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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Maddie6332, Would you share the recipe? Chocolate chip muffins sound really good this time of year. Which kind of flour substitute or mix do you use? I used to make gluteny chocolate chip pumpkin cookies when I was a little critter and didn't know I had Celiac. I wonder if you could come up with chocolate chip pumpkin muffins for...
  2. knitty kitty
    @cnazrael89, Thank you so much! I love to hear about successful experiences! I did not realize you were having such symptoms! Not a doctor, not diagnosing, but those symptoms are definitely seen in Thiamine deficiency! If you start having the tachycardia, low blood pressure, etc., go to Urgent care and ask for an IV of thiamine (probably...
  3. knitty kitty
    @JenniK, you are on the right track.... Environmental factors such as chemically contaminated water, water and air pollution, can influence our health. Researchers like Dr. Derrick Lonsdale and Dr. Chandler Marrs have found that Thiamine plays an integral part in illness. Visit their site... https://www.hormonesmatter.com/thiamine-deficiency...
  4. knitty kitty
    @Liam R, I agree. It's been a hard road to get diagnosed, and an up hill journey every day to stay healthy. (Read my blog for research articles and my story.) I'm here because I couldn't let others stumble around blindly going through what I went through. Doctors don't have to live with Celiac like we do. They're in the bleachers...
  5. knitty kitty
    Hi, @Liam R! I understand what you are going through. If you understand how your immune system works, you'll understand better what's happening in your body. Antibody producing cells are constantly making random antibodies, sort of like spitting out random number combinations for a lottery. When an antibody meets "something" floating in our...
  6. knitty kitty
    Keep us posted on how that works for you!
  7. knitty kitty
    Here's another study that finds in combination with other vitamins, Vitamin D can lower mortality risk in severe illness. Note: publication date was before Covid. This combination was used in ICUs during Covid. Vitamin therapy in critically ill patients: focus on thiamine, vitamin C, and vitamin D https://www.ncbi.nlm.nih.gov/pmc...
  8. knitty kitty
    Rah! Rah! Rah! You figured it out! We're all rooting for you! Yes, easy to get impatient, but healing does take time. I can't go into seafood restaurants because the boiled shrimp and all triggers my shellfish allergy. Same with bakeries triggering a gluten reaction.
  9. knitty kitty
    @Elisec5678, hello! Why are drinking so much water? Are you on diuretics? Diabetic? What do you include in your diet? Keeping a food journal can help pinpoint problematic foods. Mast Cell Activation Syndrome and Histamine Intolerance frequently occur in Celiac Disease. Have you been checked for vitamin and mineral deficiencies...
  10. knitty kitty
    AFib can be caused by a deficiency in magnesium or a deficiency in Thiamine Vitamin B1. Have you been checked for these? Some medications cause certain vitamin deficiencies. Are you taking any other medications?
  11. knitty kitty
    When we remove gluten containing products from our diet, we also remove the vitamins and minerals the gluten containing products were enriched with. Gluten containing products are required by law to be enriched with vitamins and minerals lost in processing. Gluten free facsimile foods are not required to be enriched with vitamins and minerals. Supplementing...
  12. knitty kitty
    Yes, I have. I followed the Autoimmune Protocol Diet (AIP diet) and noticed improvement within a few weeks. https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet Low fructose fruits or fruits with an equal ratio of glucose to fructose are allowed, like dates. I also take Benfotiamine, a form of thiamine that can easily enter...
  13. knitty kitty
    It's rare to have a deficiency in just one vitamin or mineral. A good B Complex, Vitamin C, and magnesium and extra thiamine in the form of benfotiamine would be beneficial along with the Vitamin D. Thiamine has anti-viral properties! Thiamine is used to fight Covid. Recurring infections are indicative of Thiamine deficiency. Benfotiamine is a...
  14. knitty kitty
    @DeannaM, Riboflavin helps with migraines. I used to suffer from debilitating migraines, but I have supplemented with Riboflavin and I rarely get them anymore like I used to. I do get ophthalmic migraines that are triggered by computer screen usage. My optic nerve shuts down and my vision blacks out. Optic nerve damage that was due to unrecognized...
  15. knitty kitty
    Correction of vitamin and mineral deficiencies caused by malabsorption due to Celiac Disease could help alleviate your neuropathy. Early symptoms of Thiamine deficiency Vitamin B 1 include neuropathy. Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ And... Nutritional Neuropathies ...
  16. knitty kitty
    @Sara lombardi-thorman, Which medications are you taking or trying to ascertain if they are gluten free?
  17. knitty kitty
    Yes, @trents, we need to make people aware that things like anemia and elevated liver enzymes and swollen achy joints and diabetes and hashimoto's thyroiditis and infertility and any of three hundred other symptoms can be indicative of Celiac. Celiac is not always a straight forward disease. Some people suffer for years from various health problems...
  18. knitty kitty
    @miguel54b, I've often had to be my own guinea pig or lab rat. @trents, "Silent" Celiacs have posted on the forum that some of the things they took as "normal" improved or disappeared after going gluten free. Some doctors and patients don't connect certain symptoms with Celiac Disease.
  19. knitty kitty
    @cnazrael89, I agree that you probably have Celiac Disease. Do get checked for vitamin and mineral deficiencies. Be careful with omeprazole. PPI's like omeprazole can cause continuing inflammation. Usually Gerd symptoms are caused by an underproduction of stomach acid. Omeprazole inhibits stomach acid secretions causing poor digestion...
  20. knitty kitty
    @Hdfrancis1, Thanks for sharing! I'm lactose intolerant, too, and I react to casein as well. Gabapentin also has sodium lauryl sulfate in it! I've had to eliminate sodium laurel sulfate containing items like toothpaste, soaps and shampoos because I have sulfite hypersensitivity. Knowledge is power!
  21. knitty kitty
    You're very welcome. Yes, it is frustrating that doctors don't realize that Celiac Disease can cause other symptoms besides gastrointestinal ones, over three hundred! I take Benfotiamine, a form of thiamine that has been scientifically proven to be helpful in diabetes. I also take Thiamax, a form of thiamine that helps with neurological problems...
  22. knitty kitty
    Welcome to the forum! Could you give us a better idea of what you are eating? Are you eating out at restaurants and possibly getting cross contaminated? Is your diet heavy on carbohydrates? Have you been checked for vitamin and mineral deficiencies? Celiac Disease damages the small intestine where vitamins and minerals are absorbed...
  23. knitty kitty
    @AIW, Angular cheilitis can be caused by deficiencies in Riboflavin Vitamin B2, Pyridoxine B6, Niacin B3, Cobalamine B12, and/or iron. People who have type one or type two diabetes are notoriously low in Thiamine Vitamin B1. People with Hashimoto's are also deficient in Thiamine. My thyroid problems have improved with Thiamine. People...
  24. knitty kitty
    Yes, B12 deficiency, copper deficiency, zinc deficiency, and thiamine deficiency can cause grey hair.
  25. knitty kitty
    @DeannaM, I believe you will be interested in this case study of two children, one that drank lots of isotonic drinks (like the Gatorade and Pedialyte you are drinking) and one that had a limited diet due to allergies (and nutritional deficiencies as also occurs in Celiac Disease). https://www.sciencedirect.com/science/article/abs/pii/S03877604...
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