat carbohydrates, so I have to pay attention to portion size and frequency. ...
×
×
  • Create New...